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Non-standard Ibrance schedule
Hi everyone, Great forum and so happy I found it! I was diagnosed with MBC in my liver last summer, 19+ years after initial diagnosis Stage IIB, bilateral mastectomy, chemo, and radiation. WTF??? I had surgery to remove tumor and have no other mets that they can find . Anyway, started Ibrance in October
Hi everyone, Great forum and so happy I found it! I was diagnosed with MBC in my liver last summer, 19+ years after initial diagnosis Stage IIB, bilateral mastectomy, chemo, and radiation. WTF??? I had surgery to remove tumor and have no other mets that they can find . Anyway, started Ibrance in October
MoUtOrWaNc
in
SHARE Metastatic Breast Cancer
3 years ago
PARP inhibitors
Dear Friends, I was first diagnosed with breast cancer in 2004. I am brca1 positive. Initially I had double mastectomy and did well until 2016 when I had metastasis to axillilary lymph nodes and left lung. Had full course of ACT, radiation and more lymph node dissection. Have been on xeloda, capacetabine
Dear Friends, I was first diagnosed with breast cancer in 2004. I am brca1 positive. Initially I had double mastectomy and did well until 2016 when I had metastasis to axillilary lymph nodes and left lung. Had full course of ACT, radiation and more lymph node dissection. Have been on xeloda, capacetabine
Sejj
in
SHARE Breast Cancer Support
3 years ago
Help convincing surgeon
When I was officially diagnosed in sept 2019 with breast cancer ER negative HER2 positive and positive nodes. I had 4 months neojuvent chemo then due to lockdown had left breast and lymph nodes removed. This followed by a further 10 months of chemo and 20 sessions of radiotherapy. I know they removed
When I was officially diagnosed in sept 2019 with breast cancer ER negative HER2 positive and positive nodes. I had 4 months neojuvent chemo then due to lockdown had left breast and lymph nodes removed. This followed by a further 10 months of chemo and 20 sessions of radiotherapy. I know they removed
Corfu7
in
My Breast Cancer Community
3 years ago
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Getting a Diep flap
Hi there..I'm about to get a Diep flap in a few weeks..and am a bit worried about it..because I do a very physical and demanding job and am a single parent..I'm worried will I get my stomach muscles back after surgery..they doctor never really give you a straight answer..its delayed surgery as I had
Hi there..I'm about to get a Diep flap in a few weeks..and am a bit worried about it..because I do a very physical and demanding job and am a single parent..I'm worried will I get my stomach muscles back after surgery..they doctor never really give you a straight answer..its delayed surgery as I had
Redhill88
in
SHARE Breast Cancer Support
3 years ago
High grade dcis advice
Recently diagnosed with high grade DCIS in right breast. Yet to receive results rom second biopsy so don't know how widespread it is. Is there anything you wishyou'd known when deciding on lumpectomy v's mastectomy?
Recently diagnosed with high grade DCIS in right breast. Yet to receive results rom second biopsy so don't know how widespread it is. Is there anything you wishyou'd known when deciding on lumpectomy v's mastectomy?
Narwhal7
in
My Breast Cancer Community
3 years ago
Mastectomy update
Hi ladies, just going to give you a quick update. Had my mastectomy 2 weeks ago and am feeling great. Saw surgeon yesterday who advised of 6 nodes they removed 1 was affected, disease was ductal not vascular and the 7cm monster had been incinerated yayyyy. So pleased I had it done and as long as remain
Hi ladies, just going to give you a quick update. Had my mastectomy 2 weeks ago and am feeling great. Saw surgeon yesterday who advised of 6 nodes they removed 1 was affected, disease was ductal not vascular and the 7cm monster had been incinerated yayyyy. So pleased I had it done and as long as remain
Archiedog
in
SHARE Metastatic Breast Cancer
3 years ago
Who else was shocked!!
I'm new here but thought I would add me current experience with MBC. I was diagnosed with BC back in 2014, had a mastectomy and only had to take Letrozole for 5 years. I thought it was a fluke and thought nothing more about it. Well, low and behold it is back!! I thought I had pulled a muscle from
I'm new here but thought I would add me current experience with MBC. I was diagnosed with BC back in 2014, had a mastectomy and only had to take Letrozole for 5 years. I thought it was a fluke and thought nothing more about it. Well, low and behold it is back!! I thought I had pulled a muscle from
peggylz
in
SHARE Metastatic Breast Cancer
3 years ago
Rash
My hand started to ache one evening then the next evening I found a rash on my arm which has secondary lymphoedema I immediately thought cellulitis and started antibiotics, but I never had fever or went downhill as on other occasions. My question is, is this grumbling cellulitis?Or no infection and just
My hand started to ache one evening then the next evening I found a rash on my arm which has secondary lymphoedema I immediately thought cellulitis and started antibiotics, but I never had fever or went downhill as on other occasions. My question is, is this grumbling cellulitis?Or no infection and just
ameliapond
in
LSN
3 years ago
Intermittent diarhoea
After gall bladder removal in 2017, have suffered with diarrhoea. Had endoscopy, bowel scan and stomach scans. Some diverticulitis was diagnosed with bowel scan. Have tried Fodmap diet and discarded gluten, lactose, caffeine, red meat and spicy foods. Do have periods of normal bowel function
After gall bladder removal in 2017, have suffered with diarrhoea. Had endoscopy, bowel scan and stomach scans. Some diverticulitis was diagnosed with bowel scan. Have tried Fodmap diet and discarded gluten, lactose, caffeine, red meat and spicy foods. Do have periods of normal bowel function
Dianapmr
in
Pelvic Pain Support Network
3 years ago
Advice needed
My Aunt had a mastectomy 4 years ago, she recently developed horrible weeping areas on the scar & a rash. The oncologist says it’s breast cancer cells but not melanoma. She has been having hormone injections for it but the area is spreading. Has anyone else experienced this & if so what was the best
My Aunt had a mastectomy 4 years ago, she recently developed horrible weeping areas on the scar & a rash. The oncologist says it’s breast cancer cells but not melanoma. She has been having hormone injections for it but the area is spreading. Has anyone else experienced this & if so what was the best
KT22
in
My Breast Cancer Community
3 years ago
Triple negative breast cancer with bone only mets
Anyone else out there with TNBC and oligometastatic bone Mets? What treatment did you get? I had 3 x stereotactic radiation and now nothing. Doctor says I have no “measurable disease “ so not eligible for any trials. Originally had 4 x TC chemo + double mastectomy and then 6 x gemcitabine + carboplatin
Anyone else out there with TNBC and oligometastatic bone Mets? What treatment did you get? I had 3 x stereotactic radiation and now nothing. Doctor says I have no “measurable disease “ so not eligible for any trials. Originally had 4 x TC chemo + double mastectomy and then 6 x gemcitabine + carboplatin
Sadie321
in
SHARE Metastatic Breast Cancer
3 years ago
Lymphodoema in torso
Appear to have lymphodoema in my torso following diep flap & mastectomy surgery three years ago (as well as mildly in my arm). To have it in your torso (above bikini line) seems very unusual, does anyone else have this?
Appear to have lymphodoema in my torso following diep flap & mastectomy surgery three years ago (as well as mildly in my arm). To have it in your torso (above bikini line) seems very unusual, does anyone else have this?
Savagebread
in
LSN
3 years ago
alcohol and hair colouring
Hi there, I'm asking a couple of questions on behalf of my wife who has just been re diagnosed with cancer, 4 years after a mastectomy. She's been put on fulvestrant and paleociclib and wanted to know if a) she can still get her hair coloured and b) what's the groups advice on alcohol consumption. It's
Hi there, I'm asking a couple of questions on behalf of my wife who has just been re diagnosed with cancer, 4 years after a mastectomy. She's been put on fulvestrant and paleociclib and wanted to know if a) she can still get her hair coloured and b) what's the groups advice on alcohol consumption. It's
scousehusband
in
SHARE Metastatic Breast Cancer
3 years ago
Treatment plan after Bladder tumours removal
Another consultant he has seen is of the opinion of radical
cystectomy
! I am confused and not sure if we take this slow with BCG first before considering surgery. Any suggestions/experiences would be great. Kind regards, M
Another consultant he has seen is of the opinion of radical
cystectomy
! I am confused and not sure if we take this slow with BCG first before considering surgery. Any suggestions/experiences would be great. Kind regards, M
morsh
in
Fight Bladder Cancer
3 years ago
Mirena coil vs. Progesterone Only Pill?
Hello All I am after some advice. I have not long been diagnosed with stage 4 endometriosis, adenomyosis, two endometriomas on left ovary (left ovary tethered to the bowel) and 4cm, 4 cm x 3cm complex cyst on right ovary, polyp in uterus and a retroverted uterus. I am due to have laposcropy surgery in
Hello All I am after some advice. I have not long been diagnosed with stage 4 endometriosis, adenomyosis, two endometriomas on left ovary (left ovary tethered to the bowel) and 4cm, 4 cm x 3cm complex cyst on right ovary, polyp in uterus and a retroverted uterus. I am due to have laposcropy surgery in
Cbeebie78
in
Endometriosis UK
3 years ago
Does having an Endometrioma mean I have Endometriosis?
I had a laparoscopy, ovarian
cystectomy
and a myomectomy to remove a fibroid. Just received the results to say after biopsy the 7.5cm cyst was in fact an endometrioma . No other evidence of endometriosis. Does this mean I have endometriosis which has now been removed? Could it come back?
I had a laparoscopy, ovarian
cystectomy
and a myomectomy to remove a fibroid. Just received the results to say after biopsy the 7.5cm cyst was in fact an endometrioma . No other evidence of endometriosis. Does this mean I have endometriosis which has now been removed? Could it come back?
TTC2021
in
Endometriosis UK
3 years ago
Mastectomy or not?
Hi all, this is my first post. Have had OC for 19 months and I have also tested positive for the brca 2 gene. I think that I want to go for a preventative double mastectomy but I am dithering. I havent even mentioned this to my doctor but I am of the opinion that I should try and help myself as much
Hi all, this is my first post. Have had OC for 19 months and I have also tested positive for the brca 2 gene. I think that I want to go for a preventative double mastectomy but I am dithering. I havent even mentioned this to my doctor but I am of the opinion that I should try and help myself as much
ayrtonhenry
in
My Ovacome
3 years ago
Gall Bladder Removal
Following an Ultrasound scan, it was identified that I have gallstones. I saw a surgeon yesterday who wants to take out the gall bladder. My pain is manageable at this stage and he has classed me as medium priority. My question is a simple one. Does anybody regret having the gall bladder taken out and
Following an Ultrasound scan, it was identified that I have gallstones. I saw a surgeon yesterday who wants to take out the gall bladder. My pain is manageable at this stage and he has classed me as medium priority. My question is a simple one. Does anybody regret having the gall bladder taken out and
Dastardly
in
British Liver Trust
3 years ago
What next after ibrance and faslodex?
Hello everyone, I got diagnosed with breast cancer (ER+(50%), PR+(10%), Her2-) in Nov 2016 - I got radical mastectomy. Without further treatment i got the first metastasis in March 2017 - on the spine. I got Femara / letrozole and was on it until 2019 May before it progressed and I got a couple of metastasis
Hello everyone, I got diagnosed with breast cancer (ER+(50%), PR+(10%), Her2-) in Nov 2016 - I got radical mastectomy. Without further treatment i got the first metastasis in March 2017 - on the spine. I got Femara / letrozole and was on it until 2019 May before it progressed and I got a couple of metastasis
ERPRposHER2-
in
SHARE Metastatic Breast Cancer
3 years ago
Just to introduce myself
Hello all! I'm reading posts and starting to comment so I thought I'd introduce myself. My name is Leo, my wife Susie was diagnosed with TNBC in Sept 18. Chemo, FEC-T and double mastectomy, all quiet until Dec 20 and then stage 4 mets to lung and lymph nodes. As only palliative care was offered, we
Hello all! I'm reading posts and starting to comment so I thought I'd introduce myself. My name is Leo, my wife Susie was diagnosed with TNBC in Sept 18. Chemo, FEC-T and double mastectomy, all quiet until Dec 20 and then stage 4 mets to lung and lymph nodes. As only palliative care was offered, we
Winner123
in
SHARE Metastatic Breast Cancer
3 years ago
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