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Cyclophosphamide
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Son of 14 just diagnosed with WG, any advice?
Treatment continues and
cyclophosphamide
starts on Monday. Are there any other young sufferers of this awful condition in the West Country?
Treatment continues and
cyclophosphamide
starts on Monday. Are there any other young sufferers of this awful condition in the West Country?
julesfarm
in
Vasculitis UK
12 years ago
Wegeners
years ago but recovered after being on a high dose of pred after about 8 months, at that time no-one could be sure if it had been Wegeners, i would say i was then 70% back to feeling my normal self. then 3 weeks ago i had another flare up this time its positive Wegeners Gran, im now on 60 pred and 6
Cyclophosphamide
years ago but recovered after being on a high dose of pred after about 8 months, at that time no-one could be sure if it had been Wegeners, i would say i was then 70% back to feeling my normal self. then 3 weeks ago i had another flare up this time its positive Wegeners Gran, im now on 60 pred and 6
Cyclophosphamide
prudence
in
Vasculitis UK
12 years ago
Keeping your consultant team
I've just started
cyclophosphamide
treatment and am really don't reluctant to change my healthcare team, given that getting transport to Coventry is not currently an issue.
I've just started
cyclophosphamide
treatment and am really don't reluctant to change my healthcare team, given that getting transport to Coventry is not currently an issue.
Wellsie
in
Vasculitis UK
12 years ago
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Dad diagnosed with Wegener's Granulomatosis
Now on therapy with prednisone (50mg per day and cutting down 5 mg every week) and a monthly dose of
cyclophosphamide
(I believe called Cytoxan). Any help on how to understand what he is going through and support him both mentally and physically would be very appreciated.
Now on therapy with prednisone (50mg per day and cutting down 5 mg every week) and a monthly dose of
cyclophosphamide
(I believe called Cytoxan). Any help on how to understand what he is going through and support him both mentally and physically would be very appreciated.
zmajevi
in
Vasculitis UK
12 years ago
First cyclophosphamide pulse
On the menu today was ondansetron 8mg, methyl prednisilone 500mg,
cyclophosphamide
1g and Mesna 600mg. Was in for a total of 5 hours. Feeling pretty weak and washed out now. Have a low grade temperature and ache all over.
On the menu today was ondansetron 8mg, methyl prednisilone 500mg,
cyclophosphamide
1g and Mesna 600mg. Was in for a total of 5 hours. Feeling pretty weak and washed out now. Have a low grade temperature and ache all over.
Wellsie
in
Vasculitis UK
12 years ago
PAN
I wondered if anyone has ant good references material and experience of
Cyclophosphamide
pluse therapy in the treatment of PAN?
I wondered if anyone has ant good references material and experience of
Cyclophosphamide
pluse therapy in the treatment of PAN?
Wellsie
in
Vasculitis UK
12 years ago
Has anyone had their eggs frozen before starting Cyclophosphamide infusions?
John_Mills
Vasculitis UK
in
Vasculitis UK
12 years ago
Spots/Rash on my arms
The lupus has damaged my lungs and I have had several medication including
Cyclophosphamide
but nothing has helped. I am now down to Prednisolone 10mg. Whilst sitting down on Tuesday I suddenly felt an itching on my arms and to my amazement there were these spots on my arms in clusters.
The lupus has damaged my lungs and I have had several medication including
Cyclophosphamide
but nothing has helped. I am now down to Prednisolone 10mg. Whilst sitting down on Tuesday I suddenly felt an itching on my arms and to my amazement there were these spots on my arms in clusters.
Maureenpearl
in
LUPUS UK
12 years ago
Some good news at last....
but it was a good one and now as I approach my 5th treatment of Cisplatin,
cyclophosphamide
, doxorubicon I had an 11cm tumour between the bladder and bowel, couldn't operate, but it has shrunk and they said it has changed and is dying from the centre!
but it was a good one and now as I approach my 5th treatment of Cisplatin,
cyclophosphamide
, doxorubicon I had an 11cm tumour between the bladder and bowel, couldn't operate, but it has shrunk and they said it has changed and is dying from the centre!
daisycandoit
in
My Ovacome
12 years ago
rituximab and vasculitis.
when i got admitted to hospital and diagnosed, i under went 7 plasma exchanges and the course of
Cyclophosphamide
. i have been on azathioprine and steriods since oh not forgetting the warfarin for multiple PE's. I must say the treatment i have received has been first class and life saving.
when i got admitted to hospital and diagnosed, i under went 7 plasma exchanges and the course of
Cyclophosphamide
. i have been on azathioprine and steriods since oh not forgetting the warfarin for multiple PE's. I must say the treatment i have received has been first class and life saving.
alan-lee
in
Vasculitis UK
12 years ago
Unusual tremor
My daughter is 9 and was dIagnosed in february with lupus nephritis, she is currently on predisolone and
cyclophosphamide
, she had developed a tremor which is worse in her left hand, Had anyone come across this before?
My daughter is 9 and was dIagnosed in february with lupus nephritis, she is currently on predisolone and
cyclophosphamide
, she had developed a tremor which is worse in her left hand, Had anyone come across this before?
Jacks99
in
LUPUS UK
12 years ago
Stopping Thalidomide treatment; starting Cyclophosphamide (in addition to masses of other stuff)
Assuming my blood tests are ok I'm going to start
Cyclophosphamide
, in pill form, with Mesna prescribed as well to protect my bladder. This had always been ruled out for me before.
Assuming my blood tests are ok I'm going to start
Cyclophosphamide
, in pill form, with Mesna prescribed as well to protect my bladder. This had always been ruled out for me before.
vivdunstan
Volunteer
in
Vasculitis UK
12 years ago
Early days - my story so far
The response to treatment (Pred. and
Cyclophosphamide
)seems to be going OK but the side effects (lack of sleep, night sweats leg cramps, mouth ulcers, bouts of tiredness etc.) are not a barrel of laughs. However compared to how I felt before the treatment it is a fair trade at the moment.
The response to treatment (Pred. and
Cyclophosphamide
)seems to be going OK but the side effects (lack of sleep, night sweats leg cramps, mouth ulcers, bouts of tiredness etc.) are not a barrel of laughs. However compared to how I felt before the treatment it is a fair trade at the moment.
Chris-Bromsgrove
in
Vasculitis UK
12 years ago
Wegener's Granulomatosis: The Treatment (Podcast 2)
I myself have so far been on
Cyclophosphamide
, Prednisolone, Mycophenelate Mofeti and now Rituximab. Any response is appreciated and if you wish to email me rather than post on here or inbox me, feel free.
I myself have so far been on
Cyclophosphamide
, Prednisolone, Mycophenelate Mofeti and now Rituximab. Any response is appreciated and if you wish to email me rather than post on here or inbox me, feel free.
missm23
in
Vasculitis UK
12 years ago
remission
i have wg when i took ill my egfr was 14,i had 12 courses of
cyclophosphamide
and my egfr improved to 62,however it started dropping again to 52 and i waas told i had refractory vasculitis. i was then given rituxumab and my egfr has stabilised over the last 2 months to 52.
i have wg when i took ill my egfr was 14,i had 12 courses of
cyclophosphamide
and my egfr improved to 62,however it started dropping again to 52 and i waas told i had refractory vasculitis. i was then given rituxumab and my egfr has stabilised over the last 2 months to 52.
quinnster
in
Vasculitis UK
12 years ago
neurologists letter
I note that she actually had a single course of
Cyclophosphamide
and then rapidly went on to Rituixmab. I have found Rituixmab to be helpful but I have one patient who unequivocally responded to Cyclo but has not to Rituximab.
I note that she actually had a single course of
Cyclophosphamide
and then rapidly went on to Rituixmab. I have found Rituixmab to be helpful but I have one patient who unequivocally responded to Cyclo but has not to Rituximab.
annie330
in
Hughes Syndrome APS Forum
13 years ago
Has anyone with any type of vasculitis suffered a Carcinoma of the bladder due to the side effects of the Cyclophosphamide?
John_Mills
Vasculitis UK
in
Vasculitis UK
13 years ago
Peninusula Health Technology Commisioning Group Commissioning Decision:- Rituximab for Severe ANCA Associated Vasculitis
Rituximab may be offered to patients who have received a
Cyclophosphamide
-base reigmen for induction of remission and have a major relapse or persistently active disease. Informed consent must be obtained from the patient for this unlicensed use.
Rituximab may be offered to patients who have received a
Cyclophosphamide
-base reigmen for induction of remission and have a major relapse or persistently active disease. Informed consent must be obtained from the patient for this unlicensed use.
John_Mills
Vasculitis UK
in
Vasculitis UK
12 years ago
new to website
hello everyone, have really enjoyed reading all your posts. i was admitted to tommies 8yrs ago by dr d'cruz for tests, had a positive mri and lumber puncture for ms but negative blood test for aps but had a history of 5 dvts and multiple miscarriage so needed to stay on warfarin forever . i was given
cyclophosphamide
hello everyone, have really enjoyed reading all your posts. i was admitted to tommies 8yrs ago by dr d'cruz for tests, had a positive mri and lumber puncture for ms but negative blood test for aps but had a history of 5 dvts and multiple miscarriage so needed to stay on warfarin forever . i was given
cyclophosphamide
mully
in
Hughes Syndrome APS Forum
13 years ago
Does plasmapheresis aid in the treatment of WG?
I was treated with the usual combination of
cyclophosphamide
and prednisolone. At the time there was no kidney involvement, and I spent a month in hospital.
I was treated with the usual combination of
cyclophosphamide
and prednisolone. At the time there was no kidney involvement, and I spent a month in hospital.
shanat19
in
Vasculitis UK
13 years ago
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