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Cyclophosphamide
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Digestion
Hi, as I have recently posted I have just finished first session/week of FCR. I find this site extremely helpful and like having a friend who you can turn to for advice. I'm abit of an ignoramus as regards medication, I take what I'm told when I'm told. I have been having lots of nausea and awful
Hi, as I have recently posted I have just finished first session/week of FCR. I find this site extremely helpful and like having a friend who you can turn to for advice. I'm abit of an ignoramus as regards medication, I take what I'm told when I'm told. I have been having lots of nausea and awful
sallyplest
in
CLL Support
7 years ago
Ibrutinib stopped - What treatment next ?
I am a 78 year old male living in the UK. Started treatment 3 years ago. Had two rounds of FCR which was stopped due to my bone marrow being wrecked. Managed to get on to Ibrutinib as a named patient via Dr Anna Schuh in Oxford. Now under the care of my local haematology consultant in Hereford. After
I am a 78 year old male living in the UK. Started treatment 3 years ago. Had two rounds of FCR which was stopped due to my bone marrow being wrecked. Managed to get on to Ibrutinib as a named patient via Dr Anna Schuh in Oxford. Now under the care of my local haematology consultant in Hereford. After
Haileybury
in
CLL Support
7 years ago
FCR, IBRUTINIB, VENETOCLAX what next...Stem Cell or CAR-T
Happy Easter everyone! So on this journey since Dec. 2010 and we can't seem to hit that remission "sweet spot" that we read about in the stats or trials - is it us or just the reality of how everyone's battle is unique in the world of CLL? We started V at the end of Feb. 2017 (as I posted our experience
Happy Easter everyone! So on this journey since Dec. 2010 and we can't seem to hit that remission "sweet spot" that we read about in the stats or trials - is it us or just the reality of how everyone's battle is unique in the world of CLL? We started V at the end of Feb. 2017 (as I posted our experience
NMMP
in
CLL Support
7 years ago
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Diagnosed with Panca Vasculitis, Rhumatoid, and Osteoarthritis
That is when I got a second opinion and later I let them give me the
Cyclophosphamide
. I took 3 treatments of
cyclophosphamide
and it caused nodules to pop up on my fingers so he stopped them and started me on the Rituximab.
That is when I got a second opinion and later I let them give me the
Cyclophosphamide
. I took 3 treatments of
cyclophosphamide
and it caused nodules to pop up on my fingers so he stopped them and started me on the Rituximab.
deebeau
in
Vasculitis UK
7 years ago
Flair Trial - FCR first dose
Hi all Arrived hospital Monday morning 8.45am for first infusion of rituximab but pharmacy had lost my prescription, so after waiting 3hrs sent home to return Tuesday. Yesterday started first infusion 17ml for first half hr then increased to 35ml coped fine until increased to 48ml and had reaction.
Hi all Arrived hospital Monday morning 8.45am for first infusion of rituximab but pharmacy had lost my prescription, so after waiting 3hrs sent home to return Tuesday. Yesterday started first infusion 17ml for first half hr then increased to 35ml coped fine until increased to 48ml and had reaction.
sallyplest
in
CLL Support
7 years ago
treatment plan
just received my treatment plan from the hospital, going in on Monday morning to sign consent forms, for
cyclophosphamide
which they will give as intravenous infusions. just read about it that is for cancer?
just received my treatment plan from the hospital, going in on Monday morning to sign consent forms, for
cyclophosphamide
which they will give as intravenous infusions. just read about it that is for cancer?
RajSangha
in
Myositis UK
7 years ago
Chronic sinusitis following FCR?
My husband was diagnosed with CLL 6 years ago, Trisomy 12, a middle of the road but not common form. A year later he had FCR with great results but the remission lasted only 3 1/2 years. For the last year and a half he has had chronic sinusitis and for the last several months it has been serious. He
My husband was diagnosed with CLL 6 years ago, Trisomy 12, a middle of the road but not common form. A year later he had FCR with great results but the remission lasted only 3 1/2 years. For the last year and a half he has had chronic sinusitis and for the last several months it has been serious. He
Jls123
in
CLL Support
7 years ago
Rituximab concerns
Early hours of the morning and I can't sleep. I start FLair trial Monday morning with FCR arm. Have a chest infection but taking antibiotics so will hopefully go ahead, I can't do another week of waiting!! At my recent appt. with oncologist she told me that I would start with just the chemo tablets
Early hours of the morning and I can't sleep. I start FLair trial Monday morning with FCR arm. Have a chest infection but taking antibiotics so will hopefully go ahead, I can't do another week of waiting!! At my recent appt. with oncologist she told me that I would start with just the chemo tablets
sallyplest
in
CLL Support
7 years ago
Vasculitis
My neurologist had me on other medications including CellCept & Methetrexate and then a year into my treatment my Immunologist introduced '
Cyclophosphamide
' and monthly infusions IVIG which replaced the above. Prednisone remains.
My neurologist had me on other medications including CellCept & Methetrexate and then a year into my treatment my Immunologist introduced '
Cyclophosphamide
' and monthly infusions IVIG which replaced the above. Prednisone remains.
Vrainbird
in
Vasculitis UK
7 years ago
FCR lite for relapsed SLL
After having CR for 5 years, oncologist decided to start treatment in next few days. Primary driver is node size and weight loss. My 1st line of treatment was 6 cycles of FCR. Ibrunitib is available but it's very expensive. Probably this medicine will be in reach for common man in 2-3 years time. Finally
After having CR for 5 years, oncologist decided to start treatment in next few days. Primary driver is node size and weight loss. My 1st line of treatment was 6 cycles of FCR. Ibrunitib is available but it's very expensive. Probably this medicine will be in reach for common man in 2-3 years time. Finally
mag1309
in
CLL Support
7 years ago
Post FCR - stopping Aciclovir
I finished FCR just over 3 months ago. I actually only had 5 sessions as I had responded so well. For the first 6 weeks or so, I was on cloud nine, but then all my muscles started aching. I felt like an old woman when getting out of bed in the morning, or getting up from a chair. My GP said lots
I finished FCR just over 3 months ago. I actually only had 5 sessions as I had responded so well. For the first 6 weeks or so, I was on cloud nine, but then all my muscles started aching. I felt like an old woman when getting out of bed in the morning, or getting up from a chair. My GP said lots
Grannajan
in
CLL Support
7 years ago
Feeling worse after FCR treatment.
Anyone here had FCR treatment? I have post chemo questions. I have a question...post-chemo question. Did you feel mentally different? Some days I feel so down and so blah, it's hard to explain. I don't feel like myself. Like I strain to smile and put so much energy into smiling and it feels fake but
Anyone here had FCR treatment? I have post chemo questions. I have a question...post-chemo question. Did you feel mentally different? Some days I feel so down and so blah, it's hard to explain. I don't feel like myself. Like I strain to smile and put so much energy into smiling and it feels fake but
sunflwerchild
in
CLL Support
7 years ago
New to the group (not at all new to CLL!). Thought I'd say hello...
As this is a public forum, I don't want to go into specifics about how I did it (you can PM me if you wanna know), but I took steps to reduce the side effects of the chemo (I didn't know very much about Rituximab or Fludarabine but I'd heard about
Cyclophosphamide
and I knew enough to know that it was
As this is a public forum, I don't want to go into specifics about how I did it (you can PM me if you wanna know), but I took steps to reduce the side effects of the chemo (I didn't know very much about Rituximab or Fludarabine but I'd heard about
Cyclophosphamide
and I knew enough to know that it was
Hidden
in
CLL Support
7 years ago
Try not to get too frightened!
I had a diagnosis of MPA renal vasculitis nearly 3 years ago, admittedly, caught very early; I was treated according to the current protocol (
cyclophosphamide
; rituximab 2x; couple hits of high-dose steroids, then stop) followed by MMF (I don't tolerate Aza; this is next-best option for me & because
I had a diagnosis of MPA renal vasculitis nearly 3 years ago, admittedly, caught very early; I was treated according to the current protocol (
cyclophosphamide
; rituximab 2x; couple hits of high-dose steroids, then stop) followed by MMF (I don't tolerate Aza; this is next-best option for me & because
SkinHorse
in
Vasculitis UK
7 years ago
Worried about the numbers about to start FCR
Hello, After optimistically signing up to the FLAIR trial last week, we got the call yesterday to say Mum had been randomised to receive FCR which was a little disappointing. We were told that they are still awaiting all results, but her CLL infiltration was very high at 75%. I am now worried sick that
Hello, After optimistically signing up to the FLAIR trial last week, we got the call yesterday to say Mum had been randomised to receive FCR which was a little disappointing. We were told that they are still awaiting all results, but her CLL infiltration was very high at 75%. I am now worried sick that
Pinkvixon
in
CLL Support
7 years ago
First Online Electronic Blood Test Results on Patients Know Best
Just writing to say I've just accessed my first set of blood test results electronically via the online system provided by organisation "Patients Know Best: https://www.patientsknowbest.com/ I think this has been rolled out to a number of Health authorities, I'm with OUH. Please reply if you are also
Just writing to say I've just accessed my first set of blood test results electronically via the online system provided by organisation "Patients Know Best: https://www.patientsknowbest.com/ I think this has been rolled out to a number of Health authorities, I'm with OUH. Please reply if you are also
Ernest2
in
CLL Support
7 years ago
FCR selected
I've been randomly selected for Flair trial with FCR starting 11/4. I have to have chemo orally first of all as my white count is high and needs to be below 100 before I can have intravenously. I feel disappointed but not sure why. I think it's because my consultant and nurses have spoken since treatment
I've been randomly selected for Flair trial with FCR starting 11/4. I have to have chemo orally first of all as my white count is high and needs to be below 100 before I can have intravenously. I feel disappointed but not sure why. I think it's because my consultant and nurses have spoken since treatment
sallyplest
in
CLL Support
7 years ago
Hair loss
I have appointment today to find out which arm I will be on for FLAIR trial and I'm afraid a fit of vanity has gripped me. I wondered can anyone give me any details regarding hair loss with FCR or Ibrutinin/Rituxamab.
I have appointment today to find out which arm I will be on for FLAIR trial and I'm afraid a fit of vanity has gripped me. I wondered can anyone give me any details regarding hair loss with FCR or Ibrutinin/Rituxamab.
sallyplest
in
CLL Support
7 years ago
Need for irradiated transfusions following FCR
Hi everyone, just been given irradiated transfusion owing to aenemia. Was told that because I had fluradabin years ago that this is the procedure. Does FCR contain fluradabin.?
Hi everyone, just been given irradiated transfusion owing to aenemia. Was told that because I had fluradabin years ago that this is the procedure. Does FCR contain fluradabin.?
Broadbent
in
CLL Support
7 years ago
The start for me on FCR.
Hi all. Though its about time I posted and said hi after following this wonderful resource for so long. WBC at high 80s, and slow growing lymph nodes but plummeting platelets, crushing fatigue and night sweats. So here I am sitting on a bed having my first cycle of rituximab ( FCR ) . Wish me luck and
Hi all. Though its about time I posted and said hi after following this wonderful resource for so long. WBC at high 80s, and slow growing lymph nodes but plummeting platelets, crushing fatigue and night sweats. So here I am sitting on a bed having my first cycle of rituximab ( FCR ) . Wish me luck and
sandydog
in
CLL Support
7 years ago
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