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Cutaneous T cell lymphoma (CTCL)
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Supporting my grandmother
Hello! My grandmother is 82 and was just diagnosed with marginal zone B cell lymphoma. She did not tolerate Rituxan so she is now taking Arzerra which, from what I can tell, is a CLL treatment. She had been fatigued and having bouts of nausea and vomiting along with lack of appetite and upon exam,
Hello! My grandmother is 82 and was just diagnosed with marginal zone B cell lymphoma. She did not tolerate Rituxan so she is now taking Arzerra which, from what I can tell, is a CLL treatment. She had been fatigued and having bouts of nausea and vomiting along with lack of appetite and upon exam,
Hidden
in
CLL Support
5 years ago
Impact of CT and pet scan on chemo drugs
I am under chemo immunotherapy of Bendsmustin and Rituximab. Finished 4 cycles and next one due on 6th March. My doctor wants me to have whole body CT and pet scan to see whether lymph nodes shrank and start the 5th Cycle Infusion. My doubt is whether the dye injected in my body while CT and pet
I am under chemo immunotherapy of Bendsmustin and Rituximab. Finished 4 cycles and next one due on 6th March. My doctor wants me to have whole body CT and pet scan to see whether lymph nodes shrank and start the 5th Cycle Infusion. My doubt is whether the dye injected in my body while CT and pet
venk_46
in
CLL Support
5 years ago
reduced intensity transplant
If your over 50 and need a stem cell transplant it most likely will be low intensity. It also goes by mini-transplant or RIC transplant. It is NOT a standard stem cell transplant. all your cells are not replaced. you keep most of your own blood cells and have donor cells added to fight your cancer cells
If your over 50 and need a stem cell transplant it most likely will be low intensity. It also goes by mini-transplant or RIC transplant. It is NOT a standard stem cell transplant. all your cells are not replaced. you keep most of your own blood cells and have donor cells added to fight your cancer cells
Hidden
in
CLL Support
5 years ago
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Diagnosed with Marginal Zone Lymphoma 10/18. Received 12 radiation treatments. Follow up Pet scan to be completed 2/23
Diagnosed with Marginal Zone Lymphoma 10/18. Received 12 radiation treatments. Follow up Pet scan to be completed 2/23
gardenFAIRY
in
Non Hodgkin's Lymphoma Friends
6 years ago
Venetoclax plus Rituximab
Hi, I'm new to this forum and am wondering if anyone knows of any trials of Venetoclax plus Rituximab for MZL Lymphoma ?? Can only find data from the Murano Trial for CLL. I've been offered BR treatment after Rituximab monotherapy failed, and am not so keen on starting on chemo road. Andrew
Hi, I'm new to this forum and am wondering if anyone knows of any trials of Venetoclax plus Rituximab for MZL Lymphoma ?? Can only find data from the Murano Trial for CLL. I've been offered BR treatment after Rituximab monotherapy failed, and am not so keen on starting on chemo road. Andrew
greenvert
in
CLL Support
6 years ago
So done with this
Hi everyone.. I was diagnose with Giant Cell Arteritis in Sep 2018 so I haven't had it for long it feels longer I hate the headaches,tiredness,body akes,and the weight gain from the prednisone ugh! 😢😢
Hi everyone.. I was diagnose with Giant Cell Arteritis in Sep 2018 so I haven't had it for long it feels longer I hate the headaches,tiredness,body akes,and the weight gain from the prednisone ugh! 😢😢
vicky561
in
PMRGCAuk
5 years ago
Stem Cell Treatment
A little while ago I mentioned that liver transplants could one day become a thing of the past. Day by day the use stem cell treatment and research brings us closer to finding a cure for liver disease. HIV positive man in London becomes second person ever to be cleared of virus after stem cell transplant
A little while ago I mentioned that liver transplants could one day become a thing of the past. Day by day the use stem cell treatment and research brings us closer to finding a cure for liver disease. HIV positive man in London becomes second person ever to be cleared of virus after stem cell transplant
Hidden
in
British Liver Trust
5 years ago
Clinical trial for Imbruvica/Ibrutinib , Gazyva/Obinutuzumab +/- Venclexta/Venetoclax at 97 sites USA
A Randomized Phase III Study of the Addition of Venetoclax to Ibrutinib and Obinutuzumab Versus Ibrutinib and Obinutuzumab in Untreated Younger Patients With Chronic Lymphocytic Leukemia (CLL) https://clinicaltrials.gov/ct2/show/NCT03701282 Per Dr. Furman: "This is a large, cooperative group study.
A Randomized Phase III Study of the Addition of Venetoclax to Ibrutinib and Obinutuzumab Versus Ibrutinib and Obinutuzumab in Untreated Younger Patients With Chronic Lymphocytic Leukemia (CLL) https://clinicaltrials.gov/ct2/show/NCT03701282 Per Dr. Furman: "This is a large, cooperative group study.
lankisterguy
Volunteer
in
CLL Support
6 years ago
CoQ10 Benefits?
Has anyone heard of beneficial effects of CoQ10 on CLL? I had to start taking Crestor (5mg 4 times a week) and am taking 400 mg mg of CoQ10 daily at the advice of phy. After 4 months my hmg. went from 12.0 to 12.8 and my cholesterol dropped from 260 to 202. WBC went up some but everything else pretty
Has anyone heard of beneficial effects of CoQ10 on CLL? I had to start taking Crestor (5mg 4 times a week) and am taking 400 mg mg of CoQ10 daily at the advice of phy. After 4 months my hmg. went from 12.0 to 12.8 and my cholesterol dropped from 260 to 202. WBC went up some but everything else pretty
Elam
in
CLL Support
6 years ago
DHEA supplements?
Advice please! As I have frequently moaned about here, the last 3 years have resulted in a steadily increasing disability for me, especially with regards to fatigue and effort intolerance. I'm now at the point where I am more or less housebound and spend most of the day in my armchair. Neither my rheumy
Advice please! As I have frequently moaned about here, the last 3 years have resulted in a steadily increasing disability for me, especially with regards to fatigue and effort intolerance. I'm now at the point where I am more or less housebound and spend most of the day in my armchair. Neither my rheumy
whisperit
in
LUPUS UK
6 years ago
Why is this necessary?
Diagnosed GCA, on Pred , however Consultant has recommended an Endoscopy and Colonoscopy. I do not have any symptoms and feel bad enough, so I declined?
Diagnosed GCA, on Pred , however Consultant has recommended an Endoscopy and Colonoscopy. I do not have any symptoms and feel bad enough, so I declined?
Seagu11
in
PMRGCAuk
5 years ago
Hot Flushes increasing
I reduced my prednisolone from 10mg to 9mg at the beginning of February and just about coping with the soreness but have noticed an increase in facial hot flushes and night sweats. Has anyone else felt these side effects have got worse as you reduce?
I reduced my prednisolone from 10mg to 9mg at the beginning of February and just about coping with the soreness but have noticed an increase in facial hot flushes and night sweats. Has anyone else felt these side effects have got worse as you reduce?
Godrevy1960
in
PMRGCAuk
5 years ago
Outstanding third opinion.
I had to get a third opinion because the first doc said at the first visit no treatment until see symptoms. When I went back after bone marrow and lymph node taken out she said I needed treatment but I feel great. I didnt feel comfortable with that so found a cll specialist. Much more knowledgable. Told
I had to get a third opinion because the first doc said at the first visit no treatment until see symptoms. When I went back after bone marrow and lymph node taken out she said I needed treatment but I feel great. I didnt feel comfortable with that so found a cll specialist. Much more knowledgable. Told
showdog
in
CLL Support
6 years ago
World Health Organization lists "vaccine hesitancy" as a global health threat
[i]"Vaccine hesitancy, where people are reluctant or refuse to have themselves or their children vaccinated, is a growing trend among those fearing negative health outcomes from immunizations, such as the (non-existent) risk of autism. This collective uncertainty has now gathered such momentum that the
[i]"Vaccine hesitancy, where people are reluctant or refuse to have themselves or their children vaccinated, is a growing trend among those fearing negative health outcomes from immunizations, such as the (non-existent) risk of autism. This collective uncertainty has now gathered such momentum that the
AussieNeil
Partner
in
CLL Support
6 years ago
Donating bone marrow to cure sickle cell anaemia
A bone marrow transplant is the only complete cure for treating sickle cell anaemia. This is a kind of treatment in which the patient’s bone marrow is changed to new healthy bone marrow. This is done either by collecting the patient’s own bone marrow or that of a donor. In the case of sickle cell disease
A bone marrow transplant is the only complete cure for treating sickle cell anaemia. This is a kind of treatment in which the patient’s bone marrow is changed to new healthy bone marrow. This is done either by collecting the patient’s own bone marrow or that of a donor. In the case of sickle cell disease
anjana_indheal
in
Living with Sickle Cell Disease
5 years ago
SICKLE CELL NEWSWEEK
FATIMAH had a stroke at the age of 7. She recovered 100% and graduates May 2019 with a degree in Public Finance http://bit.ly/2FAO2KD Zandra Chidinma Nwogu’s first pain crises in eight years - ‘Water Marathon Therapy’ to the rescueh ttp://bit.ly/2HvAi5k Folks with SCD can only TAKE but not GIVE blood
FATIMAH had a stroke at the age of 7. She recovered 100% and graduates May 2019 with a degree in Public Finance http://bit.ly/2FAO2KD Zandra Chidinma Nwogu’s first pain crises in eight years - ‘Water Marathon Therapy’ to the rescueh ttp://bit.ly/2HvAi5k Folks with SCD can only TAKE but not GIVE blood
sicklecellnews
in
Sickle Cell Society
6 years ago
Love is : Valentines Day Together in Clinic. . 💘
It's been some time since I posted but I keep in touch with the posts. It's part of me moving on in my lengthy recovery. I know from what I see that there are many new Forum members since I was active and that's great because we know it's one of the best sources of information , support and help for
It's been some time since I posted but I keep in touch with the posts. It's part of me moving on in my lengthy recovery. I know from what I see that there are many new Forum members since I was active and that's great because we know it's one of the best sources of information , support and help for
JediReject
in
MPN Voice
6 years ago
Hey There
Hi everyone this is just a post of me introducing myself, I'm not sure how close of a community you guys are but it's nice to be a part of something where people can really relate. My name is Kelsey I was born and diagnosed with Sickle Cell Anemia and I'm just trying to keep my shit together lol.
Hi everyone this is just a post of me introducing myself, I'm not sure how close of a community you guys are but it's nice to be a part of something where people can really relate. My name is Kelsey I was born and diagnosed with Sickle Cell Anemia and I'm just trying to keep my shit together lol.
sunshinee
in
Sickle Cell Society
6 years ago
O-CHOP
Hi everyone. Back with an update. New diagnosis: Follicular B, Stage IV, Grade 2. (was Grade 1) Previous treatment was Rituxan and Bendamustine, remission, shingles and it's baaaaack. Has anyone had O-CHOP? Obinutuzunab, Cyclophosphamide, Doxorubicin, Vincristine. Am scheduled for infusion 1\29,30,31
Hi everyone. Back with an update. New diagnosis: Follicular B, Stage IV, Grade 2. (was Grade 1) Previous treatment was Rituxan and Bendamustine, remission, shingles and it's baaaaack. Has anyone had O-CHOP? Obinutuzunab, Cyclophosphamide, Doxorubicin, Vincristine. Am scheduled for infusion 1\29,30,31
kstan8
in
Non Hodgkin's Lymphoma Friends
6 years ago
Dad in ICU fighting pneumonia and is slow to wake up from induced coma
Hi everyone. I’m wondering if anyone has any encouragement for our situation. My dad is 78 but has always been extremely healthy - a marathon runner until his back stopped him from running and now he’s been an avid swimmer for years and has had no real medical issues. He had a stem cell transplant
Hi everyone. I’m wondering if anyone has any encouragement for our situation. My dad is 78 but has always been extremely healthy - a marathon runner until his back stopped him from running and now he’s been an avid swimmer for years and has had no real medical issues. He had a stem cell transplant
WhitneyS18
in
ICUsteps
6 years ago
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