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Newbie
Hi everyone New here. I’ve had fibromyalgia for at least 8/9 years. I’ve just recently been referred to rheumatology and the want to do test for spondylitis. From what I’ve read on the nhs website it’s quite scary! Can’t talk to my partner just in case it turns out not to be spondylitis. Saves the both
Hi everyone New here. I’ve had fibromyalgia for at least 8/9 years. I’ve just recently been referred to rheumatology and the want to do test for spondylitis. From what I’ve read on the nhs website it’s quite scary! Can’t talk to my partner just in case it turns out not to be spondylitis. Saves the both
LostPain
in
Fibromyalgia Action UK
4 years ago
Colomycin
I have put in colomycin inhalant with nebuliser. But been on for two weeks now and feel so much worse. Been taken off of it my breathing is no where near as bad as it was. Within a day or so. Not sure what they will do now also on steroids. Had pseudomonas infections on and off since last October. Always
I have put in colomycin inhalant with nebuliser. But been on for two weeks now and feel so much worse. Been taken off of it my breathing is no where near as bad as it was. Within a day or so. Not sure what they will do now also on steroids. Had pseudomonas infections on and off since last October. Always
patj
in
Lung Conditions Community Forum
4 years ago
tinnitus due to acoustic neuroma
have an acoustic neuroma diagnosed in january and havent seen any doctors yet, i had appointment in march which was cancelled due to the corona virus. my tinnitus is getting worse, and this morning had a new echo vibration noise everytime i touched my head or brushed my hair...
have an acoustic neuroma diagnosed in january and havent seen any doctors yet, i had appointment in march which was cancelled due to the corona virus. my tinnitus is getting worse, and this morning had a new echo vibration noise everytime i touched my head or brushed my hair...
karenm1
in
British Tinnitus Association
4 years ago
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Experience of neurology during the coronavirus crisis. Asking for your help!
Dear all We have a virtual meeting of the Medical Advisory Panel of Ataxia UK in a couple of weeks. One of the topics we will be discussing is how neurology appointments have been affected by the coronavirus climate that we unfortunately find ourselves in. I would be so grateful if you could let me
Dear all We have a virtual meeting of the Medical Advisory Panel of Ataxia UK in a couple of weeks. One of the topics we will be discussing is how neurology appointments have been affected by the coronavirus climate that we unfortunately find ourselves in. I would be so grateful if you could let me
HarryB
Administrator
in
Ataxia UK
4 years ago
Worried about Breast Scan
Hi. I had a breast biopsy last year on a lump which turned out to be a fibroadenoma. I had another lump in January which was nothing and now just had another scan as I am worried about a different lump. I'm so worried about the results. Has anyone else had similar problems with breasts and having so
Hi. I had a breast biopsy last year on a lump which turned out to be a fibroadenoma. I had another lump in January which was nothing and now just had another scan as I am worried about a different lump. I'm so worried about the results. Has anyone else had similar problems with breasts and having so
Hashm
in
Thyroid UK
4 years ago
Swyer-James syndrome
Anyone else been diagnosed with swyer-James syndrome? I have been diagnosed with swyer-James syndrome along with bronchiectasis which leaves my lung function at around 30% total. Curious if anyone else has been diagnosed with it to see how they cope with it and learn more about it. Thank you
Anyone else been diagnosed with swyer-James syndrome? I have been diagnosed with swyer-James syndrome along with bronchiectasis which leaves my lung function at around 30% total. Curious if anyone else has been diagnosed with it to see how they cope with it and learn more about it. Thank you
Aronjay1
in
Lung Conditions Community Forum
4 years ago
Just need a chat
Your post moved me so much . . . my beloved brother is in a care home as it is impossible for either his daughter or I to have him at home. And this breaks my heart as I know he would benefit so much emotionally from being in a family and home environment although he is well cared for physically.
Your post moved me so much . . . my beloved brother is in a care home as it is impossible for either his daughter or I to have him at home. And this breaks my heart as I know he would benefit so much emotionally from being in a family and home environment although he is well cared for physically.
redkilt
in
PSP Association
4 years ago
Tinnitus getting worse
I am 67, have had tinnitis for decades and have been able to ignore it. Recently it is getting louder and more distracting. The only change in my life recently is that Im weaning off sertraline( zoloft) and started taking bupropion ( wellbutrin), both antidepressants. I fear bupropion might be the guilty
I am 67, have had tinnitis for decades and have been able to ignore it. Recently it is getting louder and more distracting. The only change in my life recently is that Im weaning off sertraline( zoloft) and started taking bupropion ( wellbutrin), both antidepressants. I fear bupropion might be the guilty
Hidden
in
British Tinnitus Association
4 years ago
Mental block
Hey ladies, Despite suffering with horrendous pain for years I have only recently been diagnosed with Endo. I literally thought that every girl my age was in constant agony so didn’t really think anything of it. Now I know however, I’m having real trouble getting my head around the fact that this
Hey ladies, Despite suffering with horrendous pain for years I have only recently been diagnosed with Endo. I literally thought that every girl my age was in constant agony so didn’t really think anything of it. Now I know however, I’m having real trouble getting my head around the fact that this
Melanie-P
in
Endometriosis UK
4 years ago
Traffic pollution drops in lockdown – but other risks to air quality increase, reveal Manchester researchers.
Traffic pollution for most parts of the UK is plummeting thanks to the COVID-19 lockdown but more urban ozone – a dangerous air pollutant which can cause airway inflammation in humans - is probably being generated, say experts from The University of Manchester. The analysis was led by Hugh Coe, Professor
Traffic pollution for most parts of the UK is plummeting thanks to the COVID-19 lockdown but more urban ozone – a dangerous air pollutant which can cause airway inflammation in humans - is probably being generated, say experts from The University of Manchester. The analysis was led by Hugh Coe, Professor
2greys
in
Lung Conditions Community Forum
4 years ago
Swyer-James syndrome
Has anyone else been diagnosed with swyer-James syndrome? I have a hypoplasia left lung with bronchiectasis in both lungs. My lung function is anywhere between 26-33% most of the time. Anyone else deal with anything similar?
Has anyone else been diagnosed with swyer-James syndrome? I have a hypoplasia left lung with bronchiectasis in both lungs. My lung function is anywhere between 26-33% most of the time. Anyone else deal with anything similar?
Aronjay1
in
Lung Conditions Community Forum
4 years ago
Hiding in plain sight⁉️
Such a shame that fibromyalgia doesn't require us to be wearing cats, nice white bright ones for the world to see.... that's how I feel about the doubting Thomas's of the world...because if we see a person in a cast then we all assume they are in pain ,struggling and need help. I even have helped out
Such a shame that fibromyalgia doesn't require us to be wearing cats, nice white bright ones for the world to see.... that's how I feel about the doubting Thomas's of the world...because if we see a person in a cast then we all assume they are in pain ,struggling and need help. I even have helped out
Judyteen13
in
Fibromyalgia Action UK
4 years ago
Non sensical preference options with my bank and me...
My bank won't give me my money tomorrow unless I use the cash machine. As I have an amount that isn't round I require to go into the bank. However they have told me to transfer the full amount to my nationwide account from the options at the atm and take it out from there instead. With ocd and tourette's
My bank won't give me my money tomorrow unless I use the cash machine. As I have an amount that isn't round I require to go into the bank. However they have told me to transfer the full amount to my nationwide account from the options at the atm and take it out from there instead. With ocd and tourette's
Jezippolito
in
Fibromyalgia Action UK
4 years ago
FENBENDAZOLE
Hi Ladies Hope everyone keeping as well as possible. Is anyone taking the above medication? Bought some but not used yet. Just coming to end of three months watch and wait. Been taking Berberine, Sea Buckthorn and small dose aspirin but would like to add Fenbendazole to list. Best wishes Janet
Hi Ladies Hope everyone keeping as well as possible. Is anyone taking the above medication? Bought some but not used yet. Just coming to end of three months watch and wait. Been taking Berberine, Sea Buckthorn and small dose aspirin but would like to add Fenbendazole to list. Best wishes Janet
Hidden
in
My Ovacome
4 years ago
CORONA VIRUS / COVID-19/SARS COV-2 And Some Potential Help
This seems like a good time to start a thread discussing the latest developments regarding SARS COV-2 / Corona Virus(CV-19). Given that it seems to move quickly to new areas that were previously unaffected, being as prepared as is reasonably possible seems to make sense, but is there really a good way
This seems like a good time to start a thread discussing the latest developments regarding SARS COV-2 / Corona Virus(CV-19). Given that it seems to move quickly to new areas that were previously unaffected, being as prepared as is reasonably possible seems to make sense, but is there really a good way
chartist
in
Cure Parkinson's
4 years ago
Cochlear implants
Hi,, I’m beginning to sound like a broken record. I have a cochlear implant , debating whether it’s been worth all of the hassle of having it in as it’s been painful. Has anyone out there had great success with theirs ? Thanks Jenny 😊
Hi,, I’m beginning to sound like a broken record. I have a cochlear implant , debating whether it’s been worth all of the hassle of having it in as it’s been painful. Has anyone out there had great success with theirs ? Thanks Jenny 😊
1Dar
in
Tinnitus UK
4 years ago
Pneumococcal vaccine in short supply.
Today, Sharon has officially been diagnosed with moderate COPD, about which I have had strong suspicions about, for over a month. The GP has said she needs to have the Pneumococcal vaccine, of course, especially with working in a nursing home. Sharon then asks the receptionist to make an appointment
Today, Sharon has officially been diagnosed with moderate COPD, about which I have had strong suspicions about, for over a month. The GP has said she needs to have the Pneumococcal vaccine, of course, especially with working in a nursing home. Sharon then asks the receptionist to make an appointment
2greys
in
Lung Conditions Community Forum
4 years ago
Scientists develop world's first light-activated antimicrobial surface that also works in the dark.
Researchers at UCL have developed a new antibacterial material which has potential for cutting hospital acquired infections. Hospital-acquired infections are a major issue for modern medicine, with pathogens like methicillin-resistant Staphylococcus aureus (MRSA) and Clostridium difficile (C. diff) getting
Researchers at UCL have developed a new antibacterial material which has potential for cutting hospital acquired infections. Hospital-acquired infections are a major issue for modern medicine, with pathogens like methicillin-resistant Staphylococcus aureus (MRSA) and Clostridium difficile (C. diff) getting
2greys
in
Lung Conditions Community Forum
4 years ago
Exhausting
Hi all.. what to do. I have no trouble falling asleep but its keeping asleep. I wake around 4 times a night every night and I'm exhausted. My pain from fibro and arthritis wakes me as my body hates being still. I'm in agony when I'm woken up and try to move that I end up getting up and moving around
Hi all.. what to do. I have no trouble falling asleep but its keeping asleep. I wake around 4 times a night every night and I'm exhausted. My pain from fibro and arthritis wakes me as my body hates being still. I'm in agony when I'm woken up and try to move that I end up getting up and moving around
JoQueenie
in
Fibromyalgia Action UK
4 years ago
High rbc and exercise?
Hi just a quick question as I forgot to ask my heamo yesterday . My Rbc and heamocrit are still high and outside the normal margins and just on aspirin and 6 weekly blood tests at the minute as having further tests . I read somewhere that exercise increases rbc count . I want to exercise a little if
Hi just a quick question as I forgot to ask my heamo yesterday . My Rbc and heamocrit are still high and outside the normal margins and just on aspirin and 6 weekly blood tests at the minute as having further tests . I read somewhere that exercise increases rbc count . I want to exercise a little if
Dolman
in
MPN Voice
4 years ago
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