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Stem Cell Transplant-update
Well, I have been below the radar lately but it’s time to update you all. I was diagnosed moth PMF in April 2020 and declined quite quickly. I have CALR with ASXL1 mutation. I went through rapidly increasing dose of Peg INF but moved over to Ruxolitinib when my platelet count dropped. The rux helped
Well, I have been below the radar lately but it’s time to update you all. I was diagnosed moth PMF in April 2020 and declined quite quickly. I have CALR with ASXL1 mutation. I went through rapidly increasing dose of Peg INF but moved over to Ruxolitinib when my platelet count dropped. The rux helped
ConniesDad
in
MPN Voice
2 years ago
New treatments for coronavirus
Hi everyone, On Monday I received a pack of lateral flow tests which I don’t think I had ordered. Just now I have received a letter by email from the NHS, detailing what I must do if I think I have contracted covid. The letter gives a reference number and my NHS number. It also says that I will receive
Hi everyone, On Monday I received a pack of lateral flow tests which I don’t think I had ordered. Just now I have received a letter by email from the NHS, detailing what I must do if I think I have contracted covid. The letter gives a reference number and my NHS number. It also says that I will receive
kitchengardener2
in
CLL Support
2 years ago
back in hospital end of july after episode & catching covid
Hi everyone I had yet another episode of my oxygen lowering before the end of july & was once again admitted as usual When I was transferred to a main ward from the transit ward after a few days in I had a 3rd swab only to be woken up early one morning to be told I tested positive for Covid
Hi everyone I had yet another episode of my oxygen lowering before the end of july & was once again admitted as usual When I was transferred to a main ward from the transit ward after a few days in I had a 3rd swab only to be woken up early one morning to be told I tested positive for Covid
horseygirl_0103
in
Lung Conditions Community Forum
2 years ago
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Covid Positive
I have been feeling really badly for 2 days. My doctor tested me this morning and of course I have Covid. Sore throat, body aches, wicked headache. I’m grateful to know that I will feel better hopefully in a few days. I really feel rough. Kelly
I have been feeling really badly for 2 days. My doctor tested me this morning and of course I have Covid. Sore throat, body aches, wicked headache. I’m grateful to know that I will feel better hopefully in a few days. I really feel rough. Kelly
Amore55
in
My MSAA Community
2 years ago
Better late than never
Afternoon my MPN friends. Not been on here for a while, but had to let you know got through the post this morning from the NHS seven covid tests and a letter to say that I had been identified as being a person who has an illness that should I get Covid could become very unwell and that now if I do
Afternoon my MPN friends. Not been on here for a while, but had to let you know got through the post this morning from the NHS seven covid tests and a letter to say that I had been identified as being a person who has an illness that should I get Covid could become very unwell and that now if I do
Superwoman
in
MPN Voice
2 years ago
How long should I wait to have a thyroid panel blood test after having COVID?
I ordered the advanced thyroid panel blood test from Medichecks... and then I got COVID 😭 I’m on day 11, and I've finally tested negative. It’s been quite rough. My question is: does anyone know how long I should wait before my blood test? Will having had COVID again affect my results? I don’t want
I ordered the advanced thyroid panel blood test from Medichecks... and then I got COVID 😭 I’m on day 11, and I've finally tested negative. It’s been quite rough. My question is: does anyone know how long I should wait before my blood test? Will having had COVID again affect my results? I don’t want
melissa-b
in
Thyroid UK
2 years ago
COVID and AFIB...... BA5 finally got me...
Can AFIB patients (permanent for me)take the COVID drug Paxlovid? I worked so hard to avoid it but the BA5 variant got me. How have others with AFIB faired with COVID? Particularly the recent variants (that tend to be less severe). Symptoms, progression each day, length of time with symptoms? Pretty
Can AFIB patients (permanent for me)take the COVID drug Paxlovid? I worked so hard to avoid it but the BA5 variant got me. How have others with AFIB faired with COVID? Particularly the recent variants (that tend to be less severe). Symptoms, progression each day, length of time with symptoms? Pretty
ktf2022
in
AF Association
2 years ago
New guidance for people treated with methotrexate when they have the COVID-19 vaccine
New guidance has been published for people treated with methotrexate when they have their next COVID-19 booster vaccine. You can read about the VROOM Study and the new guidance at https://www.lupusuk.org.uk/mtx-covid19-vaccination/ If you are treated with methotrexate, please speak with your doctor
New guidance has been published for people treated with methotrexate when they have their next COVID-19 booster vaccine. You can read about the VROOM Study and the new guidance at https://www.lupusuk.org.uk/mtx-covid19-vaccination/ If you are treated with methotrexate, please speak with your doctor
Paul_Howard
LUPUS UK
in
LUPUS UK
2 years ago
Covid-19 2nd Positive
Hi folks,well it’s almost 12 months since my 1st Covid positive and this morning I have tested positive for the 2nd time.I have thus far received 2 vaccinations and 3 booster shots and after feeling a little off last night and testing negative,I tested again this morning after waking up with that really
Hi folks,well it’s almost 12 months since my 1st Covid positive and this morning I have tested positive for the 2nd time.I have thus far received 2 vaccinations and 3 booster shots and after feeling a little off last night and testing negative,I tested again this morning after waking up with that really
Nickos66
in
CLL Support
2 years ago
All clear
well I have had my telephone consultation with the haematologist just. my epo 7.3 and two under 450 bloods tests later he's discharged me. 395 I had my scan results and he says my spleen normal.kidney cysts are normal.a and everything else normal. says that some people can have abnormal blood
well I have had my telephone consultation with the haematologist just. my epo 7.3 and two under 450 bloods tests later he's discharged me. 395 I had my scan results and he says my spleen normal.kidney cysts are normal.a and everything else normal. says that some people can have abnormal blood
Notdiagnosed
in
MPN Voice
2 years ago
FET and Covid
Following on from my post Monday regarding frozen embryo transfer and feeling very positive my daughter had tested positive for covid this morning 😭 I am currently negative and wearing a mask round the house, constantly sanitising myself and surfaces but so nervous to catch it and what might happen
Following on from my post Monday regarding frozen embryo transfer and feeling very positive my daughter had tested positive for covid this morning 😭 I am currently negative and wearing a mask round the house, constantly sanitising myself and surfaces but so nervous to catch it and what might happen
Aame7800
in
Fertility Network UK
2 years ago
Covid and GCA
I have GCA. My prednisolone has reduced to 3mg daily and methotrexate 15mg weekly. I am now having a relapse and am awaiting a PET scan. I now have covid. The NHS pharmacist phoned me and told me I wasnt eligible for the pill to stop it getting worse as you have to be on 10mg or more prednisolone
I have GCA. My prednisolone has reduced to 3mg daily and methotrexate 15mg weekly. I am now having a relapse and am awaiting a PET scan. I now have covid. The NHS pharmacist phoned me and told me I wasnt eligible for the pill to stop it getting worse as you have to be on 10mg or more prednisolone
Hidden
in
PMRGCAuk
2 years ago
immune suppression during Covid is scary
Anyone else feeling like Covid is not over for them yet? I’m still working from home, avoiding public and crowded places, ordering groceries. Am I being overly cautious? Everyone has stopped wearing masks so for me, it’s gotten even more dangerous out there. Yes, I’ve had 4 shots but they don’t really
Anyone else feeling like Covid is not over for them yet? I’m still working from home, avoiding public and crowded places, ordering groceries. Am I being overly cautious? Everyone has stopped wearing masks so for me, it’s gotten even more dangerous out there. Yes, I’ve had 4 shots but they don’t really
MsAmyM
in
Kidney Disease
2 years ago
Partner not allowed into consultation
My wife received a letter today, confirming her consultation date when she will finally learn if any treatment is available to her and if so what is recommended. However, this letter also states [i]"please would you attend alone."[/i] This is utterly astonishing. They say it's due to the pandemic.
My wife received a letter today, confirming her consultation date when she will finally learn if any treatment is available to her and if so what is recommended. However, this letter also states [i]"please would you attend alone."[/i] This is utterly astonishing. They say it's due to the pandemic.
scotleag
in
The Roy Castle Lung Cancer Foundation
2 years ago
Cancer patients test world’s first ‘computer-designed’ antibodies, made in Israel
Today they are generally deployed to perform a single task — for example, to neutralize
coronavirus
. As he puts it, they are “one-trick ponies.”
Today they are generally deployed to perform a single task — for example, to neutralize
coronavirus
. As he puts it, they are “one-trick ponies.”
lupus-support1
Administrator
in
LUpus Patients Understanding and Support
2 years ago
NHS letter re Covid drugs
However, I have just had an email which says " Important information about new treatments for
coronavirus
The NHS is offering new treatments for
coronavirus
. Your medical records currently show you might be suitable for these treatments if you have
coronavirus
.
However, I have just had an email which says " Important information about new treatments for
coronavirus
The NHS is offering new treatments for
coronavirus
. Your medical records currently show you might be suitable for these treatments if you have
coronavirus
.
Digger0
in
Bronchiectasis Support
2 years ago
COVID
Hi everyone it is with a heavy heart that after about 6 days in the respiratory ward & after a swab I sadly have been found to be positive tested for Covid im very shocked.Alli came in for was to get my oxygen levels back up to normal after for the6th time it dropped dangerously on a
Hi everyone it is with a heavy heart that after about 6 days in the respiratory ward & after a swab I sadly have been found to be positive tested for Covid im very shocked.Alli came in for was to get my oxygen levels back up to normal after for the6th time it dropped dangerously on a
Sara_2611
in
Lung Conditions Community Forum
2 years ago
Finding it really hard getting back into it
My last run was on 7th July. A busy week made me miss a couple of runs, then catching Covid (again) and the heat wave just made it impossible to even consider running. I dont do well in the heat at the best of time, anything over 25 and I find walking fast a killer. The dogs can only have a short
My last run was on 7th July. A busy week made me miss a couple of runs, then catching Covid (again) and the heat wave just made it impossible to even consider running. I dont do well in the heat at the best of time, anything over 25 and I find walking fast a killer. The dogs can only have a short
Chris--B
Graduate
in
Couch to 5K
2 years ago
covid
apologies not sure where to post this ....not asthma related ... does anyone have any tips on dealing with a spre swollen throat due to covid ? it's gotten so bad I'm struggling to swallow my spit and eat or drink. I've eaten a yoghurt today amd then promptly threw up just to add to it. tried
apologies not sure where to post this ....not asthma related ... does anyone have any tips on dealing with a spre swollen throat due to covid ? it's gotten so bad I'm struggling to swallow my spit and eat or drink. I've eaten a yoghurt today amd then promptly threw up just to add to it. tried
Nifflerluck
in
Asthma Community Forum
2 years ago
Going backwards!
I am not sure if anyone can help with this, maybe some words of encouragement or similar? I started my running journey about a year ago and with lots of hard work managed to get to 9 miles in 1 hour 28 mins. I was so happy, and felt that I was really improving. Then in April 21 covid hit. Since
I am not sure if anyone can help with this, maybe some words of encouragement or similar? I started my running journey about a year ago and with lots of hard work managed to get to 9 miles in 1 hour 28 mins. I was so happy, and felt that I was really improving. Then in April 21 covid hit. Since
SB1000
in
Bridge to 10K
2 years ago
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