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Tapering while new issues
well I have told my story pretty well all along, including some family serious illnesses . In previous comments, I have mentioned my son, who has fought a battle actually since June 2017, beingdiagnosed with multiple myeloma, having stem cell transplant in Jan 2018, as a mom, this was very hard to see
well I have told my story pretty well all along, including some family serious illnesses . In previous comments, I have mentioned my son, who has fought a battle actually since June 2017, beingdiagnosed with multiple myeloma, having stem cell transplant in Jan 2018, as a mom, this was very hard to see
arvine
in
Pain Concern
1 year ago
Back Pain - 6 weeks in.
Hi, my dad had a liver transplant 6 weeks ago and is suffering from very bad back pain. To the point he can’t stand up. Is this normal? Also his starting talking in his sleep a lot. Is this normal. Pls help it’s very worrying.
Hi, my dad had a liver transplant 6 weeks ago and is suffering from very bad back pain. To the point he can’t stand up. Is this normal? Also his starting talking in his sleep a lot. Is this normal. Pls help it’s very worrying.
Shoker
in
British Liver Trust
1 year ago
Gall bladder surgery
Hello guys I hope you all are doing well. Three days back I got my gallbladder removed because of the stone. Is there anyone who got it done after a kidney transplant?
Hello guys I hope you all are doing well. Three days back I got my gallbladder removed because of the stone. Is there anyone who got it done after a kidney transplant?
neet24
in
Kidney Transplant
1 year ago
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Red face / flushing. Possible rosacea
Hi I am 200 plus days post stem cell transplant. Since then I get flushed very easily. I have suffered with this in the past and still have it now but maybe worse I take a few medications still which may or may not help and wondered on any good way of controlling it my consultant has recommended me
Hi I am 200 plus days post stem cell transplant. Since then I get flushed very easily. I have suffered with this in the past and still have it now but maybe worse I take a few medications still which may or may not help and wondered on any good way of controlling it my consultant has recommended me
Kraskie1915
in
CLL Support
1 year ago
PIP assessment
Hi all, I have a video PIP assessment in a few weeks time and was wondering if anyone had any tips or advice for this? I do not have issues with mobility but suffer with chronic fatigue and pain due to my illness and am signed off work for the foreseeable. Waiting for a multi organ transplant. It
Hi all, I have a video PIP assessment in a few weeks time and was wondering if anyone had any tips or advice for this? I do not have issues with mobility but suffer with chronic fatigue and pain due to my illness and am signed off work for the foreseeable. Waiting for a multi organ transplant. It
GEMMA1991
in
British Liver Trust
1 year ago
Hello gang. HNY. I received my donor liver transplant!!!!!!!!
A call came during the night calling me to Birmingham and I was transplanted on December 16th.
Wow!!!
I'm
the luckiest person in the world. Thank you all for your communications through the years. God bless you all xxxxx🥰 🙏✨️🐌🐾🐈⬛
A call came during the night calling me to Birmingham and I was transplanted on December 16th.
Wow!!!
I'm
the luckiest person in the world. Thank you all for your communications through the years. God bless you all xxxxx🥰 🙏✨️🐌🐾🐈⬛
Charlie-legs
in
British Liver Trust
1 year ago
44 yrs old diabetic lab results showing protein in urine very scared
I am 44 years old Chronic Diabetic for 10 years egfr 117 but recent lab showed protein in urine in next set of tests it came negative but I am so scared now as my father got kidney transplant his sister donated but I am not sure if I am that much lucky. if I take more protein my blood
I am 44 years old Chronic Diabetic for 10 years egfr 117 but recent lab showed protein in urine in next set of tests it came negative but I am so scared now as my father got kidney transplant his sister donated but I am not sure if I am that much lucky. if I take more protein my blood
herc1979
in
Kidney Disease
1 year ago
Has anyone had Covid post-transplant?
I am finding my anxiety about Covid is impacting the quality of my life. I have periods of generalized anxiety where EVERYTHING scares me: from Global Warming to the drought in the western states to my husband dying and leaving me alone. After much thought, I think it all stems from the onset of Covid
I am finding my anxiety about Covid is impacting the quality of my life. I have periods of generalized anxiety where EVERYTHING scares me: from Global Warming to the drought in the western states to my husband dying and leaving me alone. After much thought, I think it all stems from the onset of Covid
Djangosmom
in
Kidney Transplant
1 year ago
Long story but about to have transplant assessment but really suffering with ascities, odeama and looking for advice re drains
Hi, My husband is going in for a liver transplant assessment next week. He has been very ill with cirrhosis for many years but the past 3 years he has been admitted to hospital with Hepatic Encephalopathy on several occasions and has been continuously jaundiced for over a year now, his quality of
Hi, My husband is going in for a liver transplant assessment next week. He has been very ill with cirrhosis for many years but the past 3 years he has been admitted to hospital with Hepatic Encephalopathy on several occasions and has been continuously jaundiced for over a year now, his quality of
Elvishaslefttheroom
in
British Liver Trust
1 year ago
Anyone with gastroparesis?
Hi all. I have gastroparesis (slow emptying of the stomach). This started when I went into failure in fall 2021, and just after my first and only bout of diverticulitis. I am now even wondering if what I had was that. Anyway, I received a kidney transplant in August 2022 and am doing well except for
Hi all. I have gastroparesis (slow emptying of the stomach). This started when I went into failure in fall 2021, and just after my first and only bout of diverticulitis. I am now even wondering if what I had was that. Anyway, I received a kidney transplant in August 2022 and am doing well except for
Hidden
in
Kidney Transplant
1 year ago
Fact of the day 2nd January
A very fitting fact for you today 1968 Christiaan Barnard performs the world's second heart transplant on Philip Blaiberg
A very fitting fact for you today 1968 Christiaan Barnard performs the world's second heart transplant on Philip Blaiberg
Valentina98
in
British Heart Foundation
1 year ago
Life beyond Myelofibrosis
I progressed from ET to Myelofibrosis a couple of years ago. I had an enlarged spleen and ruxolitinib lowered the platelets too much so I was switched to fedratinib. Depending on what predictive tool was used, I had a median predicted life span of between 2 and 14 years - not terribly helpful! I was
I progressed from ET to Myelofibrosis a couple of years ago. I had an enlarged spleen and ruxolitinib lowered the platelets too much so I was switched to fedratinib. Depending on what predictive tool was used, I had a median predicted life span of between 2 and 14 years - not terribly helpful! I was
Scaredy_cat
in
MPN Voice
1 year ago
introducing myself...
hello all, i'm new to this community and happy to be a part. i was diagnosed with AML in late august of last year and just underwent a Stem Cell Transplant at sloan kettering hospital in new york city in late march. i'm wondering if anyone out there has experienced the same? looking forward to hearing
hello all, i'm new to this community and happy to be a part. i was diagnosed with AML in late august of last year and just underwent a Stem Cell Transplant at sloan kettering hospital in new york city in late march. i'm wondering if anyone out there has experienced the same? looking forward to hearing
jmcasbar
in
Leukaemia Support
1 year ago
post lung transplant
I have recently been accepted on the lung transplant list (November). I would value any advise/experience on the subject. I apparently have a very good blood group thus estimated waiting 50% 6 months, 80% 12 months. Thank you in advance Paul.
I have recently been accepted on the lung transplant list (November). I would value any advise/experience on the subject. I apparently have a very good blood group thus estimated waiting 50% 6 months, 80% 12 months. Thank you in advance Paul.
Northernsaul
in
Lung Conditions Community Forum
2 years ago
Staph infection from IV
Hi team I was recently diagnosed with a staph infection / cellulitis from the IV from a hospital stay. I am on antibiotics now but am concerned due to being a kidney transplant recipient . Has anyone had this before?
Hi team I was recently diagnosed with a staph infection / cellulitis from the IV from a hospital stay. I am on antibiotics now but am concerned due to being a kidney transplant recipient . Has anyone had this before?
Beachvibe
in
Kidney Transplant Patient Support
2 years ago
Scared
I’ve been feeling a bit rubbish very tired ,had some tests showing elevated ALT ranging between 47 and 76 this year also raised ferritin around 300 . Diagnosed by this and a fibroscan showed f4 fibrosis /early Cirrosis and fatty liver disease . Awaiting full bloods but I know 30 years ago they saw
I’ve been feeling a bit rubbish very tired ,had some tests showing elevated ALT ranging between 47 and 76 this year also raised ferritin around 300 . Diagnosed by this and a fibroscan showed f4 fibrosis /early Cirrosis and fatty liver disease . Awaiting full bloods but I know 30 years ago they saw
Kikidee08
in
British Liver Trust
2 years ago
Kidney Transplant
Hi Could I please have a chat to a male doctor, or specialist, about that after effects of the operation. I had several years ago
Hi Could I please have a chat to a male doctor, or specialist, about that after effects of the operation. I had several years ago
AS52
in
Kidney Disease
2 years ago
I Feel like I should be grateful to be on the waiting list for a new liver. But I really don’t feel grateful to towards the kind doctors.
I hate the way I feel about the thought of a new liver transplant. I have made it know to doctors about my feeling towards a new liver transplant. I feel great at the moment and I only on one type of tablet a day. For my liver condition. After I have a new liver transplant I will be on 27 different
I hate the way I feel about the thought of a new liver transplant. I have made it know to doctors about my feeling towards a new liver transplant. I feel great at the moment and I only on one type of tablet a day. For my liver condition. After I have a new liver transplant I will be on 27 different
LucyBarrett
in
British Liver Trust
2 years ago
I really don’t want a liver transplant but do not know how to get of the list for good.
I really don’t want a liver transplant. Last year in December I was out on the liver transplant list. I got called in within less then a week after being put on the transplant list. 14th December 2021 to be more precise. But it never happened. And just felt the whole excise was a trial run. I been attending
I really don’t want a liver transplant. Last year in December I was out on the liver transplant list. I got called in within less then a week after being put on the transplant list. 14th December 2021 to be more precise. But it never happened. And just felt the whole excise was a trial run. I been attending
LucyBarrett
in
British Liver Trust
2 years ago
What do you do and what support do you get if you really don’t want a liver transplant
I really don’t want a liver transplant. Last year in December I was out on the liver transplant list. I got called in within less then a week after being put on the transplant list. 14th December 2021 to be more precise. But it never happened. And just felt the whole excise was a trial run. I been attending
I really don’t want a liver transplant. Last year in December I was out on the liver transplant list. I got called in within less then a week after being put on the transplant list. 14th December 2021 to be more precise. But it never happened. And just felt the whole excise was a trial run. I been attending
LucyBarrett
in
British Liver Trust
2 years ago
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