Kidney transplant list: I have been away for... - Kidney Disease

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Lee75glom profile image
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I have been away for a while due to a poor bowel prep for a required colonoscopy. Penn Med Transplant recipient team states that the colonoscopy has to be successful in the prep and needs to rule out colon cancer. I have a tortuous colon which interferes with the procedure to begin with. I visited Penn Med to see my team recently and found out that they very much want to put me on the deceased kidney list. I am repeating the colonoscopy on April 16 following a more intensive laxative regimen. I hope it works. I am on hemodialysis now and so far, my fistula is working, except that I needed to have an angioplasty due to 80 % blockage in the access. I am having it checked in early April 2025. I wonder if anyone else has experienced the problems with colonoscopy prep and requiring an angioplasty for their access. Thanks for your response.

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Lee75glom
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lowraind profile image
lowraind

This is what I found after my own failure:

Repeat colonoscopy--Prep

PATIENTS AND INTERVENTION:

Outpatients with inadequate preparation at an index colonoscopy were offered a repeat colonoscopy and instructed to follow an intensive preparation regimen consisting of a low-fiber diet for 72 hours, liquid diet for 48 hours, bisacodyl (10 mg) in the evening of the day before the colonoscopy, and a split dose of polyethylene glycol (1.5 L in the evening before and 1.5 L in the morning on the day of the colonoscopy).

Low-fiber diet for 72 hours

TYPE OF FOOD OR DRINK OK TO EAT THESE FOODS

Milk and dairy

OK to eat:

• Milk

• Cream

• Hot chocolate

• Buttermilk

• Cheese, including cottage cheese

• Yogurt

• Sour cream •

Bread and grains

OK to eat:

• Breads and grains made with refined white flour (including rolls, muffins, bagels, pasta)

• White rice

• Plain crackers, such as Saltines

• Low-fiber cereal (including puffed rice, cream of wheat, corn flakes) •

Meat

OK to eat:

• Chicken

• Turkey

• Lamb

• Lean pork

• Veal

• Fish and seafood

• Eggs

• Tofu

Fruits

OK to eat:

• Fruit juice without pulp

• Applesauce

• Ripe cantaloupe and honeydew

• Ripe, peeled apricots and peaches

• Canned or cooked fruit without seeds or skin •

Vegetables

OK for some if cooked or canned:

• Canned or cooked vegetables without skin or peel (includes peeled carrots, mushrooms, turnips, asparagus tips)

• Potatoes without skin

• Cucumbers without seeds or peel •

Nuts, nut butter, seeds

OK to eat:

• Creamy (smooth) peanut or almond butter •

Fats and oils

OK to eat:

• Butter

• Margarine

• Vegetable and other oils

• Mayonnaise

• Salad dressings made without seeds or nuts

Soups

OK to eat:

• Broth, bouillon, consomme, and strained soups

• Milk or cream-based soup, strained •

Desserts

OK to eat:

• Custard

• Plain pudding

• Ice cream

• Sherbet or sorbet

• Jell-O or gelatin without added fruit or red or purple dye

• Cookies or cake made with white flour, prepared without seeds, dried fruit, or nuts •

Drinks or beverages

OK to eat:

• Coffee

• Tea

• Hot chocolate or cocoa

• Clear fruit drinks (no pulp)

• Soda and other carbonated beverages

• Ensure, Boost, or Enlive without added fiber •

Other

OK to eat:

• Sugar

• Salt

• Jelly

• Honey

• Syrup

• Lemon juice •

Legumes-- None allowed

Stop supplements: Herbal, vitamins and oral iron supplements

Start low-fiber diet meal plan Foods allowed five days before the procedure:

• Enriched white bread, pasta and noodles, white rice, potatoes without skin

• Canned or well-cooked vegetables without seeds or skin

• Canned fruit or fresh fruit without skin or membranes

• Tender meat, chicken or fish

Foods to avoid five days before the procedure:

• Any food containing seeds, nuts or popcorn

• Raw vegetables with a skin, seeds, corn, broccoli, cabbage, dried beans or peas

• Whole grain bread or pasta, brown or wild rice, cereal such as oatmeal, shredded wheat and granola

• Fruit with skins

• Tough meat with gristle l Fatty foods

Suggested meal plan:

• FRIDAY (Five days before colonoscopy):

o Breakfast: eggs, white toast, jam

o Lunch: turkey sandwich on white bread with avocados, baked potato chips

o Dinner: grilled chicken thighs, sautéed mushrooms, white rice cooked in mushroom broth

• SATURDAY (Four days before colonoscopy):

o Breakfast: Greek yogurt with bananas and honey topping

o Lunch: tuna with olive oil and lemon juice on sour dough bread, honeydew melon cubes

o Dinner: cedar plank wild salmon (no coloring), sautéed spinach with garlic, Israeli couscous

• SUNDAY (Three days before colonoscopy):

o Breakfast: half cantaloupe with Greek yogurt and honey topping

o Lunch: turkey sandwich on sour dough bread, honeydew melon cubes

o Dinner: Orecchiette white pasta with cream sauce

Clear-liquid diet for colonoscopy preparation

Two days before — and the day of — your colonoscopy, you will be on a clear-liquid diet. The chart shows examples of drinks you can include, and what to avoid. Starting the day before your screening, don't eat any solid food until after your colonoscopy.

• Water

• Tea and black coffee without any milk, cream, or lightener

• Flavored water without red or purple dye

• Clear, light colored juices such as apple, white grape, lemonade without pulp, and white cranberry

• Clear broth including chicken, beef, or vegetable

• Soda

• Sports drinks such as Gatorade and Propel (light colors only)

• Popsicles without fruit or cream; no red or purple dye

• Jello-O or other gelatin without fruit; no red or purple dye

• Boost Breeze Tropical Juice drink •

Two Days Before the Colonoscopy:

o Monday

 Stop any anti-inflammatory medications l Do not take Motrin, Advil, Ibuprofen l You may take Tylenol and Celebrex

 Confirm that you have a driver who will come with you to the appointment

 Complete all medical forms

 List all medications you are on

 Find insurance cards

 Prepare first and last names with address of all doctors you want to receive a copy of your procedure

 Determine product for preparation and flavors you prefer

 Determine what you will be wearing

 Comfortable, loose fitting clothing

 Easy to step into l Tennis or flat shoes

 Do not wear jewelry, watches or bring valuables

One Day Before the Colonoscopy

o Tuesday

 No solid food or alcohol

 Liquids you must avoid:

Milk, shakes, smoothies l Juices: orange, grapefruit, prune (no red or purple juices)

 Clear liquids you may consume:

(no red or purple flavors/colors)

Gatorade, Powerade, Kool Aide

Juice: apple, white grape

Soda: ginger ale, orange, diet cola, cola, Sprite, 7Up

Coffee or tea (no cream)

Jello, popsicles

Clear soup, beef broth, chicken broth, bouillon

 Hydrate: (once awake)

Drink eight ounces of Gatorade without prep product every hour while awake

 Medications: (3:00 p.m.)

Make sure you take the prescribed medications one hour prior to drinking prep solutions so they can absorb Bowel Preparation:

Darlenia profile image
Darlenia

My husband also has a "torturous colon". He was on peritoneal dialysis at the time and, like you, needed a colonoscopy to get on the transplant list. (He was 70 yrs old then and had to get it done during the pandemic when very few doctors were performing them.) My husband, who is never constipated, took the "golytely prep", managed to complete most of it, and presented "clean" on the table. We then learned, for the first time, that he had a "torturous colon" and, hence, the colonoscopy was incomplete, leaving a good portion unexamined. Upsetting news. His gastroenterologist doubted another colonoscopy would fix the matter, his scope would only get blocked again. So, the decision was made to use the Cologuard Kit - the one you mail in - to complete the colon evaluation. That result came in fine. The doctor then quickly completed and sent in his evaluation using information from both sources - the scope and the kit. Our transplant center accepted it, no questions asked. A few months later, we double-listed at another transplant center and it also accepted that evaluation. And, to our great surprise, my husband received his gift - a deceased donor kidney with a few issues - soon thereafter. It's performing well - almost 4 years later. If this is similar to your situation, this approach may work for you too - combining the kit and the colonoscopy. Where there's a will, there's a way. Sending you encouragement!

Lee75glom profile image
Lee75glom in reply toDarlenia

Thanks for your reply and congratulations on your husband's finding a kidney. Unfortunately, I have adenomas, which must be removed. Cologuard warns not to use it if one has adenomas.

Darlenia profile image
Darlenia in reply toLee75glom

My husband actually had an adenoma that was removed in the portion of his colon that the scope could see and access. We don't knows if there were others. In view that, it's interesting the two centers accepted the scope/cologuard evaluation. CKD-4 mentions getting around the torturous colon problem using a CT scan - see below. That might be an alternative solution, but that wouldn't be able to remove polyps either. I'll cross my fingers that that another colonoscopy will be successful for you. I'd truly love to see you get a transplant.

Ballspinner profile image
Ballspinner

I like Darlenia's answer the best about taking the cologard test after the incomplete colonoscopy. With a tortuous colon, it may be impossible to get the instrument around all the bends. As for the angioplasty, I've had several and you will be under sedation during the procedure, so you won't feel it. It's best to get it done asap so the fistula doesn't completely block. I've had that kind, too, which required me to have a in chest catheter temporarily. I would suggest talking to the anesthesiologist before they do it so you can explain if you have any problems with anesthesia side effects. I have nausea and vomiting afterwards, so I insist they use Zofran in the IV line. They usually use Propofol on me for sedation. Good luck on both!

Lee75glom profile image
Lee75glom in reply toBallspinner

I am checking the success of the angioplasty in maintaining patency, the opening of the vessel and lack of blocking. That will occur April 3, 2025. The vascular surgeon used fentanyl as the anesthetic. I did not ask if it came from Canada or Mexico-hah hah. I appreciate your kind thoughts.

Ballspinner profile image
Ballspinner in reply toLee75glom

Once, I had a different vascular surgeon who did put in a stent in the upper part of my fistula which would repeatedly block. That worked very well. I began to think of balloon angioplasties as necessary routine maintenance for my fistula. I would have at least one per year for the four years I was on hemodialysis before I got my transplant.

CKD2-4 profile image
CKD2-4

Hi. I had the same problem and ended up having a CT colonoscopy.

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