New here: Hello everyone, today I am writing... - Kidney Disease

Kidney Disease

13,190 members5,334 posts

New here

Jupiter1303 profile image
6 Replies

Hello everyone, today I am writing in search of some light and cure for my sanity. I am 22 years old, I was diagnosed with CKD in 2021. For the past 3 years, I have been on peritoneal dialysis, but due to an ongoing infection, it is going to be removed. Because of these results, I must return to HD. I am struggling and am not a person to open up much; I am very private, and that is pretty much it. I'd love some advice or to connect with people struggling with the same issues. Thank you

Written by
Jupiter1303 profile image
Jupiter1303
To view profiles and participate in discussions please or .
Read more about...
6 Replies
lilwil612 profile image
lilwil612

Hello, I am so sorry to hear about your hardships. As someone with family members going through your same struggle, I have a deep interest in helping to improve the quality of life of dialysis patients. I am working on a school project on this and was wondering if you could answer a few questions and give me insight on your experience.

Again, I am so sorry about your struggles and wish you the best.

purifire7777 profile image
purifire7777

Accept, Accept Everything As It Is Right Now.Here is what to do:

I Accept _______________

I Accept ______________

I Accept _____________

What comes up, you accept.

Continue to Accept until you feel light as a feather.

Get stress or other outside control?

Accept Everything As It Is Right Now.

I Accept ___________

On & on your entire life.

Pitva profile image
Pitva

so sorry to hear this. Hope you are able to join a local kidney support group so it eases your suffering. You mustn’t stay private when the pain is too much. How come you diagnosed with Ckd end stage at so early age? Were there any signs or hereditary issues your body was displaying?

Ballspinner profile image
Ballspinner

Hi Jupiter, if you are looking to connect with other young people doing dialysis, I would suggest you contact Lori Hartwell at Renal Support Network (rsnhope.org). She was diagnosed started dialysis at age 2, has had PD and is on her fourth transplant. Her organization she started spreads hope and courage and learning to live well as CKD patients. They have support groups twice a month, a yearly prom for young people, arts and crafts group, book club, fitness classes once a week, a great nutrition group and many online resources. I have used her groups through 4 years of hemodialysis and now another 4 years post transplant. There is plenty of life ahead of you and you will get through this change and challenge by taking one step at a time and developing that courage within you! You can do it!

jflorax profile image
jflorax

Hello, sorry to hear. But you've reached the right forum. Everyone here is wonderful and going through similar struggles. The Kidney Foundation of Canada (I'm not sure where you are from) has a number of available resources. Personally, I write down what I'm feeling, once it's out then I feel like I can get on with the day.

blk1 profile image
blk1

Excuse me what kind of infection?

Not what you're looking for?

You may also like...

I'm new here

I am new here, 74 years old and have been diagnosed with Chronic Kidney Disease, Level 3 in Nov....
BarbnKY profile image

New here. Just diagnosed.

Hi. I'm Nancy. I'm 61. I've had Type 1 Diabetes for 47 years, Coronary Heart Disease for two...
NancyLou profile image

New here.

Hey, I’m Ross and I was on dialysis for 12 years before receiving a kidney transplant in august...
Rmatthew profile image

Hi, I'm new here :)

I am a 19 year old girl with stage 3 of CKD I have had this since I was very little about 3 I...

Hello I'm new here

Hi! I'm new and wanted to introduce myself. I was diagnosed with Stage 3 Chronic Kidney Disease...

Moderation team

See all
PattyM_NKF profile image
PattyM_NKFModerator
DorisL_NKF profile image
DorisL_NKFModerator

Top community tags

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.