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[Jupiter1303]

Hello everyone, today I am writing in search of some light and cure for my sanity. I am 22 years old, I was diagnosed with CKD in 2021. For the past 3 years, I have been on peritoneal dialysis, but due to an ongoing infection, it is going to be removed. Because of these results, I must return to HD. I am struggling and am not a person to open up much; I am very private, and that is pretty much it. I'd love some advice or to connect with people struggling with the same issues. Thank you

[lilwil612]

Hello, I am so sorry to hear about your hardships. As someone with family members going through your same struggle, I have a deep interest in helping to improve the quality of life of dialysis patients. I am working on a school project on this and was wondering if you could answer a few questions and give me insight on your experience.

Again, I am so sorry about your struggles and wish you the best.

[purifire7777]

Accept, Accept Everything As It Is Right Now.Here is what to do:

I Accept _______________

I Accept ______________

I Accept _____________

What comes up, you accept.

Continue to Accept until you feel light as a feather.

Get stress or other outside control?

Accept Everything As It Is Right Now.

I Accept ___________

On & on your entire life.

[Pitva]

so sorry to hear this. Hope you are able to join a local kidney support group so it eases your suffering. You mustn’t stay private when the pain is too much. How come you diagnosed with Ckd end stage at so early age? Were there any signs or hereditary issues your body was displaying?

[Ballspinner]

Hi Jupiter, if you are looking to connect with other young people doing dialysis, I would suggest you contact Lori Hartwell at Renal Support Network (rsnhope.org). She was diagnosed started dialysis at age 2, has had PD and is on her fourth transplant. Her organization she started spreads hope and courage and learning to live well as CKD patients. They have support groups twice a month, a yearly prom for young people, arts and crafts group, book club, fitness classes once a week, a great nutrition group and many online resources. I have used her groups through 4 years of hemodialysis and now another 4 years post transplant. There is plenty of life ahead of you and you will get through this change and challenge by taking one step at a time and developing that courage within you! You can do it!

[jflorax]

Hello, sorry to hear. But you've reached the right forum. Everyone here is wonderful and going through similar struggles. The Kidney Foundation of Canada (I'm not sure where you are from) has a number of available resources. Personally, I write down what I'm feeling, once it's out then I feel like I can get on with the day.

[blk1]

Excuse me what kind of infection?

[XmasKidney]

If you live in the United States you may want to look into the National Kidney Foundation's Mentor program.

I was 19 when I was diagnosed with my kidney failure. So i can understand how hard it can be. I have been a kidney patient my whole adult life; with peritoneal dialysis and two kidney transplants. The best thing you can do is educate yourself and aks questions to people on a site like this.