Hi, Everybooty!My name is Tracy and I have a living donor transplant (from my mommy who is 82 and pretty healthy) that will be 30 years old on January 4, 2025. I'm 52 years old and my kidneys failed due to having Systemic Lupus Erythematosis that I was diagnosed with in November 1987 and my kidneys failed a year later and I was in full crisis, lupus flare-up, my kidneys failing, in congestive heart failure, the works. I was in the ICU for 36 days. There's so much more. LOL I have dark humor that I use as a coping mechanism. Would love to connect with anyone who can relate in any way. I currently have to have magnesium infusions every Tuesday after having my blood drawn every Monday. I'm also on a low potassium diet which SUCKS. I have experience with being on hemodialysis and peritoneal dialysis. If you're still reading, thank you and I look forward to meeting people as I am feeling kind of alone.
Introduction: Hi, Everybooty!My name is... - Kidney Transplant
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Dank dat er nog meer van dit soort mensen zijn 😃Kijk op m'n instagramfeed: josvraamt
Nice to meet you here. I love your black kitty! Why do you need regular magnesium infusion?
For some reason, possibly just how long I've had kidney disease, my body is not hanging on to magnesium, anymore. And I can't tolerate taking supplements as they cause me severe and embarrassing gastrointestinal problems.
Also, thanks for remarking on my kitty. We just adopted him a couple of weeks ago because I had to have one of my cats put down on July 10th and I was crying every day because I missed him so much. This guys shelter name was Dollah Dollah Bill, which cracked us up, so we kept it. Just dropped the "h".
Hello Tracy, congratulations on the 30 years!
I’m curious about your magnesium infusions and when/why did they start? I’m 22 years post transplant (deceased donor) and recently had slightly low magnesium levels flagged on some blood tests.
No action being taken at present.
Thank you! I'm supposed to receive two 30 year pins in the mail so I can give one to my mommy.
See my comment above, but also, my magnesium levels go low enough that I've spent many an hour in the E.R. receiving magnesium. I'm talking levels of 0.7, 0.8... I've never seen my magnesium level above 1.1 since this all started, which still isn't in "normal" range which starts at 1.6. I've been doing these infusions for many months, now. Each time, it takes about 3 - 4 hours. I recently spoke to my transplant doctor and she's working on some medication changes that MIGHT raise my magnesium. I also have bad veins from decades of prednisone use, so it helps that I go to a local cancer center for the infusions. Those nurses are awesome.
What has YOUR magnesium been running? I'm interested in what your health care team does about it.
I'm so sorry you've been going through it! I understand how it feels to feel alone especially with a chronic illness. It seems to me we are often ignored or put away in a imaginary cupboard in society because it's difficult for those who haven't had an illness or know someone who has. This group and other online groups are so helpful. Anyway - thinking of you and hope you are having a better day.
I too had a high potassium. I took Veltassa prior to my kidney transplant. It bind the potassium in your gut to keep it from being absorbed. Might be worth seeing if your insurance would cover it.
Waiting to get on the List
Blessed with a 2nd Kidney Transplant
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Double Nephrectomy?
Post Transplant psoriatic arthritis treatment 
