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Hello Not sure where to start. I had some blood tests done through Blue Horizon because of many symptoms I thought were hyperthyroidism. I had, two years ago, finally managed to get my weight just above 9 stone. Then over the course of a month went down to 8 stone 4. Drenching night sweats were awful
Hello Not sure where to start. I had some blood tests done through Blue Horizon because of many symptoms I thought were hyperthyroidism. I had, two years ago, finally managed to get my weight just above 9 stone. Then over the course of a month went down to 8 stone 4. Drenching night sweats were awful
Wilderflower
in
Thyroid UK
10 months ago
ideal biochemistry monitoring
question: I know that there are protols for regular blood PSA and sometimes Testosterone when on SOC following RT and during the 2-3 years ADT (with localised high risk G9-10). My excellent ONC does a full biochemistry every 3 months with a face to face meeting which is great, but I will have to
question: I know that there are protols for regular blood PSA and sometimes Testosterone when on SOC following RT and during the 2-3 years ADT (with localised high risk G9-10). My excellent ONC does a full biochemistry every 3 months with a face to face meeting which is great, but I will have to
SimMartin
in
Advanced Prostate Cancer
10 months ago
Update after RALP ---- Need advice
[u]Dx in May 23:[/u] Biopsy results: PSA day before biopsy: 6.2 3 out of 10 confirmed cancer in peripheral zone right side GS: 2 x 3+3 and 1 x 3+4 (GP4 - 40%) . MRI in April 23 detected malignity tumor of size 1.2 cm, PI-RADS 4. No sign on pelvis area and neighboring lymph nodes. Clinical stage:
[u]Dx in May 23:[/u] Biopsy results: PSA day before biopsy: 6.2 3 out of 10 confirmed cancer in peripheral zone right side GS: 2 x 3+3 and 1 x 3+4 (GP4 - 40%) . MRI in April 23 detected malignity tumor of size 1.2 cm, PI-RADS 4. No sign on pelvis area and neighboring lymph nodes. Clinical stage:
FMOH_N
in
Prostate Cancer Network
10 months ago
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Any informed opinions on NMN or NAMPT for advanced Pca - on ADT, no mets yet? Thanks! https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4537380/
This question arose based on the advocacy of NMN by Harvard longevity doctor David Sinclair. He's the author of Lifespan: Why We Age - and Why We Don't Have To" Any known or postulated contraindications in taking NMN for advanced PCa? https://www.google.com/search?q=david+sinc%3Bair+youtube&oq=david
This question arose based on the advocacy of NMN by Harvard longevity doctor David Sinclair. He's the author of Lifespan: Why We Age - and Why We Don't Have To" Any known or postulated contraindications in taking NMN for advanced PCa? https://www.google.com/search?q=david+sinc%3Bair+youtube&oq=david
longrungo2
in
Advanced Prostate Cancer
10 months ago
GUIDANCE trial
Hi All, I'm about to start treatment with SBRT in about 3 weeks after getting SpaceOAR placed, and I've been enrolled in the GUIDANCE trial designed to attempt vessel sparing and avoid nerve bundles. I'm in the low Decipher score group (0.34), but there is still a 50% chance that I'll have to do ADT
Hi All, I'm about to start treatment with SBRT in about 3 weeks after getting SpaceOAR placed, and I've been enrolled in the GUIDANCE trial designed to attempt vessel sparing and avoid nerve bundles. I'm in the low Decipher score group (0.34), but there is still a 50% chance that I'll have to do ADT
LiveLongAndPropser
in
Prostate Cancer Under 60
10 months ago
Time to come off Ropinerole 4 years after being on Pramepexole 7 years. What else can I try????
I've been on these and both caused augmentation and with both was increased to maximum dose yet still had restless legs causing sleepless nights, anxiety and depression.Before I went onto medication I found out I was severely anaemic, I don't know how it happened to me as I was previously fit and healthy
I've been on these and both caused augmentation and with both was increased to maximum dose yet still had restless legs causing sleepless nights, anxiety and depression.Before I went onto medication I found out I was severely anaemic, I don't know how it happened to me as I was previously fit and healthy
Maddie1000
in
Restless Legs Syndrome
10 months ago
Any red flags in these results or am I barking up wrong tree?
Hello everyone, I am 52 and on HRT (as have been post menopausal for 2 years now). I have the Mirena fitted and am currently on 3 pumps oestrogen. My issue is that I am extremely fatigued and struggling to cope with the activities of a normal day and have been feeling this way for several months. Due
Hello everyone, I am 52 and on HRT (as have been post menopausal for 2 years now). I have the Mirena fitted and am currently on 3 pumps oestrogen. My issue is that I am extremely fatigued and struggling to cope with the activities of a normal day and have been feeling this way for several months. Due
ducky1971
in
Thyroid UK
10 months ago
IMRT WITHOUT SPACEOAR PROTECTION (EPE) WORRIED ABOUT RECTUM PROBLEMS (PROCTITIS) & IMRT (20x,28x,???) vs SBRT
I am going to have to have IMRT for 20 treatments at UCLA as opposed to the 5 Sbrt treatments as the EPE on reread on my Biopsy identified the extracapsular extension. My Ro thinks that: Not to have spaceoar as it may trap the Extracapsular extension microscopic cancer cells . IMRT has more data than
I am going to have to have IMRT for 20 treatments at UCLA as opposed to the 5 Sbrt treatments as the EPE on reread on my Biopsy identified the extracapsular extension. My Ro thinks that: Not to have spaceoar as it may trap the Extracapsular extension microscopic cancer cells . IMRT has more data than
JWS13
in
Prostate Cancer Network
1 year ago
PSA rise but scans are clear. Appetite and activity level are 0
I have spoken on here a few times about my dad who is on Erleada + ADT but it has failed. They have done quite a few scans recently because he is in significant pain. But all scans have come back “clear” in that there is no significant change in metastasis etc. we are at a point now where he barely
I have spoken on here a few times about my dad who is on Erleada + ADT but it has failed. They have done quite a few scans recently because he is in significant pain. But all scans have come back “clear” in that there is no significant change in metastasis etc. we are at a point now where he barely
StayingSTRNG
in
Advanced Prostate Cancer
10 months ago
QOL Post- Thank you KALIBER!
I was chatting with Kali several months ago after I was considering selling the scooter, fearing the loss of strength due to ADT would be an issue picking this 800+ lb machine back up if I ever lost my footing at a stoplight or something... I bought this brand new in 1982 when I was 27 yrs old. Kali
I was chatting with Kali several months ago after I was considering selling the scooter, fearing the loss of strength due to ADT would be an issue picking this 800+ lb machine back up if I ever lost my footing at a stoplight or something... I bought this brand new in 1982 when I was 27 yrs old. Kali
GSDF
in
Advanced Prostate Cancer
10 months ago
Thyroid and HRT- help please
Hello everyone, This is the first time I've posted. I have been taking Thyroxine for underactive Thyroid for around 10 years now. My dose is currently (and has been for the last 3.5 years) 87.5mg per day and I suspect I am undermedicated. I am also taking HRT (Evorel 25 patch (change twice weekly
Hello everyone, This is the first time I've posted. I have been taking Thyroxine for underactive Thyroid for around 10 years now. My dose is currently (and has been for the last 3.5 years) 87.5mg per day and I suspect I am undermedicated. I am also taking HRT (Evorel 25 patch (change twice weekly
Gertrude7
in
Thyroid UK
10 months ago
Multivitamins/Supplements
My 5 year old son was recently diagnosed with combined ADHD, and his dad and I are holding off on medication for now. I'd love to hear what vitamins, supplements, and or diet changes you all are doing for a kiddo this age? I read a recommendation for the OLLY brand "Chillax" vitamins that we've been
My 5 year old son was recently diagnosed with combined ADHD, and his dad and I are holding off on medication for now. I'd love to hear what vitamins, supplements, and or diet changes you all are doing for a kiddo this age? I read a recommendation for the OLLY brand "Chillax" vitamins that we've been
Danni246
in
CHADD's ADHD Parents Together
1 year ago
Catabolic Wasting, Cachexia and Sarcopenia - Life Extension Foundation, Section Update: 03/2021
As most men with PCa are oldER and may be on some form of testosterone-blocking treatment, like ADT, odds are they are also struggling with the muscle-wasting and weight issues that comes with both oldER age and loss of T. This article from LEF is a very comprehensive overview of both Cachexia and Sarcopenia
As most men with PCa are oldER and may be on some form of testosterone-blocking treatment, like ADT, odds are they are also struggling with the muscle-wasting and weight issues that comes with both oldER age and loss of T. This article from LEF is a very comprehensive overview of both Cachexia and Sarcopenia
cujoe
in
Fight Prostate Cancer
10 months ago
Article about hair loss and hormones
https://www.msn.com/en-gb/health/familyhealth/everything-you-need-to-know-about-menopausal-hair-loss/ar-AA18kDuV?ocid=msedgntp&cvid=7b188e11adcd47a9afab630f47128635&ei=18 HRT and extra protein in the form of full spectrum amino acids has me back to a shaggy mop head 👱♀️
https://www.msn.com/en-gb/health/familyhealth/everything-you-need-to-know-about-menopausal-hair-loss/ar-AA18kDuV?ocid=msedgntp&cvid=7b188e11adcd47a9afab630f47128635&ei=18 HRT and extra protein in the form of full spectrum amino acids has me back to a shaggy mop head 👱♀️
TiggerMe
in
Thyroid UK
10 months ago
Help on what to expect with this 6 month follow up?
Hi All, My father will be going in for his 6 month follow up on August 2nd. 6 months since he has completed radiation. So my extreme anxiety and worrying has officially returned in full force. In the past gaining knowledge here on this forum has restored some of my sanity so hope it is okay that pry
Hi All, My father will be going in for his 6 month follow up on August 2nd. 6 months since he has completed radiation. So my extreme anxiety and worrying has officially returned in full force. In the past gaining knowledge here on this forum has restored some of my sanity so hope it is okay that pry
FormulaRob
in
Advanced Prostate Cancer
10 months ago
Maddening Contradictory Advice
Latest update on my still hormone sensitive lymph nodes-only but widespread metastatic cancer is the Dexa scan showing I now have Osteopenia (no doubt occasioned by ADT regimen and lack of Testosterone). I’ve been told I need to get 1500 mg absorbable Calcium per day to prevent further lumbar region
Latest update on my still hormone sensitive lymph nodes-only but widespread metastatic cancer is the Dexa scan showing I now have Osteopenia (no doubt occasioned by ADT regimen and lack of Testosterone). I’ve been told I need to get 1500 mg absorbable Calcium per day to prevent further lumbar region
SeattleDan
in
Advanced Prostate Cancer
10 months ago
Proton therapy finally starts
After a failed Space OAR gel placement back in October 2022 I finally started my proton therapy today (4-17-2023). Twenty proton treatments scheduled. Onward!
After a failed Space OAR gel placement back in October 2022 I finally started my proton therapy today (4-17-2023). Twenty proton treatments scheduled. Onward!
BB_1
in
Advanced Prostate Cancer
1 year ago
IDH2 R172 Linked With Improved Survival in Myeloid Neoplasms from April 14, 2023 Hematology Advisor- More r/t AML than MPNs- look below it..
Among patients with myeloid neoplasms
including
acute myeloid leukemia (AML), IDH2 R172 mutations (mR172) appear to be linked with improved overall survival, and moreover represent a distinct clinical disease subtype, according to research published in the American Journal of Clinical Pathology
Among patients with myeloid neoplasms
including
acute myeloid leukemia (AML), IDH2 R172 mutations (mR172) appear to be linked with improved overall survival, and moreover represent a distinct clinical disease subtype, according to research published in the American Journal of Clinical Pathology
PhysAssist
in
MPN Voice
1 year ago
Help for menopausal symptoms for a person with severe restless leg syndrome.
I am in menopause and seeking relief of these symptoms… at times unbearable😫 I also have restless leg syndrome that I can manage at the present time with medicine and diet. I have been told that HRT can make my RLS symptoms worse, so I’m uneasy about going this route. has anyone had experience with
I am in menopause and seeking relief of these symptoms… at times unbearable😫 I also have restless leg syndrome that I can manage at the present time with medicine and diet. I have been told that HRT can make my RLS symptoms worse, so I’m uneasy about going this route. has anyone had experience with
FluteE
in
Menopause and Perimenopause Support
10 months ago
Starting to consider hormonal treatment.. advice?
Hi all - I know this will be so unique to the individual and will seek help from my GP when I come to make a decision, but just trying to get a general opinion on experiences with hormonal treatment. I had my Mirena coil taken out two years ago when I was diagnosed as it was not sitting properly due
Hi all - I know this will be so unique to the individual and will seek help from my GP when I come to make a decision, but just trying to get a general opinion on experiences with hormonal treatment. I had my Mirena coil taken out two years ago when I was diagnosed as it was not sitting properly due
meg73
in
Endometriosis UK
10 months ago
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