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Dienogest withdrawal
Hi everyone,I could really do with some advice as I'm really struggling and don't know what to do. I've been in treatment for just over a year and my endo is shrinking nicely . I had Zoladex injections for 10 months with hrt. I struggled with the side effects and to find an hrt that didn't make me bleed
Hi everyone,I could really do with some advice as I'm really struggling and don't know what to do. I've been in treatment for just over a year and my endo is shrinking nicely . I had Zoladex injections for 10 months with hrt. I struggled with the side effects and to find an hrt that didn't make me bleed
Sheep2
in
Endometriosis UK
7 days ago
Results from 4 Genomic labs
3 years ago we received a Foundation ONE Report giving us the report he has CDK12 mutation. He has been on Lupron, NUBEQA, and Zytiga. Over time they have failed. Recently, 4 lymph nodes were removed for thorough testing to make sure C had not mutated into Neuroendocrine. It had not. Actually, the
3 years ago we received a Foundation ONE Report giving us the report he has CDK12 mutation. He has been on Lupron, NUBEQA, and Zytiga. Over time they have failed. Recently, 4 lymph nodes were removed for thorough testing to make sure C had not mutated into Neuroendocrine. It had not. Actually, the
JolleySprings
in
Advanced Prostate Cancer
7 days ago
Worried about pulmonary fibrosis if radiating the metastasis in my shoulder blade
When I saw my radio-oncologist a few days ago and asked what is the risk for my lungs if we use radiation against the metastasis in my right shoulder blade. He said that there is a risk that it could cause fibrosis but that it does not impact breathing and that I should not worry. Today I decided to
When I saw my radio-oncologist a few days ago and asked what is the risk for my lungs if we use radiation against the metastasis in my right shoulder blade. He said that there is a risk that it could cause fibrosis but that it does not impact breathing and that I should not worry. Today I decided to
Mascouche
in
Advanced Prostate Cancer
8 days ago
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PALB2 Stage 4 A prostate cancer treatment plan.
My Partner has stage 4A prostate cancer spread to the nodules and has the PALB2 gene. How effective is internal and external radiation and ADT as the first line of treatment? Why can't the drs start with PARP inhibitors and chemo which is the standard of care as a second line treatment? Is it because
My Partner has stage 4A prostate cancer spread to the nodules and has the PALB2 gene. How effective is internal and external radiation and ADT as the first line of treatment? Why can't the drs start with PARP inhibitors and chemo which is the standard of care as a second line treatment? Is it because
SherryKahn
in
Advanced Prostate Cancer
8 days ago
Cabazitaxel treatment
A shock diagnosis almost seven years ago. Then the merrygoround of surgery, radiation, chemotherapy, hormone treatment and slowly but surely the cancer progresses. Here I am, wondering where to go next and contemplating if chemo with cabazitaxel is the way to go. Does anyone have any experience with
A shock diagnosis almost seven years ago. Then the merrygoround of surgery, radiation, chemotherapy, hormone treatment and slowly but surely the cancer progresses. Here I am, wondering where to go next and contemplating if chemo with cabazitaxel is the way to go. Does anyone have any experience with
Luylu
in
Prostate Cancer Network
8 days ago
good evening....
I'm trying to stay positive and help everyone come up with ideas for journaling, artwork, ect....I try not to get carried away with my posts.....trying not to be too pushy....will you please let me know if i get too carried away
I'm trying to stay positive and help everyone come up with ideas for journaling, artwork, ect....I try not to get carried away with my posts.....trying not to be too pushy....will you please let me know if i get too carried away
mizzou7016
in
Anxiety and Depression Support
6 months ago
PCA Prognosis?
Hi All! I am due for my 4rd Lupron treatment and follow-up next week. My bloodwork is done and my PSA is still <.01 for 9 months now. I have BRCA 1 and 2. When my Urologist gave me my initial diagnosis after my biopsies (Gleason 4+3=7 and 11 of 12 biopsies positive). nHe gave me a full report
Hi All! I am due for my 4rd Lupron treatment and follow-up next week. My bloodwork is done and my PSA is still <.01 for 9 months now. I have BRCA 1 and 2. When my Urologist gave me my initial diagnosis after my biopsies (Gleason 4+3=7 and 11 of 12 biopsies positive). nHe gave me a full report
Sagewiz
in
Advanced Prostate Cancer
10 days ago
My prostate journey and testosterone side effects
I have been following this website for over a year now and have learned so much from others who have shared their journey that I feel compelled to share my story in hopes that it might help someone in their decision making process. First of all, a big thank you to everyone who posts on this site. The
I have been following this website for over a year now and have learned so much from others who have shared their journey that I feel compelled to share my story in hopes that it might help someone in their decision making process. First of all, a big thank you to everyone who posts on this site. The
PT49
in
Prostate Cancer Network
10 days ago
Is the end in sight???
Hi everyone, this is my first post and reading others seems I am in the right place to discuss these issues with others who know exactly what I am going through. Others, even close friends, I think at times just dont get it... From what I read others too have had a long long road to diagnosis and treatment
Hi everyone, this is my first post and reading others seems I am in the right place to discuss these issues with others who know exactly what I am going through. Others, even close friends, I think at times just dont get it... From what I read others too have had a long long road to diagnosis and treatment
Stopalready
in
Endometriosis UK
10 days ago
what to try next?
Hi everyone :) I don't think I've posted before, probably because as awful as endo is, I've been lucky in a lot of ways. . I was diagnosed via laparoscopy in 2015, and I live in a city with an accredited endo centre, so my surgeon knew what he was doing. He found and excised a few spots in various places
Hi everyone :) I don't think I've posted before, probably because as awful as endo is, I've been lucky in a lot of ways. . I was diagnosed via laparoscopy in 2015, and I live in a city with an accredited endo centre, so my surgeon knew what he was doing. He found and excised a few spots in various places
KML22
in
Endometriosis UK
10 days ago
Accuracy doubtful due to fusion hardware?
L5/S1 hardware new since last dexa scan. The tech did ask for an opinion from a co-worker as she felt the imaging was being distorted due to the hardware, but was told it would not impact the readings. take hrt, d3/k2 and am active! Any thoughts?
L5/S1 hardware new since last dexa scan. The tech did ask for an opinion from a co-worker as she felt the imaging was being distorted due to the hardware, but was told it would not impact the readings. take hrt, d3/k2 and am active! Any thoughts?
Jeaniem130
in
Bone Health and Osteoporosis UK
10 days ago
QoL Recent hike in Japan .. Mount Fuji
Been enjoying a hike near our vacation condo .. get out and move… I’m almost 3 months out after last ADT .. 5 months radiation a subtle feel of testosterone may be returning. Did 9 months ADT so still feeling the effects.. but have to say for every day I wake up at 6am tired and not feeling well.. I
Been enjoying a hike near our vacation condo .. get out and move… I’m almost 3 months out after last ADT .. 5 months radiation a subtle feel of testosterone may be returning. Did 9 months ADT so still feeling the effects.. but have to say for every day I wake up at 6am tired and not feeling well.. I
Yokohama2023
in
Advanced Prostate Cancer
10 days ago
any similar stories extensive metastatic prostate cancer
hello! I’ve been on here for a few weeks reading everyone’s posts, which have been helpful. My dad recently found out he has extensive Mets throughout his skeleton, although we have been battling this disease for almost 5 years now, things have taken a turn. He has been on ADT since January, and tolerating
hello! I’ve been on here for a few weeks reading everyone’s posts, which have been helpful. My dad recently found out he has extensive Mets throughout his skeleton, although we have been battling this disease for almost 5 years now, things have taken a turn. He has been on ADT since January, and tolerating
Concerneddaughter123
in
Advanced Prostate Cancer
10 days ago
Hair Loss on Yuflyma
Hi everyone I have been on Yuflyma for 6 weeks and have noticed an increasing amount of hair loss. I am also on Folic acid seven days a week as I was previously on Methotrexate , but stopped the methotrexate a few weeks ago. I had been on Methotrxate since May of last year, both tablets and then metoject
Hi everyone I have been on Yuflyma for 6 weeks and have noticed an increasing amount of hair loss. I am also on Folic acid seven days a week as I was previously on Methotrexate , but stopped the methotrexate a few weeks ago. I had been on Methotrxate since May of last year, both tablets and then metoject
MDWinter23
in
NRAS
11 days ago
So the odds we all read about... are they true?
When my husband (age 52) was diagnosed with metastatic prostate cancer two and a half years ago, he was told the outlook was "grim." Everything we read told us once it moves to the bone (his has) then you're looking at months, not years, of life left. He had TEMPUS done, which was basically the oncologist
When my husband (age 52) was diagnosed with metastatic prostate cancer two and a half years ago, he was told the outlook was "grim." Everything we read told us once it moves to the bone (his has) then you're looking at months, not years, of life left. He had TEMPUS done, which was basically the oncologist
Anatalya
in
Advanced Prostate Cancer
11 days ago
PSA Nadir 6 Months After Primary RT Correlates With Prostate Cancer Outcomes — Or does it?, MedPage Today May 22, 2024
[i]This article from MedPage Today is reproduced in full along with the link to the full access editorial comment is also provided. However, it has numerous hyperlinks to the the research cited within. The link to the MedPage article provides those links. [/i] [i]* * *[/i]
PSA Nadir 6 Months After
[i]This article from MedPage Today is reproduced in full along with the link to the full access editorial comment is also provided. However, it has numerous hyperlinks to the the research cited within. The link to the MedPage article provides those links. [/i] [i]* * *[/i]
PSA Nadir 6 Months After
cujoe
in
Fight Prostate Cancer
11 days ago
Prostate biopsy from rib ?
My dad , 83 , diagnosed with pc with mets to bones as per mri and psma. Not done biopsy yet as nervous to put dad through it and one oncologist said it’s not needed as the treatment would be ADT but then 3 other oncologists say it’s good to get it done as we would know what exactly we dealing with
My dad , 83 , diagnosed with pc with mets to bones as per mri and psma. Not done biopsy yet as nervous to put dad through it and one oncologist said it’s not needed as the treatment would be ADT but then 3 other oncologists say it’s good to get it done as we would know what exactly we dealing with
Tinkudi
in
Advanced Prostate Cancer
11 days ago
Request for Input
Before I leave this wonderful group I'd like to pick your individual/collective brains. Since it's too late to help my husband, I'm looking for info that I can pass on to my son and 6 grandsons so they might better understand this awful cancer should they ever get it. I'm also providing a bit more info
Before I leave this wonderful group I'd like to pick your individual/collective brains. Since it's too late to help my husband, I'm looking for info that I can pass on to my son and 6 grandsons so they might better understand this awful cancer should they ever get it. I'm also providing a bit more info
Shamrock46
in
Advanced Prostate Cancer
11 days ago
Advice on Blood results please?
Hi, I'm not diagnosed with any thyroid problems but have had numerous blood tests over the last 4 years because of severe menopause symptoms that have not responded to HRT. Would you be able to have a look and see what you think please? I have also included some of the vitamins tested.
Hi, I'm not diagnosed with any thyroid problems but have had numerous blood tests over the last 4 years because of severe menopause symptoms that have not responded to HRT. Would you be able to have a look and see what you think please? I have also included some of the vitamins tested.
jca123
in
Thyroid UK
11 days ago
Meningioma advice
Hi all, I started getting constant headaches about three years ago. After being ignored by my doctors, I paid for a private neurologist, and he did an MRI, told me nothing was found and suggested it was menopause. I've had three years of headaches, dizziness, vision issues and utter fatigue and losing
Hi all, I started getting constant headaches about three years ago. After being ignored by my doctors, I paid for a private neurologist, and he did an MRI, told me nothing was found and suggested it was menopause. I've had three years of headaches, dizziness, vision issues and utter fatigue and losing
Calannmc
in
Meningioma Support
11 days ago
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