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Scared
I have 2 stomas (
colostomy
and an urostomy). The urostomy is fine but the
colostomy
does what it wants. My
colostomy
is very slow and there isn’t much poo in my stoma bag. I think it is constipation because with a bowel obstruction I get terrible pain.
I have 2 stomas (
colostomy
and an urostomy). The urostomy is fine but the
colostomy
does what it wants. My
colostomy
is very slow and there isn’t much poo in my stoma bag. I think it is constipation because with a bowel obstruction I get terrible pain.
CrochetDancer
in
Pelvic Radiation Disease Association
3 years ago
Worried
I have a
colostomy
and an urostomy. I have a fistula which constantly leaks, PTSD and I have recently been diagnosed with radiation enteritis. The fistula leaks all sorts including a.bit of blood.
I have a
colostomy
and an urostomy. I have a fistula which constantly leaks, PTSD and I have recently been diagnosed with radiation enteritis. The fistula leaks all sorts including a.bit of blood.
CrochetDancer
in
Pelvic Radiation Disease Association
3 years ago
Radiation Enteritis - I feel very alone
I also have two stomas (
colostomy
and an urostomy). I was told in April that I would need an ileostomy, so I would have 3 stomas and this was reiterated over the weekend. I am home now but I get a lot of pain with wind.
I also have two stomas (
colostomy
and an urostomy). I was told in April that I would need an ileostomy, so I would have 3 stomas and this was reiterated over the weekend. I am home now but I get a lot of pain with wind.
CrochetDancer
in
Pelvic Radiation Disease Association
3 years ago
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Cancer, My Story
Would I like to have had the
colostomy
? I sure would have. Those I know who have had colon cancer do have a better life style than I. Travel, dining out, and social activities are very difficult as I must eat at least two hours before I do anything.
Would I like to have had the
colostomy
? I sure would have. Those I know who have had colon cancer do have a better life style than I. Travel, dining out, and social activities are very difficult as I must eat at least two hours before I do anything.
GStone
in
Colon Cancer Connected
3 years ago
So Scared
I worry if my
colostomy
doesn’t work and it is very hit and miss now. I only eat soup and yogurt. I don’t know what to do. Any suggestions, please?
I worry if my
colostomy
doesn’t work and it is very hit and miss now. I only eat soup and yogurt. I don’t know what to do. Any suggestions, please?
CrochetDancer
in
Pelvic Radiation Disease Association
3 years ago
Full Hysterectomy with Ovary Removal and Stoma
Am conflicted about what to do, as with any surgery there is a risk - apart from anything else, of having a
colostomy
for the rest of my days. Has anyone else had anything similar?
Am conflicted about what to do, as with any surgery there is a risk - apart from anything else, of having a
colostomy
for the rest of my days. Has anyone else had anything similar?
Eddax19
in
Endometriosis UK
3 years ago
End Colostomy
So it looks like endometrial cancer and subsequent brachytherapy resulting in radiation proctitis in my anal canal is going to end up in an end
colostomy
. Does anyone here have experience of dealing with this please?
So it looks like endometrial cancer and subsequent brachytherapy resulting in radiation proctitis in my anal canal is going to end up in an end
colostomy
. Does anyone here have experience of dealing with this please?
Zigoin
in
Pelvic Radiation Disease Association
3 years ago
Advice of bowel shaving please x
Hi all, long story short,I'm petrified that my op is going to leave me with a
colostomy
bag. Stage 4 endo, lap last August,op on 19th April with colon shave I think. If you had this how long is the recovery, I barely eat now because I can't stand the pain.
Hi all, long story short,I'm petrified that my op is going to leave me with a
colostomy
bag. Stage 4 endo, lap last August,op on 19th April with colon shave I think. If you had this how long is the recovery, I barely eat now because I can't stand the pain.
emm27
in
Endometriosis UK
3 years ago
When you get fed up and email Mr Bojo Johnson 🤣
In Feb my ovary measured 3.5cm Complex Cyst, Abscessed In March after MRI I was told it was 3cm, and if there ‘was any residual infection I would need a
colostomy
, because the bowel wall will go with it at surgery).
In Feb my ovary measured 3.5cm Complex Cyst, Abscessed In March after MRI I was told it was 3cm, and if there ‘was any residual infection I would need a
colostomy
, because the bowel wall will go with it at surgery).
Heloo85
in
Endometriosis UK
3 years ago
The NHS is just dire
So now, it’s progress to septicaemia, or get left with a
colostomy
, because I’m pretty sure this ovary is still infected!
So now, it’s progress to septicaemia, or get left with a
colostomy
, because I’m pretty sure this ovary is still infected!
Heloo85
in
Endometriosis UK
3 years ago
Ileostomy questions
I don't even know if I would be getting an ileostomy or
colostomy
, the way the surgeon was speaking pointed to an ileostomy but I am still unsure. I have seen quite a few people on YouTube with ileostomy surgery recovery but not a lot about
colostomy
surgery.
I don't even know if I would be getting an ileostomy or
colostomy
, the way the surgeon was speaking pointed to an ileostomy but I am still unsure. I have seen quite a few people on YouTube with ileostomy surgery recovery but not a lot about
colostomy
surgery.
Clo23
in
Living with a Stoma
3 years ago
Finally got somewhere although it took almost death!
So now they can’t do surgery until all risk of any residual infection has gone, or I will be left with a
colostomy
bag! The joys of the NHS and their stance on preventative medicine 🤣
So now they can’t do surgery until all risk of any residual infection has gone, or I will be left with a
colostomy
bag! The joys of the NHS and their stance on preventative medicine 🤣
Heloo85
in
Endometriosis UK
3 years ago
Colostomy due to Scleroderma, Dietary advice needed
Hi, I am looking for advice for my Mum who is 87, has had scleroderma for 50 years, has severe oeasophageal dis-motility, had a
colostomy
about 14 years ago due to bowel dis-motility/peristalsis and suffers constantly with stomach and back pain, bloating, blockages in the colon, nausea......... and ended
Hi, I am looking for advice for my Mum who is 87, has had scleroderma for 50 years, has severe oeasophageal dis-motility, had a
colostomy
about 14 years ago due to bowel dis-motility/peristalsis and suffers constantly with stomach and back pain, bloating, blockages in the colon, nausea......... and ended
tenfou
in
Scleroderma & Raynaud's UK (SRUK)
3 years ago
Has anyone found a colostomy to be the solution to incontinence. I wondered if it made things more controllable ?
Should I abandon the proposed rectal prolapse surgery and have a
colostomy
?
Should I abandon the proposed rectal prolapse surgery and have a
colostomy
?
nBnw
in
Pelvic Radiation Disease Association
3 years ago
Pip cut benefit by 50%. Lied in report
I had 4 operations last year, including the removal of a kidney for stage 4 cancer and a reversed
colostomy
, I almost died. Also pneumonia 4 times, pleurisy and 2 very serious chest infection. I also have a growth in my pituitary gland. I was unable to walk for some time, now use a stick.
I had 4 operations last year, including the removal of a kidney for stage 4 cancer and a reversed
colostomy
, I almost died. Also pneumonia 4 times, pleurisy and 2 very serious chest infection. I also have a growth in my pituitary gland. I was unable to walk for some time, now use a stick.
Iona467
in
LUPUS UK
4 years ago
Lovenox
Went for my pre op appointment for the hip replacement yesterday. Anaesthetist said I would have to stop Apixaban 8 days before op and have twice daily Lovenox jabs . The nurse will come to the house and do these . However they come between 7 and 7-30 for the morning one 😩 and I was wondering about
Went for my pre op appointment for the hip replacement yesterday. Anaesthetist said I would have to stop Apixaban 8 days before op and have twice daily Lovenox jabs . The nurse will come to the house and do these . However they come between 7 and 7-30 for the morning one 😩 and I was wondering about
Auriculaire
in
AF Association
3 years ago
Lyrica - side effects
I try not to feel sorry for myself - I wear 3
colostomy
bags on my tummy at present and am recovery from breast cancer aswell as the complications from bowel cancer 20 years ago . I’m 53 . I can and have coped with all this in my life and have a very supportive husband and family - I’m very lucky .
I try not to feel sorry for myself - I wear 3
colostomy
bags on my tummy at present and am recovery from breast cancer aswell as the complications from bowel cancer 20 years ago . I’m 53 . I can and have coped with all this in my life and have a very supportive husband and family - I’m very lucky .
Esme2007
in
Restless Legs Syndrome
4 years ago
ALL DIZZY B12d friends
I now have
colostomy
bag. Take care all B12d sufferers this was all down to doc's ignoring my symptoms for years XX Jac
I now have
colostomy
bag. Take care all B12d sufferers this was all down to doc's ignoring my symptoms for years XX Jac
jacwright
in
Pernicious Anaemia Society
4 years ago
Delicate??????
I have had five operations, and have ended up with a
colostomy
, and mesh for a hernia. All this because of slow motility, and lack of peristalsis in the digestive system.
I have had five operations, and have ended up with a
colostomy
, and mesh for a hernia. All this because of slow motility, and lack of peristalsis in the digestive system.
Mumso
in
Scleroderma & Raynaud's UK (SRUK)
4 years ago
Have you had surgery for colorectal (bowel) cancer?
Hello Colon Cancer Connected community members, Have you had surgery for your colorectal (or bowel) cancer? Looking to get some advice from those who have been through surgery for one of our members, 6 weeks out from a sigmoid colectomy. If you (or a loved one) had surgery for CRC (colorectal cancer
Hello Colon Cancer Connected community members, Have you had surgery for your colorectal (or bowel) cancer? Looking to get some advice from those who have been through surgery for one of our members, 6 weeks out from a sigmoid colectomy. If you (or a loved one) had surgery for CRC (colorectal cancer
Nicole_GCCA
Administrator
in
Colon Cancer Connected
4 years ago
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