Forget the word ‘delicate’ when discussing bowel problems!!!!
Everybody has bowels, and bowel activity.
I have had systemic sclerosis for thirty years.
I have had five operations, and have ended up with a colostomy, and mesh for a hernia.
All this because of slow motility, and lack of peristalsis in the digestive system.
Yesterday, I was rushed to hospital with extreme pain/vomiting, having experiencing months of intermittent constipation/ diahorrea.
Could It be a blockage? That was the question.
I spent hours in A&E have tests, and relating my history to a variety of medics, before being transferred to a surgical assessment ward where I was seen by a surgeon who told me that an x-ray had revealed that I was full of poo!!!
He appeared not to know anything about my disease, and suggested that I should be prepared to live with this worrying and unhealthy condition, taking large amounts of laxatives.
I pointed out that this would condemn me to a very poor quality of life, and I couldn’t accept it.
I needed a proper analysis of the reason for my ‘plumbing’ not working!
After all, surgeons are like highly qualified plumbers/ butchers.
If a plumbers job is faulty, he is expected to solve the problem, although I am well aware that someone with SS problems presents challenging situations, as talented, clever people, whom I greatly respect, they often don’t seem to be interested in the whole story.
Eventually, I was seen by a senior colorectal surgeon, who couldn’t decide whether I had ‘stoma stenosis’ until he had passed a flexible tube through my bowel.
I have to return to hospital for this ‘treat’.
If they require me to drink two litres of ‘Moviprep’ in preparation for this, it is doomed to failure.
I simply cannot swallow so much liquid.
So, watch this space!