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Cll and fatigue
I was diagnosed in November 2017 with stage 0 cll; FISH test is negative; and now waiting on NGS/foundation test results. The biggest problem I have right now is chronic fatigue that is on the point of being debilitating, also infrequent headaches. My family doctor prescribed Adderall to help with the
I was diagnosed in November 2017 with stage 0 cll; FISH test is negative; and now waiting on NGS/foundation test results. The biggest problem I have right now is chronic fatigue that is on the point of being debilitating, also infrequent headaches. My family doctor prescribed Adderall to help with the
TXteacher
in
CLL Support
7 years ago
Second Blood Test
Ok, have just had results for 2nd blood test. 12th Dec gfr was 65 but I know I was not drinking enough. Now drink 4 or 5 cups coffee daily plus at least 1ltr of water but 2nd blood test was gfr 62 and creatinine level 87. I don't really know what any of this means and have an appt with the gp tomorrow
Ok, have just had results for 2nd blood test. 12th Dec gfr was 65 but I know I was not drinking enough. Now drink 4 or 5 cups coffee daily plus at least 1ltr of water but 2nd blood test was gfr 62 and creatinine level 87. I don't really know what any of this means and have an appt with the gp tomorrow
tranted
in
Early CKD Support
6 years ago
Desparate to quit smoking.
I am so addicted to cigs/nicotine and I am in major crisis. I have received the nicotine patch and the nicotine mist. I try to use these products and I have an allergic reaction. The patch leaves red welts and the mist closes my throat. I am in dispair, I have to quit! Any suggestions would be greatly
I am so addicted to cigs/nicotine and I am in major crisis. I have received the nicotine patch and the nicotine mist. I try to use these products and I have an allergic reaction. The patch leaves red welts and the mist closes my throat. I am in dispair, I have to quit! Any suggestions would be greatly
lindaberg
in
Lung Conditions Community Forum
6 years ago
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Stem cell transplant
Hello! So I have just had my monthly visit with my CLL haemotologist. Preparing to go onto a trial with Ibrutinib and Venetoclax. Glands swollen and large all over. I am 11q unmutated lymphocytes trending upwards at 50 and last month were 33. Hb going slightly downwards but not bad. Everything else good
Hello! So I have just had my monthly visit with my CLL haemotologist. Preparing to go onto a trial with Ibrutinib and Venetoclax. Glands swollen and large all over. I am 11q unmutated lymphocytes trending upwards at 50 and last month were 33. Hb going slightly downwards but not bad. Everything else good
DebLeeCox
in
CLL Support
7 years ago
projectcbd.org
This site is for various forms of cannabis adjunctive therapy. I live in MN where cannabis therapy has just been legalized. It's not just smoke some weed and hope for the best. The main treatment seems to be cbd oil, a cannabis derivative, (non high giving), and to be more effective add the THC part
This site is for various forms of cannabis adjunctive therapy. I live in MN where cannabis therapy has just been legalized. It's not just smoke some weed and hope for the best. The main treatment seems to be cbd oil, a cannabis derivative, (non high giving), and to be more effective add the THC part
ElmerFudd314
in
Lung Cancer Support
6 years ago
Need help dosing turmeric and green tea for CLL
Diagnosed with CLL in October 2017 and the doctor said I don’t need medication. He mentioned turmeric and green tea can have a benefit but couldn’t legally or ethically tell me how much to take. I am at a loss and would appreciate help.
Diagnosed with CLL in October 2017 and the doctor said I don’t need medication. He mentioned turmeric and green tea can have a benefit but couldn’t legally or ethically tell me how much to take. I am at a loss and would appreciate help.
Mwagner
in
CLL Support
7 years ago
Chronic Fatigue Syndrome
Hi everyone, Has anyone with thyroid issues been diagnosed with Chronic Fatigue Syndrome? My doctor just diagnosed me with it last week. According to tests I’ve had pneumonia and a few other really bad viruses. When I get a cold or flu I get really sick so it must have been one of those times that
Hi everyone, Has anyone with thyroid issues been diagnosed with Chronic Fatigue Syndrome? My doctor just diagnosed me with it last week. According to tests I’ve had pneumonia and a few other really bad viruses. When I get a cold or flu I get really sick so it must have been one of those times that
Claire1992
in
Thyroid UK
7 years ago
What is happening?
Hello!! I had terrible 2 days. Our doctor couldn't continue with RB theraphy because my husbands HGB counts only 5. They started to blood transfusion and made a Bone Marrow biopsy. The doctor said he has to find the reason of this low HGB, maybe the CLL has transformed to something else. We have to
Hello!! I had terrible 2 days. Our doctor couldn't continue with RB theraphy because my husbands HGB counts only 5. They started to blood transfusion and made a Bone Marrow biopsy. The doctor said he has to find the reason of this low HGB, maybe the CLL has transformed to something else. We have to
aylinozel
in
CLL Support
7 years ago
Winter Walk for CLL Support Association
Hi everyone, I was diagnosed with chronic lymphocyte leukemia on my 68th Birthday in 2012 and was on watch and wait for 3years before treatment. I completed my treatment in March 2016 and I am now in remission and I am extremely well and have much more energy. WINNERS DO NOT QUIT AND QUITTERS DO NOT
Hi everyone, I was diagnosed with chronic lymphocyte leukemia on my 68th Birthday in 2012 and was on watch and wait for 3years before treatment. I completed my treatment in March 2016 and I am now in remission and I am extremely well and have much more energy. WINNERS DO NOT QUIT AND QUITTERS DO NOT
surjeet44
in
CLL Support
7 years ago
Marijuana Kills Cancer Cells?
I've read some scientific and a lot of anecdotal info claiming marijuana kills tumor cells. Has anyone experimented with this or gained any medical benefit from marijuana use? https://www.cancer.gov/about-cancer/treatment/cam/hp/cannabis-pdq
I've read some scientific and a lot of anecdotal info claiming marijuana kills tumor cells. Has anyone experimented with this or gained any medical benefit from marijuana use? https://www.cancer.gov/about-cancer/treatment/cam/hp/cannabis-pdq
TXteacher
in
CLL Support
7 years ago
Trying to help an acquaintance who lives close to the Black Sea,in Georgia, who has just been told that her CLL has turned into B-PLL.
Someone has reached out to me and is looking for a way to have her B-PLL treated. She lives in the Baltics and where she is located they apparently do not have the best medical resources. I have given her the names of certain doctors here in the USA. I mentioned to her that I thought
Someone has reached out to me and is looking for a way to have her B-PLL treated. She lives in the Baltics and where she is located they apparently do not have the best medical resources. I have given her the names of certain doctors here in the USA. I mentioned to her that I thought
jettyguy1
in
CLL Support
7 years ago
Post transplant CMV Mismatch
Hi All My husband had a liver transplant on 28.11.17 and having looked at his medication and read his discharge note it says he has been prescribed Valganciclovir as he has a high risk CMV mismatch. Having googled it - sounds serious - has anyone else come across this and I am not sure of the implications
Hi All My husband had a liver transplant on 28.11.17 and having looked at his medication and read his discharge note it says he has been prescribed Valganciclovir as he has a high risk CMV mismatch. Having googled it - sounds serious - has anyone else come across this and I am not sure of the implications
Kimlescam
in
British Liver Trust
7 years ago
Persistent node
so, I'm pretty sure everything's going to be fine, but my CT scan last week showed one axillary node that's not shrinking, so having a precautionary biopsy later this week. Dr. just wants to know my CLL isn't transforming to Large Cell Lymphoma. I'm being treated with Venetoclax for my fourth go-round
so, I'm pretty sure everything's going to be fine, but my CT scan last week showed one axillary node that's not shrinking, so having a precautionary biopsy later this week. Dr. just wants to know my CLL isn't transforming to Large Cell Lymphoma. I'm being treated with Venetoclax for my fourth go-round
MelindaB
in
CLL Support
7 years ago
Bloating with COPD.
Hello, I,m new to all this. I smoked all my life.I am now 77 and this horrific condition has only really surfaced in the last year or so,becoming worse in the last 6 months. We are all aware of the warnings given by governments and other bodies about the danger of smoking and cancer.I was never aware
Hello, I,m new to all this. I smoked all my life.I am now 77 and this horrific condition has only really surfaced in the last year or so,becoming worse in the last 6 months. We are all aware of the warnings given by governments and other bodies about the danger of smoking and cancer.I was never aware
beejaykay
in
Lung Conditions Community Forum
7 years ago
Emerging CLL treatments beyond Imbruvica and Venetoclax. I am not an expert - though. Feel free to copy , edit and repost.
Hello, I am on a trial of Imbruvica and Venetoclax and doing well so far. I am 17P deleted so I am looking at future options- if needed. Fortunately there are a lot of new emerging treatments. I am not an expert - though. Feel free to add on copy , edit and repost! Below are some of the new CLL
Hello, I am on a trial of Imbruvica and Venetoclax and doing well so far. I am 17P deleted so I am looking at future options- if needed. Fortunately there are a lot of new emerging treatments. I am not an expert - though. Feel free to add on copy , edit and repost! Below are some of the new CLL
Hoffy
in
CLL Support
7 years ago
Just diagnosed
I don't what to think. The doctor said my FISH test is negative; no chromosomal damage. He is proposing FCR early treatment to the hospital tumor board based on my age of 55. I may lose my job and insurance soon. So if FCR is an option, I hope I can get it asap.
I don't what to think. The doctor said my FISH test is negative; no chromosomal damage. He is proposing FCR early treatment to the hospital tumor board based on my age of 55. I may lose my job and insurance soon. So if FCR is an option, I hope I can get it asap.
TXteacher
in
CLL Support
7 years ago
Endo & chronic fatigue syndrome?
Just wondering if anyone has been diagnosed with endo and chronic fatigue syndrome? I have been diagnosed with endo finally this year via laproscopy but symptoms still continue. The fatigue is unbearable at times and disrupting my life. I have all other symptoms of chronic fatigue syndrome and have done
Just wondering if anyone has been diagnosed with endo and chronic fatigue syndrome? I have been diagnosed with endo finally this year via laproscopy but symptoms still continue. The fatigue is unbearable at times and disrupting my life. I have all other symptoms of chronic fatigue syndrome and have done
rosequartz23
in
Endometriosis UK
7 years ago
Tiotropium & U.....
(...I subscribe to Medscape and believe I've posted articles here before; here's another that might peak your interest....) https://www.medscape.com/viewarticle/889402?src=wnl_edit_tpal&uac=284288AJ (segment) "...In essence, this study clearly showed that our approach to a population that pulmonologists
(...I subscribe to Medscape and believe I've posted articles here before; here's another that might peak your interest....) https://www.medscape.com/viewarticle/889402?src=wnl_edit_tpal&uac=284288AJ (segment) "...In essence, this study clearly showed that our approach to a population that pulmonologists
Dmactds
in
Lung Conditions Community Forum
7 years ago
breathing test
FEV 1 2.38(79% predicted) FEV1/VC61%, TLC118%,RV155%DLCO85%KCO105% please help dont have a clue what all this means consultant recomends seebre or tiotropium respimat inhaler what are these used for
FEV 1 2.38(79% predicted) FEV1/VC61%, TLC118%,RV155%DLCO85%KCO105% please help dont have a clue what all this means consultant recomends seebre or tiotropium respimat inhaler what are these used for
ianmac2
in
Lung Conditions Community Forum
7 years ago
Needing information
Help! I have had a lymph node removed with biopsy. Came back metastatic lymph node. This is second one. Was behind my ear. First tumor is still waiting for help. First tumor came up out of no where. Size of a good golf ball. Keeps enlarging to where now it is sort of purple because it is pushing on the
Help! I have had a lymph node removed with biopsy. Came back metastatic lymph node. This is second one. Was behind my ear. First tumor is still waiting for help. First tumor came up out of no where. Size of a good golf ball. Keeps enlarging to where now it is sort of purple because it is pushing on the
Manzanopeek17
in
CLL Support
7 years ago
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