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When CLL Meets COVID-19
When CLL Meets COVID-19 CLL Society is pleased to share with you the preeminent Spanish physician Prof. Dr. Emili Montserrat’s excellent commentary, recently published in BLOOD, reviewing two large studies on SARS-Cov2 infections in CLL patients. Prof. Dr. Emili Montserrat is one of the most prestigious
When CLL Meets COVID-19 CLL Society is pleased to share with you the preeminent Spanish physician Prof. Dr. Emili Montserrat’s excellent commentary, recently published in BLOOD, reviewing two large studies on SARS-Cov2 infections in CLL patients. Prof. Dr. Emili Montserrat is one of the most prestigious
bkoffman
CLL CURE Hero
in
CLL Support
4 years ago
CLL Society's October 10th Virtual Global Patient Educational Forum, featuring Dr. John Byrd speaking on Clinical Trials!
CLL Society's October 10th Virtual Global Patient Educational Forum, featuring Dr. John Byrd speaking on Clinical Trials! While Dr. John Byrd is well known for his clinical trials that have brought ground-breaking drugs to CLL and other blood cancers, he is equally well respected for always PUTTING PATIENTS
CLL Society's October 10th Virtual Global Patient Educational Forum, featuring Dr. John Byrd speaking on Clinical Trials! While Dr. John Byrd is well known for his clinical trials that have brought ground-breaking drugs to CLL and other blood cancers, he is equally well respected for always PUTTING PATIENTS
bkoffman
CLL CURE Hero
in
CLL Support
4 years ago
Wanting to cut premature deaths by almost 15% gets you the label of being a health nut!
Smokers could be forced to get their cigarettes from pharmacies using a prescription under a new plan from anti smoking advocates. The hardline proposal is part of a university's plan to end smoking forever, and includes cutting off cigarette sales permanently to anyone born after a certain date. Associate
Smokers could be forced to get their cigarettes from pharmacies using a prescription under a new plan from anti smoking advocates. The hardline proposal is part of a university's plan to end smoking forever, and includes cutting off cigarette sales permanently to anyone born after a certain date. Associate
2greys
in
Lung Conditions Community Forum
4 years ago
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Any light at the end of this long ‘waiting’ tunnel?
Hi everyone , I was just wondering how people have found getting back on track after the Covid thing. I have had a nightmare so am just getting it all out of my system in what might come across as a long whining post ( apologies if it sounds like this) - I have had numerous symptoms that I have struggled
Hi everyone , I was just wondering how people have found getting back on track after the Covid thing. I have had a nightmare so am just getting it all out of my system in what might come across as a long whining post ( apologies if it sounds like this) - I have had numerous symptoms that I have struggled
Guitar1986
in
Endometriosis UK
4 years ago
COVID risk to CLL patients with the reopening of schools
Hello all We are wondering if any other CLL patients are having the same issue or taking the same stand as we are here in Ireland. As some of you know my wife Jan was diagnosed in 2011 age 39 after 3 years very sick she was fortunate to get on an Ibrutinib trial in Leeds in 2014. Thankfully bloods
Hello all We are wondering if any other CLL patients are having the same issue or taking the same stand as we are here in Ireland. As some of you know my wife Jan was diagnosed in 2011 age 39 after 3 years very sick she was fortunate to get on an Ibrutinib trial in Leeds in 2014. Thankfully bloods
Irishcll
in
CLL Support
4 years ago
(Imbruvica), Ibrutinib, To live or to die
Hi, I have a 50-years old friend who has had CLL since 2013. He had a relapse in early 2020. When he was close to death, he was hospitalized to a private hospital in Turkey and was prescribed Imbruvica from Janssen company. Since he does not have insurance, he bought the medicine himself and spent almost
Hi, I have a 50-years old friend who has had CLL since 2013. He had a relapse in early 2020. When he was close to death, he was hospitalized to a private hospital in Turkey and was prescribed Imbruvica from Janssen company. Since he does not have insurance, he bought the medicine himself and spent almost
Green202
in
CLL Support
4 years ago
Getting diagnosed
I am 40 years old and have dealt with chronic pelvic pain for years. I am in the US, but I enjoy this forum and I hope it's okay to post here. I'll give you a bit of my history. In 2017, I had several uterine polyps removed. At the time, my surgeon wanted to explore for endometriosis, but I could
I am 40 years old and have dealt with chronic pelvic pain for years. I am in the US, but I enjoy this forum and I hope it's okay to post here. I'll give you a bit of my history. In 2017, I had several uterine polyps removed. At the time, my surgeon wanted to explore for endometriosis, but I could
desertkelp
in
Endometriosis UK
4 years ago
Disease Flare During Temporary Interruption of Ibrutinib Therapy in Patients with Chronic Lymphocytic Leukemia ( CLL ) - Pseudo Richters
Several of us have reported our CLL symptoms have come roaring back after discontinuing Ibrutinib/imbruvica with even a few cases of what's been termed pseudo-Richters, where some patients appear to have even undergone unnecessary R-CHOP chemoimmunotherapy as our member Priss69 has reported:
Several of us have reported our CLL symptoms have come roaring back after discontinuing Ibrutinib/imbruvica with even a few cases of what's been termed pseudo-Richters, where some patients appear to have even undergone unnecessary R-CHOP chemoimmunotherapy as our member Priss69 has reported:
AussieNeil
Partner
in
CLL Support
4 years ago
Resistance to Ibrutinib
Hi everyone this is my first post. I'm looking for some advice, reassurance please. I'm tp53 mutated and have been on ibrutinib 7 months, which is not working.I saw my consultant on Thursday and the plan is to continue for another 3 months to see if it starts working. My lymphocytes remain at 300. Has
Hi everyone this is my first post. I'm looking for some advice, reassurance please. I'm tp53 mutated and have been on ibrutinib 7 months, which is not working.I saw my consultant on Thursday and the plan is to continue for another 3 months to see if it starts working. My lymphocytes remain at 300. Has
Reddg
in
CLL Support
4 years ago
CLL Treatments Today: What Should I Know? October 3, 2020 at 9:00 AM Pacific Time / 12:00 PM Eastern Time
https://mailchi.mp/patientpower.info/your-patient-powered-cll-news-1299504?e=8acc3ddacd Saturday, October 3, 2020 at 9:00 AM Pacific Time / 12:00 PM Eastern Time This 3-hour program will take you through a CLL 101, 201 and 301 class hosted by CLL patient advocates and experts from Cleveland Clinic and
https://mailchi.mp/patientpower.info/your-patient-powered-cll-news-1299504?e=8acc3ddacd Saturday, October 3, 2020 at 9:00 AM Pacific Time / 12:00 PM Eastern Time This 3-hour program will take you through a CLL 101, 201 and 301 class hosted by CLL patient advocates and experts from Cleveland Clinic and
lankisterguy
Volunteer
in
CLL Support
4 years ago
Today is World Leukemia Day
Dear friends Today, patients, patient groups, clinical groups and organisations across the world are uniting to raise awareness of leukaemia. By publicising the signs and symptoms we are working together to help leukaemia patients get diagnosed and provide better outcomes for them. You can make
Dear friends Today, patients, patient groups, clinical groups and organisations across the world are uniting to raise awareness of leukaemia. By publicising the signs and symptoms we are working together to help leukaemia patients get diagnosed and provide better outcomes for them. You can make
HAIRBEAR_UK
Administrator
in
CLL Support
4 years ago
Newly diagnosed and hoping for a bit of advice
Hi, Thankyou to all those who have put so much into this site. Its been a huge help in the last few days since I started trying to find out more about SLL. I'm a 46 year old male in the UK who felt ill (exhausted, night sweats, generally weak and achy muscles) for around 2 years with the symptoms very
Hi, Thankyou to all those who have put so much into this site. Its been a huge help in the last few days since I started trying to find out more about SLL. I'm a 46 year old male in the UK who felt ill (exhausted, night sweats, generally weak and achy muscles) for around 2 years with the symptoms very
Pdaquinas
in
CLL Support
4 years ago
Anyone have experience with Venclexta capped at 200 mg?
I am a 62 yr old woman and will be starting Obinutuzumab in 2 days with Venclexta added my 4th week. I was diagnosed with SLL/CLL May 2019 and was watch and wait until now. It has been confined to my lymph nodes and my blood tests have been in the normal range. Treatment is starting due to increase in
I am a 62 yr old woman and will be starting Obinutuzumab in 2 days with Venclexta added my 4th week. I was diagnosed with SLL/CLL May 2019 and was watch and wait until now. It has been confined to my lymph nodes and my blood tests have been in the normal range. Treatment is starting due to increase in
Flute117
in
CLL Support
4 years ago
Ibrutinib plus fludarabine, cyclophosphamide, and rituximab as initial treatment for younger patients with CLL
This is an abstract from the Lancet article. There's a fair bit of detail missing regarding the profile of the CLL patients in terms of IgHV mutation status etc and the follow up is still very short but they are claiming that this is the best response ever published in patients with CLL unrestricted
This is an abstract from the Lancet article. There's a fair bit of detail missing regarding the profile of the CLL patients in terms of IgHV mutation status etc and the follow up is still very short but they are claiming that this is the best response ever published in patients with CLL unrestricted
Jm954
Administrator
in
CLL Support
4 years ago
Alan Hyde - QE Hospital Birmingham.
Many people who have received their liver transplant at the QE, will most likely know of Alan Hyde. Alan has been a strong supporter of the QE for over 14-years, visiting patients on the liver transplant ward (726), Alan was also chairman of the “Queen Elizabeth Liver Patients Support Group”, and featured
Many people who have received their liver transplant at the QE, will most likely know of Alan Hyde. Alan has been a strong supporter of the QE for over 14-years, visiting patients on the liver transplant ward (726), Alan was also chairman of the “Queen Elizabeth Liver Patients Support Group”, and featured
Richard-Allen
in
British Liver Trust
4 years ago
CLL with CAD
CLL with Cold Agglutinin Disease New to the group, 72 yr old male, served in Vietnam from 1967 to 1970 Diagnosed in Feb 2020 Would like to hear from anyone CLL and CAD (Cold Agglutinin Disease)
CLL with Cold Agglutinin Disease New to the group, 72 yr old male, served in Vietnam from 1967 to 1970 Diagnosed in Feb 2020 Would like to hear from anyone CLL and CAD (Cold Agglutinin Disease)
Hidden
in
CLL Support
4 years ago
Feeling the pain
Last November I had three short courses of Brachytherapy following a hysterectomy for womb cancer. I thought all was going okay but began to have rectal bleeding. To cut a long story short I had a flexi-sig and transanal ultrasound done today. For the first time I saw the issues. Firstly a polyp
Last November I had three short courses of Brachytherapy following a hysterectomy for womb cancer. I thought all was going okay but began to have rectal bleeding. To cut a long story short I had a flexi-sig and transanal ultrasound done today. For the first time I saw the issues. Firstly a polyp
Zigoin
in
Pelvic Radiation Disease Association
4 years ago
NIGHT SWEATS
I would appreciate input from members on Night Sweats. Although I am a little over two years in W&W, and I understand very well the symptoms my Hematologist/Oncologist will look for regarding triggers for treatment (RBC count, Platelet Count, increased infections, and Night Sweats) I am uncertain if
I would appreciate input from members on Night Sweats. Although I am a little over two years in W&W, and I understand very well the symptoms my Hematologist/Oncologist will look for regarding triggers for treatment (RBC count, Platelet Count, increased infections, and Night Sweats) I am uncertain if
wizzard166
in
CLL Support
4 years ago
Aussies, please consider enrolling in this study into the personal impact of CLL and help our world wide CLL/SLL community
Australians diagnosed with chronic lymphocytic leukaemia/small lymphocytic lymphoma (CLL/SLL), whether in watch and wait or in treatment:- [i]- Are you ready to have your say on the support, care & information patients need? - Are you ready for your experience to help others in the future? - Are you
Australians diagnosed with chronic lymphocytic leukaemia/small lymphocytic lymphoma (CLL/SLL), whether in watch and wait or in treatment:- [i]- Are you ready to have your say on the support, care & information patients need? - Are you ready for your experience to help others in the future? - Are you
AussieNeil
Partner
in
CLL Support
4 years ago
Towards personalised management of CLL? Ibrutinib study reveals new way to gauge patients’ response to treatment
Excerpts from https://www.genengnews.com/topics/omics/cll-drug-study-finds-single-cell-analysis-can-gauge-response-rate/ *** Ibrutinib, a Bruton tyrosine kinase (BTK) inhibitor, has remarkable efficacy in most patients with CLL. It is becoming the standard of care for most patients requiring treatment
Excerpts from https://www.genengnews.com/topics/omics/cll-drug-study-finds-single-cell-analysis-can-gauge-response-rate/ *** Ibrutinib, a Bruton tyrosine kinase (BTK) inhibitor, has remarkable efficacy in most patients with CLL. It is becoming the standard of care for most patients requiring treatment
bennevisplace
in
CLL Support
4 years ago
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