Search
Search
About
Log in
Join
Experiences with
Cogan's syndrome
Posts
Communities
3,348 public posts
Filter results
Flecainide and seeing spots (floaters)
hello, I have been taking Flecainide 50mg twice daily for around 2 months now. I did notice that im seeing some floaters, but I dont know if that is necessarily related to the flecainide side effects or just a normal occurence. Did anyone experience such a side effect? at what level should I consider
hello, I have been taking Flecainide 50mg twice daily for around 2 months now. I did notice that im seeing some floaters, but I dont know if that is necessarily related to the flecainide side effects or just a normal occurence. Did anyone experience such a side effect? at what level should I consider
Kd190
in
AF Association
6 years ago
Dry mouth and eyes when waking up
I am facing dry eyes and mouth symptom when waking up in the night/morning. Could this be due to B12 deficiency?
I am facing dry eyes and mouth symptom when waking up in the night/morning. Could this be due to B12 deficiency?
andy109
in
Pernicious Anaemia Society
6 years ago
Sjogrens symptoms
My GP is unable to attribute my symptoms to Sjogrens or anything. I was told I have Sjogrens 3 years ago. I am feeling increasingly unwell, at first the dryness. I also get numbness and a stinging feeling all over my face and mucous in one or both nostrils when asleep at nightime. I do feel extra unwell
My GP is unable to attribute my symptoms to Sjogrens or anything. I was told I have Sjogrens 3 years ago. I am feeling increasingly unwell, at first the dryness. I also get numbness and a stinging feeling all over my face and mucous in one or both nostrils when asleep at nightime. I do feel extra unwell
Hidden
in
Lung Conditions Community Forum
6 years ago
Want to take advantage of all our features? Just log in!
Log in
or
Join
Anyone have experience of opiate side effects please?
I have been taking Targinact (10mg oxycodone/5mg naloxone) for four nights. I believe it is having some positive impact on calming my leg movements and is certainly helping with pain. However, instead of making me drowsy it makes me very alert, it takes hours to get to sleep and when I do I have vivid
I have been taking Targinact (10mg oxycodone/5mg naloxone) for four nights. I believe it is having some positive impact on calming my leg movements and is certainly helping with pain. However, instead of making me drowsy it makes me very alert, it takes hours to get to sleep and when I do I have vivid
Hidden
in
Restless Legs Syndrome
6 years ago
Cycle update - there's a surprise!
Im in my 4th cycle of ivf and trying full stimm for the first time (3 previous rounds of natural modified). I have very low amh and only a couple of follicles, it was borderline whether I would qualify for full stimm or not, but on the first day my hormone levels were suitable, so that was a mini celebration
Im in my 4th cycle of ivf and trying full stimm for the first time (3 previous rounds of natural modified). I have very low amh and only a couple of follicles, it was borderline whether I would qualify for full stimm or not, but on the first day my hormone levels were suitable, so that was a mini celebration
magda22
in
Fertility Network UK
6 years ago
Newbie - Fear of Pregnancy
Hi everyone, I'm new here, was looking for a forum for advice and found this! My husband and I are starting to try for a baby. I know i want to have a baby but i am absolutely terrified of everyone that happens before the baby arrives! The thought of being pregnant, my body changing, all the tests
Hi everyone, I'm new here, was looking for a forum for advice and found this! My husband and I are starting to try for a baby. I know i want to have a baby but i am absolutely terrified of everyone that happens before the baby arrives! The thought of being pregnant, my body changing, all the tests
nixsta58
in
Pregnancy and Parenting Support
6 years ago
Paresis and sudafed
This is a bit niche, but does anyone have gastroparesis and had a bad reaction to Sudafed? I am still suffering 3 days later...!
This is a bit niche, but does anyone have gastroparesis and had a bad reaction to Sudafed? I am still suffering 3 days later...!
Hidden
in
Scleroderma & Raynaud's UK (SRUK)
6 years ago
Lyrica
Hi I have been on Lyrica for many years not really sure how many as it gives me a foggy brain and I have lost a lot of memories. I have Refractory RLS. Well they put it under the umbrella of RLS. I have my pain 24/7 They did not know what else to call what I have. Restless legs the brain tells the legs
Hi I have been on Lyrica for many years not really sure how many as it gives me a foggy brain and I have lost a lot of memories. I have Refractory RLS. Well they put it under the umbrella of RLS. I have my pain 24/7 They did not know what else to call what I have. Restless legs the brain tells the legs
Hidden
in
Restless Legs Syndrome
6 years ago
Can augmentation be avoided on DA's?
I have been successfully rotating opiates for a couple of years. However,they are now causing insomnia and I feel that I need to stop taking them for a prolonged period to "reset" my brain.So I need an alternative. I can't take Gabapentin. I am aware from the horror stories on here of the dangers of
I have been successfully rotating opiates for a couple of years. However,they are now causing insomnia and I feel that I need to stop taking them for a prolonged period to "reset" my brain.So I need an alternative. I can't take Gabapentin. I am aware from the horror stories on here of the dangers of
Jumpey
in
Restless Legs Syndrome
6 years ago
Downs Syndrome ratio?
I had my 12-week scan today, and I was absolutely overjoyed to see the little one wriggling away! Midwife/sonographer said all looked well, and she calculated the risk of downs as 'low risk' so I didn't really worry about it...until I left the appointment and started googling! And now I'm freaking out
I had my 12-week scan today, and I was absolutely overjoyed to see the little one wriggling away! Midwife/sonographer said all looked well, and she calculated the risk of downs as 'low risk' so I didn't really worry about it...until I left the appointment and started googling! And now I'm freaking out
chrissie_81
in
Pregnancy and Parenting Support
6 years ago
Breast implants
Good Morning All, I am wondering how many people suffering with thyroid problems/ME/Fibromyalgia and any other disorders associated with the immune system, have breast implants for whatever reason? Just recently I was made aware of Breast Implant illness which as yet is not being acknowledged by the
Good Morning All, I am wondering how many people suffering with thyroid problems/ME/Fibromyalgia and any other disorders associated with the immune system, have breast implants for whatever reason? Just recently I was made aware of Breast Implant illness which as yet is not being acknowledged by the
Catlover3
in
Thyroid UK
6 years ago
Confused over diagnosis!
Hello all, I wonder if someone can help me, please? I went for an assessment at the local fatigue clinic yesterday, and was seen by an endocrinologist. He did a quick check of my symptoms (fatigue, generalised pain esp in lower quadrant, IBS, brain fog etc) and said, “I know what I think you have, but
Hello all, I wonder if someone can help me, please? I went for an assessment at the local fatigue clinic yesterday, and was seen by an endocrinologist. He did a quick check of my symptoms (fatigue, generalised pain esp in lower quadrant, IBS, brain fog etc) and said, “I know what I think you have, but
Stitchwitch94
in
Ehlers-Danlos Support UK
6 years ago
Here we go again!
Another bad night with RL. I've been up and down for four hours and it looks like being a long night! I saw the doctor today and he was really positive about removing the pramipexole and agreed that it could be augmentation which have made my symptoms worse! I will decrease the p..ole and have the reboxetine
Another bad night with RL. I've been up and down for four hours and it looks like being a long night! I saw the doctor today and he was really positive about removing the pramipexole and agreed that it could be augmentation which have made my symptoms worse! I will decrease the p..ole and have the reboxetine
restlessstoz
in
Restless Legs Syndrome
6 years ago
Exhausting! Recycling Cobblers! For a Pred Head.
Nothing joined up with this re-cyclying cobblers! As if I need to be preached at, growing up in the 50's! .. We boiled & ate our own socks (or someone else's) then! What a faff it is!..What a bloody mystery! ..Even the sodding Christmas cards which were taken down today! Bits of sparkle, tinsel & God
Nothing joined up with this re-cyclying cobblers! As if I need to be preached at, growing up in the 50's! .. We boiled & ate our own socks (or someone else's) then! What a faff it is!..What a bloody mystery! ..Even the sodding Christmas cards which were taken down today! Bits of sparkle, tinsel & God
Hidden
in
PMRGCAuk
6 years ago
Rls don’t give up
My wife has been through it all Elayne for 40 years liver transplant 19 yeArs ago, Mayo has basically given up on her, the liver gave her diabetes as it took out the pancreas, the nuclear option for her from Mayo was methadone, gabapentin which was a disaster we then went in U of M, St. Paul MN, they
My wife has been through it all Elayne for 40 years liver transplant 19 yeArs ago, Mayo has basically given up on her, the liver gave her diabetes as it took out the pancreas, the nuclear option for her from Mayo was methadone, gabapentin which was a disaster we then went in U of M, St. Paul MN, they
rdbyam
in
Restless Legs Syndrome
6 years ago
Vascular EDS gene testing in UK
Hello, I have a diagnosis of hypermobile EDS made clinically with no genetic testing, however two of my family members have features suggestive of vascular EDS (early prominent varicose veins, gingival recession, translucent skin, aortic aneurism (asymptomatic), easy large bruising and sparse thinning
Hello, I have a diagnosis of hypermobile EDS made clinically with no genetic testing, however two of my family members have features suggestive of vascular EDS (early prominent varicose veins, gingival recession, translucent skin, aortic aneurism (asymptomatic), easy large bruising and sparse thinning
bombsh3ll
in
Ehlers-Danlos Support UK
6 years ago
Giving up
Okay .. so I’m going to rant. I haven’t been able to get any sleep lately and the only time I do is if I take a bunch of medication to sleep which isn’t good for me. I’m still taking the second lowest dose of mirapex and it’s not doing anything at all.. taking magnesium 200mg a night and cutting back
Okay .. so I’m going to rant. I haven’t been able to get any sleep lately and the only time I do is if I take a bunch of medication to sleep which isn’t good for me. I’m still taking the second lowest dose of mirapex and it’s not doing anything at all.. taking magnesium 200mg a night and cutting back
Kittykat1234
in
Restless Legs Syndrome
6 years ago
Pregabalin users
Hi I've just finished withdrawal from Pramipexole now I'm taking Pregabalin 75mg along with Targinact 5mg/1.25mg prolonged release. I have been taking Pregabalin for a month but they don't seem to be working, I'm trying to get an at for my doctor tomorrow, is there anything else I should be taken to
Hi I've just finished withdrawal from Pramipexole now I'm taking Pregabalin 75mg along with Targinact 5mg/1.25mg prolonged release. I have been taking Pregabalin for a month but they don't seem to be working, I'm trying to get an at for my doctor tomorrow, is there anything else I should be taken to
7681
in
Restless Legs Syndrome
6 years ago
Has anyone tried memantine for restless legs?
I don’t have RLS, but my husband does, and I feel like it is stealing our lives. It has caused mood dysregulation and fatigue. The pramipexole he has been taking is not as effective, and I’m searching for another answer. I’m very intrigued by the glutamate hypothesis and therefore am interested in
I don’t have RLS, but my husband does, and I feel like it is stealing our lives. It has caused mood dysregulation and fatigue. The pramipexole he has been taking is not as effective, and I’m searching for another answer. I’m very intrigued by the glutamate hypothesis and therefore am interested in
Cabaker
in
Restless Legs Syndrome
6 years ago
Should there be a separate community for Palindromic Rheumatism?
Just a thought, it does have very poor resources on the net, and maybe a separate community would help others with the condition. I know it can develop into RA but only in 30 to 50% of people who have it - so it is not inevitable. Oh I was diagnosed with Polymyalgia Rheumatism in June but it has become
Just a thought, it does have very poor resources on the net, and maybe a separate community would help others with the condition. I know it can develop into RA but only in 30 to 50% of people who have it - so it is not inevitable. Oh I was diagnosed with Polymyalgia Rheumatism in June but it has become
Theziggy
in
NRAS
6 years ago
1
...
90
91
92
...
100
Next page
50
60
70
80
90
100
Filter results
Clear filters
Posted in
All communities
Restless Legs Syndrome
1497 results
Fertility Network UK
360 results
PMRGCAuk
137 results
View top 10 communities
Sort by
Most Relevant
Newest