Radiosurgery

[Wazza84]

Today marks 5 years since my radio-surgery, I got the all clear last February 😁.. most people I have spoken to had to have a second go under the gamma knife. I feel so lucky to get the all clear after the first attempt as I wouldn’t want the have the head frame fitted again (it wasn’t painful, just didn’t like it😳)

[cat3]

Great result Wazza ! Onwards & upwards...…….. 😃 xx

[Wazza84 in reply to cat3]

Gettin the all clear was the best feeling 😁

[cat3 in reply to Wazza84]

Mine was a different branch of radiotherapy (secondary prevention after breast cancer) but, after initial apprehension, I ended up actually enjoying my 3 week treatment and seeing that marvellous machine as my guardian angel. And the nursing staff were amazing...….it was like a family parting on the final day...…….everyone hugging and with the odd tear !

On the Bi front, it seems I was fortunate in having an accessible burst aneurism which could be immediately coiled intravenously. I think it was Ben (B_S_A) who first introduced me to the Gamma Knife treatment and I remember thinking 'How clever !' Really pleased for you Wazza ! xx

[Prettythings1]

My first treatment got rid of 95% of avm had to do it again for 5%

[Wazza84 in reply to Prettythings1]

I would of done it again if needed but I guess I got lucky 😁

[Prettythings1 in reply to Wazza84]

Glad we both don’t need it again x

[Wazza84 in reply to Prettythings1]

High five 🖐🏻😊

[sealiphone]

My all clear was after one trip to the Hallam in Sheffield, I had no idea first time was very good.

I know what you mean about the 'cage', I was sure my skull was going to impload.

After that the tube moving through your vein is a pretty weird sensation.

Then boredom in the 'tube', I fell asleep.

I thought the nurses there were fantastic, I had a good laugh with them.

The all clear was nice as well.

[Wazza84 in reply to sealiphone]

Glad you’re all clear 😁

Yea the nurses were a great team I only remember a radiologist called Jo and a radiologist called Dean.. I was only in “the tube” 48 minuets but still fell asleep, I’m told 45 mins is pretty quick.

[sealiphone in reply to Wazza84]

4 hours, the radiologist was complaining about me snoring during half of that, I can't remember names just their smiles.

Gamma Knife is great as it's none invasive but the wait for the all clear is the downside, in fact I had a second bleed after the treatment.

[Wazza84 in reply to sealiphone]

The doctors said I could have a scan after 2 years but something could still be showing so I said I’d rather wait longer and got the all clear 😁

[sealiphone in reply to Wazza84]

I think a scan at 2 and all clear at 4 years for me. I believe it unusual but those scans gave me a blinding pain, first time I thought it was a another hemorrhage.

I had the same thing when they did the scan at the Hallam, it was funny because I panicked and the anesthetist said "Sorry I forgot to say some people do experience that", I'm just lucky I guess.

[Wazza84 in reply to sealiphone]

I didn’t experience any pain via the scan, the only pain was when the head frame was screwed into my head before the radio surgery 😳

[sealiphone in reply to Wazza84]

Did you leave with a photo of your head in a cage, unfortunately that along with the scans they gave me seem to be lost.

I should say to any reader waiting this procedure, it's a doddle, apart from the wait.

[Wazza84 in reply to sealiphone]

Yea I got a small Polaroid with the frame on 😁

[sealiphone in reply to Wazza84]

I was nearly jealous then, I thought they'd framed the photograph for you.

[lcd8]

Great news that you only had to have one go. Good for you.