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Cogan's syndrome
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VITAMIN SCARE
Lately I have been very listless and fatigued, (no I don't have that). A friend of mine suggested I try multivitamins. They have been sitting in my medicine box for a week now, I'm just too frightened to take anything new. (You know what it's like). So should I be afraid or should I just dive in.
Lately I have been very listless and fatigued, (no I don't have that). A friend of mine suggested I try multivitamins. They have been sitting in my medicine box for a week now, I'm just too frightened to take anything new. (You know what it's like). So should I be afraid or should I just dive in.
BENGAL1000
in
Restless Legs Syndrome
4 years ago
Stopping Ropinirole
The neurosurgeon I saw in Liverpool has recommend I stop taking Ropinirole, as although it helped RLS a lot at first, I find that now I can only get a few hours sleep on it and the RLS returns quite early during the day (augmentation?). So I have to reduce from 2 to 1 mg per night for a week, then stop
The neurosurgeon I saw in Liverpool has recommend I stop taking Ropinirole, as although it helped RLS a lot at first, I find that now I can only get a few hours sleep on it and the RLS returns quite early during the day (augmentation?). So I have to reduce from 2 to 1 mg per night for a week, then stop
sudokufan
in
Restless Legs Syndrome
4 years ago
Anyone On Dymista?
Hi! So, I am currently taking Dymista spray due to severe hay fever and eustachian tube dysfunction, I was prescribed this a year ago but was previously on Avamys. As my hay fever has kicked in I happened to check the patient leaflet to see if I was on maximum dosage (I work in a nursery and with all
Hi! So, I am currently taking Dymista spray due to severe hay fever and eustachian tube dysfunction, I was prescribed this a year ago but was previously on Avamys. As my hay fever has kicked in I happened to check the patient leaflet to see if I was on maximum dosage (I work in a nursery and with all
Hidden
in
Asthma Community Forum
4 years ago
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Lupus/Sjogrens or not ...
I posted the other day as I had an appointment booked with a specialist Lupus clinic tom am. I was so glad to get this appointment in a recommended Centre of Excellence, as I have been trying for years to get properly considered for Lupus and Sjogrens. Basically my reoccurring symptoms have just been
I posted the other day as I had an appointment booked with a specialist Lupus clinic tom am. I was so glad to get this appointment in a recommended Centre of Excellence, as I have been trying for years to get properly considered for Lupus and Sjogrens. Basically my reoccurring symptoms have just been
UrsaP
in
LUPUS UK
4 years ago
Heat helps with RLS
Tonight I got up at 0245 with my typical pain after my medicine wore off. And I decided to try another natural remedy for pain called "capsaicin" in the form of a patch. I've had some luck with applying heat pads to my quads in the past but nowhere near complete relief. I would get the chemical pads
Tonight I got up at 0245 with my typical pain after my medicine wore off. And I decided to try another natural remedy for pain called "capsaicin" in the form of a patch. I've had some luck with applying heat pads to my quads in the past but nowhere near complete relief. I would get the chemical pads
intermk
in
Restless Legs Syndrome
4 years ago
Tramadol
Been on two tramadol a day for around two months now and now with the biological meds working well I thought i would finish the course and come off them , my doc told me that two a day would not be addictive, well I don’t know if I’m addictive to them but I didn’t sleep a wink last night I was so restless
Been on two tramadol a day for around two months now and now with the biological meds working well I thought i would finish the course and come off them , my doc told me that two a day would not be addictive, well I don’t know if I’m addictive to them but I didn’t sleep a wink last night I was so restless
Buckybri
in
NRAS
4 years ago
Buprenorphine Update and new story
Hi everyone I am prompted to send you an update after receiving an email from a member . Yes buprenorphine still works perfectly 100 percent peaceful No break through , memory crystal clear, fabulous mood , sleep like a baby, cuddle up in my husbands arms until I have a hot flush LOL I now know of
Hi everyone I am prompted to send you an update after receiving an email from a member . Yes buprenorphine still works perfectly 100 percent peaceful No break through , memory crystal clear, fabulous mood , sleep like a baby, cuddle up in my husbands arms until I have a hot flush LOL I now know of
Shumbah
in
Restless Legs Syndrome
4 years ago
Ended up having transfer💞🤞🏽
The clinic warned me it may not happen but they did a scan and showed hardly any fluid left and were happy to proceed! I couldn’t believe it they had to get my in three times as I just couldn’t get my bladder full 🤦🏽♀️ I also suffer from vaginismus and I just kept crying the ladies were amazing and
The clinic warned me it may not happen but they did a scan and showed hardly any fluid left and were happy to proceed! I couldn’t believe it they had to get my in three times as I just couldn’t get my bladder full 🤦🏽♀️ I also suffer from vaginismus and I just kept crying the ladies were amazing and
Sorax
in
Fertility Network UK
4 years ago
Scaremongering or Truth?
Like most people in the UK of late I tend to look at what the press is saying about the Covid19 pandemic. Firstly, let me say that I was horrified by Boris’s initial attitude of “all we need to do is wash our hands for 20 to 30 seconds”, whilst the administration in Hunan were spraying the streets with
Like most people in the UK of late I tend to look at what the press is saying about the Covid19 pandemic. Firstly, let me say that I was horrified by Boris’s initial attitude of “all we need to do is wash our hands for 20 to 30 seconds”, whilst the administration in Hunan were spraying the streets with
Geordie-Y
in
LUPUS UK
4 years ago
Arnica/Dalterparin interactions?
Hi all, I’m having bilateral mastectomy soon & the surgeon wants me to start oral arnica. I’m on daily dalterparin (& hydroxychloroquine). I know arnica interacts with warfarin but struggling to find out how or if theres any specific interaction with dalterparin. Does anyone have experience or any pointers
Hi all, I’m having bilateral mastectomy soon & the surgeon wants me to start oral arnica. I’m on daily dalterparin (& hydroxychloroquine). I know arnica interacts with warfarin but struggling to find out how or if theres any specific interaction with dalterparin. Does anyone have experience or any pointers
Jensgoldenpig
in
Hughes Syndrome APS Forum
4 years ago
Phase 2 Trial - Exenatide Treatment in Parkinson's Disease
The aim of this trial is to investigate the effect of Exenatide, 2 mg, subcutaneous injection, once weekly on disease progression represented by the change in longitudinal Positron emission tomography with 2-deoxy-2-[fluorine-18]fluoro- D-glucose (FDG-PET) in individual PD subjects, and to identify an
The aim of this trial is to investigate the effect of Exenatide, 2 mg, subcutaneous injection, once weekly on disease progression represented by the change in longitudinal Positron emission tomography with 2-deoxy-2-[fluorine-18]fluoro- D-glucose (FDG-PET) in individual PD subjects, and to identify an
Farooqji
in
Cure Parkinson's
4 years ago
Best painkillers
Morning all. I have been taking hydroxychloroquine since 25th Feb, 200 mg for two weeks and now 400 mg since Tuesday past. The joint pains seem to be getting worse. I was taking motifene, seen GP on Mon and he prescribed celebrex instead. So far, not any relief to be honest. What are your experiences
Morning all. I have been taking hydroxychloroquine since 25th Feb, 200 mg for two weeks and now 400 mg since Tuesday past. The joint pains seem to be getting worse. I was taking motifene, seen GP on Mon and he prescribed celebrex instead. So far, not any relief to be honest. What are your experiences
Charlie_25
in
LUPUS UK
4 years ago
MIRAPEXIN PROLONGED RELEASE
Has anyone heard of this? I had a telephone consultation with my Neurologist who prescribed it, because I am not happy with the Gabapentin I am taking. Combined use of 2x600 mg of Gabapentin, 2 co-dydramol and 0.5 mg of Clonazipam each night is still giving me insomnia and restless legs. I was so proud
Has anyone heard of this? I had a telephone consultation with my Neurologist who prescribed it, because I am not happy with the Gabapentin I am taking. Combined use of 2x600 mg of Gabapentin, 2 co-dydramol and 0.5 mg of Clonazipam each night is still giving me insomnia and restless legs. I was so proud
Felicity21
in
Restless Legs Syndrome
4 years ago
STILL NEED HELP
I'm wondering if I have DAWS( dopamine agonist withdrawal syndrome ) I started my tapering from requip the first of Feb. and finished the end of the month. Now I find I'm having terrifying dreams. heavy sweating. roaring in my head, lots more physical discomforts . Has anyone experienced this and if
I'm wondering if I have DAWS( dopamine agonist withdrawal syndrome ) I started my tapering from requip the first of Feb. and finished the end of the month. Now I find I'm having terrifying dreams. heavy sweating. roaring in my head, lots more physical discomforts . Has anyone experienced this and if
sweetiepye
in
Restless Legs Syndrome
4 years ago
Elocon 0.1%
Just been prescribed Elocon for my skin as biopsy came back positive for Lupus Profundus. Has anyone had any good results on this cream ??
Just been prescribed Elocon for my skin as biopsy came back positive for Lupus Profundus. Has anyone had any good results on this cream ??
Montysmum1
in
LUPUS UK
4 years ago
RESTLESS LEGS SYNDROME & CANNABIS OIL
I’ve suffered with severe RLS for many years and decided to try Cannabis Oil as a topical lotion for the first time but it appeared to be making them even worse. Has anyone else experienced a bad result too. I’m quite disappointed because I’ve read so much about how Cannabis Oil helps sufferers. Any
I’ve suffered with severe RLS for many years and decided to try Cannabis Oil as a topical lotion for the first time but it appeared to be making them even worse. Has anyone else experienced a bad result too. I’m quite disappointed because I’ve read so much about how Cannabis Oil helps sufferers. Any
Hidden
in
Restless Legs Syndrome
4 years ago
Pregnyl injections
Hi, I’m on pregnyl injections to help implantation, due to take the last one tonight. I know it’s synthetic hcg so can cause false positives on home tests, but I’m actually dying to test early! Does anyone know if the digital tests make a difference to the normal ones? I’m assuming I have hcg in my
Hi, I’m on pregnyl injections to help implantation, due to take the last one tonight. I know it’s synthetic hcg so can cause false positives on home tests, but I’m actually dying to test early! Does anyone know if the digital tests make a difference to the normal ones? I’m assuming I have hcg in my
Runner90
in
Fertility Network UK
4 years ago
First round of ivf-natural cycle
Hello, this is the first time I join groups like this and it is so exciting ! I had two failed IUI and on the 27th feb ( two days ago) I did FROZEN embryo transfer on a natural cycle , am only using folic acid and duphaston. I am so worried cause eventhough I know am only two days in still I don’t know
Hello, this is the first time I join groups like this and it is so exciting ! I had two failed IUI and on the 27th feb ( two days ago) I did FROZEN embryo transfer on a natural cycle , am only using folic acid and duphaston. I am so worried cause eventhough I know am only two days in still I don’t know
LilSylver
in
Fertility Network UK
4 years ago
Information from several 'think out of the box' doctors/specialists re the Thyroid Gland
I came across this a few minutes ago: Many on the forum will be familiar with some of these doctors named. "Pure T3 Thyroid and Stories of Recovery from Chronic Fatigue Syndrome (ME/CFS) and Fibromyalgia: An Overview." https://www.healthrising.org/blog/2019/03/07/thyroid-t3-chronic-fatigue-fibromyalgia-recovery-stories
I came across this a few minutes ago: Many on the forum will be familiar with some of these doctors named. "Pure T3 Thyroid and Stories of Recovery from Chronic Fatigue Syndrome (ME/CFS) and Fibromyalgia: An Overview." https://www.healthrising.org/blog/2019/03/07/thyroid-t3-chronic-fatigue-fibromyalgia-recovery-stories
shaws
Administrator
in
Thyroid UK
4 years ago
Tooth Extractions
As a PwP, is there anything in particular I need to be aware of regarding having a couple teeth pulled? I am concerned about what kind of anesthesia will be used and how I might respond to it. Also, am I more prone to infection? Should I ask them to prescribe an antibiotic for after? I’m just not sure
As a PwP, is there anything in particular I need to be aware of regarding having a couple teeth pulled? I am concerned about what kind of anesthesia will be used and how I might respond to it. Also, am I more prone to infection? Should I ask them to prescribe an antibiotic for after? I’m just not sure
Cjbro2000
in
Cure Parkinson's
4 years ago
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