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Cogan's syndrome
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Diuretics
I have pretty severe edema in feet and occasionally legs.Is there a diuretic that does not trigger rls? I have tried Bumex and Metolazone. Had very bad rls soon after taking each one. I am on low dose Ropinirole -.9mg . It didn't even calm it. Appreciate any input.
I have pretty severe edema in feet and occasionally legs.Is there a diuretic that does not trigger rls? I have tried Bumex and Metolazone. Had very bad rls soon after taking each one. I am on low dose Ropinirole -.9mg . It didn't even calm it. Appreciate any input.
rmbroadh
in
Restless Legs Syndrome
3 months ago
DEXTROMETHOROHAN and RLS
I am possibly going to be taking Avuelity for MDD . I was doing some research on it because of the RLS. There was one article of a woman with RLS who was given Dextromethirphan for a cough and got significant reduction in her symptoms, to the point she stopped Gaba and kept going with the dextromethorphan
I am possibly going to be taking Avuelity for MDD . I was doing some research on it because of the RLS. There was one article of a woman with RLS who was given Dextromethirphan for a cough and got significant reduction in her symptoms, to the point she stopped Gaba and kept going with the dextromethorphan
teakabeagle
in
Restless Legs Syndrome
3 months ago
Is Tramadol effective right away?
After seeing a new neurologist late in April, I started on clonazepam at bedtime. After a week of not having any results other than being way groggier than ever during my walking sessions through the night, I was told to double the dose...still no lessening of my RLS symptoms. Yesterday I was switched
After seeing a new neurologist late in April, I started on clonazepam at bedtime. After a week of not having any results other than being way groggier than ever during my walking sessions through the night, I was told to double the dose...still no lessening of my RLS symptoms. Yesterday I was switched
Marzipana
in
Restless Legs Syndrome
3 months ago
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restless leg syndrome
I have read up on this and found a article recommending to take one turmeric and one Tylenol no other type of pain reliever must be Tylenol. When I am getting restless leg syndrome at night I take one of each and I was in total shock because within 15 minutes my legs were calm. I could not believe it
I have read up on this and found a article recommending to take one turmeric and one Tylenol no other type of pain reliever must be Tylenol. When I am getting restless leg syndrome at night I take one of each and I was in total shock because within 15 minutes my legs were calm. I could not believe it
Friend_rsl
in
Restless Legs Syndrome
3 months ago
When should I tell me manager I'm pregnant
I want to wait until 12 weeks before telling anybody I am pregnant, but I work with complex, vulnerable individuals, often lone-working, and am not sure whether I should tell my manager earlier than 12 weeks. We have had a lot of ups and downs with IVF and so I am feeling anxious about sharing the news
I want to wait until 12 weeks before telling anybody I am pregnant, but I work with complex, vulnerable individuals, often lone-working, and am not sure whether I should tell my manager earlier than 12 weeks. We have had a lot of ups and downs with IVF and so I am feeling anxious about sharing the news
GranolaLover2000
in
Fertility Network UK
7 months ago
questions about gabapentin
I have severe rls. I have gone through augmentation and had impulse control issues. I went through DAWS when I weaned off pramipraxole. I have been off of DAs for 5 years. I tried to go drug free when I got off but I was going crazy. I found a dr that prescribed methadone. That helped but it really
I have severe rls. I have gone through augmentation and had impulse control issues. I went through DAWS when I weaned off pramipraxole. I have been off of DAs for 5 years. I tried to go drug free when I got off but I was going crazy. I found a dr that prescribed methadone. That helped but it really
senders
in
Restless Legs Syndrome
3 months ago
Update - pinning all our hopes on one embryo
Thanks for all your well wishes. We started with 5 eggs, which dwindled down to 2 embryos by day 3. As you know, we requested for a day 3 single embryo transfer against clinic advice. Well, it looks like my remaining embryo did not make it to blastocyst. We just got the call. My clinic feels that
Thanks for all your well wishes. We started with 5 eggs, which dwindled down to 2 embryos by day 3. As you know, we requested for a day 3 single embryo transfer against clinic advice. Well, it looks like my remaining embryo did not make it to blastocyst. We just got the call. My clinic feels that
Mrs_MT
in
Fertility Network UK
7 months ago
Living Hell
I first experienced RLS about 1982. I had no idea what was wrong with me so I just put it down to some sort of allergy. As the attacks were quite intermittent, I didn't seek any help at the time. After about a year though. The frequency and severity of the attacks increased manyfold and was now causing
I first experienced RLS about 1982. I had no idea what was wrong with me so I just put it down to some sort of allergy. As the attacks were quite intermittent, I didn't seek any help at the time. After about a year though. The frequency and severity of the attacks increased manyfold and was now causing
SteveSpectra
in
Restless Legs Syndrome
3 months ago
coffeecup
I have tried everything ! After years on Pramipexol I augmented but was persuaded by a neurologist (against my better judgement) to try Ropinerol - guess what - augmentation. After weaning off it I was so looking forward to relief from Pregabalin - no relief just horrendous brain fog. Gabapentin - no
I have tried everything ! After years on Pramipexol I augmented but was persuaded by a neurologist (against my better judgement) to try Ropinerol - guess what - augmentation. After weaning off it I was so looking forward to relief from Pregabalin - no relief just horrendous brain fog. Gabapentin - no
Coffeecup
in
Restless Legs Syndrome
3 months ago
here’s what I use
Neupro patch 24 h 6mg, Tramadol 50 mg at night, Gabapentin 100 mg, Tylenol 500 mg, temazepam 30mg at bedtime, Iron 325 mg 3 x’s a week. Magnesium 500 mg at night. Works pretty good though I’m augmenting. I
Neupro patch 24 h 6mg, Tramadol 50 mg at night, Gabapentin 100 mg, Tylenol 500 mg, temazepam 30mg at bedtime, Iron 325 mg 3 x’s a week. Magnesium 500 mg at night. Works pretty good though I’m augmenting. I
maribarosay
in
Restless Legs Syndrome
3 months ago
Changing opiods
I have severe restless legs and have suffered for many years Recently I came off pramipexole, after augmentation. I am now on Targin 40 mg daily, 15mg at 2pm and 25mg at 8pm. I still suffer from restless legs early in the morning, however it is far less intense. Having read many comments re the benefits
I have severe restless legs and have suffered for many years Recently I came off pramipexole, after augmentation. I am now on Targin 40 mg daily, 15mg at 2pm and 25mg at 8pm. I still suffer from restless legs early in the morning, however it is far less intense. Having read many comments re the benefits
Trish8433
in
Restless Legs Syndrome
3 months ago
2nd post update from neurology and quick Q. can you see your muscles moving?
hi only my second post, had a very disappointing appt with a private neurologist over my RLS and muscle twitching. brief history mine started as muscle twitching out hip surgery with restless legs flaring up as a side dish it’s now widespread twitching and restless legs. He tried prescribing me duloxetine
hi only my second post, had a very disappointing appt with a private neurologist over my RLS and muscle twitching. brief history mine started as muscle twitching out hip surgery with restless legs flaring up as a side dish it’s now widespread twitching and restless legs. He tried prescribing me duloxetine
Zenawarrior73
in
Restless Legs Syndrome
3 months ago
Whirly Whirly bird.
You’ve heard about the whirly whirly bird that flies in ever decreasing circles until it finally flies up its own orifice. Well if not then you’ve probably heard about me HipHop1972, I am that whirly whirly bird. With my surgeries inability to treat my severe refractory RLS quite possibly due to the
You’ve heard about the whirly whirly bird that flies in ever decreasing circles until it finally flies up its own orifice. Well if not then you’ve probably heard about me HipHop1972, I am that whirly whirly bird. With my surgeries inability to treat my severe refractory RLS quite possibly due to the
HipHop1972
in
Restless Legs Syndrome
3 months ago
RLS and augmentation – the battle for sufficient treatment.
A HUGE thank you to everyone who has answered and advised me - both on inquiries regarding switch from pramipexole to pregabalin and experiences of treating RLS with morphine only. It has been a BIG help - thanks to you, my doctor has for the time being agreed to give me a small dose of morphine while
A HUGE thank you to everyone who has answered and advised me - both on inquiries regarding switch from pramipexole to pregabalin and experiences of treating RLS with morphine only. It has been a BIG help - thanks to you, my doctor has for the time being agreed to give me a small dose of morphine while
Gibbel
in
Restless Legs Syndrome
3 months ago
Ibuprofen gel/cream
Morning, all. I don't take ibuprofen tablets for pain because of my GCAPMR plus IBS. I know it's not a good idea on preds. Could I use the gel on my neck, though? Or would that find its way into blood or stomach? Paracetamol does very little. Dihydrocodeine is highly effective, but I limit that as it
Morning, all. I don't take ibuprofen tablets for pain because of my GCAPMR plus IBS. I know it's not a good idea on preds. Could I use the gel on my neck, though? Or would that find its way into blood or stomach? Paracetamol does very little. Dihydrocodeine is highly effective, but I limit that as it
random901
in
PMRGCAuk
3 months ago
Thinking of switching to Gabapentin or Pregabalin
I had an absolutely horrible night last night. I take 2mg of Ropinirole but took an extra one last night. It's very ineffective and causes me all sorts of weird problems like confusion and cursing in a kind of semi-conscious daze. Which is best, Gabapentin or Pregabalin, and how much would I have to
I had an absolutely horrible night last night. I take 2mg of Ropinirole but took an extra one last night. It's very ineffective and causes me all sorts of weird problems like confusion and cursing in a kind of semi-conscious daze. Which is best, Gabapentin or Pregabalin, and how much would I have to
Baldrick123
in
Restless Legs Syndrome
3 months ago
Buprenorphine update - one week in
Well, I’ve been taking Buprenorphine for a week now, and I can barely believe it. I have had [u]zero[/u] RLS! My IRLSS has gone from the high 30s to 0. Absolutely no symptoms at all. I have spent my nights in bed like a normal person. The relief is unbelievable. On the first night I took one 0.2mg
Well, I’ve been taking Buprenorphine for a week now, and I can barely believe it. I have had [u]zero[/u] RLS! My IRLSS has gone from the high 30s to 0. Absolutely no symptoms at all. I have spent my nights in bed like a normal person. The relief is unbelievable. On the first night I took one 0.2mg
Claire_lc
in
Restless Legs Syndrome
3 months ago
buprenorphine for sleep apnea patients
Does anyone know if you can use buprenorphine if you have sleep apnea and use a cpap? I was taking mirapax and oxycodone. Went off mirapax. Took my last mirapax on 5/2. Ever since then I have had rls almost all night after going to bed til morning. I am now taking 4 oxycodone ( 5 mg each) spread
Does anyone know if you can use buprenorphine if you have sleep apnea and use a cpap? I was taking mirapax and oxycodone. Went off mirapax. Took my last mirapax on 5/2. Ever since then I have had rls almost all night after going to bed til morning. I am now taking 4 oxycodone ( 5 mg each) spread
lorri214
in
Restless Legs Syndrome
3 months ago
Lining 5.9mm on day 12.. not feeling very hopeful
Hi all, I had my cycle day 12 lining scan today. My lining on my day 9 scan (on Monday) was 5.3mm. Today on cycle day 12, it was only ay 5.9mm. I was told the lining was triple layer however have been asked to return for a scan on Tuesday 23rd Jan to see if there are any developments. I have been
Hi all, I had my cycle day 12 lining scan today. My lining on my day 9 scan (on Monday) was 5.3mm. Today on cycle day 12, it was only ay 5.9mm. I was told the lining was triple layer however have been asked to return for a scan on Tuesday 23rd Jan to see if there are any developments. I have been
lovetravelling
in
Fertility Network UK
7 months ago
medication rotation
My RLS doctor, who I have found to be most knowledgeable about RLS put me on Buprenorphine,( .5 mg is my lowest effective dose). I was on Pramipexole without significant augmentation, but discontinued gradually after starting the Bup. After a year of Bup only, after the dopamine receptors have “reset
My RLS doctor, who I have found to be most knowledgeable about RLS put me on Buprenorphine,( .5 mg is my lowest effective dose). I was on Pramipexole without significant augmentation, but discontinued gradually after starting the Bup. After a year of Bup only, after the dopamine receptors have “reset
teakabeagle
in
Restless Legs Syndrome
3 months ago
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