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Coats plus syndrome
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Joint hypermobility syndrome-what did you wish you'd known before?
Hi! So I'd been thinking today about what life could be for me in 20/30/40 years time as even in the last 5 years living with hypermobility syndrome has changed drastically for me. I know everyone's experience varies, but I wondered if anyone had any advice or things they wish they'd have done differently
Hi! So I'd been thinking today about what life could be for me in 20/30/40 years time as even in the last 5 years living with hypermobility syndrome has changed drastically for me. I know everyone's experience varies, but I wondered if anyone had any advice or things they wish they'd have done differently
orangesounds23
in
Pain Concern
5 years ago
Requip and restless leg
I’ve been on requip for 15 years- I take 2mg in morning and 2 mg at night. I don’t like it I think it is causing augmentation and I wake up nauseated. I would love to get off but have heard horror stories about withdrawal! Getting off may make my restless leg and Parkinson’s worse! I don’t know what
I’ve been on requip for 15 years- I take 2mg in morning and 2 mg at night. I don’t like it I think it is causing augmentation and I wake up nauseated. I would love to get off but have heard horror stories about withdrawal! Getting off may make my restless leg and Parkinson’s worse! I don’t know what
bmak54
in
Restless Legs Syndrome
5 years ago
Withdrawal bleed after failed cycle
Unfortunately our first cycle of IVF failed, I tested last Sunday BFN 😔 and then bleed that night after the 2ww and was just wondering how long other peoples withdrawal bleeding lasted after a failed cycle? I’m on day 9 now of a heavy period and getting me down a little as it’s a constant reminder of
Unfortunately our first cycle of IVF failed, I tested last Sunday BFN 😔 and then bleed that night after the 2ww and was just wondering how long other peoples withdrawal bleeding lasted after a failed cycle? I’m on day 9 now of a heavy period and getting me down a little as it’s a constant reminder of
Kirstylouisebuck
in
Fertility Network UK
5 years ago
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Ropinirole and pregablin
I posted on here few months ago the doctor had me up to 1800 of gabapentin a day i have weaned off it all as didnt like side effects i was put on 0.5mg of ropinirole when i finished gabapentin i had the worse nights ever with my rls i am now on 1mg of ropinirole a night and 50mg of pregablin 3 times
I posted on here few months ago the doctor had me up to 1800 of gabapentin a day i have weaned off it all as didnt like side effects i was put on 0.5mg of ropinirole when i finished gabapentin i had the worse nights ever with my rls i am now on 1mg of ropinirole a night and 50mg of pregablin 3 times
Shellmor13
in
Restless Legs Syndrome
5 years ago
Oxycodone Dopamine Agonist?
So I have just come off of ropinirole for restless leg due to augmentation and I’m now taking oxycodone 5 mg before bedtime. This is really been helping and I was hoping it would be good for the transitioning from Ropinerol. I just read that oxycodone is an agonist. Does this mean I will have augmentation
So I have just come off of ropinirole for restless leg due to augmentation and I’m now taking oxycodone 5 mg before bedtime. This is really been helping and I was hoping it would be good for the transitioning from Ropinerol. I just read that oxycodone is an agonist. Does this mean I will have augmentation
Hidden
in
Restless Legs Syndrome
5 years ago
New here with new tip that works for me
My partner is a medical bio-chemical scientist. For me, he makes a liquid form of magnesium and a spray that has something called DMSO in it - it takes the magnesium through my skin. I see that people here talk about taking magnesium by mouth but I've found this works better for me. I rub them on my
My partner is a medical bio-chemical scientist. For me, he makes a liquid form of magnesium and a spray that has something called DMSO in it - it takes the magnesium through my skin. I see that people here talk about taking magnesium by mouth but I've found this works better for me. I rub them on my
quipper
in
Restless Legs Syndrome
5 years ago
My SIBO, CFS, IBS recovery plan
Hello Everyone! My name is David. I have suffered from chronic fatigue for many years. I have recently tested positive for Methan Dominant SIBO. I have started a herbal and lifestyle protocol to clear out the bacterial overgrowth and get my life back. Please feel free to follow my blog and monitor my
Hello Everyone! My name is David. I have suffered from chronic fatigue for many years. I have recently tested positive for Methan Dominant SIBO. I have started a herbal and lifestyle protocol to clear out the bacterial overgrowth and get my life back. Please feel free to follow my blog and monitor my
dh2909
in
IBS Network
5 years ago
Community Guidelines
Welcome to the Myalgic Encephalomyelitis Community for support of ME/CFS! We’re very glad you have chosen to be a part of our community. The Myalgic Encephalomyelitis community - offered by HealthUnlocked (HU) - supports individuals affected by ME/CFS. Whether you are an individual who has been diagnosed
Welcome to the Myalgic Encephalomyelitis Community for support of ME/CFS! We’re very glad you have chosen to be a part of our community. The Myalgic Encephalomyelitis community - offered by HealthUnlocked (HU) - supports individuals affected by ME/CFS. Whether you are an individual who has been diagnosed
SaskiaHU
HealthUnlocked
in
Myalgic Encephalomyelitis Community
5 years ago
This has helped my restless legs
Because of the exorbitant price of the relaxis pad, I came up with my own version that works pretty good. I bought a foam back roller on Amazon ($26 USD) that vibrates. I place it at the foot of my bed under the blankets and I press my feet against it which sends gentle vibrations up my legs helping
Because of the exorbitant price of the relaxis pad, I came up with my own version that works pretty good. I bought a foam back roller on Amazon ($26 USD) that vibrates. I place it at the foot of my bed under the blankets and I press my feet against it which sends gentle vibrations up my legs helping
CindyPatt
in
Restless Legs Syndrome
5 years ago
RLS LDN NORCO KRATOM B-12 SHOTS AND GETTING VEINS COLLAPSED...
LDN and Norco...was doing six norco a day...took LDN with it and it made the pain with RLS a hundred times worse. The LDN partially blocks the opiod receptors...and when the natural endorphins build up pressure where the natural endorphins push themselves in the cell and you get pain relief. Now Norco
LDN and Norco...was doing six norco a day...took LDN with it and it made the pain with RLS a hundred times worse. The LDN partially blocks the opiod receptors...and when the natural endorphins build up pressure where the natural endorphins push themselves in the cell and you get pain relief. Now Norco
Ert223
in
Restless Legs Syndrome
5 years ago
Eat more nucleotides!
I found this fascinating article while researching coenzyme A. Basically some foods such as offals, small fish and beans and legumes have high amounts of the nucleotides your body needs to make DNA and RNA . By eating these nucleotides it is a more efficient way of the body putting together these molecules
I found this fascinating article while researching coenzyme A. Basically some foods such as offals, small fish and beans and legumes have high amounts of the nucleotides your body needs to make DNA and RNA . By eating these nucleotides it is a more efficient way of the body putting together these molecules
LAJ12345
in
Cure Parkinson's
5 years ago
IVF Journey is over
So with sadness our IVF journey is nearly over. I went for a follow up pregnancy scan after my 7 week scan wasn’t conclusive. Today there seemed to be something still in the sac but the nurse just couldn’t make it out. Unfortunately after reviewing with the consultant I have been told to stop my medication
So with sadness our IVF journey is nearly over. I went for a follow up pregnancy scan after my 7 week scan wasn’t conclusive. Today there seemed to be something still in the sac but the nurse just couldn’t make it out. Unfortunately after reviewing with the consultant I have been told to stop my medication
Kama41
in
Fertility Network UK
5 years ago
Update for dry eyes 👀
As I wrote couple of months ago I was suffering sever dry eye. By the good advice of my dear friends here, I went to ophthalmologist and she told dryness is sever and the schirmer(? )test for measuring the volume of tears was extremely low. Also she said I have minor ulcerations on cornea. So she prescribed
As I wrote couple of months ago I was suffering sever dry eye. By the good advice of my dear friends here, I went to ophthalmologist and she told dryness is sever and the schirmer(? )test for measuring the volume of tears was extremely low. Also she said I have minor ulcerations on cornea. So she prescribed
Sona_akb
in
PBC Foundation
5 years ago
Period way too short after cancelled iui and withdrawal bleed
I had an iui cancelled on day 10 and stopped meds. On day 18 my withdrawal bleed started. Now, 21 days after that I started bleeding again. Could that be a period? Normally my cycle is (if I am doing low GI/low carb diet) 29-36 days long, so this would be really early. I do not really bleed in between
I had an iui cancelled on day 10 and stopped meds. On day 18 my withdrawal bleed started. Now, 21 days after that I started bleeding again. Could that be a period? Normally my cycle is (if I am doing low GI/low carb diet) 29-36 days long, so this would be really early. I do not really bleed in between
Tigr
in
Fertility Network UK
5 years ago
Hi
Hi guys been to the doctor again and have had my ropinerol upt to 6mg a day the Gabapentin stays the same for now she has also given me folic acid and cholecalciferol 20,000unit 1 capsule 2 days a week for 7 weeks can anyone relate to this
Hi guys been to the doctor again and have had my ropinerol upt to 6mg a day the Gabapentin stays the same for now she has also given me folic acid and cholecalciferol 20,000unit 1 capsule 2 days a week for 7 weeks can anyone relate to this
Jane190
in
Restless Legs Syndrome
5 years ago
Thinking about other options
Hi everyone , I just recently joined this group. I’ve had restless leg syndrome at least 20+ years I’ve had it longer than that but I didn’t even know there was a name associated with what the symptoms were I’ve been to a neurologist probably 10 years ago but didn’t follow it because he was not
Hi everyone , I just recently joined this group. I’ve had restless leg syndrome at least 20+ years I’ve had it longer than that but I didn’t even know there was a name associated with what the symptoms were I’ve been to a neurologist probably 10 years ago but didn’t follow it because he was not
Crazygrl
in
Restless Legs Syndrome
5 years ago
Vitamins
My 3rd transfer failed and broke my heart again 💔call the clinic for one appointment and one thousand questions in my head So far I’ve taken Zita vitamin, ubiquinol, inositol, Maca root, vit D, DHA, folic acid I am wondering now if I still need to take all of this for a frozen transfer? I read about
My 3rd transfer failed and broke my heart again 💔call the clinic for one appointment and one thousand questions in my head So far I’ve taken Zita vitamin, ubiquinol, inositol, Maca root, vit D, DHA, folic acid I am wondering now if I still need to take all of this for a frozen transfer? I read about
Frussy
in
Fertility Network UK
5 years ago
Need suggestion QUICK
Dr B put me on methadone 5mg for my RLS. I have back, neck and shoulder damage/issues we didnt get a chance to discuss. My back, hip and leg are acting up for 3 wks now. The methadone doesnt help enough. AND I'm headed to a EMG-nerve test (painful, stick electrodes in an inch or two to measure nerve)
Dr B put me on methadone 5mg for my RLS. I have back, neck and shoulder damage/issues we didnt get a chance to discuss. My back, hip and leg are acting up for 3 wks now. The methadone doesnt help enough. AND I'm headed to a EMG-nerve test (painful, stick electrodes in an inch or two to measure nerve)
Mona7
in
Restless Legs Syndrome
5 years ago
DESPERATE
I have RLS for which I take Ropinirole, Clonazepam, and Gabapentin. I went into augmentation and my doctor said to take less Ropinirole which I did with some success . I have always had trouble sleeping and I developed insomnia . I was and still am sleep walking , falling, and over eating at night.
I have RLS for which I take Ropinirole, Clonazepam, and Gabapentin. I went into augmentation and my doctor said to take less Ropinirole which I did with some success . I have always had trouble sleeping and I developed insomnia . I was and still am sleep walking , falling, and over eating at night.
sweetiepye
in
Restless Legs Syndrome
5 years ago
Switch from Ropinirole to Rotigotine
Thanks to everyone who replied to my post about changing from Ropinirole to Rotigotine patches. There was some very useful information and experiences from everyone and good advice. I am considering weaning myself of Ropinirole as it looks like the general view is you should not just switch from one
Thanks to everyone who replied to my post about changing from Ropinirole to Rotigotine patches. There was some very useful information and experiences from everyone and good advice. I am considering weaning myself of Ropinirole as it looks like the general view is you should not just switch from one
murph50
in
Restless Legs Syndrome
5 years ago
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