Search
Search
About
Log in
Join
Experiences with
Coats plus syndrome
Posts
Communities
3,260 public posts
Filter results
It's In The Family
I am retired and living back in the Cornish town of my birth. Although I have been a member of the Rls support group for many years I have just joined the forum. Rls was experienced by my paternal Grandmother, my father, one of his sisters, a cousin and now, as well as myself, my daughter is experiencing
I am retired and living back in the Cornish town of my birth. Although I have been a member of the Rls support group for many years I have just joined the forum. Rls was experienced by my paternal Grandmother, my father, one of his sisters, a cousin and now, as well as myself, my daughter is experiencing
caracalla
in
Restless Legs Syndrome
3 years ago
How much reduction in absorption of gabapentin is there if one takes more than 600 mg?
I have been taking 1400 mg gabapentin divided into 700 mg at 7:15 and 700 mg at 9:15, going to bed at 10:15. I increased this to 1500 mg on July 5th, with 700 mg at 7:15 and 800 mg at 9:15, but last night had restless legs. I know I should switch to pregabalin but it is expensive. I know that in taking
I have been taking 1400 mg gabapentin divided into 700 mg at 7:15 and 700 mg at 9:15, going to bed at 10:15. I increased this to 1500 mg on July 5th, with 700 mg at 7:15 and 800 mg at 9:15, but last night had restless legs. I know I should switch to pregabalin but it is expensive. I know that in taking
SueJohnson
in
Restless Legs Syndrome
3 years ago
My life with RLS, and the lengths I will go to for relief!
I am 58, and I have had RLS for 13 years. Or I was diagnosed 13 years ago. My story is crazy , and I'm sure some won't believe it. About 15 years ago I started having bad panic attacks! I would go to the ER. Several times a week. I was treated with Xanax. It worked well for me. But then I started getting
I am 58, and I have had RLS for 13 years. Or I was diagnosed 13 years ago. My story is crazy , and I'm sure some won't believe it. About 15 years ago I started having bad panic attacks! I would go to the ER. Several times a week. I was treated with Xanax. It worked well for me. But then I started getting
1Master11
in
Restless Legs Syndrome
3 years ago
Want to take advantage of all our features? Just log in!
Log in
or
Join
Has anyone conceived naturally with PCOS?
Hello, I recently asked my gynecologist what my chances would be of conceiving naturally and he said 'I won't say zero but very low' which made me think all this time has been wasted with charting my cycles and hoping for pregnancy month after month. When I tell family members I have PCOS they brush
Hello, I recently asked my gynecologist what my chances would be of conceiving naturally and he said 'I won't say zero but very low' which made me think all this time has been wasted with charting my cycles and hoping for pregnancy month after month. When I tell family members I have PCOS they brush
CoralCats
in
Fertility Network UK
3 years ago
help with rls meds
Hi. Been awhile since I posted but hoping for advice. My husband has rls in all limbs he is taking gabapentin 2 100mg a night and still taking 1 1mg ropinirole. I understand he is most likely augmenting so hopefully he will decide to wean off. He goes to neurologist tomorrow and I want to find
Hi. Been awhile since I posted but hoping for advice. My husband has rls in all limbs he is taking gabapentin 2 100mg a night and still taking 1 1mg ropinirole. I understand he is most likely augmenting so hopefully he will decide to wean off. He goes to neurologist tomorrow and I want to find
Mustanggirlgirl
in
Restless Legs Syndrome
3 years ago
Seeking Holistic Remedies and Root Causes of RLS
Over the past few years, I've developed RLS and at the same time also tested positive for toxic metals like lead, mercury, aluminum and several others. Have also learned that this is an epidemic problem as these toxic metals have no biological benefit and yet are found in tap water, food, air, cosmetics
Over the past few years, I've developed RLS and at the same time also tested positive for toxic metals like lead, mercury, aluminum and several others. Have also learned that this is an epidemic problem as these toxic metals have no biological benefit and yet are found in tap water, food, air, cosmetics
JWBe
in
Restless Legs Syndrome
3 years ago
Morning everybody. I am looking for a quality CBD oil Any experiences please š
I am soon to be starting Temgesic for my restless limbs. Can anyone recommend a good quality CBD oil to help with any restlessness I may experience crossing over from my current Oxycodone med? I recognise that I may not need it, but just in case. Also the pain doctor recommended that I occasionally
I am soon to be starting Temgesic for my restless limbs. Can anyone recommend a good quality CBD oil to help with any restlessness I may experience crossing over from my current Oxycodone med? I recognise that I may not need it, but just in case. Also the pain doctor recommended that I occasionally
smilingjane
in
Restless Legs Syndrome
3 years ago
Ropinirole side effects
I have RLS in legs and nervous tension in arms, insomnia, I have been prescribed ropinirole and taking for nearly 2 years. has anyone side effects?
I have RLS in legs and nervous tension in arms, insomnia, I have been prescribed ropinirole and taking for nearly 2 years. has anyone side effects?
Cailen
in
Restless Legs Syndrome
3 years ago
The one Restless Limb that may have saved me years of trouble.
Back in the day when I was first starting medications to treat my RLS the doctor started with Mirapex and then Requip. At the the lowest dose of each there was quite a reaction. I can "firmly" say that I could not tolerate these medications because they caused painful priapism. Not a very common reaction
Back in the day when I was first starting medications to treat my RLS the doctor started with Mirapex and then Requip. At the the lowest dose of each there was quite a reaction. I can "firmly" say that I could not tolerate these medications because they caused painful priapism. Not a very common reaction
ziggypiggy
in
Restless Legs Syndrome
3 years ago
At my wits end
I am from NZ and have been desperate with my RLS also for months, sometimes not getting to sleep till 4.30am!! I finally went back to my Dr saying something had to be done as I couldnāt carry on with no sleep. Iāve been on 1-2 Madopar for years but it just isnāt working now. As well as Madopar, I
I am from NZ and have been desperate with my RLS also for months, sometimes not getting to sleep till 4.30am!! I finally went back to my Dr saying something had to be done as I couldnāt carry on with no sleep. Iāve been on 1-2 Madopar for years but it just isnāt working now. As well as Madopar, I
Dunedinite
in
Restless Legs Syndrome
3 years ago
In a panic! Has anyone heard of these?
After a few years of heavy bleeds, now under control with the pill,this past few weeks I had symptoms of stabbing pain (nearly fainted twice) in my pelvis and a very achy back I went for a private scan. NHS so busy atm and I was torturing myself. So the sonographer report states 2 possible causes. Degenerating
After a few years of heavy bleeds, now under control with the pill,this past few weeks I had symptoms of stabbing pain (nearly fainted twice) in my pelvis and a very achy back I went for a private scan. NHS so busy atm and I was torturing myself. So the sonographer report states 2 possible causes. Degenerating
Shammy716
in
Endometriosis UK
3 years ago
Constant Calves twitching for 9 years - anyone else have this?
I never connected the restless legs and constant calves twitching with the zoloft I started 9 1/2 years ago. I had been on impramine and dispramine for 20 years before the switch. I did not have any leg problems on them. Anyone else have constant movement in their calves?
I never connected the restless legs and constant calves twitching with the zoloft I started 9 1/2 years ago. I had been on impramine and dispramine for 20 years before the switch. I did not have any leg problems on them. Anyone else have constant movement in their calves?
Basilanna
in
Restless Legs Syndrome
3 years ago
2 nights with no restless legs
After suffering with severe RLS for the last 6 years (I'm 22) I have finally been referred to a neurologist! He was fantastic š He has started me on Gabapentin 300mg at night. second night in and NO restless legs. He is also wanting to do an MRI to see if there is anything that could explain my rls
After suffering with severe RLS for the last 6 years (I'm 22) I have finally been referred to a neurologist! He was fantastic š He has started me on Gabapentin 300mg at night. second night in and NO restless legs. He is also wanting to do an MRI to see if there is anything that could explain my rls
Jade1998
in
Restless Legs Syndrome
3 years ago
HELP: First ever IVF advice - i am already giving up
I have Pcos and ttc since 2019. I got pregnant quickly the first time but I had a mmc. My problem is anovulatory cycles. In the last 6 months we tried Clomid which helped me ovulate but I am still not pregnant. In March I was referred to Assisted Conception Unit in my local hospital and things are moving
I have Pcos and ttc since 2019. I got pregnant quickly the first time but I had a mmc. My problem is anovulatory cycles. In the last 6 months we tried Clomid which helped me ovulate but I am still not pregnant. In March I was referred to Assisted Conception Unit in my local hospital and things are moving
FrancyItaly
in
Fertility Network UK
3 years ago
Weird cycles normal after failed ivf?
I'm having weird cycles since my first failed ivf a couple of months back. Cycles are usually about 26 days. 1st cycle was 31 days but I didn't ovulate. I'm now on day 14, seemed to be getting ready to ovulate, lots of ewcm, ovary pain etc. but this morning had lots of brown discharge mixed in with
I'm having weird cycles since my first failed ivf a couple of months back. Cycles are usually about 26 days. 1st cycle was 31 days but I didn't ovulate. I'm now on day 14, seemed to be getting ready to ovulate, lots of ewcm, ovary pain etc. but this morning had lots of brown discharge mixed in with
river242
in
Fertility Network UK
3 years ago
My experience with medically prescribed vaping for RLS
I have had RLS since my 20's and I am now 72. I have avoided taking dopamine agonists and other RLS medications for fear of augmentation. My chosen path is an anti-inflammatory diet, supplements, healthy lifestyle and so far I do manage to live a reasonable life. In the past 2 years I have embraced
I have had RLS since my 20's and I am now 72. I have avoided taking dopamine agonists and other RLS medications for fear of augmentation. My chosen path is an anti-inflammatory diet, supplements, healthy lifestyle and so far I do manage to live a reasonable life. In the past 2 years I have embraced
Goldy700
in
Restless Legs Syndrome
3 years ago
AZ second jab - preparation
Hi all, Im waiting on my second AZ jab. It should be soon. I had my fiirst jab on a Sat, had a flare on the Sunday, felt like I never had a pain in my life on the Monday and was back to 'normal' on the Monday, stiff/sore in the mornings!! I never took anything beforehand like paracetamol or aspirin
Hi all, Im waiting on my second AZ jab. It should be soon. I had my fiirst jab on a Sat, had a flare on the Sunday, felt like I never had a pain in my life on the Monday and was back to 'normal' on the Monday, stiff/sore in the mornings!! I never took anything beforehand like paracetamol or aspirin
lkcreedon
in
PMRGCAuk
3 years ago
How my restless legs have resolved
Hi everyone. I'll try and be add brief as I can. Hisory: diabetic , sleep apnea (history of smoking heroin ) Basically when i was smoking heroin I would sleep like a baby but back in the day when I was using I would also cease use of heroin easily too. But that is when I would suffer quiet severely
Hi everyone. I'll try and be add brief as I can. Hisory: diabetic , sleep apnea (history of smoking heroin ) Basically when i was smoking heroin I would sleep like a baby but back in the day when I was using I would also cease use of heroin easily too. But that is when I would suffer quiet severely
biggurs
in
Restless Legs Syndrome
3 years ago
Why use Progynova from day 20 of previous cycle (ahead of short protocol IVF cycle)?
Hello Friends, My clinic has asked me to take Progynova from day 20 on the previous cycle ahead of my (short antagonist) IVF cycle. I have read about progynova and understand it thickens the lining and it is mostly given during the IVF cycle to help the lining develop. ...My lining is working great,
Hello Friends, My clinic has asked me to take Progynova from day 20 on the previous cycle ahead of my (short antagonist) IVF cycle. I have read about progynova and understand it thickens the lining and it is mostly given during the IVF cycle to help the lining develop. ...My lining is working great,
Carelia
in
Fertility Network UK
3 years ago
Supplements to help with DAWS
Has anyone had success with supplements to help repair dopamine damage from DAWS? These are supplements I found from research. Not entirely sure which are most appropriate. Dopa Maxx: https://www.integrativepsychiatry.net/shop/ip-formulas/dopa-maxx-dopamine-supplement/ L-Theanine: https://www.amazon.com
Has anyone had success with supplements to help repair dopamine damage from DAWS? These are supplements I found from research. Not entirely sure which are most appropriate. Dopa Maxx: https://www.integrativepsychiatry.net/shop/ip-formulas/dopa-maxx-dopamine-supplement/ L-Theanine: https://www.amazon.com
Discopage
in
Restless Legs Syndrome
3 years ago
1
...
44
45
46
...
100
Next page
10
20
30
40
50
60
70
80
90
100
Filter results
Clear filters
Posted in
All communities
Restless Legs Syndrome
1423 results
Fertility Network UK
359 results
PMRGCAuk
132 results
View top 10 communities
Sort by
Most Relevant
Newest