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Coagulation factor IX
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You wont believe this....well, you might š¤¦āāļø
I asked the doctors on monday to add some tests onto my follow up bloods my blood test appointment yesterday. The doctor agreed reluctantly š I just want all the tests done at once to rule everything out. Additional tests asked for. Full thyroid including T3, t4 and antibodies. Rheumatology tests
I asked the doctors on monday to add some tests onto my follow up bloods my blood test appointment yesterday. The doctor agreed reluctantly š I just want all the tests done at once to rule everything out. Additional tests asked for. Full thyroid including T3, t4 and antibodies. Rheumatology tests
Peppermints
in
Pernicious Anaemia Society
2 years ago
myopic CNV update- 4 months onā¦
Morning, just to update people who might be less far along than I am incase you are interested. Also just to be clear my experiences are limited and based on myopic CNV not wet AMD or dry AMD. So back in April I had a CNV in my left eye, treated 3 weeks later by Eylea x 2- one in May, one in June. It
Morning, just to update people who might be less far along than I am incase you are interested. Also just to be clear my experiences are limited and based on myopic CNV not wet AMD or dry AMD. So back in April I had a CNV in my left eye, treated 3 weeks later by Eylea x 2- one in May, one in June. It
Deepbluesea2022
in
Macular Society
2 years ago
Please help! At a loss with my dad's symptoms and GP
Hi all, Just joined this as not sure where else to turn! My Dad is 72 and in November 2020 his bloods showed that he was low in b12 (sorry don't have exact result). At the time I was baffled by this as he was eating eggs daily and ate red meat regularly too. After a quick search I read about PA and
Hi all, Just joined this as not sure where else to turn! My Dad is 72 and in November 2020 his bloods showed that he was low in b12 (sorry don't have exact result). At the time I was baffled by this as he was eating eggs daily and ate red meat regularly too. After a quick search I read about PA and
Needleandthread44
in
Pernicious Anaemia Society
2 years ago
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Struggling with a diagnosis
Hello, I have been suffering with what I believe are all symptoms of an unknown autoimmune disease, apart from a face rash and organ damage, for around 4 years. My blood results showed positive for HLAB27 & ANA ELISA with a low titre rheumatoid factor. I also suffer with psoriasis, hair loss, extreme
Hello, I have been suffering with what I believe are all symptoms of an unknown autoimmune disease, apart from a face rash and organ damage, for around 4 years. My blood results showed positive for HLAB27 & ANA ELISA with a low titre rheumatoid factor. I also suffer with psoriasis, hair loss, extreme
Ryane96
in
Fibromyalgia Action UK
2 years ago
Struggling for a diagnosis
Hello, I have been suffering with what I believe are all symptoms of an unknown autoimmune disease ,apart from a face rash and organ damage, for around 4 years. My blood results showed positive for HLAB27 & ANA ELISA with a low titre rheumatoid factor. I also suffer with psoriasis, hair loss, extreme
Hello, I have been suffering with what I believe are all symptoms of an unknown autoimmune disease ,apart from a face rash and organ damage, for around 4 years. My blood results showed positive for HLAB27 & ANA ELISA with a low titre rheumatoid factor. I also suffer with psoriasis, hair loss, extreme
Ryane96
in
NRAS
2 years ago
Struggling to get a diagnosis.
Hello, I have been suffering with what I believe are all symptoms of lupus, apart from a face rash and organ damage, for around 4 years. My blood results showed positive for HLAB27 & ANA ELISA with a low titre rheumatoid factor. I also suffer with psoriasis, hair loss, extreme debilitating fatigue
Hello, I have been suffering with what I believe are all symptoms of lupus, apart from a face rash and organ damage, for around 4 years. My blood results showed positive for HLAB27 & ANA ELISA with a low titre rheumatoid factor. I also suffer with psoriasis, hair loss, extreme debilitating fatigue
Ryane96
in
LUPUS UK
2 years ago
I have my 5th shot todayš¤š»
Hey everyone. I have my 5th shot due today. I dont feel much difference but because I'm not working (just started 4 weeks off sick) I do feel marginally more capable of day to day activities. I'm also not as angry as I was last week.....āŗļø But the tiredness is endless. I can have so much sleep and night
Hey everyone. I have my 5th shot due today. I dont feel much difference but because I'm not working (just started 4 weeks off sick) I do feel marginally more capable of day to day activities. I'm also not as angry as I was last week.....āŗļø But the tiredness is endless. I can have so much sleep and night
Peppermints
in
Pernicious Anaemia Society
2 years ago
Autoimmune gastritis Vs AMAG/PA
https://pernicious-anaemia-society.org/b12deficiencyandperniciousanaemia/ This first article describes one cause of B12 deficiency (other than PA) as gastritis that is 'where the patient produces antibodies that destroy either the Parietal Cells or Intrinsic Factor or both.' So is this very much different
https://pernicious-anaemia-society.org/b12deficiencyandperniciousanaemia/ This first article describes one cause of B12 deficiency (other than PA) as gastritis that is 'where the patient produces antibodies that destroy either the Parietal Cells or Intrinsic Factor or both.' So is this very much different
myownscientist
in
Pernicious Anaemia Society
2 years ago
Newly diagnosed possible Autoimmune gastritis and B12 deficiency
I've recently started B12 injections under the care of a private doctor. He gave my first injection and I'm doing self injections at home (1mg hydroxocobalamin). My B12 was at 292 so a little above the NHS range but clearly deficient. I initially saw him to arrange an iron infusion for iron deficiency
I've recently started B12 injections under the care of a private doctor. He gave my first injection and I'm doing self injections at home (1mg hydroxocobalamin). My B12 was at 292 so a little above the NHS range but clearly deficient. I initially saw him to arrange an iron infusion for iron deficiency
myownscientist
in
Pernicious Anaemia Society
2 years ago
Confused, again
So had bloods repeated on NHS. All except 4 came back, on my GP no reference ranges. Got print outs and have been checking every day for missing results. Just now found 2 more on my GP. , had been waiting on T3 vit D and IFA and TTG (coeliac). One says intrinsic factor ab screen test but no
So had bloods repeated on NHS. All except 4 came back, on my GP no reference ranges. Got print outs and have been checking every day for missing results. Just now found 2 more on my GP. , had been waiting on T3 vit D and IFA and TTG (coeliac). One says intrinsic factor ab screen test but no
Polo22
in
Pernicious Anaemia Society
2 years ago
Any Advice on PA & B12 plus iron & ferritin
Hi I have Hypothyroidism and they have advised me to ask for your help . I will try & cut a long story short!! . Since 2018 I have had low Ferritin results quite often and have taken Ferrous fummerate for 6 months each time and then promptly ignored as problem solved . In December I had a blood test
Hi I have Hypothyroidism and they have advised me to ask for your help . I will try & cut a long story short!! . Since 2018 I have had low Ferritin results quite often and have taken Ferrous fummerate for 6 months each time and then promptly ignored as problem solved . In December I had a blood test
Spoticus
in
Pernicious Anaemia Society
2 years ago
Deteriorating eyesight...........
Hi everyone, I had my first anti VEGF injection this morning, it was s anxious about it, but it was better than I expected. I have a medium to large static black blob ( lower left eye) and a feeling of a foreign body/grit in injection area, runny left nostriltoo, my eye is getting very sore.. It's the
Hi everyone, I had my first anti VEGF injection this morning, it was s anxious about it, but it was better than I expected. I have a medium to large static black blob ( lower left eye) and a feeling of a foreign body/grit in injection area, runny left nostriltoo, my eye is getting very sore.. It's the
Hidden
in
Macular Society
2 years ago
Advice please on blood results RE: changing Levo to NDT
Hi guys, Further to my last post on struggling with Levo to NDT I have been asked to post my blood resultsā¦done in January! No thyroid Just realised they didnāt test Vit D but was taking better for you Vit d spray with K2 at the timeā¦ just trying their Vit d without K2 as had bad experience when trying
Hi guys, Further to my last post on struggling with Levo to NDT I have been asked to post my blood resultsā¦done in January! No thyroid Just realised they didnāt test Vit D but was taking better for you Vit d spray with K2 at the timeā¦ just trying their Vit d without K2 as had bad experience when trying
Blanche1960
in
Thyroid UK
2 years ago
News that worried us and studies that gave us hope (04/2022).
This is the information that gave us hope while my father was alive and has given hope to many since then (March 2012). 1. News that worried us. In the coming decades the number of Parkinson's disease patients is feared to increase very worryingly, to double by 2030 (Dorsey 2007) and even to triple
This is the information that gave us hope while my father was alive and has given hope to many since then (March 2012). 1. News that worried us. In the coming decades the number of Parkinson's disease patients is feared to increase very worryingly, to double by 2030 (Dorsey 2007) and even to triple
parkinsonshereandnow
in
Cure Parkinson's
2 years ago
Dear Gambit62, Sleepybunny, Rexz, Wedgewood, and Nackapan
Thank you! Your responses to my query regarding specific tests that assist in determining pernicious anemia will be incredibly helpful. I looked on MyChart - my medical clinic's website that provides patients direct access to their test results. Here is what I found along with responses to some of
Thank you! Your responses to my query regarding specific tests that assist in determining pernicious anemia will be incredibly helpful. I looked on MyChart - my medical clinic's website that provides patients direct access to their test results. Here is what I found along with responses to some of
Hidden
in
Pernicious Anaemia Society
2 years ago
CSR and strabismus surgery. Plus benefits of CBD for CSR
Hi guys I was recommended for strabismus surgery.. they said it was I was a great candidate but itās for both eyes. Iāve never really had it as bad as others may have.. itās slight but as Iāve gotten older itās starting to get worse. Iām also a lucky enough to have CSR and Iām curious if anybody has
Hi guys I was recommended for strabismus surgery.. they said it was I was a great candidate but itās for both eyes. Iāve never really had it as bad as others may have.. itās slight but as Iāve gotten older itās starting to get worse. Iām also a lucky enough to have CSR and Iām curious if anybody has
T109
in
Macular Society
2 years ago
IFA & PCA blood tests
Hi, Iāve been booked for bloods for intrinsic factor and parietal cells antibodies, the GP said they are antibodies so no need to stop B12 before hand. Iām reading both 48 hours and/or 2 weeks clear of injections, I donāt want to mess these tests up but at the same time am desperate to get the B12.
Hi, Iāve been booked for bloods for intrinsic factor and parietal cells antibodies, the GP said they are antibodies so no need to stop B12 before hand. Iām reading both 48 hours and/or 2 weeks clear of injections, I donāt want to mess these tests up but at the same time am desperate to get the B12.
ATS1304
in
Pernicious Anaemia Society
2 years ago
Changing result for intrinsic factor antibody blood test
Why does Intrinsic factor test result change? Does anybody know what makes the abs come and go? I had negative then + result then negative again the day after B12 injection. I was expecting a + result after reading forum posts about high B12 causing false positive IFAB. I'm so confused, I have anti
Why does Intrinsic factor test result change? Does anybody know what makes the abs come and go? I had negative then + result then negative again the day after B12 injection. I was expecting a + result after reading forum posts about high B12 causing false positive IFAB. I'm so confused, I have anti
Aumshantii
in
Pernicious Anaemia Society
2 years ago
Active VitaminB12 test ( Ā£38.99) Active B12 test plus folate and Intrinsic Factor Antibodies Ā£69.99
Just noticed above tests available through www.onlinedoctor.superdrug.com.
Just noticed above tests available through www.onlinedoctor.superdrug.com.
wedgewood
in
Pernicious Anaemia Society
2 years ago
News letter
It seems The Pernicious Anaemua Society are doing a survey. Great I was keen to help. Only if you've got a diagnosis it seems I read on. I rang the helpline for the first tine in over 3 years of being a member to clarify this. I had an answerphone and was called back a few hours later. I explained
It seems The Pernicious Anaemua Society are doing a survey. Great I was keen to help. Only if you've got a diagnosis it seems I read on. I rang the helpline for the first tine in over 3 years of being a member to clarify this. I had an answerphone and was called back a few hours later. I explained
Nackapan
in
Pernicious Anaemia Society
2 years ago
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