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PMR
I was diagnosed with PMR 3 years ago by GP. Blood test did not show PMR.I was Prescribed 15mg of Prednisilone and the pains in my shoulders and thighs disappeared. After 2 years my Blood pressure rose to 200/96 and was told to cut down the steroids gradually to zero. The pains returned. Rhematologist
I was diagnosed with PMR 3 years ago by GP. Blood test did not show PMR.I was Prescribed 15mg of Prednisilone and the pains in my shoulders and thighs disappeared. After 2 years my Blood pressure rose to 200/96 and was told to cut down the steroids gradually to zero. The pains returned. Rhematologist
sailboatstewart
in
PMRGCAuk
4 years ago
Update need my knowledgeable friends advice again 🙄
Hello well I've not posted for a while as I've been having blood tests and ferritin level tests for my RLS. Well on my first blood test gp forgot to test for the ferritin level. But gave me ferrous sulphate tablets 200mg 1 a day which gave me severe constipation (is this the same as iron?) and I put
Hello well I've not posted for a while as I've been having blood tests and ferritin level tests for my RLS. Well on my first blood test gp forgot to test for the ferritin level. But gave me ferrous sulphate tablets 200mg 1 a day which gave me severe constipation (is this the same as iron?) and I put
Netball-50
in
Restless Legs Syndrome
4 years ago
Co codamol and Afib
You’ve guessed it....can I take Co-codamol with Afib? I’m on Bisoprolol.
You’ve guessed it....can I take Co-codamol with Afib? I’m on Bisoprolol.
Julia7
in
AF Association
4 years ago
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Introduction - Brain Abscess
Hi, Just joined the community after my wife found it useful while I was going through treatment for a brain abscess. I have had a nose about and thought I would share a fairly succinct (spoiler, it was meant to be but hasn’t transpired that way) version of my story; in case it offers any assistance to
Hi, Just joined the community after my wife found it useful while I was going through treatment for a brain abscess. I have had a nose about and thought I would share a fairly succinct (spoiler, it was meant to be but hasn’t transpired that way) version of my story; in case it offers any assistance to
m4tthall
in
Headway
4 years ago
Starting Acalabrutinib
Due to start Acalabrutinib on Friday. Has anyone any advice as to whether to take it with food or away from food? Also, there are other drugs that I'm supposed to take too - Aciclovir, Allopurinol, Co-TrimOxazole. What puzzles me is, if there are any side-effects, how to the docs know which drug is
Due to start Acalabrutinib on Friday. Has anyone any advice as to whether to take it with food or away from food? Also, there are other drugs that I'm supposed to take too - Aciclovir, Allopurinol, Co-TrimOxazole. What puzzles me is, if there are any side-effects, how to the docs know which drug is
bmredsea
in
Positive Wellbeing During Self-Isolation
4 years ago
Very mild exercises causing exacerbations?
Short Version: Has anyone got exacerbations (from bronchiectasis) after even very mild exercising? (meaning that during the exercise I had no or little breathlessness) (e.g. running for a few minutes or swimming for less than 200 meters) I observe that I had these and wonder if this is common. I feel
Short Version: Has anyone got exacerbations (from bronchiectasis) after even very mild exercising? (meaning that during the exercise I had no or little breathlessness) (e.g. running for a few minutes or swimming for less than 200 meters) I observe that I had these and wonder if this is common. I feel
HMBS
in
Bronchiectasis Support
4 years ago
What’s the reason for my pains?
New pains doc doesn’t think the PA causes and just says it must fibromyalgia I just don’t know Pain in hands in morning hurt to clench them, pain under soles of feet when get up struggle to walk, painful knees, pain on right in lower back/hip area any ideas please just tried two co codamol today Tracey
New pains doc doesn’t think the PA causes and just says it must fibromyalgia I just don’t know Pain in hands in morning hurt to clench them, pain under soles of feet when get up struggle to walk, painful knees, pain on right in lower back/hip area any ideas please just tried two co codamol today Tracey
Trace-67
in
Pernicious Anaemia Society
4 years ago
WEATHER IS CAUSING HAVOC TO BODY
Flippin weather. When the humidity started last week I could give Popeye a run for his money . Swelling more manageable but... yesterday with all the storms I became stiffer and this morning every joint and ligament is stiff and painful had to take co-codamol just to get out of bed. I can’t take any
Flippin weather. When the humidity started last week I could give Popeye a run for his money . Swelling more manageable but... yesterday with all the storms I became stiffer and this morning every joint and ligament is stiff and painful had to take co-codamol just to get out of bed. I can’t take any
Hidden
in
NRAS
4 years ago
GP Ignoring Me
I'm female mid 50s. I found out I had wildly fluctuating BP over 24 hours, a brain aneurysm, autoimmune thyroid disease, low Vit D (less than 20, UK measurements), raised parathyroid levels - all last year. I lost my 1st baby at week 17 due to placental abruption, 'severe' pre-eclampsia 2nd pregnancy
I'm female mid 50s. I found out I had wildly fluctuating BP over 24 hours, a brain aneurysm, autoimmune thyroid disease, low Vit D (less than 20, UK measurements), raised parathyroid levels - all last year. I lost my 1st baby at week 17 due to placental abruption, 'severe' pre-eclampsia 2nd pregnancy
RabbitMum_1965
in
Hughes Syndrome APS Forum
4 years ago
Can't honestly cope with the brokenness of me, completely and utterly at the end of my rope
Hi everyone, I have just joined this community. I have had M.E for 10 years now, and along with that comes the depression of having this debilitating illness steal my life, but these last three weeks have been just unbearable. I am so used to living with pain, and have also been suffering with PTSD
Hi everyone, I have just joined this community. I have had M.E for 10 years now, and along with that comes the depression of having this debilitating illness steal my life, but these last three weeks have been just unbearable. I am so used to living with pain, and have also been suffering with PTSD
Brandy4
in
Foggy's "Invisible Illness" Support
4 years ago
Pain a 1 year after surgery?
So I had my laparoscopic surgery to clear cysts for my stage 2/3 endometriosis. I had the mirena coil put in but I am still having to take co-codamol for prolonged and tiring pain in my pelvis and hips which makes the tops up r my legs ache. Anyone know if it’s worth going back to the gyne or if it’s
So I had my laparoscopic surgery to clear cysts for my stage 2/3 endometriosis. I had the mirena coil put in but I am still having to take co-codamol for prolonged and tiring pain in my pelvis and hips which makes the tops up r my legs ache. Anyone know if it’s worth going back to the gyne or if it’s
Runner365
in
Endometriosis UK
4 years ago
Removal of Opiod painkillersong term.
I was on Co-codamol for years for various conditions the main one being Tratatoric Bursitis. I was blantently told on collection of my prescription one day by "note" that i need to talk to my GP about long-term use. I made an appointment went to see my GP and in about a 10min consultation she asked me
I was on Co-codamol for years for various conditions the main one being Tratatoric Bursitis. I was blantently told on collection of my prescription one day by "note" that i need to talk to my GP about long-term use. I made an appointment went to see my GP and in about a 10min consultation she asked me
Ventorist11
in
Action on Pain
4 years ago
30+ years of worsening dysmenorrhea
Hi, I'm going to apologise in advance for the long one, but I guess I want to vent and see if anybody has experienced the same symptoms but had different treatment offered, or even a diagnosis? I half wonder if it's adenomyosis but until now just think it's "one of those things". What are my rights as
Hi, I'm going to apologise in advance for the long one, but I guess I want to vent and see if anybody has experienced the same symptoms but had different treatment offered, or even a diagnosis? I half wonder if it's adenomyosis but until now just think it's "one of those things". What are my rights as
Farleygirl
in
Pelvic Pain Support Network
4 years ago
My blood pressure varies enormously during the day, but nearly always in the normal zone of 120/80 to 90/60 is this anything to worry about?
My heart failure nurse has loaned me a blood pressure monitor so I can take my own blood pressure. I have been experiencing dizzy spells. I also have rheumatoid arthritis, this has flared up really badly during lockdown and I've not been able to access timely treatment. I've been in terrible pain
My heart failure nurse has loaned me a blood pressure monitor so I can take my own blood pressure. I have been experiencing dizzy spells. I also have rheumatoid arthritis, this has flared up really badly during lockdown and I've not been able to access timely treatment. I've been in terrible pain
GracieOS
in
British Heart Foundation
4 years ago
Back pain
Hi I have back pain long time ago 5 to 6 year I'm taken I take co codamol and not help me after one hour pain is back and chest pain same im waiting to reopen hospital again I cant sleep sametimes
Hi I have back pain long time ago 5 to 6 year I'm taken I take co codamol and not help me after one hour pain is back and chest pain same im waiting to reopen hospital again I cant sleep sametimes
Alios671
in
Pain Concern
4 years ago
Arm/wrist
I've got an apt 8the june with a rheumatologist. I've got a positive ana, raised esr, high rheumatoid factor and positive ccp. I'm petrified this pain is something like cancer. My right wrist started hurting and then left 2 lumps. Now I don't know if it's the lumps that are hurting or my actual wrist
I've got an apt 8the june with a rheumatologist. I've got a positive ana, raised esr, high rheumatoid factor and positive ccp. I'm petrified this pain is something like cancer. My right wrist started hurting and then left 2 lumps. Now I don't know if it's the lumps that are hurting or my actual wrist
Zipster369
in
NRAS
4 years ago
Mirapexin Prolonged-Release
I am back on the DA's. I have now been on Prolonged-Release Mirapexin (0.26mg) since 1st April and have been more or less RLS-free ever since! I hardly dare to say it. Before that I was on 1200 mg Gabapentin which did not work very well as I had to complement with Co-Dydramol every night. And before
I am back on the DA's. I have now been on Prolonged-Release Mirapexin (0.26mg) since 1st April and have been more or less RLS-free ever since! I hardly dare to say it. Before that I was on 1200 mg Gabapentin which did not work very well as I had to complement with Co-Dydramol every night. And before
Felicity21
in
Restless Legs Syndrome
4 years ago
Pain relief
I am currently taking oramorph (4 x 5ml daily) i have tried other painkillers such as naproxen, codene, co-codamol etc but they don’t come close to touching my pain. I have been taking oramorph on and off for the last 5 years. I don’t want to continue taking it but i cannot manage my pain without it.
I am currently taking oramorph (4 x 5ml daily) i have tried other painkillers such as naproxen, codene, co-codamol etc but they don’t come close to touching my pain. I have been taking oramorph on and off for the last 5 years. I don’t want to continue taking it but i cannot manage my pain without it.
DAML8
in
Endometriosis UK
4 years ago
Chest pain and neck and throut
Hi I have another problem trouth pain and neck every night I m never seen in my life like this one no coughing no fever no headaches just neck trouth chest pain I call my doctor he give me co codamol 30/500mg capsules is not helping
Hi I have another problem trouth pain and neck every night I m never seen in my life like this one no coughing no fever no headaches just neck trouth chest pain I call my doctor he give me co codamol 30/500mg capsules is not helping
Alios67
in
Pain Concern
4 years ago
Pain relief medication for cronic lower back pain, and Sciatica.
Have been diagnosed with Churg Strauss Syndrome, but also suffer with cronic lower back pain and Sciatica. Currently taking the maximum Co-Codamol of 40 tablets a week to little effect for my back pain. Rang to speak to my GP today, but was told to ring back in a week, when he is back of his hols. Can
Have been diagnosed with Churg Strauss Syndrome, but also suffer with cronic lower back pain and Sciatica. Currently taking the maximum Co-Codamol of 40 tablets a week to little effect for my back pain. Rang to speak to my GP today, but was told to ring back in a week, when he is back of his hols. Can
Ruskie
in
Pain Concern
4 years ago
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