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Update 7.5
I completed the series of cardiac tests. The results all look good. Calcium Cardiac Score = 0 (no buildup) Echocardiogram = No issues. Ejection fraction =72% (high functioning). Cardiac Stress Test = No issues. Rare Premature Ventricular Contractions noted. Heart monitor = Several incidents
I completed the series of cardiac tests. The results all look good. Calcium Cardiac Score = 0 (no buildup) Echocardiogram = No issues. Ejection fraction =72% (high functioning). Cardiac Stress Test = No issues. Rare Premature Ventricular Contractions noted. Heart monitor = Several incidents
hunter5582
in
MPN Voice
1 year ago
A Flood of Emotions
It’s getting harder to stay afloat. I can’t stop my mind from racing and going to the worse case scenario. I can feel another shut down coming on. And I don’t think I can make it through that again. It’s been almost 3 years since I’ve felt like this. I have to tell myself to breathe. The sleepless nights
It’s getting harder to stay afloat. I can’t stop my mind from racing and going to the worse case scenario. I can feel another shut down coming on. And I don’t think I can make it through that again. It’s been almost 3 years since I’ve felt like this. I have to tell myself to breathe. The sleepless nights
Sloth23
in
Anxiety and Depression Support
1 year ago
Returning to ‘normal’…
Hello, I am recovering from PP following the birth of my daughter last May. I have been surfing the highs and lows and came off medication late January. Soon I will be discharged to my GP and plan to return to work in May. Although everything has followed as smooth a path as possible I am struggling
Hello, I am recovering from PP following the birth of my daughter last May. I have been surfing the highs and lows and came off medication late January. Soon I will be discharged to my GP and plan to return to work in May. Although everything has followed as smooth a path as possible I am struggling
Olanzapinelenny
in
Action on Postpartum Psychosis
1 year ago
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Food for thought
So...I have been on high dose prednisone for almost 6 months, along with my 4th shot of Actemra..for PMR and GCA....I started at 60 mg pred., and have been on 35 mg for the last two weeks. Next week I start on 30 mg. So, today I decided to forgo my veggie breakfast and go out with my spouse to a restaurant
So...I have been on high dose prednisone for almost 6 months, along with my 4th shot of Actemra..for PMR and GCA....I started at 60 mg pred., and have been on 35 mg for the last two weeks. Next week I start on 30 mg. So, today I decided to forgo my veggie breakfast and go out with my spouse to a restaurant
Joseph14612
in
PMRGCAuk
2 years ago
Off topic!
Hi guys, I am sat here as going to work in half a hour and it's all got too much for me! Jim's cancer, work, lack of support! Just rang Samaritan and not answering, Macmillan closed. So as I just want to talk I thought of you all. It all seems rather overwhelmeding with this support and fitting work
Hi guys, I am sat here as going to work in half a hour and it's all got too much for me! Jim's cancer, work, lack of support! Just rang Samaritan and not answering, Macmillan closed. So as I just want to talk I thought of you all. It all seems rather overwhelmeding with this support and fitting work
Carolsos
in
NRAS
1 year ago
Finding who you are
So I finally have to admit I am a middle age woman, I am 42 and that is hard for me to say (write) I do not feel 42 in my soul I still feel 22. Ive been married for 13 years and we have to boys 10 and 12 and we both have full time jobs, and we own a farm. It's a very busy lifestyle along with the hobbies
So I finally have to admit I am a middle age woman, I am 42 and that is hard for me to say (write) I do not feel 42 in my soul I still feel 22. Ive been married for 13 years and we have to boys 10 and 12 and we both have full time jobs, and we own a farm. It's a very busy lifestyle along with the hobbies
Boymom1809
in
Above & Beyond
1 year ago
Time for Hospice
It's been 6 months since the CAR-T clinical trial at Mass General. At my most recent appointment there, I was told that the FDA shut down P-PSMA-101, and that I was the last patient enrolled. During trial, psa increased from 0.9 to 2.1 In December, I started having double-vision. It started side-by-side
It's been 6 months since the CAR-T clinical trial at Mass General. At my most recent appointment there, I was told that the FDA shut down P-PSMA-101, and that I was the last patient enrolled. During trial, psa increased from 0.9 to 2.1 In December, I started having double-vision. It started side-by-side
TonyS58
in
Advanced Prostate Cancer
1 year ago
Surgery
I an soon to have cataract surgery and because of arthritis problems I am having a General, but I am worried about this because of my AF. I am on warfarin and have been for several. Does anyone know how long I will need to be asleep, thank you.
I an soon to have cataract surgery and because of arthritis problems I am having a General, but I am worried about this because of my AF. I am on warfarin and have been for several. Does anyone know how long I will need to be asleep, thank you.
nemisis2
in
AF Association
2 years ago
Eye problems
Hello everyone, I had a brain hemorrhage September 2021. I have been home about a year. Does anyone else have eye problems since brain injury. In my case the sight has changed alot. I had horizontal double vision before the bleed and by having prisms in my glasses my sight was fine. However after the
Hello everyone, I had a brain hemorrhage September 2021. I have been home about a year. Does anyone else have eye problems since brain injury. In my case the sight has changed alot. I had horizontal double vision before the bleed and by having prisms in my glasses my sight was fine. However after the
Notts22
in
Headway
2 years ago
Re Hydroxy & referral to eye dept, Great News!
Went for appt this morning & the great news is I,m ok to keep taking hydroxy!! What a relief as I,m doing fine on it right now :) He said there is some deposits somewhere (I was on my own in the testing room so didnt take it all in) but it,s not caused by the drug so I,m ok to continue with it & I,m
Went for appt this morning & the great news is I,m ok to keep taking hydroxy!! What a relief as I,m doing fine on it right now :) He said there is some deposits somewhere (I was on my own in the testing room so didnt take it all in) but it,s not caused by the drug so I,m ok to continue with it & I,m
Chrt
in
NRAS
2 years ago
Patient Empowerment Network New CLL Content March 2023
Dr. Michael Choi explains CLL patient trial opportunities and provides key questions to ask about clinical trial participation View Now >> https://powerfulpatients.org/2022/12/07/hesitant-to-participate-in-a-cll-clinical-trial-what-you-should-know/ - Developing CLL Research and Treatment News
Dr. Michael Choi explains CLL patient trial opportunities and provides key questions to ask about clinical trial participation View Now >> https://powerfulpatients.org/2022/12/07/hesitant-to-participate-in-a-cll-clinical-trial-what-you-should-know/ - Developing CLL Research and Treatment News
lankisterguy
Volunteer
in
CLL Support
1 year ago
psmaAddition trial
is this new clinical trial looking to see how adding pluvicto to SOC works for naive hormone sensitive metastatic or metastatic castrate resistant patients? If you showed some psma avid tumor growth on a psma pet scan, when is optimal time to use this newer treatment, assuming you can get Pluvicto
is this new clinical trial looking to see how adding pluvicto to SOC works for naive hormone sensitive metastatic or metastatic castrate resistant patients? If you showed some psma avid tumor growth on a psma pet scan, when is optimal time to use this newer treatment, assuming you can get Pluvicto
fmenninger
in
Advanced Prostate Cancer
1 year ago
Patients with persistent tremor sought for suvecaltamide trial
Parkinson’s disease patients with inadequately controlled tremors are being sought for a Phase 2 clinical trial of suvecaltamide, an oral treatment candidate from Jazz Pharmaceuticals. https://parkinsonsnewstoday.com/news/parkinsons-patients-with-persistent-tremor-sought-phase-2-trial/
Parkinson’s disease patients with inadequately controlled tremors are being sought for a Phase 2 clinical trial of suvecaltamide, an oral treatment candidate from Jazz Pharmaceuticals. https://parkinsonsnewstoday.com/news/parkinsons-patients-with-persistent-tremor-sought-phase-2-trial/
Farooqji
in
Cure Parkinson's
1 year ago
Triplet Therapy Failed. Now what?
I've posted about my father here before - you can check my post history for my older posts. To keep it brief: 60 years old, diagnosed with metastatic prostate cancer in June of last year (at 59). Doctor started with hormonal treatment while waiting for him to regain some strength, added Abiraterone (
I've posted about my father here before - you can check my post history for my older posts. To keep it brief: 60 years old, diagnosed with metastatic prostate cancer in June of last year (at 59). Doctor started with hormonal treatment while waiting for him to regain some strength, added Abiraterone (
Worriedson9
in
Advanced Prostate Cancer
1 year ago
New articles from the NIH
New from the NIH 1. The efficacy and adverse events of conventional and second-generation androgen receptor inhibitors for castration-resistant prostate cancer: A network meta-analysis. Zhang X, Zhang G, Wang J, Bi J. Front Endocrinol (Lausanne). 2023 Feb 10;14:1131033. doi: 10.3389/fendo.2023.1131033
New from the NIH 1. The efficacy and adverse events of conventional and second-generation androgen receptor inhibitors for castration-resistant prostate cancer: A network meta-analysis. Zhang X, Zhang G, Wang J, Bi J. Front Endocrinol (Lausanne). 2023 Feb 10;14:1131033. doi: 10.3389/fendo.2023.1131033
Magnus1964
in
Prostate Cancer Network
1 year ago
New NIH articles on prostate cancer
New from the NIH 1. The efficacy and adverse events of conventional and second-generation androgen receptor inhibitors for castration-resistant prostate cancer: A network meta-analysis. Zhang X, Zhang G, Wang J, Bi J. Front Endocrinol (Lausanne). 2023 Feb 10;14:1131033. doi: 10.3389/fendo.2023.1131033
New from the NIH 1. The efficacy and adverse events of conventional and second-generation androgen receptor inhibitors for castration-resistant prostate cancer: A network meta-analysis. Zhang X, Zhang G, Wang J, Bi J. Front Endocrinol (Lausanne). 2023 Feb 10;14:1131033. doi: 10.3389/fendo.2023.1131033
Magnus1964
in
Advanced Prostate Cancer
1 year ago
📣 TAKE PART 📣 Are you a patient that has participated in a DCT or Hybrid Clinical Trial?
Are you a patient that has participated in a DCT or Hybrid Clinical Trial? These are trials with at-home elements, such as at-home monitoring, telemedicine visits, or home health visits. If so, we would love to speak with you! Please email: recruitment@healthivibe.com
Are you a patient that has participated in a DCT or Hybrid Clinical Trial? These are trials with at-home elements, such as at-home monitoring, telemedicine visits, or home health visits. If so, we would love to speak with you! Please email: recruitment@healthivibe.com
AnnaHU
HealthUnlocked
in
Research Opportunities
1 year ago
Cataract/I-stent post op blurriness
Hello all, I had cataract/I-stent surgery on my right eye November 22nd and it went great. Vision greatly improved and was clear within a few days. I then had the same thing on my left eye on December 13th and my vision has been cloudy/foggy sense then. My doctor says it could take up to 2 - 3 weeks
Hello all, I had cataract/I-stent surgery on my right eye November 22nd and it went great. Vision greatly improved and was clear within a few days. I then had the same thing on my left eye on December 13th and my vision has been cloudy/foggy sense then. My doctor says it could take up to 2 - 3 weeks
designguy
in
Glaucoma UK
2 years ago
struggling with agitation, dep, anxiety, panic, nervous breakdown, can’t work
is there anyone that has been in this boat?
is there anyone that has been in this boat?
Janestiuvgmailcom1
in
Anxiety and Depression Support
1 year ago
EVUSHELD PHASE II. A unique opportunity
I have recently attended Clatterbridge Hospital in Liverpool to participate in the latest Evusheld trial. The trial will take one year to complete and will require further visits throughout that time. Evusheld does not depend on a healthy immune system to generate protective immunity. And while approved
I have recently attended Clatterbridge Hospital in Liverpool to participate in the latest Evusheld trial. The trial will take one year to complete and will require further visits throughout that time. Evusheld does not depend on a healthy immune system to generate protective immunity. And while approved
BooBoo39
Volunteer
in
Vasculitis UK
1 year ago
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