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Clinical trial for Mesothelioma patients
This is a stage 1 trial for patients who have Mesothelioma with a pleural effusion. If interested the contact details are below. The trial is an option for mesothelioma patients who have failed first-line treatment and have an IPC. MITOPE is available at Guy's Hospital, University of Leicester,
This is a stage 1 trial for patients who have Mesothelioma with a pleural effusion. If interested the contact details are below. The trial is an option for mesothelioma patients who have failed first-line treatment and have an IPC. MITOPE is available at Guy's Hospital, University of Leicester,
RoyCastleHelpline
Roy Castle
in
The Roy Castle Lung Cancer Foundation
1 year ago
Intramuscular Depo Injection resulting in Flare From Hell 3 days later…..
…..anyone else? Excruciating pain from actual injection site after 3 days accompanied by worse flare I’ve ever had. Maybe tomorrow will be better? PS…first couple of days my awful spinal pain lessened, also inflammation in hands. This is just completely debilitating…..and after so many many months
…..anyone else? Excruciating pain from actual injection site after 3 days accompanied by worse flare I’ve ever had. Maybe tomorrow will be better? PS…first couple of days my awful spinal pain lessened, also inflammation in hands. This is just completely debilitating…..and after so many many months
CallMeSunny
in
NRAS
1 year ago
Lupkynis helps protect kidneys with lupus nephritis and high proteinuria
Lupkynis helps protect kidneys with lupus nephritis and high proteinuria
Pooled trial data favor use with background therapy for at-risk patients
by Lindsey Shapiro | June 12, 2023 Lupkynis (voclosporin) combined with background lupus treatments better preserved kidney function among
Lupkynis helps protect kidneys with lupus nephritis and high proteinuria
Pooled trial data favor use with background therapy for at-risk patients
by Lindsey Shapiro | June 12, 2023 Lupkynis (voclosporin) combined with background lupus treatments better preserved kidney function among
lupus-support1
Administrator
in
LUpus Patients Understanding and Support
1 year ago
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Posterior vitreous detachment
Yesterday feeling great for the first time in ages. Did yoga with no impact on shoulders and then a bit of weeding. Then in the evening I noticed quite a prominent floater. It was still here this morning and joined by a cloud of tiny floaters that were hardly visible. It felt wrong so I got an emergency
Yesterday feeling great for the first time in ages. Did yoga with no impact on shoulders and then a bit of weeding. Then in the evening I noticed quite a prominent floater. It was still here this morning and joined by a cloud of tiny floaters that were hardly visible. It felt wrong so I got an emergency
Viveka
in
PMRGCAuk
1 year ago
Will I be offered surgery?
Hi All, I have HGSOC stage 1V and when I was diagnosed just over two years ago my abdominal tumour was 15cm x 11cm with a side mass of 4cm. I had spread to the lymph nodes in my neck and chest which have now gone. After two years of chemo the tumours had reduced but are now back to square one. I was
Hi All, I have HGSOC stage 1V and when I was diagnosed just over two years ago my abdominal tumour was 15cm x 11cm with a side mass of 4cm. I had spread to the lymph nodes in my neck and chest which have now gone. After two years of chemo the tumours had reduced but are now back to square one. I was
Guilane
in
My Ovacome
1 year ago
Calquence / acalabrutinib and Brukinsa / zanubrutinib Adverse Event Comparison for Chronic Lymphocytic Leukaemia / CLL from clinical trials
Now that we have a growing choice of BTK inhibitor treatment options, naturally the question is which one is better? Based on this meta-analysis study of the incidence of 84 Adverse Events (AEs) reported in 61 clinical trials involving nearly 7,000 patients, that question should be better framed as
Now that we have a growing choice of BTK inhibitor treatment options, naturally the question is which one is better? Based on this meta-analysis study of the incidence of 84 Adverse Events (AEs) reported in 61 clinical trials involving nearly 7,000 patients, that question should be better framed as
AussieNeil
Partner
in
CLL Support
1 year ago
Finally diagnosed + Fluoxetine help
Today I finally went to a psychiatrist and got formally diagnosed with dysthymia. Not sure how to feel about it. On one hand, it sucks having this but in the other, now I know it is something else and not just me being dramatic and exagerating my feelings. Anyways, they gaved me Fluoxetine for 1 month
Today I finally went to a psychiatrist and got formally diagnosed with dysthymia. Not sure how to feel about it. On one hand, it sucks having this but in the other, now I know it is something else and not just me being dramatic and exagerating my feelings. Anyways, they gaved me Fluoxetine for 1 month
LynnSalv
in
Anxiety and Depression Support
1 year ago
This looks interesting :) I know people with PTSD who have benefited from EMDR ...
... so hope it will be beneficial to p/w FND too :) https://doi.org/10.1136/bmjopen-2023-073727
... so hope it will be beneficial to p/w FND too :) https://doi.org/10.1136/bmjopen-2023-073727
210272
in
Functional Neurological Disorder - FND Hope
1 year ago
BIOMARKER TESTING
My wife has extensive small cell lung cancer (SCLC-E) and has undergone chemotherapy, immunotherapy and radiotherapy. Her lung tumor is currently stable and I want to get options if her current immunotherapy (atezolizumab every three weeks) becomes ineffective. There are several chemotherapy options
My wife has extensive small cell lung cancer (SCLC-E) and has undergone chemotherapy, immunotherapy and radiotherapy. Her lung tumor is currently stable and I want to get options if her current immunotherapy (atezolizumab every three weeks) becomes ineffective. There are several chemotherapy options
Info911
in
The Roy Castle Lung Cancer Foundation
1 year ago
itchy eyes
Hi, I have itchy eyes on and off and wondered if it was to do with my thyroid or maybe an allergy. Any help would be much appreciated.
Hi, I have itchy eyes on and off and wondered if it was to do with my thyroid or maybe an allergy. Any help would be much appreciated.
suetatt68
in
Thyroid UK
1 year ago
So tired of it
I have a history of depression accompanied by anxiety. Had my first episode at 17. My mom who was in her late nineties passed away end of December. Her health began deteriorating last August and it was just a brutal 3 months before she died. I went into a depression in October which lasted about
I have a history of depression accompanied by anxiety. Had my first episode at 17. My mom who was in her late nineties passed away end of December. Her health began deteriorating last August and it was just a brutal 3 months before she died. I went into a depression in October which lasted about
Ryleyboy
in
Anxiety and Depression Support
1 year ago
GCA Flareup
I hope someone can help me, as I feel like I've been thrown to the wolves and I don't know what to do. I am having a major flare up of PMR and GCA, I have blurred vision and head pains every day for the past 2 weeks but have been feeling awful since February. My body is so sore, plus Iam so tired all
I hope someone can help me, as I feel like I've been thrown to the wolves and I don't know what to do. I am having a major flare up of PMR and GCA, I have blurred vision and head pains every day for the past 2 weeks but have been feeling awful since February. My body is so sore, plus Iam so tired all
Sally001
in
PMRGCAuk
1 year ago
Glaucoma, prednisolone and anxiety supplements
Good morning all I am being treated for GCA and at the moment I’m on 20mg of of prednisilone, I am coping ok and trying to stay as healthy as possible, I already have glaucoma and sadly the steroids have pushed my eye pressure up, I saw my eye consultant yesterday, he is quite concerned, the operation
Good morning all I am being treated for GCA and at the moment I’m on 20mg of of prednisilone, I am coping ok and trying to stay as healthy as possible, I already have glaucoma and sadly the steroids have pushed my eye pressure up, I saw my eye consultant yesterday, he is quite concerned, the operation
Mumdadlove
in
PMRGCAuk
1 year ago
Has anyone had orbital decompression for graves eye disease?
Hi I have Graves eye disease and I am considering orbital decompression. I also have Graves. Will it leave scars? Will it cause numbness due to nerve damage on my face? I am told this is likely. I would like to hear from anyone who has had this surgery. Do you recommend? Thanks
Hi I have Graves eye disease and I am considering orbital decompression. I also have Graves. Will it leave scars? Will it cause numbness due to nerve damage on my face? I am told this is likely. I would like to hear from anyone who has had this surgery. Do you recommend? Thanks
Naples21
in
Thyroid UK
1 year ago
House Hunting with Depression
I thought I was doing well. I thought I would be stepping down off meds. I KNEW moving to a whole new state (and town I’ve never been to) would be rough but the constant house hunting while trying to stay realistic and calm is maddening. My kids are depending on me to stay positive, my husband (who is
I thought I was doing well. I thought I would be stepping down off meds. I KNEW moving to a whole new state (and town I’ve never been to) would be rough but the constant house hunting while trying to stay realistic and calm is maddening. My kids are depending on me to stay positive, my husband (who is
Willow2022
in
Anxiety and Depression Support
1 year ago
The 2023 update of "Parkinson’s Disease Drug Therapies in the Clinical Trial Pipeline" is now available.
For those unfamiliar with this annual report, a good place to start might be Fig. 2 in the RESULTS section (a colour-coded diagram). https://content.iospress.com/articles/journal-of-parkinsons-disease/jpd239901
For those unfamiliar with this annual report, a good place to start might be Fig. 2 in the RESULTS section (a colour-coded diagram). https://content.iospress.com/articles/journal-of-parkinsons-disease/jpd239901
jeffreyn
in
Cure Parkinson's
1 year ago
Short synathecen test
Hi i have m.e cfs used to be severe was in wheelchair and bedridden now able to walk doctor wants to synathecyn test because i have symptoms of congenital adrenal hyperplasia im scared of a relapse in the m.e and was wondering if there alternative blood test anyone with cfs have this test and what was
Hi i have m.e cfs used to be severe was in wheelchair and bedridden now able to walk doctor wants to synathecyn test because i have symptoms of congenital adrenal hyperplasia im scared of a relapse in the m.e and was wondering if there alternative blood test anyone with cfs have this test and what was
Ester467
in
Thyroid UK
1 year ago
exhausted from anxiety
so the last few mornings I have woken up to feelings of crippling anxiety actually making me feel like I’m going to be sick and then the uncontrollable tears which are lasting on and off all day. I’ve decided to increase gradually my anti depressants I feel like such a failure. Over the last year I managed
so the last few mornings I have woken up to feelings of crippling anxiety actually making me feel like I’m going to be sick and then the uncontrollable tears which are lasting on and off all day. I’ve decided to increase gradually my anti depressants I feel like such a failure. Over the last year I managed
Junkjournal1
in
Anxiety and Depression Support
1 year ago
Where do I go from here?
Hi lovely ladies. Ok, so, diagnosed April 2021 Stage 1V HGSOC with spread to lymph nodes in neck and chest. No option of surgery because of spread. 6 rounds of Paclitaxel/Carboplatin. Reduction in tumour. Straight on to Avastin plus Olaparib (HRD negative). No more cancer in lymph nodes but slight progression
Hi lovely ladies. Ok, so, diagnosed April 2021 Stage 1V HGSOC with spread to lymph nodes in neck and chest. No option of surgery because of spread. 6 rounds of Paclitaxel/Carboplatin. Reduction in tumour. Straight on to Avastin plus Olaparib (HRD negative). No more cancer in lymph nodes but slight progression
Guilane
in
My Ovacome
1 year ago
Collagen
Hello all. I've been puzzled by one question for a while already... When looking to buy face cream for example I keep stumbling across wrinkle-reducing skin care products which promise great results through the use of added collagen. Having scleroderma, which is essentially an overproduction of collagen
Hello all. I've been puzzled by one question for a while already... When looking to buy face cream for example I keep stumbling across wrinkle-reducing skin care products which promise great results through the use of added collagen. Having scleroderma, which is essentially an overproduction of collagen
hunkyd0ry
in
Scleroderma & Raynaud's UK (SRUK)
1 year ago
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