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Pegasys --> Besremi and HCT
Hi, What a great forum - thanks to you all for contributing. I'm a 37 year old male - diagnosed with PV 3 years ago. I recently made the jump from Pegasys to Besremi. I was on 135ug every 9 days without need of supporting venesection (at least for the last 8 months or so). Since switching medication
Hi, What a great forum - thanks to you all for contributing. I'm a 37 year old male - diagnosed with PV 3 years ago. I recently made the jump from Pegasys to Besremi. I was on 135ug every 9 days without need of supporting venesection (at least for the last 8 months or so). Since switching medication
Swede99
in
MPN Voice
11 months ago
Stemregen in clinical trial
There is a clinical trial in Spain researching the efficace of Stemregen natural caps in PD. https://clinicaltrials.gov/study/NCT05699694 Has anyone tried Stemregen caps? https://www.stemregen.co/
There is a clinical trial in Spain researching the efficace of Stemregen natural caps in PD. https://clinicaltrials.gov/study/NCT05699694 Has anyone tried Stemregen caps? https://www.stemregen.co/
michelagvolpe
in
Cure Parkinson's
6 months ago
Failure?
I walk around and hear people talk about their great careers, happy and successful kids, IRAs and great retirement plans, great investments etc etc......and I feel like crap. I feel like a failure. I'm 50 years old and have accomplished little in my life. I have had a few failed businesses, limited
I walk around and hear people talk about their great careers, happy and successful kids, IRAs and great retirement plans, great investments etc etc......and I feel like crap. I feel like a failure. I'm 50 years old and have accomplished little in my life. I have had a few failed businesses, limited
Loadedpotato
in
Anxiety and Depression Support
6 months ago
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Longtime glaucoma patient
Hi. I just wanted to say that my experience with Glaucoma has been over many, many years. I’ve been very fortunate to have had treatment, isoptocarpine which was horrible. I have Myopia and these drops made it almost impossible to see for any length of time. They were to reduce the eye pressure quickly
Hi. I just wanted to say that my experience with Glaucoma has been over many, many years. I’ve been very fortunate to have had treatment, isoptocarpine which was horrible. I have Myopia and these drops made it almost impossible to see for any length of time. They were to reduce the eye pressure quickly
Dougalldoo
in
Glaucoma UK
11 months ago
feeling utterly alone
i’m at 35 year-old female, who is suffered from anxiety and depression in the majority of their life, and I have no friends and no one to talk to. I’ve been incredibly isolated because I haven’t worked for a year due to health issues. Just looking for someone anyone to talk to. this feeling of being
i’m at 35 year-old female, who is suffered from anxiety and depression in the majority of their life, and I have no friends and no one to talk to. I’ve been incredibly isolated because I haven’t worked for a year due to health issues. Just looking for someone anyone to talk to. this feeling of being
CupcakeCait
in
Anxiety and Depression Support
6 months ago
PC no longer castrate resistant
Hello all, my latest pet/ct scan indicates my PC is no longer castrate resistant as there is new disease growth in my lungs. Largest lesion is 2.5 centimeters. I'm no longer taking xtandi, so it can be "washed out" of my system prior to new treatment, however I'm still getting quarterly lupron shots
Hello all, my latest pet/ct scan indicates my PC is no longer castrate resistant as there is new disease growth in my lungs. Largest lesion is 2.5 centimeters. I'm no longer taking xtandi, so it can be "washed out" of my system prior to new treatment, however I'm still getting quarterly lupron shots
brokenyoyo
in
Advanced Prostate Cancer
6 months ago
Expediting phase 3 trials: using rPFS and cPFS as surrogates
"We investigated whether radiographic progression-free survival (rPFS) and clinical PFS (cPFS) are valid surrogates for OS in men with mHSPC and could potentially be used to expedite future phase III clinical trials."...and it seems that they can be used as surrogate! https://ascopubs.org/doi/full/10.1200
"We investigated whether radiographic progression-free survival (rPFS) and clinical PFS (cPFS) are valid surrogates for OS in men with mHSPC and could potentially be used to expedite future phase III clinical trials."...and it seems that they can be used as surrogate! https://ascopubs.org/doi/full/10.1200
Maxone73
in
Advanced Prostate Cancer
6 months ago
Cosopt eye drops
is anyone having trouble getting hold of Cosopt eye drops. These are single use drops which are preservative free. My pharmacist just says to ask consultant for an alternative drop but these are the only ones that lower my pressure slightly and I think I’ve had just about every glaucoma drop that’s available
is anyone having trouble getting hold of Cosopt eye drops. These are single use drops which are preservative free. My pharmacist just says to ask consultant for an alternative drop but these are the only ones that lower my pressure slightly and I think I’ve had just about every glaucoma drop that’s available
Charliecat123
in
Glaucoma UK
1 year ago
blood transfusions
My husband has high risk MF and takes RUX/jackifi which he started last March since his disease has progressed and HU did not work for him any longer. He has had to rely on monthly blood transfusions since last June which normally last him around a month before he needs another transfusion since
My husband has high risk MF and takes RUX/jackifi which he started last March since his disease has progressed and HU did not work for him any longer. He has had to rely on monthly blood transfusions since last June which normally last him around a month before he needs another transfusion since
Bainbridge
in
MPN Voice
7 months ago
about aspirin
in absence of a good amount of clinical trials, we rely on the source reputation https://www.nature.com/articles/s41416-023-02506-5
in absence of a good amount of clinical trials, we rely on the source reputation https://www.nature.com/articles/s41416-023-02506-5
Maxone73
in
Fight Prostate Cancer
7 months ago
AI & Poetry
Over the past year since ChatGPT and large language model AI exploded onto the scene, I've been immersing myself in it, using it, studying, reading, writing and teaching courses on AI & Law to other lawyers and judges. Along the way, it has been interesting to see some of its applications in mental
Over the past year since ChatGPT and large language model AI exploded onto the scene, I've been immersing myself in it, using it, studying, reading, writing and teaching courses on AI & Law to other lawyers and judges. Along the way, it has been interesting to see some of its applications in mental
Gandolfication
in
Anxiety and Depression Support
7 months ago
struggle bus part gazillion
Been a rough few days inside this brain of mine....anxiety at high level...2 staff members got assaulted last monday. 1 has a broken jaw the other has broken ribs....The what if game is doing it's strong dance on my brain. the thinking of everything that is bad can happen will happen keeps the time
Been a rough few days inside this brain of mine....anxiety at high level...2 staff members got assaulted last monday. 1 has a broken jaw the other has broken ribs....The what if game is doing it's strong dance on my brain. the thinking of everything that is bad can happen will happen keeps the time
mizzou7016
in
Anxiety and Depression Support
7 months ago
Coping in the heat
Hi, i have finally got a diagnosis of ET and have started on pegasys, fourth injection this week. It has been warm here the last couple of days and I have found work to be extremely exhausting. Does anyone else suffer in the heat? I work in a lab so need to wear a labcoat. I have asked for an occupational
Hi, i have finally got a diagnosis of ET and have started on pegasys, fourth injection this week. It has been warm here the last couple of days and I have found work to be extremely exhausting. Does anyone else suffer in the heat? I work in a lab so need to wear a labcoat. I have asked for an occupational
Scarlett500
in
MPN Voice
11 months ago
Pattern Glare
Does anyone else get this? It's the proper term ( learnt from pink vision Headway) It's one of the things I now live with . Supermarket syndrome ( cherylclair posted) Part of it too. It has improved but as I'm 'appearing ' more 'normal 'sorts the chaff from the wheat with understanding of how debilitating
Does anyone else get this? It's the proper term ( learnt from pink vision Headway) It's one of the things I now live with . Supermarket syndrome ( cherylclair posted) Part of it too. It has improved but as I'm 'appearing ' more 'normal 'sorts the chaff from the wheat with understanding of how debilitating
Nackapan
in
Pernicious Anaemia Society
11 months ago
What’s after Lu-177 in Vancouver, BC?
Hi there, I’m located in Vancouver, BC 🇨🇦. My dad is on a clinical trial and after over a decade with this disease he has failed Zytiga, Xtandi, docetaxel, and is now on his 4/6 Lu-177 infusion. He’s castration-resistant and metastatic. PSA decreased considerably after the first Lu-177 infusion but
Hi there, I’m located in Vancouver, BC 🇨🇦. My dad is on a clinical trial and after over a decade with this disease he has failed Zytiga, Xtandi, docetaxel, and is now on his 4/6 Lu-177 infusion. He’s castration-resistant and metastatic. PSA decreased considerably after the first Lu-177 infusion but
PHnerd
in
Advanced Prostate Cancer
7 months ago
For a better version
I let go 2023 with everything I could by attending church instead being depressed and crying over something I can’t control anymore and being able to talk what I’m dealing with my anxiety on here has given me support long the way even tho it’s hasn’t been long since I join but the supportive and positive
I let go 2023 with everything I could by attending church instead being depressed and crying over something I can’t control anymore and being able to talk what I’m dealing with my anxiety on here has given me support long the way even tho it’s hasn’t been long since I join but the supportive and positive
Need2beMeAgain23
in
Anxiety and Depression Support
7 months ago
A review of repurposed drugs
Clinical trials which evaluated some repurposed drugs https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10251882/
Clinical trials which evaluated some repurposed drugs https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10251882/
Maxone73
in
Fight Prostate Cancer
7 months ago
Another BAT Clinical Trial
I thought Imight have posted this before but don't see it. https://clinicaltrials.gov/study/NCT04704505?term=mCRPC&cond=prostate%20cancer&aggFilters=status:rec&city=&rank=3
I thought Imight have posted this before but don't see it. https://clinicaltrials.gov/study/NCT04704505?term=mCRPC&cond=prostate%20cancer&aggFilters=status:rec&city=&rank=3
swwags
in
Advanced Prostate Cancer
7 months ago
curious!
Good morning! I am doing so well on prednisone 6mg. I can’t believe the difference after being tapered too quickly and being on only Advil. I have latent TB and have to start a medication for that for 4 months. Apparently, this med will decrease the effects of prednisone! Ugh! Any thoughts?
Good morning! I am doing so well on prednisone 6mg. I can’t believe the difference after being tapered too quickly and being on only Advil. I have latent TB and have to start a medication for that for 4 months. Apparently, this med will decrease the effects of prednisone! Ugh! Any thoughts?
Curry_girl
in
PMRGCAuk
11 months ago
New year Eve
today has made me realize more n more I need to get myself together because I have always put everyone first and let myself deal with everything else and since then my depression and anxiety has made me feel more uncomfortable and uncertain that I’m second guessing myself again because I want to keep
today has made me realize more n more I need to get myself together because I have always put everyone first and let myself deal with everything else and since then my depression and anxiety has made me feel more uncomfortable and uncertain that I’m second guessing myself again because I want to keep
Need2beMeAgain23
in
Anxiety and Depression Support
7 months ago
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