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Chronic kidney disease (CKD)
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Have your say on expanding medication options for CKD
Hi All, If anyone was adversely affected by the FDA's shock decision to reject Tenapanor as a treatment option for hyperphosphatemia, please use the link below to send your comments to the advisory committee that will be reviewing Tenapanor on November 16th. A lot of patients can't take phosphate
Hi All, If anyone was adversely affected by the FDA's shock decision to reject Tenapanor as a treatment option for hyperphosphatemia, please use the link below to send your comments to the advisory committee that will be reviewing Tenapanor on November 16th. A lot of patients can't take phosphate
MrAtoz
in
Kidney Disease
2 years ago
WHOOPS
I just spoke with my doctors nurse and it shows you can always learn new things and you can also mess things up. Lol. I hadn’t mentioned much about being a little bit nervous regarding my new pacemaker. The past two days my heart rate has been up. I am set for 80. I have noticed, and I know that my
I just spoke with my doctors nurse and it shows you can always learn new things and you can also mess things up. Lol. I hadn’t mentioned much about being a little bit nervous regarding my new pacemaker. The past two days my heart rate has been up. I am set for 80. I have noticed, and I know that my
DawnTX
in
AF Association
1 year ago
slide or step
Hi. thanks to COVID 19 I have pulmonary fibrosis and emphysema, diagnosis is 1 year old I am told there is 30% of my lungs still working, I was also told its a slow slide down hill from there and I have made my peace with that, but in the last couple of days it feels like I have took a step down
Hi. thanks to COVID 19 I have pulmonary fibrosis and emphysema, diagnosis is 1 year old I am told there is 30% of my lungs still working, I was also told its a slow slide down hill from there and I have made my peace with that, but in the last couple of days it feels like I have took a step down
blackscooter
in
Lung Conditions Community Forum
1 year ago
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Hi Everyone, I’m a newbie
I’m female mid seventies and have angina and a GT spray. I get severe chest pains but only when resting. I was to have day surgery a few weeks ago to remove an anal polyp which might be cancerous but despite having a thorough pre op assessment, the anaesthetist said I could not be treated unless a bed
I’m female mid seventies and have angina and a GT spray. I get severe chest pains but only when resting. I was to have day surgery a few weeks ago to remove an anal polyp which might be cancerous but despite having a thorough pre op assessment, the anaesthetist said I could not be treated unless a bed
Dunandjam
in
Sudden Cardiac Arrest & Heart Attack
1 year ago
Vitamin D - daily dose?
when I was first diagnosed with PBC my Vit D levels were low so had a high dose supplement which brought levels up to normal range. Bone density scan was OK. With general vitamin supplement and cod liver oil in winter months I take 10 microg of Vit D. I would be interested to hear how much anyone else
when I was first diagnosed with PBC my Vit D levels were low so had a high dose supplement which brought levels up to normal range. Bone density scan was OK. With general vitamin supplement and cod liver oil in winter months I take 10 microg of Vit D. I would be interested to hear how much anyone else
DebatDG9
in
PBC Foundation
1 year ago
Lupus Anticoagulant testing while on Warfarin
I have searched the group but I do not seem to find what I need to know. If your hematologist insist on testing for Lupus Anticoagulant how many days must you stop warfarin before the test? The hematologist says that the DVRTT test works without stopping Warfarin. But I have read many times that while
I have searched the group but I do not seem to find what I need to know. If your hematologist insist on testing for Lupus Anticoagulant how many days must you stop warfarin before the test? The hematologist says that the DVRTT test works without stopping Warfarin. But I have read many times that while
Raw57
in
Hughes Syndrome APS Forum
1 year ago
Atrial Tachycardia ablation coming up
I’m going in once again for another ablation. The 3rd one finally finished off the afib. But they couldn’t trigger the atrial tachycardia. Since it’s become even more frequent since the last ablation, I decided to give it another go. Dreading it even more than normal since our local hospital has stopped
I’m going in once again for another ablation. The 3rd one finally finished off the afib. But they couldn’t trigger the atrial tachycardia. Since it’s become even more frequent since the last ablation, I decided to give it another go. Dreading it even more than normal since our local hospital has stopped
lovetogarden
in
Atrial Fibrillation Support
1 year ago
PV and silent afib
Previously, no issues with my heart and prior to December 2022 all ok with all tests; no artery disease or stenosis and healthy heart. Out of nowhere, I had my first AFIB episode in December of last year. Restored to NSR in 30 minutes with medication. I have had 2 more, once during a stress test
Previously, no issues with my heart and prior to December 2022 all ok with all tests; no artery disease or stenosis and healthy heart. Out of nowhere, I had my first AFIB episode in December of last year. Restored to NSR in 30 minutes with medication. I have had 2 more, once during a stress test
Elizka
in
MPN Voice
1 year ago
Third ablation, beta blocker change or something else?
Afternoon all, Looking for a bit of advice, I had my first ablation which was a 5 hour operation Feb 7th 2019! Had to shock me 6 times as well as do the ablation! Eventually put me onto flecainide which kept it in rhythm. I came off flecainide in May 2019, and was ok until July when AFib returned.
Afternoon all, Looking for a bit of advice, I had my first ablation which was a 5 hour operation Feb 7th 2019! Had to shock me 6 times as well as do the ablation! Eventually put me onto flecainide which kept it in rhythm. I came off flecainide in May 2019, and was ok until July when AFib returned.
kitenski
in
AF Association
1 year ago
Thankyou - re: lidocaine and bisoprolol.
I just wanted to thank you all for your thoughts and advice on an alternative to local anaesthetic Lidocaine for a non dental minor surgery. It seems that nobody has quite had exactly the same reaction as I had with bradycardia and plummeting BP or had a local anaesthetic, apart from lidocaine, for
I just wanted to thank you all for your thoughts and advice on an alternative to local anaesthetic Lidocaine for a non dental minor surgery. It seems that nobody has quite had exactly the same reaction as I had with bradycardia and plummeting BP or had a local anaesthetic, apart from lidocaine, for
Teresa156
in
Atrial Fibrillation Support
1 year ago
What do you do with your life?
The reason I'm here today is not because of the
CKD
, but the mental health issues I'm facing due to that...to give a glimpse of what my
CKD
is that I have one functional kidney that works about 60%, my right kidney doesn't work since I was born and I have a neurologically weak bladder...my urethra is
The reason I'm here today is not because of the
CKD
, but the mental health issues I'm facing due to that...to give a glimpse of what my
CKD
is that I have one functional kidney that works about 60%, my right kidney doesn't work since I was born and I have a neurologically weak bladder...my urethra is
_quirdo_
in
Kidney Disease
2 years ago
Goitre and blood test
This is a bit of a long one - Thank you all in advance for your advice. So I have had a goitre for about 12 years - am not on medication and feel fine.. I have been aware it seems to have got bigger over the last few months and I do feel self-conscious about it. It does not affect breathing . I stayed
This is a bit of a long one - Thank you all in advance for your advice. So I have had a goitre for about 12 years - am not on medication and feel fine.. I have been aware it seems to have got bigger over the last few months and I do feel self-conscious about it. It does not affect breathing . I stayed
plee123
in
Thyroid UK
1 year ago
Trazadone & CKD & Gfr dropping
My
ckd
has went from a gfr of 45 to 32 in a years time. Kidney disease is heriditary in my family, and I generally eat well, exercise and hydrate. I'm just looking for the culprit. I see my neph every 6 months and have been diagnosed for 5 years.
My
ckd
has went from a gfr of 45 to 32 in a years time. Kidney disease is heriditary in my family, and I generally eat well, exercise and hydrate. I'm just looking for the culprit. I see my neph every 6 months and have been diagnosed for 5 years.
Cbailey
in
Kidney Disease
2 years ago
Thank you all for replies, re Bisoprolol. Back in AF today !
Thank you to all that replied to me ( Alternative to Bisoprolol) yesterday . Last night I didn’t sleep very well, I kept waking up sweating and having palpitations, more like a drum beating . I think I knew before I checked I was back in AF this morning , I used a kardiamobile . I also have an Apple
Thank you to all that replied to me ( Alternative to Bisoprolol) yesterday . Last night I didn’t sleep very well, I kept waking up sweating and having palpitations, more like a drum beating . I think I knew before I checked I was back in AF this morning , I used a kardiamobile . I also have an Apple
Beverleyb
in
AF Association
1 year ago
Shockwave Therapy By Chiropractor
I just went to a Chiropractor for treatment of agonizing pain in my upper back. He wants to treat me with shockwave therapy but I have concerns of this affecting my atrial fibrillation. I am presently only taking an anticoagulant, and no other meds for my AF. Has anyone had this type of treatment
I just went to a Chiropractor for treatment of agonizing pain in my upper back. He wants to treat me with shockwave therapy but I have concerns of this affecting my atrial fibrillation. I am presently only taking an anticoagulant, and no other meds for my AF. Has anyone had this type of treatment
SnoopyJ
in
Atrial Fibrillation Support
1 year ago
Anybody with bradycardia (low heart rate)
Shortly after multiple pulmonary emboli in April, 2022, lead to my long-term NSAID usage being stopped, tests lead to diagnosis of PMF with CALR, type 1, mutation. Along with other unpleasant health effects from that time, I have had bradycardia (binodal) very often (almost daily) with rates below 40
Shortly after multiple pulmonary emboli in April, 2022, lead to my long-term NSAID usage being stopped, tests lead to diagnosis of PMF with CALR, type 1, mutation. Along with other unpleasant health effects from that time, I have had bradycardia (binodal) very often (almost daily) with rates below 40
TLJ-1
in
MPN Voice
1 year ago
Ablation or not. I'm so confused..
I am 71 years old and am on flecainide after several trips to emergency with a heart rate of 170 to 200. Many drugs were tried and flecainide was the only one that I tolerated. I have no associated heart problems and am very fit. Yesterday I had a consultation with an electrophysiologist he said I border
I am 71 years old and am on flecainide after several trips to emergency with a heart rate of 170 to 200. Many drugs were tried and flecainide was the only one that I tolerated. I have no associated heart problems and am very fit. Yesterday I had a consultation with an electrophysiologist he said I border
Renesch
in
AF Association
1 year ago
Steroid reduction
I haven’t posted for a while as I had open heart surgery to replace my aortic valve. Very slow recovery! My endocrinologist wants me to reduce from 6 to 5 mg to have another synathocrin test . so managed to get to 5.5 and 6 every other day. Trouble is I am no so very stiff in the morning. Pains in
I haven’t posted for a while as I had open heart surgery to replace my aortic valve. Very slow recovery! My endocrinologist wants me to reduce from 6 to 5 mg to have another synathocrin test . so managed to get to 5.5 and 6 every other day. Trouble is I am no so very stiff in the morning. Pains in
SuziCutie
in
PMRGCAuk
1 year ago
14 Studies from the 1950s about T3-Only for All Sorts of Chronic Issues
These studies used T3 to benefit everything from mental issues, to gastrointestinal problems, to infertility, to poor performance in school. One study even used T3 with one-year-olds. Pretty remarkable results. I've included links for each study. - Tittle (1956). Effects of 3,5,3’ l-triiodothyronine
These studies used T3 to benefit everything from mental issues, to gastrointestinal problems, to infertility, to poor performance in school. One study even used T3 with one-year-olds. Pretty remarkable results. I've included links for each study. - Tittle (1956). Effects of 3,5,3’ l-triiodothyronine
Vileplume
in
Thyroid UK
1 year ago
How to Share Your Story and Find a Living Kidney Donor
For many with #
CKD
, finding a living donor can sound scary and overwhelming. Learn advice and best practices from real-life transplant recipients and experts: https://www.kidney.org/newsletter/how-to-share-your-story-and-find-living-kidney-donor
For many with #
CKD
, finding a living donor can sound scary and overwhelming. Learn advice and best practices from real-life transplant recipients and experts: https://www.kidney.org/newsletter/how-to-share-your-story-and-find-living-kidney-donor
JackieJ_NKF
Partner
in
Kidney Transplant
2 years ago
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