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Chronic kidney disease (CKD)
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It's not the adrenals it’s AF!
I kept thinking it was because of my tapering: I was short of breath, felt “chesty” and dizzy. The monitor I wore showed <1% incidence of AF but still at risk for stroke- so Eliquis for me. Scheduled for a visit to the electrophysiology lab for assessment. I believe it’s getting more frequent. Stopped
I kept thinking it was because of my tapering: I was short of breath, felt “chesty” and dizzy. The monitor I wore showed <1% incidence of AF but still at risk for stroke- so Eliquis for me. Scheduled for a visit to the electrophysiology lab for assessment. I believe it’s getting more frequent. Stopped
Karenjaninaz
in
PMRGCAuk
10 months ago
Hypertension and Amlodipine
Hi, community. I have a (new) diagnosis of hypertension, which means yet another tablet to add to my cocktail. The proposed first line treatment, apparently, is Amlodipine. However, I am wary of this drug, in case it worsens my Erythromelalgia, which is pretty bad anyway, and getting worse all by
Hi, community. I have a (new) diagnosis of hypertension, which means yet another tablet to add to my cocktail. The proposed first line treatment, apparently, is Amlodipine. However, I am wary of this drug, in case it worsens my Erythromelalgia, which is pretty bad anyway, and getting worse all by
skylark15
in
Scleroderma & Raynaud's UK (SRUK)
10 months ago
Amlodipine for Hypertension
Hi, community. I have a (new) diagnosis of hypertension, which means yet another tablet to add to my cocktail. The proposed first line treatment, apparently, is Amlodipine. However, I am wary of this drug, in case it worsens my Erythromelalgia, which is pretty bad anyway, and getting worse all by
Hi, community. I have a (new) diagnosis of hypertension, which means yet another tablet to add to my cocktail. The proposed first line treatment, apparently, is Amlodipine. However, I am wary of this drug, in case it worsens my Erythromelalgia, which is pretty bad anyway, and getting worse all by
skylark15
in
LUPUS UK
10 months ago
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Prednisone and Muscles
A concern stemming from the very few questions I was able to successfully ask of the new to me Rheumatologist without being sssshhh'd.... She ordered a Muscle Enzyme Creatine Kinase lab test be performed, as did my GP a month earlier and after comparing the results, it had dropped significantly from
A concern stemming from the very few questions I was able to successfully ask of the new to me Rheumatologist without being sssshhh'd.... She ordered a Muscle Enzyme Creatine Kinase lab test be performed, as did my GP a month earlier and after comparing the results, it had dropped significantly from
newsusy
in
PMRGCAuk
5 months ago
Loop recorder (and other feedback)
So, a few weeks ago I passed out while sitting next to my wife - which made her panic. Short version of the story is that the episode was followed by influenza so may have been the beginning of that. Also an ECG I had shortly after passing out was normal. (FYI I am 49 and healthy). But she insisted
So, a few weeks ago I passed out while sitting next to my wife - which made her panic. Short version of the story is that the episode was followed by influenza so may have been the beginning of that. Also an ECG I had shortly after passing out was normal. (FYI I am 49 and healthy). But she insisted
Jonathan_C
in
AF Association
10 months ago
PAF - move to PiP only
Hi Can anyone tell me of their experiences of moving from daily medication (Flecainide) to PiP only? Heart attack in 2019, out of the blue - fit & healthy. Investigations - no real culprit - eventually a few months later, after symptoms & further investigations, diagnosed with paroxysmal AFib. Basically
Hi Can anyone tell me of their experiences of moving from daily medication (Flecainide) to PiP only? Heart attack in 2019, out of the blue - fit & healthy. Investigations - no real culprit - eventually a few months later, after symptoms & further investigations, diagnosed with paroxysmal AFib. Basically
AAJJTt
in
AF Association
10 months ago
husband has cbd
My husband was diagnosed with corticbasel degeneration 2 years ago. It began with his left foot feeling stiff and has since traveled up to this full leg and now he is unable to move it. His left hand shakes and his upper arm is stiff. Once he holds onto something it’s hard to let go. He can’t walk at
My husband was diagnosed with corticbasel degeneration 2 years ago. It began with his left foot feeling stiff and has since traveled up to this full leg and now he is unable to move it. His left hand shakes and his upper arm is stiff. Once he holds onto something it’s hard to let go. He can’t walk at
Stellabella121
in
PSP Association
1 year ago
What is Left Atrial Rhythm and is it related to Afib?
I have paroxysmal Afib, which appears to be well managed with Flecainide and Metoprolol. I am having an unrelated medical procedure next week so my anaesthetist sent me for an ECG, which I had to drop back to her office. After getting the ECG done by a nurse at my local GP's rooms, the nurse took the
I have paroxysmal Afib, which appears to be well managed with Flecainide and Metoprolol. I am having an unrelated medical procedure next week so my anaesthetist sent me for an ECG, which I had to drop back to her office. After getting the ECG done by a nurse at my local GP's rooms, the nurse took the
bean_counter27
in
Atrial Fibrillation Support
10 months ago
CBD; worth a try for pain relief..?
Hello all, hope you're all reasonably well! As have posted here before, Dad is weak with Stage 4 Lung cancer an the immunotherapy that he's having. There's some pain and he keeps this at bay with paracetamol3x/day. I understand that CBD oil could be a good thing to try for pan relief. wondering
Hello all, hope you're all reasonably well! As have posted here before, Dad is weak with Stage 4 Lung cancer an the immunotherapy that he's having. There's some pain and he keeps this at bay with paracetamol3x/day. I understand that CBD oil could be a good thing to try for pan relief. wondering
Vip1
in
The Roy Castle Lung Cancer Foundation
1 year ago
To ablate or not to ablate?
I have paroxysmal AF, diagnosed in early 2020, on 5 mg bisoprolol and Edoxaban. I am highly symptomatic when I have an event, with fast heart rate, strong palpitations, heart feeling as though it will escape from my chest, but no dizziness etc. and this can last for up to 12 hours before it reverts
I have paroxysmal AF, diagnosed in early 2020, on 5 mg bisoprolol and Edoxaban. I am highly symptomatic when I have an event, with fast heart rate, strong palpitations, heart feeling as though it will escape from my chest, but no dizziness etc. and this can last for up to 12 hours before it reverts
Tamgirl
in
AF Association
10 months ago
Further evidence that even moderate exercise is good for your long term health - particularly when you have CLL!
I've often observed that our immediate response when we are diagnosed with CLL, is to re-evaluate our diet (good) and look at how we can extend our time before treatment and improve our life expectancy by taking supplements, for which there limited evidence, particularly when it comes to hopes of boosting
I've often observed that our immediate response when we are diagnosed with CLL, is to re-evaluate our diet (good) and look at how we can extend our time before treatment and improve our life expectancy by taking supplements, for which there limited evidence, particularly when it comes to hopes of boosting
AussieNeil
Administrator
in
CLL Support
10 months ago
Day 29 The PSP & CBD Ice Cream Challenge
Day 29 The PSP & CBD Ice Challenge 2023 Sweet, Salty N' Sassy Sea salt caramel and roasted sweet chili pistachios. This flavor has an attitude. It can standalone by itself or with toppings if you like. Definitely one of my best flavor creations. #PSP_CBD_IceCreamChallenge Enjoy, Tim
Day 29 The PSP & CBD Ice Challenge 2023 Sweet, Salty N' Sassy Sea salt caramel and roasted sweet chili pistachios. This flavor has an attitude. It can standalone by itself or with toppings if you like. Definitely one of my best flavor creations. #PSP_CBD_IceCreamChallenge Enjoy, Tim
daddyt
in
PSP Association
1 year ago
I got my HbAc1 result sad
Posted other day with my other results full thyroid etc , got lipids will post , HbA1c clotted, Received HbA1c results this morning and cried, last Gp test January said it had gone up to 50, todays is 54 was hoping it had lowered, Now we all know poor thyroid treatment /control can cause mayhem and
Posted other day with my other results full thyroid etc , got lipids will post , HbA1c clotted, Received HbA1c results this morning and cried, last Gp test January said it had gone up to 50, todays is 54 was hoping it had lowered, Now we all know poor thyroid treatment /control can cause mayhem and
Polo22
in
Thyroid UK
10 months ago
Attendance allowance
Hi my hubby has stage 4
ckd
he's 71 receives a state pension, will he be able to apply for attendance allowance, he's waiting to start his dialysis,.any help.to help him through the roots to follow pleaseThanks all x
Hi my hubby has stage 4
ckd
he's 71 receives a state pension, will he be able to apply for attendance allowance, he's waiting to start his dialysis,.any help.to help him through the roots to follow pleaseThanks all x
joannieandmike
in
Kidney Dialysis
2 years ago
Newbie. What do you do?
Hello, New to this. Had my first episode about 6 weeks ago but could have been AF for weeks as no symptoms. Had cardio version put on bisoprolol, apixaban and ramipril. Since then I have had 3 episodes; 2 lasting a couple of hours and this 3rd one is still going on past 5hrs. Decided to take my evening
Hello, New to this. Had my first episode about 6 weeks ago but could have been AF for weeks as no symptoms. Had cardio version put on bisoprolol, apixaban and ramipril. Since then I have had 3 episodes; 2 lasting a couple of hours and this 3rd one is still going on past 5hrs. Decided to take my evening
Harry66
in
AF Association
10 months ago
Day 28 The PSP & CBD Ice Cream Challenge 2023
Conundrum - Milk and cookies or Cookies N' Cream French Vanilla Bean ice cream with butterscotch with old-fashion butterscotch topping sandwiched between two oatmeal cookies and topped with Smucker's Magic Shell. Either way, enjoy. Tim
Conundrum - Milk and cookies or Cookies N' Cream French Vanilla Bean ice cream with butterscotch with old-fashion butterscotch topping sandwiched between two oatmeal cookies and topped with Smucker's Magic Shell. Either way, enjoy. Tim
daddyt
in
PSP Association
1 year ago
CKD new Anemia medication Roxadustat
I see there is a relatively new medication for Anemia in
CKD
. Taken as tablet rather than injecting as with EPO.Any views or experience with Roxadustat? https://jasn.asnjournals.org/content/33/4/850#:~:text=Roxadustat%20was%20noninferior%20to%20epoetin,profile%20comparable%20to%20epoetin%20alfa.
I see there is a relatively new medication for Anemia in
CKD
. Taken as tablet rather than injecting as with EPO.Any views or experience with Roxadustat? https://jasn.asnjournals.org/content/33/4/850#:~:text=Roxadustat%20was%20noninferior%20to%20epoetin,profile%20comparable%20to%20epoetin%20alfa.
Pontios
in
Kidney Disease
2 years ago
THCA more effective than CBD?
THCA is an effective neuroprotectant. https://twitter.com/Matoaka_M/status/1662184945798791170?t=w3F4WfW7Rf_r2KFgdad5-Q&s=19
THCA is an effective neuroprotectant. https://twitter.com/Matoaka_M/status/1662184945798791170?t=w3F4WfW7Rf_r2KFgdad5-Q&s=19
SilentEchoes
in
Cure Parkinson's
1 year ago
Ablation Done
After much worrying on my part, I had my ablation done at Barts on Friday and I'm not dead yet! Despite the long list of side effects which might have occurred according to the AF Ablation help sheet, all I had was a mild(ish) migraine on the Friday night. No problems with bleeding from the site or indeed
After much worrying on my part, I had my ablation done at Barts on Friday and I'm not dead yet! Despite the long list of side effects which might have occurred according to the AF Ablation help sheet, all I had was a mild(ish) migraine on the Friday night. No problems with bleeding from the site or indeed
Cabinessence
in
AF Association
10 months ago
Fitbit vs radial pulse
During my perceived afib episodes of late my Fitbit and oximeter reads much higher than taking my pulse manually. Sometimes the the Fitbit is double the radial rate. So I question if I'm in an afib episode. Is the Fitbit and oximeter wrong? I don't have any other symptoms so it's unclear.
During my perceived afib episodes of late my Fitbit and oximeter reads much higher than taking my pulse manually. Sometimes the the Fitbit is double the radial rate. So I question if I'm in an afib episode. Is the Fitbit and oximeter wrong? I don't have any other symptoms so it's unclear.
Bikedennis
in
AF Association
10 months ago
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