Experiences with

Chronic leukaemia

Hi all, So, I’m in a bit of a panic .. I’m in the middle of a miscarriage and my HCG levels have been falling and last week they were down to 24 ( they started at 203, and have dropped more then half on each blood test , 198, 96 , 24) I had a blood test today and they’ve gone up to 35. I’ve had a

Hello, I was wondering if anyone has received wildly different AMH scores and worked out what was driving it and therefore which one to believe? Back in January I stared investigations with a private clinic and was tested in their London lab. My AMH test came back as 6.2 pmol/l. I was told this

My blood hcg level (d10p5dt) was 27. Three days later hcg was 40. I have been advised to continue progynova and crinone gel and to check hcg level in 2 days' time.I am concerned because the second hcg level was not more than 2x of old value. I am worried about chemical pregnancy or ectopic pregnancy.

The long awaited successor to FLAIR for patients randomised to one of the Ibrutinib arms is finally ready to open at sites in the UK. When each site is ready will be up to local researchers and resource availability but the trial will be conducted in 100 NHS Centres in the UK (England, Wales, Scotland

Hi, Reaching out once again for your experiences and tips. After 2 BFNs (March and May) I had a slightly different outcome this month with a very low HCG followed by gradual bleeding and confirmed chemical. As my husband has azoospermia, this is the furthest we've ever been to pregnancy so it has been

 « Such deep molecular responses, to our knowledge, have never been seen in patients with myelofibrosis before,” Kiladjian noted »  »A previously developed mathematical model for predicting long-term responses in patients with PV and ET was found to be applicable to this study and predicted a long-term

Update: I have gotten my blood hcg level and it was 27. Three days later, I repeated it and it was only 40. It has not doubled after 3 days. Nonethless, doctor asked me to continue progynova and crinone gel. I will go for a repeat blood hcg level in 2 days' time. I can only hope for the best. My anxiety

I knew Chlorambucil use for CLL dated back to the 1950's but I hadn't appreciated that was also the case for cyclophosphamide, (the 'C' in FCR). It took until the early 90's before Fludarabine, the 'F' in FCR joined, then Rituximab (the 'R') just over 20 years ago, started the long reign of FCR as the

Hey Ladies I’ve not had great news today, I started spotting today so took myself to A&E as I bleed at 4 weeks so was anxious as I was about 5.5 weeks. I was referred to EPU who did a scan & found nothing not even a sac 😢! It seems to have been a miscarriage at 4 week, but I’m so confused as I had

hello anyone with mf,I'm not sure if I should start treatment a lot of people on here are on treatment. my platelets are normal, hb slightly low ,slightly enlarged spleen ,fatigue is main symptom. I'm on watch and wait but should I be on something to stop the mf progressing.

After having a miracle BFP from a natural conception following our first failed round of ICSI I think I’m having a miscarriage and feel so heartbroken. I couldn’t believe it when I tested positive after my period didn’t come - it just seemed too good to be true… and now I think I’m losing it at 5 and

[i]The EC approval is based on positive results from two Phase 3 clinical trials: SEQUOIA (NCT03336333), in patients with previously untreated CLL, and ALPINE (NCT03734016), in patients with R/R CLL. In these two trials, BRUKINSA demonstrated superior efficacy versus either bendamustine plus rituximab

I found out yesterday that my FET has not been as successful as I thought, and at 6 weeks my HCG levels are dropping and the scan revealed the pregnancy isn’t viable. I have been told to stop my meds and wait for nature to take its course. I wondered if anyone has been through something similar, and

Hi everyoneI'm currently 14dp5dt and am panicking. On day 9, I got a BFP and my hcg was 140. I had this repeated on day 12 (Mon) and it had risen to 551. Good numbers. A scan has been booked for 26/6 (7w3d) Today, when I went to the loo, on 2 occasions I had 2 tiny tissue like beads when I wiped. No

There are studies showing HCQ causes apoptosis in CLL, lowering the WBC. Did anyone take HCQ for covid and find their WBC dropped?

One pharmacist in Florida refused to give PCV 20 "because guidelines say that if you had other previous pneumo vaccinations you do not need PCV 20 !" I got PCV 13 in 2015 and PCV 23 in 2005. My understanding of the literature is that PCV20 is now "updated" and everybody should get it who may get it

Saw my CLL specialist yesterday and he had the results of the IgHV testing he requested. It seems I am unmutated status which isn't great news. At the time of starting treatment, we were in 1st year of pandemic and Acalabrutinib was offered. As he said normally I would have been offered FCR because

good morning everyone I don’t know if anyone on here has had any experience with tooth whitening products, only I’ve seen an advert for a tooth whitening powder which I’m very tempted to try, especially as it’s dentist approved and is peroxide-free. I’m just wondering about the Alendronic Acid I’m

I ama 62 year old female. I have been on hemodialysis then peritoneal dialysis and back to hemodialysis over the past five years. I felt great for the two years on peritoneal. Was able to work and go about my daily routine. The peritoneal stopped working and I have been back on hemodialysis for about

17dp6dt FET PGTA ERA negative tests & negative blood HCG. I’ve stopped medication as clinic said but I’m not even spotting yet. I had cramps once a day then stopped but now nothing. with my other bfn x3 I bled quickly once negative & medication stopped. I don’t understand what’s going on in my womb