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Failing ADT
Hi- I thought I would seek some advice before I meet with my MO tomorrow morning. I have responded well to treatment of metPC since my dx 11+ years ago. About 2+ years ago my PSA became measurable and was rising. After about a year or so I think it reached .37. Following a PSMA scan, my MO saw only
Hi- I thought I would seek some advice before I meet with my MO tomorrow morning. I have responded well to treatment of metPC since my dx 11+ years ago. About 2+ years ago my PSA became measurable and was rising. After about a year or so I think it reached .37. Following a PSMA scan, my MO saw only
jfoesq
in
Advanced Prostate Cancer
6 months ago
Does fear play a role with pernicious anemia?
Hey guys, I hope this message finds you well. It's good to have a place to come that someone has some understanding of what you're going through! I messaged here before about having fear of a lot of things that I didn't have before this PA/B12 deficiency and sometimes I think of myself as a wimp because
Hey guys, I hope this message finds you well. It's good to have a place to come that someone has some understanding of what you're going through! I messaged here before about having fear of a lot of things that I didn't have before this PA/B12 deficiency and sometimes I think of myself as a wimp because
25092
in
Pernicious Anaemia Society
2 months ago
AIHdx
Hi! New here. I had been experiencing vague, debilitating symptoms occasionally for a few years, fatigue, nausea, chronic back pain, itchy skin, brain fog, etc. November’23 symptoms became acute, as well as dark urine and jaundice and I was basically incapacitated. Hospitalized December’23 with ALT
Hi! New here. I had been experiencing vague, debilitating symptoms occasionally for a few years, fatigue, nausea, chronic back pain, itchy skin, brain fog, etc. November’23 symptoms became acute, as well as dark urine and jaundice and I was basically incapacitated. Hospitalized December’23 with ALT
AIGal73
in
British Liver Trust
6 months ago
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PSA to have stabilized after skyrocketing. What does this mean?
With PSA rising very rapidly four months ago after finishing Eclipse Trial, I had SBRT done immediately followed by Provenge. PSA on the day of SBRT was 2.0. It’s my understanding that Provenge will not affect PSA testing so it’s hard to determine progress. Obviously, there is still cancer still there
With PSA rising very rapidly four months ago after finishing Eclipse Trial, I had SBRT done immediately followed by Provenge. PSA on the day of SBRT was 2.0. It’s my understanding that Provenge will not affect PSA testing so it’s hard to determine progress. Obviously, there is still cancer still there
SViking
in
Advanced Prostate Cancer
6 months ago
mHSPCa with undetectable PSA - chemo-only?
Is chemo-only justified, without ADT/androgen receptor pathway inhibitors, in a case like mine with two new mets discovered and with PSA less than 0.1? I have had no SOC medication since 2.5 years, after SRBR to a single identified met. Gleason 9. This study points to ADT not being of benefit to low-PSA
Is chemo-only justified, without ADT/androgen receptor pathway inhibitors, in a case like mine with two new mets discovered and with PSA less than 0.1? I have had no SOC medication since 2.5 years, after SRBR to a single identified met. Gleason 9. This study points to ADT not being of benefit to low-PSA
Purple-Bike
in
Advanced Prostate Cancer
6 months ago
Elevated Liver Enzymes and Terry's Nails
Hello Everyone, Hope you all are doing better. I had a routine blood test a month ago and my LFTs were slightly elevated, Alt was 52, Alp was 122 and Ggt was 71. Ast was normal at 35 according to the lab. Other things such as Albumin(42) Globulin(29) Total protien, kindey function, platelets (333),
Hello Everyone, Hope you all are doing better. I had a routine blood test a month ago and my LFTs were slightly elevated, Alt was 52, Alp was 122 and Ggt was 71. Ast was normal at 35 according to the lab. Other things such as Albumin(42) Globulin(29) Total protien, kindey function, platelets (333),
Mhalpha
in
British Liver Trust
6 months ago
Blood tests whilst pregnant
This is a question after reading posts+research. I understand there is a Def link between underactive thyroid/Hashimotos kicking off whilst pregnant+a link between Hashimotos+pre-eclampsia. Speaking from experience many years ago, for me this seems clear. So, just as mother's are checked re diabetes
This is a question after reading posts+research. I understand there is a Def link between underactive thyroid/Hashimotos kicking off whilst pregnant+a link between Hashimotos+pre-eclampsia. Speaking from experience many years ago, for me this seems clear. So, just as mother's are checked re diabetes
Lottyplum
in
Thyroid UK
2 months ago
Medical lecture and Q&A - Hosted by Dr. Arvind Kaul (with guest speakers) - 15th June 9.30am
Consultant Rheumatologist Dr Arvind Kaul, the Head of Rheumatology & Lupus Patient Care at St. George's Hospital will be hosting the next South London Lupus Group Medical Patient-Focused Lecture. Our agenda for the morning as follows: 1. 09.30: Registration and Welcome 2. 10.00: Melanie Sloan:
Consultant Rheumatologist Dr Arvind Kaul, the Head of Rheumatology & Lupus Patient Care at St. George's Hospital will be hosting the next South London Lupus Group Medical Patient-Focused Lecture. Our agenda for the morning as follows: 1. 09.30: Registration and Welcome 2. 10.00: Melanie Sloan:
michaellasmith
Administrator
in
LUPUS UK
2 months ago
What is folic acid used for?
For other reasons, nothing to do with Pernicious Anaemia, I was checking the Patient Information Leaflet for a UK folic acid product. And I noticed this bit: [i]Ennogen Pharma Limited[/i] [i]
Folic Acid Tablets 5mg
[/i] [i]1. WHAT FOLIC ACID TABLETS ARE AND[/i] [i]WHAT THEY ARE USED FOR[/i]
For other reasons, nothing to do with Pernicious Anaemia, I was checking the Patient Information Leaflet for a UK folic acid product. And I noticed this bit: [i]Ennogen Pharma Limited[/i] [i]
Folic Acid Tablets 5mg
[/i] [i]1. WHAT FOLIC ACID TABLETS ARE AND[/i] [i]WHAT THEY ARE USED FOR[/i]
helvella
in
Pernicious Anaemia Society
2 months ago
Autoimmune disease?
hello, Looking for advice/reassurance just need somewhere to unload really. It all started off with upper right sided abdominal pain which took me to the doctors back in February. Dull ache burning sensation not unbearable but I’m aware of the pain. Ultrasound scan on upper abdo normal. Bloods showed
hello, Looking for advice/reassurance just need somewhere to unload really. It all started off with upper right sided abdominal pain which took me to the doctors back in February. Dull ache burning sensation not unbearable but I’m aware of the pain. Ultrasound scan on upper abdo normal. Bloods showed
Farfield
in
British Liver Trust
2 months ago
Anyone know about Dr's or consultants prescribing metformin for endometriosis?
I recently got access to ALL my medical records from the consultants I had been referred to over the years and saw that in the past I had been prescribed metformin, altavita and amitryptaline at the same time by an endocrinologist. I presumed at the time it was for my underactive Thyroid and wasn't on
I recently got access to ALL my medical records from the consultants I had been referred to over the years and saw that in the past I had been prescribed metformin, altavita and amitryptaline at the same time by an endocrinologist. I presumed at the time it was for my underactive Thyroid and wasn't on
Escapologygirl
in
Endometriosis UK
2 months ago
Low PSA + high Gleason-FYI
I’ve just heard that this is a thing. Unfortunately it seems to affect my outcome. For instance, I had an initial PSA of 4.8 (4.6 after retesting), and I’m Gleason 9. Three of my doctors have mentioned it to me in passing (most recently today), which led me to Google it. https://www.ncbi.nlm.nih.gov
I’ve just heard that this is a thing. Unfortunately it seems to affect my outcome. For instance, I had an initial PSA of 4.8 (4.6 after retesting), and I’m Gleason 9. Three of my doctors have mentioned it to me in passing (most recently today), which led me to Google it. https://www.ncbi.nlm.nih.gov
Jpburns
in
Advanced Prostate Cancer
6 months ago
New Post, community only please
HiI found out I had APS during my 8th pregnancy in 2006. I had PEs. Fast forward to 2024. One of my adult daughters had PEs in pregnancy, horrific treatment from hospital, which was minutes from losing both my daughter and her baby (at 39 weeks) I'm now waiting to have a genetic test for APs as I
HiI found out I had APS during my 8th pregnancy in 2006. I had PEs. Fast forward to 2024. One of my adult daughters had PEs in pregnancy, horrific treatment from hospital, which was minutes from losing both my daughter and her baby (at 39 weeks) I'm now waiting to have a genetic test for APs as I
Dawnm10
in
Hughes Syndrome APS Forum
2 months ago
Shingles Jab
I noted that Lupus sufferers over 50 were supposed to be eligible for the Shingrix jab. However, after requesting one from the Surgery the receptionist said no. I did recently get the over 75s Covid booster without asking, courtesy of my immune system, , which I thought over the top. However, as rashes
I noted that Lupus sufferers over 50 were supposed to be eligible for the Shingrix jab. However, after requesting one from the Surgery the receptionist said no. I did recently get the over 75s Covid booster without asking, courtesy of my immune system, , which I thought over the top. However, as rashes
Stewart64
in
LUPUS UK
2 months ago
PSA went up after three treatments of chemotherapy
I have had 3 Chemotherapy treatments with Docataxel. before the first treatment PSA was 89. after the first treatment PSA was 73.31.. after the second treatment PSA was 52.82. after the third treatment, PSA was 73.31.. does it make sense to take another chemotherapy treatment since the PSA has risen
I have had 3 Chemotherapy treatments with Docataxel. before the first treatment PSA was 89. after the first treatment PSA was 73.31.. after the second treatment PSA was 52.82. after the third treatment, PSA was 73.31.. does it make sense to take another chemotherapy treatment since the PSA has risen
spolyu
in
Advanced Prostate Cancer
6 months ago
It's Back!
This post should be good for newbies also. This should show you guys how long you can go!Anyways, 13 years ago I was diagnosed with PCA Gleason 7 PSA 44. With spread outside of prostate. Did 39 treatments off radiation and have been mostly on ADT for the duration except during COVID I took a break
This post should be good for newbies also. This should show you guys how long you can go!Anyways, 13 years ago I was diagnosed with PCA Gleason 7 PSA 44. With spread outside of prostate. Did 39 treatments off radiation and have been mostly on ADT for the duration except during COVID I took a break
Tjc1
in
Advanced Prostate Cancer
6 months ago
Anyone used Dr Dani Gordon @The London Resilience Clinic
hi I have a diagnosis of Fibromyalgia, along with underactive thyroid, arthritis, chronic fatigue (long covid) and diverticula desiease (from pain relief meds). Although I have managed to cope and work full time for a number of years, I was hit with COVID and flu together at Christmas and it has
hi I have a diagnosis of Fibromyalgia, along with underactive thyroid, arthritis, chronic fatigue (long covid) and diverticula desiease (from pain relief meds). Although I have managed to cope and work full time for a number of years, I was hit with COVID and flu together at Christmas and it has
Field007
in
Fibromyalgia Action UK
2 months ago
GP wanting to report high liver blood test results to DVLA
Hi. This is my first post and I would be grateful of any advice or your experience in relation to this. My husband has been a heavy drinker (evenings and weekends) for a number of years. Blood tests in October showed high levels re health of his liver (not sure of all of the names) and subsequently
Hi. This is my first post and I would be grateful of any advice or your experience in relation to this. My husband has been a heavy drinker (evenings and weekends) for a number of years. Blood tests in October showed high levels re health of his liver (not sure of all of the names) and subsequently
OfftowalktheCamino
in
British Liver Trust
6 months ago
C-Reactive Protein Test
Good day everyone. Has anyone has their levels checked? Does high levels correlate with PA and Autoimmune Gastritis? Thank you
Good day everyone. Has anyone has their levels checked? Does high levels correlate with PA and Autoimmune Gastritis? Thank you
Canadian77
in
Pernicious Anaemia Society
2 months ago
Understanding TSH Levels
HAD MY BLOOD TESTED IN JANUARY AND TSH Was .06 Gp said normal but no adjustment in meds as he said it was too high. Currently on 100mcg Thyroxine but feeling tired and usual symptoms of Underactive thyroid. Any advice appreciated. Thank you.
HAD MY BLOOD TESTED IN JANUARY AND TSH Was .06 Gp said normal but no adjustment in meds as he said it was too high. Currently on 100mcg Thyroxine but feeling tired and usual symptoms of Underactive thyroid. Any advice appreciated. Thank you.
JMF1
in
Thyroid UK
2 months ago
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