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Don't know what's real anymore...
Some know my story so far, but briefly, rheumatologist diagnosed sjogren's after several years of UCTD and has now referred but to a sjogren's specialist. I saw him about a month ago and he's not convinced it's sjogren's and is running more tests and told me to stop taking Amitryptiline as tris can
Some know my story so far, but briefly, rheumatologist diagnosed sjogren's after several years of UCTD and has now referred but to a sjogren's specialist. I saw him about a month ago and he's not convinced it's sjogren's and is running more tests and told me to stop taking Amitryptiline as tris can
Mctd
in
LUPUS UK
2 months ago
Biomarkers to Assess Multiple Sclerosis
Some review and maybe something new.
Recent research on fluid biomarkers in multiple sclerosis (MS) frames an emerging picture of two aspects of the disease: inflammatory activity measured with
neurofilament light chain
(NfL), and disease progression independent of relapses, with promising
Some review and maybe something new.
Recent research on fluid biomarkers in multiple sclerosis (MS) frames an emerging picture of two aspects of the disease: inflammatory activity measured with
neurofilament light chain
(NfL), and disease progression independent of relapses, with promising
BettysMom
in
My MSAA Community
2 months ago
advice re 0.02 reading
Hi everyone my first ever psa age 53 no symptoms 3.1 jan 2022 mri pri 3 hard prostate Gleason 3+3 no other scans mri did not detect the size of tumour l was told to go on active surveillance My brain said no ,choice given to me was remove prostate or brachytherapy l had operation in May 2022 all good
Hi everyone my first ever psa age 53 no symptoms 3.1 jan 2022 mri pri 3 hard prostate Gleason 3+3 no other scans mri did not detect the size of tumour l was told to go on active surveillance My brain said no ,choice given to me was remove prostate or brachytherapy l had operation in May 2022 all good
Ffghytrrg
in
Advanced Prostate Cancer
6 months ago
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Agonists vs. antagonists (the latter not to be confused with a character in a novel!)
I know many of you on this site are beyond ADT, but for those who are still holding on in that space, I'd like to share my experience with the newer antagonists drugs, degarelix ( U.S. brand, Firmagon) and relugolix (U.S. brand, Orgovyx). I started ADT exactly 8 years ago this month and during my off-and-on
I know many of you on this site are beyond ADT, but for those who are still holding on in that space, I'd like to share my experience with the newer antagonists drugs, degarelix ( U.S. brand, Firmagon) and relugolix (U.S. brand, Orgovyx). I started ADT exactly 8 years ago this month and during my off-and-on
bluesnjazz
in
Advanced Prostate Cancer
6 months ago
Levothyroxine side effects
I have been on 150mcg levothyroxine constant since January 1st this year. Around the 20th February I started with shortness of breath and irregular heart beats which have continued daily and my t4 and tsh have gradually got better to where last weeks blood test show they are now within range. I am adamant
I have been on 150mcg levothyroxine constant since January 1st this year. Around the 20th February I started with shortness of breath and irregular heart beats which have continued daily and my t4 and tsh have gradually got better to where last weeks blood test show they are now within range. I am adamant
Andrew36
in
Thyroid UK
2 months ago
itchy skin
hi have any of you ladies out there had itchy skin with underactive thyroid. Mine is mainly on my back. I have used most creams to get rid of it but it comes and goes and it’s back again driving me mad at the moment. Could anyone recommend any remedies to help? Thanks
hi have any of you ladies out there had itchy skin with underactive thyroid. Mine is mainly on my back. I have used most creams to get rid of it but it comes and goes and it’s back again driving me mad at the moment. Could anyone recommend any remedies to help? Thanks
Purpleprincess1963
in
Thyroid UK
2 months ago
an introduction...
Hello everyone! Let me introduce myself. My name is Donna Boll. I have been given the wonderful opportunity from The PBC Foundation to facilitate your online support group, Health Unlocked. For the last 6 years I have facilitated an amazing online PBC support group for The American Liver Foundation.
Hello everyone! Let me introduce myself. My name is Donna Boll. I have been given the wonderful opportunity from The PBC Foundation to facilitate your online support group, Health Unlocked. For the last 6 years I have facilitated an amazing online PBC support group for The American Liver Foundation.
DonnaBoll
Administrator
in
PBC Foundation
6 months ago
PSA rising 10 weeks after Orgovyx Holiday
PCA diagnosed 2018, PSA 6.7, GS 9 (lesions in both lobes of gland, no evidence of metastases), EBRT + Firmagon ADT treatment, ended spring 2019, PSA nadir <0.02 Nov 2019 before rising again. BCR 2022-2023, Pylarify PSMA, Nov 2022 and March 2023 indicates intense uptake areas visible again in the
PCA diagnosed 2018, PSA 6.7, GS 9 (lesions in both lobes of gland, no evidence of metastases), EBRT + Firmagon ADT treatment, ended spring 2019, PSA nadir <0.02 Nov 2019 before rising again. BCR 2022-2023, Pylarify PSMA, Nov 2022 and March 2023 indicates intense uptake areas visible again in the
ac61418
in
Advanced Prostate Cancer
6 months ago
Am i catastrophizing over my results
Hi. I’m a little confused over my situation.After Cyberknife treatment and two years on ADT with a constant PSA of 0.02 post treatment .My PSA started to rise and at 4.1 approximately I had a PSMA scan my second .i also had one 3 years previous to that and both were clear . My MO has me back on ADT
Hi. I’m a little confused over my situation.After Cyberknife treatment and two years on ADT with a constant PSA of 0.02 post treatment .My PSA started to rise and at 4.1 approximately I had a PSMA scan my second .i also had one 3 years previous to that and both were clear . My MO has me back on ADT
Walliam
in
Advanced Prostate Cancer
6 months ago
Autoimmune Chronic Gastiritis
Hi Folks, Found this article on Autoimmune Chronic Gastiritis if anyone interested… https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10934127/
Hi Folks, Found this article on Autoimmune Chronic Gastiritis if anyone interested… https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10934127/
Karenedawson
in
Pernicious Anaemia Society
2 months ago
Lastest results
Hi all, Feeling somewhat relived that my latest medichecks test shows my TSH has increased since Jan (same dose - 75mcg) from 0.9 - 3.38. T3 and T4 remained fairly constant (see attached) For the first time I also got TGA tested and they are high, my TPO antibodies have always been negative. So at least
Hi all, Feeling somewhat relived that my latest medichecks test shows my TSH has increased since Jan (same dose - 75mcg) from 0.9 - 3.38. T3 and T4 remained fairly constant (see attached) For the first time I also got TGA tested and they are high, my TPO antibodies have always been negative. So at least
Dahliasanddaisies
in
Thyroid UK
2 months ago
Women’s Health in RA survey
A Rheumatology Registrar with an interest in women's health has developed a survey as part of their PhD which explores what RA patients want from future research on rheumatoid arthritis in relation to women's health issues such as pregnancy, periods and the menopause. They would love to hear more about
A Rheumatology Registrar with an interest in women's health has developed a survey as part of their PhD which explores what RA patients want from future research on rheumatoid arthritis in relation to women's health issues such as pregnancy, periods and the menopause. They would love to hear more about
SarahW-NRAS
NRAS
in
NRAS
2 months ago
Add Nubeqa to Orgovyx?
Age 81. I had prostate radiation in 2021, and pelvic node radiation in 2023. PSA was 3.78 in Dec 2023. PSMA PET then showed cancer growing in prostate, shrinking in pelvic node, but spread to an abdominal node. I have started ADT with Orgovyx (relugolix) and want to add an ARI. The urologist wants
Age 81. I had prostate radiation in 2021, and pelvic node radiation in 2023. PSA was 3.78 in Dec 2023. PSMA PET then showed cancer growing in prostate, shrinking in pelvic node, but spread to an abdominal node. I have started ADT with Orgovyx (relugolix) and want to add an ARI. The urologist wants
vintage42
in
Advanced Prostate Cancer
6 months ago
Constipation relief for me
Been struggling with ongoing constipation for decades, due to slow ?motility? .Found this product which has been a life saver and really works for me. Super Cleanse by Nature's Secret | Herbal and Probiotic Support, 100 Tablets It contains Cascara Sagrada stimulat which maybe habit forming, so the
Been struggling with ongoing constipation for decades, due to slow ?motility? .Found this product which has been a life saver and really works for me. Super Cleanse by Nature's Secret | Herbal and Probiotic Support, 100 Tablets It contains Cascara Sagrada stimulat which maybe habit forming, so the
ewebhook
in
Cure Parkinson's
6 months ago
Therio
https://therio.me/ [i] I don't know anything about the company. I met Micah seven years ago at a medical conference. He was selling Ozone generators. I ended up buying one and have been using it ever since. It's all about home-testing various conditions from Parkinson's to cancer to Alzheimer's
https://therio.me/ [i] I don't know anything about the company. I met Micah seven years ago at a medical conference. He was selling Ozone generators. I ended up buying one and have been using it ever since. It's all about home-testing various conditions from Parkinson's to cancer to Alzheimer's
kaypeeoh
in
Cure Parkinson's
6 months ago
Trimethoprim - ET
I have unfortunately developed a urinary tract infection. I am penicillin-sensitive and have been prescribed trimethoprim as a seven day course. I have been reading up on it and see that it should not be prescribed for patients with "blood dyscrasias" because of some interaction with folate. Does
I have unfortunately developed a urinary tract infection. I am penicillin-sensitive and have been prescribed trimethoprim as a seven day course. I have been reading up on it and see that it should not be prescribed for patients with "blood dyscrasias" because of some interaction with folate. Does
Jelbea
in
MPN Voice
6 months ago
Unsure of best option in early prostate cancer diagnosis.
I have had PSA tests annually for 10 years and in Oct 2023 had an elevated 6.42 result. Was referred to a urologist, whom performed a DRE. There was prostate enlargement but no tumor discovered through DRE. After discussing several options, I decided to have a biopsy on Nov 21, 2023. Dec 5, 2023,
I have had PSA tests annually for 10 years and in Oct 2023 had an elevated 6.42 result. Was referred to a urologist, whom performed a DRE. There was prostate enlargement but no tumor discovered through DRE. After discussing several options, I decided to have a biopsy on Nov 21, 2023. Dec 5, 2023,
cobrasc429
in
Advanced Prostate Cancer
6 months ago
wheat in cosmetics
I’m recently diagnosed with coeliac disease. I’m following a gluten free diet but have noticed that a product I bought to promote hair growth contains wheat germ amongst many other ingredients. As this product needs to be massaged into the scalp should I not use it?
I’m recently diagnosed with coeliac disease. I’m following a gluten free diet but have noticed that a product I bought to promote hair growth contains wheat germ amongst many other ingredients. As this product needs to be massaged into the scalp should I not use it?
Veggie2
in
Gluten Free Guerrillas
6 months ago
High LFT results
I had my first 6 month appointment with my liver nurse last week. As part of the review I had a routine bloody test for LFT. My previous blood test was on the 14th Dec 23 and my numbers were gradually reducing. I just had the results this morning and pretty much all my levels have increased including
I had my first 6 month appointment with my liver nurse last week. As part of the review I had a routine bloody test for LFT. My previous blood test was on the 14th Dec 23 and my numbers were gradually reducing. I just had the results this morning and pretty much all my levels have increased including
Dexter786
in
British Liver Trust
6 months ago
seeing neurologist, advice on b12 injections welcomed…
hi all? have been prescribed with PA. My ferritin levels are normal - 177 Vitamin D- 70. I have finished loading does for b12 last week. My last reading was 188 2 weeks ago but imagine it’s greater than 2000 now. My folate was low - 3.5. My Gp has helpfully given me folic acid 5 mg a day
hi all? have been prescribed with PA. My ferritin levels are normal - 177 Vitamin D- 70. I have finished loading does for b12 last week. My last reading was 188 2 weeks ago but imagine it’s greater than 2000 now. My folate was low - 3.5. My Gp has helpfully given me folic acid 5 mg a day
Damacian
in
Pernicious Anaemia Society
2 months ago
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