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Reference for not testing once b12 injections started? Threatening to stop injections due to high b12 levels in blood test.
Hiya I have a call booked with the practice nurse who wants to stop my b12 injections as a recent blood test shows levels that are 'too high'. Can anyone point me to NICE guidelines or smilar that state that once b12 injections have commenced, b12 levels should not be checked? I am diagnosed with pernicious
Hiya I have a call booked with the practice nurse who wants to stop my b12 injections as a recent blood test shows levels that are 'too high'. Can anyone point me to NICE guidelines or smilar that state that once b12 injections have commenced, b12 levels should not be checked? I am diagnosed with pernicious
TFH1
in
Pernicious Anaemia Society
4 years ago
Supplements for endometriosis, detoxification and immune health
Magnesium spray Wellwoman original (for the B vitamins, Zinc and Selenium apparently very important) Also determined to do the
castor
oil
packs regularly, I’ve done this several times and it seems to help, as well as is apparently very good for detoxification which seems to be a major factor with
Magnesium spray Wellwoman original (for the B vitamins, Zinc and Selenium apparently very important) Also determined to do the
castor
oil
packs regularly, I’ve done this several times and it seems to help, as well as is apparently very good for detoxification which seems to be a major factor with
ScarletBlossom
in
Endometriosis UK
4 years ago
Conceiving after Mirena removal
Hello, has anyone has difficulty getting pregnant after having a Mirena coil removed? I’ve never had a baby and would like to conceive and have been trying for 6 months with nothing. My period is so much lighter than before I had the Mirena (although day 1 is medium flow). Would anyone recommend taking
Hello, has anyone has difficulty getting pregnant after having a Mirena coil removed? I’ve never had a baby and would like to conceive and have been trying for 6 months with nothing. My period is so much lighter than before I had the Mirena (although day 1 is medium flow). Would anyone recommend taking
ReubenandBea
in
Fertility Network UK
4 years ago
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No more injections for 3 months
hello, Just wanted to get the thoughts of forum members on this... My b13 levels have gone from undectectable to over 2000 since having 6 loading injections of hydro. I've been tested for the intrinsic factor and should get the results by next week. My GP doesn't want to give me any more injections for
hello, Just wanted to get the thoughts of forum members on this... My b13 levels have gone from undectectable to over 2000 since having 6 loading injections of hydro. I've been tested for the intrinsic factor and should get the results by next week. My GP doesn't want to give me any more injections for
katamarang
in
Pernicious Anaemia Society
4 years ago
Bloods and medication ordered by Oral Medicine Consultant ...refused by GP.
Has anyone experienced this at all? Refusal to prescribe and do bloods? I have been waiting to see an oral medicine consultant since January. Obviously, due to the dreaded, it was, like many appointments, cancelled and put on hold. Thankfully, I have not had to wait too long since easing of lockdown
Has anyone experienced this at all? Refusal to prescribe and do bloods? I have been waiting to see an oral medicine consultant since January. Obviously, due to the dreaded, it was, like many appointments, cancelled and put on hold. Thankfully, I have not had to wait too long since easing of lockdown
Minnskimoo
in
LUPUS UK
4 years ago
Pernicious Anemia with worsening neuropathy. I'm new here.
I was diagnosed by my physician in late February 2020 of pernicious anemia after a follow-up visit to my physician from an emergency room visit approximately 1 week prior. I will try to tell my story without being too lengthy, so here goes. Approximately 3 years ago I began having very brief episodes
I was diagnosed by my physician in late February 2020 of pernicious anemia after a follow-up visit to my physician from an emergency room visit approximately 1 week prior. I will try to tell my story without being too lengthy, so here goes. Approximately 3 years ago I began having very brief episodes
jimmel196
in
Pernicious Anaemia Society
4 years ago
B12 neuro folic acid
Neuro bad symtoms there’s so much different advice around I’m so confused most are saying b12 injections are useless without folic acid or folate ? Others say you don’t need it if your levels are within range So how on earth do you keep track etc if you b12 every other day and if that uses folate you
Neuro bad symtoms there’s so much different advice around I’m so confused most are saying b12 injections are useless without folic acid or folate ? Others say you don’t need it if your levels are within range So how on earth do you keep track etc if you b12 every other day and if that uses folate you
Milley2
in
Pernicious Anaemia Society
4 years ago
Diagnostic tests
Hi everyone, I was wondering which tests people had to reach their diagnosis? I have many of the symptoms and a raised MCH. However, my intrinsic factor test just came back negative today. My B12 levels tend to be around 250. I also have Hashimotos Thyroiditis. My GP says she thinks I don't have PA and
Hi everyone, I was wondering which tests people had to reach their diagnosis? I have many of the symptoms and a raised MCH. However, my intrinsic factor test just came back negative today. My B12 levels tend to be around 250. I also have Hashimotos Thyroiditis. My GP says she thinks I don't have PA and
Auntbessy
in
Pernicious Anaemia Society
4 years ago
Doctors want to stop injections altogether
Hello all, Following my recent post re. contacting my doctor’s surgery about coming back in for injections (for free as usual) rather than self-injecting at home (for £9.15 (and rising) a pop), I’ve received a letter in the post from my GP... She has used this opportunity to write to me informing me
Hello all, Following my recent post re. contacting my doctor’s surgery about coming back in for injections (for free as usual) rather than self-injecting at home (for £9.15 (and rising) a pop), I’ve received a letter in the post from my GP... She has used this opportunity to write to me informing me
amydemi
in
Pernicious Anaemia Society
4 years ago
Pain
Have had pain in my hands and less so in my elbows and shoulders for several months. My GP has spoken on the phone to me and been given voltarol gel which helps a bit. Blood tests show raised inflammatory markers and rheumatoid factor. Have been referred to rheumatology as GP thinks rheumatoid arthritis
Have had pain in my hands and less so in my elbows and shoulders for several months. My GP has spoken on the phone to me and been given voltarol gel which helps a bit. Blood tests show raised inflammatory markers and rheumatoid factor. Have been referred to rheumatology as GP thinks rheumatoid arthritis
Dismal
in
NRAS
4 years ago
Problems sleeping ?
My wife was advised to take fish oil so she went to Costco and got a bottle of Kirkland Krill Oil. After a week or so, she found her sleep had greatly improved. Krill oil and cannabis have made sleeping much better too. Y'all might give it a try. No hangover, unless you chase with Everclear. Cheers
My wife was advised to take fish oil so she went to Costco and got a bottle of Kirkland Krill Oil. After a week or so, she found her sleep had greatly improved. Krill oil and cannabis have made sleeping much better too. Y'all might give it a try. No hangover, unless you chase with Everclear. Cheers
ck722
in
Advanced Prostate Cancer
4 years ago
Peppermint oil - bad reaction
Anyone experienced this? GP prescribed peppermint oil having had IBS for years. Have tried everything else. Made my symptoms (excessive gas, gurgling, trapped wind) much worse. I only took for one day - 0.4ml an hour before lunch and dinner. Should I persevere or abandon?
Anyone experienced this? GP prescribed peppermint oil having had IBS for years. Have tried everything else. Made my symptoms (excessive gas, gurgling, trapped wind) much worse. I only took for one day - 0.4ml an hour before lunch and dinner. Should I persevere or abandon?
BBEliza25
in
IBS Network
4 years ago
Ivf covid postponed trying naturally workout thyroid pcos weight loss help
I'm also applying
castor
oil
and hot water packs to open my one blocked tube before having sex....
I'm also applying
castor
oil
and hot water packs to open my one blocked tube before having sex....
Same0508
in
Fertility Network UK
4 years ago
Where to next?
So I have hit a small impasse with my doctor and I'm not sure where to go next. To summarise where I am in my B12 journey, I was diagnosed B12 deficient almost 1 year ago, I was not given the Intrinsic Factor test before commencing loading doses. I was originally started on normal loading doses, until
So I have hit a small impasse with my doctor and I'm not sure where to go next. To summarise where I am in my B12 journey, I was diagnosed B12 deficient almost 1 year ago, I was not given the Intrinsic Factor test before commencing loading doses. I was originally started on normal loading doses, until
Wolf79
in
Pernicious Anaemia Society
4 years ago
Is it pernicious anemia?
Just confused over my blood results, my b12 went from 197-144 in just one week. My intrinsic factor was 2. I am currently on my third injection and not feeling much better. The nurse says I wasn’t absorbing b12 at all but the gp was very vague in diagnosis. I have a lot of symptoms of PA and have done
Just confused over my blood results, my b12 went from 197-144 in just one week. My intrinsic factor was 2. I am currently on my third injection and not feeling much better. The nurse says I wasn’t absorbing b12 at all but the gp was very vague in diagnosis. I have a lot of symptoms of PA and have done
Jemma28
in
Pernicious Anaemia Society
4 years ago
How long after injections are MMA and Homocysteine tests inaccurate?
I'm having a very hard time finding the answer to this, how long must I go without injections for an MMA or homocysteine test to be accurate? I've read don't supplement before an MMA test but for how long? Background: I just want to know if there's any chance I've invalidated my test results through
I'm having a very hard time finding the answer to this, how long must I go without injections for an MMA or homocysteine test to be accurate? I've read don't supplement before an MMA test but for how long? Background: I just want to know if there's any chance I've invalidated my test results through
nikaoo
in
Pernicious Anaemia Society
4 years ago
B12 deficiency follow up.
Last week I posted about a letter I received from my GP practice telling me I was ‘borderline’ deficient (my level was 121) Anyway, today I finally got to speak with the GP who wrote the letter. She told me that earlier this year, the guidelines changed. People with a reading <115ng/L will still get
Last week I posted about a letter I received from my GP practice telling me I was ‘borderline’ deficient (my level was 121) Anyway, today I finally got to speak with the GP who wrote the letter. She told me that earlier this year, the guidelines changed. People with a reading <115ng/L will still get
MissKota
in
Pernicious Anaemia Society
4 years ago
Statin impact on PSA level
My recurrent prostate cancer is tracked by PSA level and over the past 6 months my PSA level has leveled off to around 2.3. March and June quarterly numbers were identical, and the increase from Dec to March was smaller than expected (0.2 vs 0.5). I was pleasantly surprised with these results but
My recurrent prostate cancer is tracked by PSA level and over the past 6 months my PSA level has leveled off to around 2.3. March and June quarterly numbers were identical, and the increase from Dec to March was smaller than expected (0.2 vs 0.5). I was pleasantly surprised with these results but
Teddy28
in
Advanced Prostate Cancer
4 years ago
Something I've read on a site called "Gutsense" it also talks about fibre
What you‘ve just learned isn‘t an invitation to consume unlimited fats, animal or vegetable alike, as Dr. Atkins once recommended. Dietary fat digests almost completely and the excess is deposited under the skin as fat for storage. The “excess” is the difference between the fat used by the body for energy
What you‘ve just learned isn‘t an invitation to consume unlimited fats, animal or vegetable alike, as Dr. Atkins once recommended. Dietary fat digests almost completely and the excess is deposited under the skin as fat for storage. The “excess” is the difference between the fat used by the body for energy
basten
in
Healthy Eating
4 years ago
Can I take these two together?
Will taking evening primrose oil and the combined pill cause a risk of pregnancy ?
Will taking evening primrose oil and the combined pill cause a risk of pregnancy ?
Candyfloss17
in
Women's Health
4 years ago
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