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PBC/AIH
Hi I habe PBC crossovered with AiH . I understand it’s not hereditary but can run in families . Nobody else in my family has this (that I know of ) should my siblings / children go and get their bloods done ? I wasn’t diagnosed until i had stage 4 cirrhosis… as i had no symptoms , this was picked
Hi I habe PBC crossovered with AiH . I understand it’s not hereditary but can run in families . Nobody else in my family has this (that I know of ) should my siblings / children go and get their bloods done ? I wasn’t diagnosed until i had stage 4 cirrhosis… as i had no symptoms , this was picked
She-66
in
British Liver Trust
7 months ago
PBC/AIH
Hi I habe PBC crossovered with AiH . I understand it’s not hereditary but can run in families . Nobody else in my family has this (that I know of ) should my siblings / children go and get their bloods done ? I wasn’t diagnosed until i had stage 4 cirrhosis… as i had no symptoms , this was picked up
Hi I habe PBC crossovered with AiH . I understand it’s not hereditary but can run in families . Nobody else in my family has this (that I know of ) should my siblings / children go and get their bloods done ? I wasn’t diagnosed until i had stage 4 cirrhosis… as i had no symptoms , this was picked up
She-66
in
PBC Foundation
7 months ago
The Flare That Keeps on Giving
I was diagnosed with PMR in August, 2022. I also have multiple sclerosis, autoimmune thyroid disease (Grave’s) and Sjogren’s Disease. With a few ups and downs when I had to temporarily increase the dose before dropping back to just above where I had been before the flare, my taper using DL’s slow 5 week
I was diagnosed with PMR in August, 2022. I also have multiple sclerosis, autoimmune thyroid disease (Grave’s) and Sjogren’s Disease. With a few ups and downs when I had to temporarily increase the dose before dropping back to just above where I had been before the flare, my taper using DL’s slow 5 week
Donna5658
in
PMRGCAuk
4 months ago
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Low Dose Aspirin for Heart Disease
My cardiologist wants me to take a daily low dose aspirin, but I am hesitant as I have a history of proteinuria. I know the studies are inconclusive as to whether or not it helps (and even my cardiologist admits that), but I have a bad valve and my risk is moderately high for sudden death/stroke. I'm
My cardiologist wants me to take a daily low dose aspirin, but I am hesitant as I have a history of proteinuria. I know the studies are inconclusive as to whether or not it helps (and even my cardiologist admits that), but I have a bad valve and my risk is moderately high for sudden death/stroke. I'm
GoodHealthIsAJourney
in
Early CKD Support
3 months ago
post cabg tiredness
This year after my surgery l was dragging myself around tired first blaming the high dose metoprolol and that got reduced somewhat but it turned out l was iron deficient. I had 3months of iron pills and it improved slightly. Then l stopped taking them because they gave me diarrhoea and it dropped again
This year after my surgery l was dragging myself around tired first blaming the high dose metoprolol and that got reduced somewhat but it turned out l was iron deficient. I had 3months of iron pills and it improved slightly. Then l stopped taking them because they gave me diarrhoea and it dropped again
Jedx
in
British Heart Foundation
9 months ago
Advanced Prostate Cancer
I have Advanced prostate cancer. Prostate removed, radiation, lupron for the last 4 years, Now I am on abiraterone with the lupron, because PSA was up . See Dr in Feb to see if PSA is stable Is anyone else on the 2 drugs Thank you Mark
I have Advanced prostate cancer. Prostate removed, radiation, lupron for the last 4 years, Now I am on abiraterone with the lupron, because PSA was up . See Dr in Feb to see if PSA is stable Is anyone else on the 2 drugs Thank you Mark
Retrievertrainer
in
Advanced Prostate Cancer
7 months ago
Nutrition and Autoimmune Thyroid disease: An expert talk
[i]TONIGHT: Join Nicole Goode, (Sunday 21st April 2024, 7pm) for an informative and engaging online expert talk on nutrition and autoimmune thyroid disease![/i] [i]Book your place via Eventbrite at: [/i] https://www.eventbrite.co.uk/e/nutrition-and-autoimmune-thyroid-disease-talk-by-nicole-goode-registration
[i]TONIGHT: Join Nicole Goode, (Sunday 21st April 2024, 7pm) for an informative and engaging online expert talk on nutrition and autoimmune thyroid disease![/i] [i]Book your place via Eventbrite at: [/i] https://www.eventbrite.co.uk/e/nutrition-and-autoimmune-thyroid-disease-talk-by-nicole-goode-registration
helvella
Thyroid UK
in
Thyroid UK
4 months ago
Paroxysmal atrial fribulation
Me again all taking 1.25 mg of bisoprolol and 120 mmg of digoxin afib seems to be better at the moment still getting a few ectopic s working on these some how as nothing left in the medication bucket of the nhs at the moment just a general question my sleeping bpm seems to be about 44 to 50 anyone
Me again all taking 1.25 mg of bisoprolol and 120 mmg of digoxin afib seems to be better at the moment still getting a few ectopic s working on these some how as nothing left in the medication bucket of the nhs at the moment just a general question my sleeping bpm seems to be about 44 to 50 anyone
Aprilla12345
in
Atrial Fibrillation Support
3 months ago
Warfarin
Has anyone experienced Warfarin failing you more than once? I have had three different instances where I had large clots in my lungs while on it. I am still on it (after my coverage from work denied paying for Framing injections - the only anticoagulant that hasn't failed me). Just wondering if this
Has anyone experienced Warfarin failing you more than once? I have had three different instances where I had large clots in my lungs while on it. I am still on it (after my coverage from work denied paying for Framing injections - the only anticoagulant that hasn't failed me). Just wondering if this
Willow7733
in
Hughes Syndrome APS Forum
3 months ago
I NEVER LEARN
Hello everyone, It's 5:44 AM in California and the paramedics have just left. I called them as while lying in bed I felt nauseous, and stomach felt odd so I put my oximeter on my finger and watched it go down to 29 and then back up to baseline HR for me of 50 and it really freaked me out but I tried
Hello everyone, It's 5:44 AM in California and the paramedics have just left. I called them as while lying in bed I felt nauseous, and stomach felt odd so I put my oximeter on my finger and watched it go down to 29 and then back up to baseline HR for me of 50 and it really freaked me out but I tried
kocoach
in
Atrial Fibrillation Support
3 months ago
Lupus rash?
I have suffered many different symptoms for a period approaching 15 years. About 4 years ago my GP said that I had too many symptoms across multiple systems and there was nothing more he could do for me. He referred me to the hospital but I’m still waiting four years down the line. I discussed Lupus
I have suffered many different symptoms for a period approaching 15 years. About 4 years ago my GP said that I had too many symptoms across multiple systems and there was nothing more he could do for me. He referred me to the hospital but I’m still waiting four years down the line. I discussed Lupus
Dontknowwhattodo
in
LUPUS UK
4 months ago
Looking at DHEA again and the Cortisol link popped up...
[i]"When one takes DHEA it can combat the production of another hormone called cortisol. Cortisol is the stress hormone. Higher levels of cortisol is usually present in the body when the levels of DHEA decline. If a high level of cortisol is allowed to circulate freely in the body it can damage the endocrine
[i]"When one takes DHEA it can combat the production of another hormone called cortisol. Cortisol is the stress hormone. Higher levels of cortisol is usually present in the body when the levels of DHEA decline. If a high level of cortisol is allowed to circulate freely in the body it can damage the endocrine
TiggerMe
in
Thyroid UK
7 months ago
update on switching to digoxin from lopressor
Stopped digoxin this am and starting back on lopressor. bad heartburn and nausea just kept getting worse. Lots of hydrating and will explore ablation. Really felt sick on digoxin. Although don't feel generally great this was really not a good experience.
Stopped digoxin this am and starting back on lopressor. bad heartburn and nausea just kept getting worse. Lots of hydrating and will explore ablation. Really felt sick on digoxin. Although don't feel generally great this was really not a good experience.
farewelltoarms
in
Atrial Fibrillation Support
3 months ago
Puzzling Tachycardia
Hi Everybody, I hope someone in this lovely community will be able to help me understand my puzzling tachycardia. Just to give you some background. I have been diagnosed with paroxysmal AFIB little over five years ago. I have been on Amiodarone (100 mg) for the past four years. Amiodarone helps, but
Hi Everybody, I hope someone in this lovely community will be able to help me understand my puzzling tachycardia. Just to give you some background. I have been diagnosed with paroxysmal AFIB little over five years ago. I have been on Amiodarone (100 mg) for the past four years. Amiodarone helps, but
Ruza2020
in
Atrial Fibrillation Support
3 months ago
There is hope
This is on my bio but thought I would copy you all in. I've never posted before but wanted to share this. I have never asked a question but have learnt so much on here that has helped me to support my husband through a very rough time in our 35 year marriage. A total change in life style and we are
This is on my bio but thought I would copy you all in. I've never posted before but wanted to share this. I have never asked a question but have learnt so much on here that has helped me to support my husband through a very rough time in our 35 year marriage. A total change in life style and we are
Oldbits
in
British Liver Trust
7 months ago
Slowly Reducing Antiarrhythmic medications
I had an abalation just on 3 months ago. After the first month my EP advised I can start reducing my medication which is Flecainide and Dilitiazem and he did not need to see me anymore. I am now taking 50mg Flec. and was initially taking 100mg. By July I should be medication free. I have had some
I had an abalation just on 3 months ago. After the first month my EP advised I can start reducing my medication which is Flecainide and Dilitiazem and he did not need to see me anymore. I am now taking 50mg Flec. and was initially taking 100mg. By July I should be medication free. I have had some
Murphy10
in
Atrial Fibrillation Support
3 months ago
May- Vasculitis Awareness Month
May - Day 28 Vasculitis Awareness Month HUV is a more severe type of vasculitis and almost always affects females. Vasculitis is a challenging illness to live with: ''Living with vasculitis is a hard task with a lot of ups and downs, and the future feels quite frightening. Now, six years on, I have
May - Day 28 Vasculitis Awareness Month HUV is a more severe type of vasculitis and almost always affects females. Vasculitis is a challenging illness to live with: ''Living with vasculitis is a hard task with a lot of ups and downs, and the future feels quite frightening. Now, six years on, I have
zoe69
Vasculitis UK
in
Vasculitis UK
3 months ago
Advice, please!
Over the past four months I’ve had a very painful knee. I have a doctor’s appointment next week. I suspect it is osteoarthritis (I’m 68). I’m also aware that other joints, particularly my shoulders, are also aching, especially when I get up in the mornings. I am taking 60 mg Lixiana, 1.25 mg Bisoprolol
Over the past four months I’ve had a very painful knee. I have a doctor’s appointment next week. I suspect it is osteoarthritis (I’m 68). I’m also aware that other joints, particularly my shoulders, are also aching, especially when I get up in the mornings. I am taking 60 mg Lixiana, 1.25 mg Bisoprolol
Rog65
in
Atrial Fibrillation Support
3 months ago
calming a fibs
So, I am having a fibs right now 9:30 at night in the USA. Heart rate went up to 137, then down to 80s 90's jumping all around. Could feel it racing and I was short of breath. My question is this: WHAT CAN I DO TO CALM ALL THIS DOWN? HOW DO I STOP THE ANXIETY WHILE IT IS HAPPENING? I just drank
So, I am having a fibs right now 9:30 at night in the USA. Heart rate went up to 137, then down to 80s 90's jumping all around. Could feel it racing and I was short of breath. My question is this: WHAT CAN I DO TO CALM ALL THIS DOWN? HOW DO I STOP THE ANXIETY WHILE IT IS HAPPENING? I just drank
peachtreepiggy
in
Atrial Fibrillation Support
3 months ago
Heartburn from Digoxin
On Digoxin 2 plus weeks. Blood level fine. Am having constant heartburn/nausea. My Dr said not a usual side effect. Tough it out? or go back on Lopressor which had its own side effects. Many say it will get better. Permanent persistent afib.
On Digoxin 2 plus weeks. Blood level fine. Am having constant heartburn/nausea. My Dr said not a usual side effect. Tough it out? or go back on Lopressor which had its own side effects. Many say it will get better. Permanent persistent afib.
farewelltoarms
in
Atrial Fibrillation Support
3 months ago
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