post cabg tiredness

[Jedx]

This year after my surgery l was dragging myself around tired first blaming the high dose metoprolol and that got reduced somewhat but it turned out l was iron deficient. I had 3months of iron pills and it improved slightly. Then l stopped taking them because they gave me diarrhoea and it dropped again my cardiologist said he thought l was celiac so l told my GP and sure enough l tested positive to celiac.

So lm now waiting for an appointment with a gastroenterologist. Man lm collecting these specialists at a rate of knots it’s kinda scary. Anyone have any experience with celiac?

[scentedgardener]

Personally I don't have it, it was suspected but my tests were clear. I may have a degree of wheat intolerance and give myself a holiday from it every few months, but that is completely different to coeliac disease. (Sorry that's how we spell it in the UK). My niece, however, does have it, and because it went undiagnosed for so long she is also lactose intolerant, and there is quite a long list of things she can't eat now, like onion and garlic which are the only two I can remember at this moment.Good luck with it all.

[Jedx in reply to scentedgardener]

Thanks scented Gardner l am already lactose intolerant and l sometimes thought my stomach troubles were from that but obviously combination of both geeze Louise

Thanks for the tip about garlic and onions l wasn’t aware that they were a problem as well. My dr is testing me for cancer markers in my thyroid l just hope that comes back clear otherwise it’s Houston we have a problem! Thanks once again.

[scentedgardener in reply to Jedx]

You won't automatically have problems with garlic and onions, just trying to illustrate that all sorts of things can result from coeliac disease. It apparently comes from damage to the villiae(spelling?) in the gut.Hope you get the all clear from cancer.

[Jedx in reply to scentedgardener]

Thanks same here will know in December

[quirk13]

My wife is coeliac and as I do all the cooking I've got pretty good in the last 35 years. You will need to stick to a strict gluten free diet but if you do that you will be fine. My advice is to look to meals that are naturally gluten free, so that's all veg, fruit, unprocessed meats, dairy. The gluten free alternatives to bread are pretty yuk. Pea and lentil pasta are pretty good, we use those because they taste ok and are high in protein. If you are going to try gluten free flour recipes that make a batter work better than pastry and bread. Do a bit of research and you'll be fine. Good luck

[Jedx in reply to quirk13]

Thanks for your reply quirk13 it must have been difficult going gluten free so long ago there are a lot of alternatives now but not all of them are 100% safe. I went to Bakers Delight and asked for gluten free bread and was asked if l had gluten intolerance or was coeliac l said coeliac and was told they couldn’t sell me their bread because of cross contamination with other flour. So l do cook my own food mainly vegetables and lentils chick peas beans rice not much of a meat eater. I have lactose intolerance as well been like that for years but l wonder how long lve been coeliac for l was blaming eggs when it was the bread surrounding them lol. Onwards and upwards.

[trafar]

My brother in law has it and has a gluten free diet and lives a very normal illness free life.

[Ironfloor173]

Apart from what you cook yourself, you need to be very careful when you are eating out at friends and espically restaurants. Its worth going to restaurants that offer a gluton free menu. With any others you will need to feel very confident they know what they are doing, including cross contamination with equipemnt etc. We used a double toaster to avoid cross contamination and never cook gluton free products in the same pan etc as non gluton free. Its really a matter of getting into a system and remembering it.

[Jedx in reply to Ironfloor173]

Thanks ironfloor173, now that’s the trick remembering l have been lactose intolerant for years but when l first realised it l would have an ice cream forgetting that l shouldn’t and would be cramping and running to the loo afterwards. Sometimes it takes time to sink in now l wouldn’t dream of eating one. So l guess my journey with gluten free might be similar but l hope not, as l have been quite unwell and very anaemic from being unable to absorb the nutrients in my food. Luckily l don’t eat out very often l prefer to cook my own meals from scratch lots of vegetables beans lentils fruits and stuff like that.

[MountainGoat52]

Hi Jedx,

My daughter is celiac, diagnosed when she was pregnant and thought to be set off by the pregnancy. Recently she has developed a lactose intolerance as well, so the regimes we have with food when she and her sons come to stay are many. Add to that my wife's mother who basically lives on fat, sugar and salt and it can get quite crazy.... we often have 5 different milks in the fridge!

Ironfloor173 has given some excellent advice. There is a celiac society - should be easy to find on the internet. My daughter found their advice very useful. Things like having separate toasters becomes part of life. My daughter also likes us to use plastic spoons for mixing food as wooden ones can apparently harbour gluten. Rinsing crockery, utensils, etc after washing up helps as well.

The big downer is that we cannot go out for a meal except to those places that are totally aware of gluten free requirements. My daughter takes her own food when attending courses for work, etc. Of course in the home those family members with normal dietary requirements can eat gluten free food which makes life much easier.

Kind regards,

Gerald

[Jedx in reply to MountainGoat52]

Thanks Gerald l didn’t know about wooden spoons so they will be removed from my kitchen forthwith. As l live on my own it’s pretty easy as far as milk goes lol. Although l also am lactose intolerant so my diet is becoming even more restrictive the thing for me is that l need to remember not to eat those scones for morning tea or that biscuit l just happen to be offered at my friends house. I will have to make my own and take with me that would be the best bet. It may be hit and miss for awhile but hopefully l will adjust thanks for the tips l appreciate it greatly.

[MountainGoat52 in reply to Jedx]

Hi Jedx,

One thing to bear in mind is that other people will probably not undersfand, so you will have to work around their offers to meet up for a meal and no doubt you will get unsuitable gifts of food and drink now and then. My daughter is always trying to educate her friends that she can't have certain foods and also that it is not a life choice like being vegetarian or vegan is.

I hope the dietician can lead you in the right direction as far as interesting, tasty and nutrious foods are concerned. If you fjnd that you end up needing help in that direction, do feel free to drop me a personal message and I will get my daughter to jot down some leads. Thankfully the world is increasingly becoming aware and more and more gluten free products are becoming available, though cost can be an issue in some instances.

All the besf,

Gerald

[Jedx]

thanks Gerald,

Yes there are a lot of gluten free alternatives out there l am still learning what l can and can’t eat. After two weeks gluten free diet l had a handful of crisps with my salad and oh dear l hour later cramps and runs to the loo. It was quite a wake up call let me tell you. Now l check the labels on everything. Onwards and upwards.