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What do you think?
I’ve been on Lupron and Xgeva since 2014 and have had many other treatments along the way. As my PSA rose I found my best treatment was Xtandi. I had pretty good results from 2017 to 2020 , then my PSA moved upward again. Looks like I’m going to fail with Nubeqa, which I have been on for 2 1/2 months
I’ve been on Lupron and Xgeva since 2014 and have had many other treatments along the way. As my PSA rose I found my best treatment was Xtandi. I had pretty good results from 2017 to 2020 , then my PSA moved upward again. Looks like I’m going to fail with Nubeqa, which I have been on for 2 1/2 months
docbulldog
in
Advanced Prostate Cancer
7 months ago
Have the new guide-lines on B12 deficiency/ Pernicious Anaemia been published yet?
They have been so delayed. .
They have been so delayed. .
wedgewood
in
Pernicious Anaemia Society
4 months ago
Apple watch and Kardia questions
I saw my cardiologist yesterday and we have agree although no AF yet (maybe A flutter) on 24hr ECG getting a watch and maybe a kardia is a good idea. I am planning to buy the watch and the local apple shop ( Edinburgh UK) and wanted to ask a few questions before hand. Ive read some on what the watch
I saw my cardiologist yesterday and we have agree although no AF yet (maybe A flutter) on 24hr ECG getting a watch and maybe a kardia is a good idea. I am planning to buy the watch and the local apple shop ( Edinburgh UK) and wanted to ask a few questions before hand. Ive read some on what the watch
ainslie
in
Atrial Fibrillation Support
3 months ago
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cardioversion
hi, I had my first Cardioversion at St Richards Chichester on 11th March. (First diagnosed early January but probably been in AF since Sept) It worked initially but reverted to AF very shortly after. Since watching the very helpful video interview on this site with Prof Gupta, now realise that most revert
hi, I had my first Cardioversion at St Richards Chichester on 11th March. (First diagnosed early January but probably been in AF since Sept) It worked initially but reverted to AF very shortly after. Since watching the very helpful video interview on this site with Prof Gupta, now realise that most revert
Ongreendolphinstreet
in
Atrial Fibrillation Support
3 months ago
Heart problems
Has anybody else experienced heart problems with an MPN?I have been having heart palpitations and more severe breathlessness than usual for about 6 months. An x-ray showed an enlarged heart and I've been awaiting the results of an echocardiogram since January, but repeated calls to the hospital and
Has anybody else experienced heart problems with an MPN?I have been having heart palpitations and more severe breathlessness than usual for about 6 months. An x-ray showed an enlarged heart and I've been awaiting the results of an echocardiogram since January, but repeated calls to the hospital and
JP1952
in
MPN Voice
3 months ago
HEP B TREATMENTS
Hi, I saw my doctor today. I have had HEP B for many years. My doctor was only monitoring it. Today he told me that he is very concerned about my ALT levels. He recommend to start antiviral medications now as he is concerned about the cancer risk. I asked him if I will be taking them for the rest of
Hi, I saw my doctor today. I have had HEP B for many years. My doctor was only monitoring it. Today he told me that he is very concerned about my ALT levels. He recommend to start antiviral medications now as he is concerned about the cancer risk. I asked him if I will be taking them for the rest of
LittleShrew
in
British Liver Trust
7 months ago
First PSA test post radiation and Orgovyx
My husband had his first PSA test today… about a month after 28 proton radiation treatments, and over two months on Orgovyx… Result: <0.10 This seems really good to us! ( last PSA was 46.6 before treatment) Does it sound like a good result to all of you at this stage? Meeting with medical oncology
My husband had his first PSA test today… about a month after 28 proton radiation treatments, and over two months on Orgovyx… Result: <0.10 This seems really good to us! ( last PSA was 46.6 before treatment) Does it sound like a good result to all of you at this stage? Meeting with medical oncology
CancerConcierge
in
Advanced Prostate Cancer
7 months ago
COVID
I just tested positive for COVID for the first time. I am 67 with Afib/flutter, Inappropriate SinnTschycardia,, I take 25 mg of Metoprolol and -25 mg of klonopin for anxiety. I take 81 mg of aspirin. I have the Atriclip that occluded my left atrial appendage, as I had a near fatal hemorrhage with Eliquis
I just tested positive for COVID for the first time. I am 67 with Afib/flutter, Inappropriate SinnTschycardia,, I take 25 mg of Metoprolol and -25 mg of klonopin for anxiety. I take 81 mg of aspirin. I have the Atriclip that occluded my left atrial appendage, as I had a near fatal hemorrhage with Eliquis
KatzFib
in
Atrial Fibrillation Support
3 months ago
Looking for feedback regarding Asymptomatic Afib
I'm fairly new to this forum and I already feel at home. It's very refreshing to find an online community whose members are so kind, understanding and generous. By way of introduction, I'm a 69-year-old male living in Connecticut. My Afib history is as follows: Diagnosed with Afib by PCP - 8/9/
I'm fairly new to this forum and I already feel at home. It's very refreshing to find an online community whose members are so kind, understanding and generous. By way of introduction, I'm a 69-year-old male living in Connecticut. My Afib history is as follows: Diagnosed with Afib by PCP - 8/9/
DrBook
in
Atrial Fibrillation Support
3 months ago
Half moons on fingers
Hey guys, I have an underactive thyroid and know the importance of getting vitamin levela checked Is it true that lack of or small half moons can be a sign of deficiencies? Just took a photo or my fingers, what do people think? If zoomed in, can just about see half moon on some
Hey guys, I have an underactive thyroid and know the importance of getting vitamin levela checked Is it true that lack of or small half moons can be a sign of deficiencies? Just took a photo or my fingers, what do people think? If zoomed in, can just about see half moon on some
yewotc23
in
Thyroid UK
4 months ago
Advice needed on thyroxine management
I am hoping someone can advise me about my thyroxine dose. Here's a little background: In September 2023, I was underweight and having trouble gaining weight and suffering from anxiety. I had been on 75mcg of levothyroxine daily for an underactive thyroid. I had recently developed pins and needles
I am hoping someone can advise me about my thyroxine dose. Here's a little background: In September 2023, I was underweight and having trouble gaining weight and suffering from anxiety. I had been on 75mcg of levothyroxine daily for an underactive thyroid. I had recently developed pins and needles
SarrahMay
in
Thyroid UK
4 months ago
Prednisone for treatment of AIG
I've just been started on Prednisone or Prednisolone, immunosuppressant steroids, for treatment of Autoimmune Gastritis/autoimmune PA. This has recently, within the last few years been shown to possibly heal AIG, although not entirely cure. It is also used to prevention immune system rejection of organ
I've just been started on Prednisone or Prednisolone, immunosuppressant steroids, for treatment of Autoimmune Gastritis/autoimmune PA. This has recently, within the last few years been shown to possibly heal AIG, although not entirely cure. It is also used to prevention immune system rejection of organ
Rexz
in
Pernicious Anaemia Society
4 months ago
Lupron and prostate cancer
hi everyone. im a 67 year old man taking Lupron hormone deprivation for prostate cancer. i finished receiving 20 external beam radiation treatments in August 2023. the Lupron injections are quarterly and will continue for 18-24 months. my interest in sex has completely dropped off. i assume this is normal
hi everyone. im a 67 year old man taking Lupron hormone deprivation for prostate cancer. i finished receiving 20 external beam radiation treatments in August 2023. the Lupron injections are quarterly and will continue for 18-24 months. my interest in sex has completely dropped off. i assume this is normal
rolex1951
in
Advanced Prostate Cancer
7 months ago
Lupus flare
Hi has anyone experience a lupus flare which was tiggered by a suspected infection? Ended up in hospital but they couldnt detect where the infection / virus was dispite full blood tests, urine tests as well as blood and urine culuture tests. Pretty scary.Thanks
Hi has anyone experience a lupus flare which was tiggered by a suspected infection? Ended up in hospital but they couldnt detect where the infection / virus was dispite full blood tests, urine tests as well as blood and urine culuture tests. Pretty scary.Thanks
Flows
in
LUPUS UK
4 months ago
sulfasalazine side effects
Hi. I am on sulfasalazine for mixed connective tissue disease (similar to rheumatoid arthritis and lupus), which I started taking again after many years of my disease being in remission. I was initially on sulfasalazine 10 years ago and it is a horrid medication. Was, and am again, terribly dizzy
Hi. I am on sulfasalazine for mixed connective tissue disease (similar to rheumatoid arthritis and lupus), which I started taking again after many years of my disease being in remission. I was initially on sulfasalazine 10 years ago and it is a horrid medication. Was, and am again, terribly dizzy
girldoc
in
NRAS
4 months ago
New here 🤗
Hi everyone, I’m looking for any information about bloods and Thyroid please. I was diagnosed in 2017 with chronic pain, chronic fatigue and osteoarthritis. I have tried all pain medications the NHS has, and nothing touches the pain. I have had horrendous pain in my feet, left one for over a year,
Hi everyone, I’m looking for any information about bloods and Thyroid please. I was diagnosed in 2017 with chronic pain, chronic fatigue and osteoarthritis. I have tried all pain medications the NHS has, and nothing touches the pain. I have had horrendous pain in my feet, left one for over a year,
Pammygtf
in
Thyroid UK
4 months ago
updated journey
I’m getting so frustrated with this underactive thyroid. My only symptom before I was diagnosed again was unexplained weight gain. I had put on half a stone but hadn’t changed any habits. After starting on levothyroxine I put on another 2 stone. This may have been made worse due to all my joints seizing
I’m getting so frustrated with this underactive thyroid. My only symptom before I was diagnosed again was unexplained weight gain. I had put on half a stone but hadn’t changed any habits. After starting on levothyroxine I put on another 2 stone. This may have been made worse due to all my joints seizing
ScriptMaz
in
Thyroid UK
4 months ago
weight loss wehovy and AF medication
Started to post and it’s got very long and I mentioned this in that post but I thought I’d make a separate post. I am in atrial fibrillation in the other post. I talk about my age of my weight but this is a specific thing I’m back in atrial fibrillation after 12 weeks of being in normal rhythm. After
Started to post and it’s got very long and I mentioned this in that post but I thought I’d make a separate post. I am in atrial fibrillation in the other post. I talk about my age of my weight but this is a specific thing I’m back in atrial fibrillation after 12 weeks of being in normal rhythm. After
Mightnot
in
Atrial Fibrillation Support
3 months ago
B12 stored in liver ?
Hi I'm getting a little confused and trying to understand what is actually measured with blood tests... Does a serum Total B12 reflect what is or isn't stored in the liver at the time of the test or just what is circulating ? Does an Active B12 test measure the store differently, is the store in
Hi I'm getting a little confused and trying to understand what is actually measured with blood tests... Does a serum Total B12 reflect what is or isn't stored in the liver at the time of the test or just what is circulating ? Does an Active B12 test measure the store differently, is the store in
Spritze
in
Thyroid UK
7 months ago
Lopressor
After unsuccessful Cardioversion to convert back into NSR was diagnosed with permanent afib taken off of Multaq. Lopressor increased from 25 to 100 am and 50 pm. Also on Eliquis. Vision is blurred and very unsteady gait. Hr around 100-115 (was 60 when in NSR) Can I cut back on Lopressor and see
After unsuccessful Cardioversion to convert back into NSR was diagnosed with permanent afib taken off of Multaq. Lopressor increased from 25 to 100 am and 50 pm. Also on Eliquis. Vision is blurred and very unsteady gait. Hr around 100-115 (was 60 when in NSR) Can I cut back on Lopressor and see
farewelltoarms
in
Atrial Fibrillation Support
3 months ago
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