My mother will turn 75 years old and has been battling with PSP for probably 7 years. She has had pneumonia twice and can barely be understood when she tries to speak. It is painful for me to even be near her as she is such a shadow of her former self. We are living in Mexico where she has wonderful caretakers and is living in her own home but I am afraid she is going to need palliative care and they do not give it here. She can not cough to clear her throat and I am afraid it is a matter of time before her pneumonia comes back and she can not get rid of it. I am just worried about how things will unfold with no hospice....and what i can do at home.
I want her to be comfortable and not suffer.....and some days I see her and she has her eyes wide open and seems to be more aware than others, and other days she has her eyes open but nobody is home.
This is such a terrible disease...really I have never seen anyone as bad as my mother and it is tearing me apart inside to see someone I love so much living with this.