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A catchup on my hospital outcome
Hi everyone as promised a catch up on my visit to hospital on Wednesday. Unfortunately the biopsy was not clear it is confirmed I have adenocarcenoma of the lung. To be referred to oncology for radiotheraphy , if this makes me ill will just be left with palliative care treatment. So have to have
Hi everyone as promised a catch up on my visit to hospital on Wednesday. Unfortunately the biopsy was not clear it is confirmed I have adenocarcenoma of the lung. To be referred to oncology for radiotheraphy , if this makes me ill will just be left with palliative care treatment. So have to have
katieoxo60
in
Lung Conditions Community Forum
4 months ago
Offered palliative care only
Dear all, Writing to ask if anyone may have an answer to this: My mum 76 years old who was very active and healthy, currently living in Chile deteriorated very quickly while I was visiting last Christmas 2023. Left body side weak so after an emergency visit to neurologist and imaging got discovered
Dear all, Writing to ask if anyone may have an answer to this: My mum 76 years old who was very active and healthy, currently living in Chile deteriorated very quickly while I was visiting last Christmas 2023. Left body side weak so after an emergency visit to neurologist and imaging got discovered
NJRV
in
Glioblastoma Support
4 months ago
IBS/Covid/Stress - Help!
Hi, I've just come across this forum and I'm hoping that you kind folks can give me a virtual hug and some kind words. To sum it up as briefly as possible, I am 48 and have had IBS for 28 years. Its always there in the background but I used to get serious flare ups that lasted for months if there was
Hi, I've just come across this forum and I'm hoping that you kind folks can give me a virtual hug and some kind words. To sum it up as briefly as possible, I am 48 and have had IBS for 28 years. Its always there in the background but I used to get serious flare ups that lasted for months if there was
MidnightReader
in
IBS Network
4 months ago
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My Cancer Journey Repost
It's time for a repost of my two-part cancer journey diary. Some "starting the journey readers" might find it helpful. Originally posted as two Health Unlocked "replies" - maybe I should make them an actual full "post". So I am pleased to report that
other than fatigue, I feel sort of normal right
It's time for a repost of my two-part cancer journey diary. Some "starting the journey readers" might find it helpful. Originally posted as two Health Unlocked "replies" - maybe I should make them an actual full "post". So I am pleased to report that
other than fatigue, I feel sort of normal right
JohnInTheMiddle
in
Advanced Prostate Cancer
4 months ago
Experience/Opinions on: Pembrolizumab + Lenvatinib for NEPC/SCPC
In January I was diagnosed with SCPC with liver metastasis. My first line of treatment was Platinum based chemo (carboplatin+etoposide). This treatment failed after 3 infusions with radiographic progression on CT Scan. ----- ... HEPATOBILIARY: Innumerable bilobar hepatic metastasis have progressed
In January I was diagnosed with SCPC with liver metastasis. My first line of treatment was Platinum based chemo (carboplatin+etoposide). This treatment failed after 3 infusions with radiographic progression on CT Scan. ----- ... HEPATOBILIARY: Innumerable bilobar hepatic metastasis have progressed
skiingfiend
in
Advanced Prostate Cancer
4 months ago
refusing treatment how fast do people decline?
hubby has ARLD he was on the transplant list but took himself off due to PTSD. He is not drunk alcohol for two years since he was first hospitalised with decompensated liver he has no acides or varies for the last 18 months. he has had HE the whole time and is treated for this. he was doing okay. He
hubby has ARLD he was on the transplant list but took himself off due to PTSD. He is not drunk alcohol for two years since he was first hospitalised with decompensated liver he has no acides or varies for the last 18 months. he has had HE the whole time and is treated for this. he was doing okay. He
Bluescarf123
in
British Liver Trust
5 months ago
My story
My beautiful sister in law has after a long journey been diagnosed with PSP initially a Parkinson diagnosis a year ago after many falls, but in February a consultant neurologist confirmed this awful disease. She is now at the Palliative care stage. It's heart breaking watching her decline.
My beautiful sister in law has after a long journey been diagnosed with PSP initially a Parkinson diagnosis a year ago after many falls, but in February a consultant neurologist confirmed this awful disease. She is now at the Palliative care stage. It's heart breaking watching her decline.
Flowers2024
in
PSP Association
5 months ago
Surviving cancer: some options for you to consider
I just want to share with you all, that I was diagnosed with a T3 (5cm) Tumour called Adenocarcinoma, situated in the junction of the lower oesophagus and upper G. I (stomach) in January. Last year I kept complaining of : chest pains, sore tongue and throat, thick mucus and not being able to gain weight
I just want to share with you all, that I was diagnosed with a T3 (5cm) Tumour called Adenocarcinoma, situated in the junction of the lower oesophagus and upper G. I (stomach) in January. Last year I kept complaining of : chest pains, sore tongue and throat, thick mucus and not being able to gain weight
Artiquety
in
Oesophageal & Gastric Cancer
5 months ago
update from Ruffabug (End of life plan)
A big thank you to those who kindly replied to my post of a couple weeks ago entitled HELP PLEASE TO REDUCE DOSE OF NEUPRO .To remind you I have terminal cancer with roughly six to nine months life expectancy. After reading your replies I decided not to try to reduce the Dopamine Agonist Receptor drugs
A big thank you to those who kindly replied to my post of a couple weeks ago entitled HELP PLEASE TO REDUCE DOSE OF NEUPRO .To remind you I have terminal cancer with roughly six to nine months life expectancy. After reading your replies I decided not to try to reduce the Dopamine Agonist Receptor drugs
Ruffabug
in
Restless Legs Syndrome
5 months ago
Just saying hello as a new member
I was just recently diagnosed with MBC in January 2024 but no stranger to breast cancer as I had already had a tangle with (what I was assured was a very low risk) breast cancer back in 2014 and underwent surgery for a lumpectomy and a subsequent regimen of 6 1/2 weeks of m-f radiation. I thought all
I was just recently diagnosed with MBC in January 2024 but no stranger to breast cancer as I had already had a tangle with (what I was assured was a very low risk) breast cancer back in 2014 and underwent surgery for a lumpectomy and a subsequent regimen of 6 1/2 weeks of m-f radiation. I thought all
CatLoverinthe206
in
SHARE Metastatic Breast Cancer
6 months ago
Palliative care
We have a home visit booked for this afternoon for a palliative care plan to be put together. Does anyone have any words of wisdom or tips for us please? Thank you in advance x
We have a home visit booked for this afternoon for a palliative care plan to be put together. Does anyone have any words of wisdom or tips for us please? Thank you in advance x
Italiansunsets
in
PSP Association
6 months ago
Hiccups
What medication can be used to cure persistent hiccups? Patient is not mobile and incontinent. No idea when death may occur. Or how. Hiccups are making him vomit. Wits end and hardly any sleep trying to cope. Palliative care in day for washing and pad changes. District nurse, when rarely tracked down
What medication can be used to cure persistent hiccups? Patient is not mobile and incontinent. No idea when death may occur. Or how. Hiccups are making him vomit. Wits end and hardly any sleep trying to cope. Palliative care in day for washing and pad changes. District nurse, when rarely tracked down
Fred12344
in
British Liver Trust
6 months ago
I’m Coco & today Joolsg suggested I post re upcoming NHS Iron Infusion
Hello RLS people I’ve been here for a while reading & learning, getting the impression this is a very well informed serious & supportive community. You’ve helped me understand a lot…but am very aware there’s lots more to get my head around, so thanks for being here! now am about to have this IV
Hello RLS people I’ve been here for a while reading & learning, getting the impression this is a very well informed serious & supportive community. You’ve helped me understand a lot…but am very aware there’s lots more to get my head around, so thanks for being here! now am about to have this IV
Barnclown
in
Restless Legs Syndrome
6 months ago
Meeting with our oncologist for castrate resistance metastatic prostate cancer
We met with my Dad's MO yesterday. (Diagnosed 10/22 with advanced metastatic cancer, became castrate resistant about a year ago.) He shared that the Xtandi is still blocking some cancer growth, but not all of it. His PSA is 2.8 (currently doubling every four weeks.) His PetScan shows some growth (
We met with my Dad's MO yesterday. (Diagnosed 10/22 with advanced metastatic cancer, became castrate resistant about a year ago.) He shared that the Xtandi is still blocking some cancer growth, but not all of it. His PSA is 2.8 (currently doubling every four weeks.) His PetScan shows some growth (
lgutman
in
Advanced Prostate Cancer
6 months ago
In need of a hug
I am sitting with my dad tonight in hospital. He is getting palliative care for inoperable brain bleeds. The night is so dark (no moonlight) and the feelings of gloom and helplessness seems darker and heavier than the day before.
I am sitting with my dad tonight in hospital. He is getting palliative care for inoperable brain bleeds. The night is so dark (no moonlight) and the feelings of gloom and helplessness seems darker and heavier than the day before.
blackcat64013
in
Anxiety and Depression Support
7 months ago
Docxtel triple therapy?
Thank you for sharing your thoughts. My dad--81, advanced metastatic castrate resistant Diagnosed at 79 with stage 4 met 8 bones, including skull, no Gleason, never even saw a urologist. Diagnosed in ER and sent straight to the oncologist and palliative care doctor. PSA initially at 137 Lupron
Thank you for sharing your thoughts. My dad--81, advanced metastatic castrate resistant Diagnosed at 79 with stage 4 met 8 bones, including skull, no Gleason, never even saw a urologist. Diagnosed in ER and sent straight to the oncologist and palliative care doctor. PSA initially at 137 Lupron
lgutman
in
Advanced Prostate Cancer
7 months ago
Moving on to hospice care
many of you have heard from me before at this point. My dad (68, diagnosed almost 2 years ago) had his last appointment with his MO two weeks ago or so. Radium 223 is out of the picture for him as he is just not well and it would not aid his survival at this point. They suggested some radiation for the
many of you have heard from me before at this point. My dad (68, diagnosed almost 2 years ago) had his last appointment with his MO two weeks ago or so. Radium 223 is out of the picture for him as he is just not well and it would not aid his survival at this point. They suggested some radiation for the
StayingSTRNG
in
Advanced Prostate Cancer
7 months ago
Butron patch
hi I’ve had the hospice nurse around this week and les is now under the palliative care team , she’s prescribed Butron Parches for les along with morphine tablets for under the tongue and then injection vials , I’ve no idea why the vials as obviously it’s not for me to administer, I worry that they
hi I’ve had the hospice nurse around this week and les is now under the palliative care team , she’s prescribed Butron Parches for les along with morphine tablets for under the tongue and then injection vials , I’ve no idea why the vials as obviously it’s not for me to administer, I worry that they
DeeMilo25
in
Multiple System Atrophy Trust
7 months ago
High volume, advanced metastatic prostate cancer
Hello. I am looking for guidance. My dad (now 81) was diagnosed with metastatic prostate cancer at the initial point of diagnosis in the ER on 10/25/2022. It had spread to 8 bones and was all over his spine, hip, base of skull, etc, but also as far as the base of the skull, and shoulder. His PSA was
Hello. I am looking for guidance. My dad (now 81) was diagnosed with metastatic prostate cancer at the initial point of diagnosis in the ER on 10/25/2022. It had spread to 8 bones and was all over his spine, hip, base of skull, etc, but also as far as the base of the skull, and shoulder. His PSA was
lgutman
in
Advanced Prostate Cancer
7 months ago
Ibrance/Letrozole Fail
Been through the wringer and back over the past month. Scans showed progression. Had bone only mets and now showing inflammation in my lungs. Had more scans and genomic testing for mutations and it turns out I have no mutations that have been studied yet. My oncologist is putting me on Xeloda and says
Been through the wringer and back over the past month. Scans showed progression. Had bone only mets and now showing inflammation in my lungs. Had more scans and genomic testing for mutations and it turns out I have no mutations that have been studied yet. My oncologist is putting me on Xeloda and says
CTGirl1962
in
SHARE Metastatic Breast Cancer
8 months ago
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