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End of life
Hey guys it seems as my posts here will be short and sweet as my patient has been seen by his palliative care dr and been prescribed end of life medication. It fills me with sadness to know that there is nothing else left to do, I am so glad I have met my new friend and that for the past 7 months we
Hey guys it seems as my posts here will be short and sweet as my patient has been seen by his palliative care dr and been prescribed end of life medication. It fills me with sadness to know that there is nothing else left to do, I am so glad I have met my new friend and that for the past 7 months we
RhiMallorca
in
Multiple System Atrophy Trust
4 years ago
Pulmonary Fibrosis, irreversible and terminal,
I was diagnosed 12 March 2020, when lung function hadn't improved after recent bacterial infection. My lungs were already, very scarred, so this infection was the tipping point. Question is, as it is a unpleasant way to die, and already discussed with my GP, palliative care, it will get more painful
I was diagnosed 12 March 2020, when lung function hadn't improved after recent bacterial infection. My lungs were already, very scarred, so this infection was the tipping point. Question is, as it is a unpleasant way to die, and already discussed with my GP, palliative care, it will get more painful
I8tories
in
Lung Conditions Community Forum
4 years ago
Why liver patients have such a hard time
I wanted to write this last night but I fell asleep. Nothing unusual there then!!!! In the last 2-3 years I have ‘visited’ one Consultant or another about some of my symptoms. The most valuable lesson I have learned, from so doing, is that the Liver Medical fraternity themselves are unable to fully
I wanted to write this last night but I fell asleep. Nothing unusual there then!!!! In the last 2-3 years I have ‘visited’ one Consultant or another about some of my symptoms. The most valuable lesson I have learned, from so doing, is that the Liver Medical fraternity themselves are unable to fully
Splodge60
in
Living with Fatty Liver and NASH
4 years ago
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Shorty864 - Anne has lost her last battles
Dear ladies, I am so sorry to have to let you know that Anne, my Ovacome friend from Cornwall, has passed away this Sunday, 21 of June, at her lovely home. After waging many battles, including coming on the train to London with her husband last year for a second opinion from the Royal Marsden, as well
Dear ladies, I am so sorry to have to let you know that Anne, my Ovacome friend from Cornwall, has passed away this Sunday, 21 of June, at her lovely home. After waging many battles, including coming on the train to London with her husband last year for a second opinion from the Royal Marsden, as well
Lindaura
in
My Ovacome
4 years ago
Befriending schemes
/
Hft Family
Support
Service, Holiday information guide: https://www.hft.org.uk/our-services/family-
carer
-
support
-service/fcss-updates/holiday-information-guide/
Mind mental health support:
https://www.mind.org.uk/ > Local Mind groups directory, some have befriending services
/
Hft Family
Support
Service, Holiday information guide: https://www.hft.org.uk/our-services/family-
carer
-
support
-service/fcss-updates/holiday-information-guide/
Mind mental health support:
https://www.mind.org.uk/ > Local Mind groups directory, some have befriending services
Sarah_Mencap
Administrator
in
Mencap
4 years ago
the time has come - 3 years from diagnosis
It has taken me 2 weeks to be able to tell the final chapter. On the Saturday it was stormy and the palliative care helps came to give Ch a shower. Then the afternoon was visitors. We has not seen them for a long time and Ch wanted to be in the wheelchair to see them. The conversation was full of memories
It has taken me 2 weeks to be able to tell the final chapter. On the Saturday it was stormy and the palliative care helps came to give Ch a shower. Then the afternoon was visitors. We has not seen them for a long time and Ch wanted to be in the wheelchair to see them. The conversation was full of memories
crab2093
in
PSP Association
4 years ago
Looking for Practical Help
I have now had 4 heart attacks since 2015, started at the age of 31 and a double cabg in May 2019. Since the cabg was done I have been even more ill, their last throw of the dice didn't work and I am now at 36 received palliative care for advanced heart failure. The thing I am struggling with is practical
I have now had 4 heart attacks since 2015, started at the age of 31 and a double cabg in May 2019. Since the cabg was done I have been even more ill, their last throw of the dice didn't work and I am now at 36 received palliative care for advanced heart failure. The thing I am struggling with is practical
Jwares
in
British Heart Foundation
4 years ago
Hi From Dean in Rochford.
I used too work within the care sector as a Senior
Support
Worker and
Carer
for 17 years before my VP shunt packed up in 2018. I now volunteer for the NHS and Trust links, a local mental health charity in Southend.
I used too work within the care sector as a Senior
Support
Worker and
Carer
for 17 years before my VP shunt packed up in 2018. I now volunteer for the NHS and Trust links, a local mental health charity in Southend.
American1
in
Mencap
4 years ago
You’ll never guess what I heard in the Infusion Room today! 😀
So the lady across from me today said she just started Foslodex and Zometa today. I told her I had the same. MBC. Then she proceeded to tell me her Doctor said 5-10 years barring new treatments coming out all the time. She was like I’m 64...5-10 years plus whatever...She was so positive! But seriously
So the lady across from me today said she just started Foslodex and Zometa today. I told her I had the same. MBC. Then she proceeded to tell me her Doctor said 5-10 years barring new treatments coming out all the time. She was like I’m 64...5-10 years plus whatever...She was so positive! But seriously
Rhwright12
in
SHARE Metastatic Breast Cancer
4 years ago
The final days
It is a very long time since I have had the energy to talk with you all. I feel I must do so before Ch passes from this life. It is hard to find the words. I was tired and dejected with myself as carer, nurse, wife etc and was thinking of phoning the Social Worker with the Palliative care team when she
It is a very long time since I have had the energy to talk with you all. I feel I must do so before Ch passes from this life. It is hard to find the words. I was tired and dejected with myself as carer, nurse, wife etc and was thinking of phoning the Social Worker with the Palliative care team when she
crab2093
in
PSP Association
4 years ago
Association Between Dihydrotestosterone and Long-Term Risk for PCa Mortality
New study below [1]. To skip the preamble, read below "***". Ever since Huggins discovered that castration offered palliation for men with PCa, albeit temporary, there has been a belief that testosterone [T[ acts like gasoline on a fire. A number of study papers have appeared over the past 15 years
New study below [1]. To skip the preamble, read below "***". Ever since Huggins discovered that castration offered palliation for men with PCa, albeit temporary, there has been a belief that testosterone [T[ acts like gasoline on a fire. A number of study papers have appeared over the past 15 years
pjoshea13
in
Advanced Prostate Cancer
4 years ago
Can anyone knit? Apologies, I know this is a running forum...
I was just reading the very sad post from Hidden and it occurred to me that some of you may be able to support a palliative care initiative that some hospitals are using. Essentially they give one heart to the patient, and the other to their loved one, as a tangible connection when they can't
I was just reading the very sad post from Hidden and it occurred to me that some of you may be able to support a palliative care initiative that some hospitals are using. Essentially they give one heart to the patient, and the other to their loved one, as a tangible connection when they can't
Jell6
Graduate
in
Couch to 5K
4 years ago
Continuous bleeding - pls advise
Hi. My mother was in sept 2019 diagnosed with stage 4 oesophageal cancer, location is at the joint to the stomach, we did chemo, dnt help much bt at the end of the treatment she developed bad ulcers and started losing blood a lot...seemed to run out of ideas and placed a stent... ofcourse we are doing
Hi. My mother was in sept 2019 diagnosed with stage 4 oesophageal cancer, location is at the joint to the stomach, we did chemo, dnt help much bt at the end of the treatment she developed bad ulcers and started losing blood a lot...seemed to run out of ideas and placed a stent... ofcourse we are doing
Prixy_J19
in
Oesophageal & Gastric Cancer
4 years ago
Pancreatic tests with view to palliative care
Awaiting endoscapy test to confirm mass on pancreas with view to further treatment now told because of lock down no tests are being done .what happens to. Me now Poppy Storey.
Awaiting endoscapy test to confirm mass on pancreas with view to further treatment now told because of lock down no tests are being done .what happens to. Me now Poppy Storey.
poppystorey
in
Pancreatic Cancer Action
4 years ago
Daughter and full time carer for my mum who has Liver cirrhosis, ascites and varices in her oesophagus....
Hi everyone hope you are all well and coping well during these hard times love and prayers to all. I have been looking after my mum for a year now due to her sudden diagnosis and rapid decrease in health. August 2019 diagnosed with liver cirrhosis secondary to Hep B January 24th diagnosed with ascites
Hi everyone hope you are all well and coping well during these hard times love and prayers to all. I have been looking after my mum for a year now due to her sudden diagnosis and rapid decrease in health. August 2019 diagnosed with liver cirrhosis secondary to Hep B January 24th diagnosed with ascites
Sam0101
in
British Liver Trust
4 years ago
Need ideas post Xtandi and Zytiga
We had our first telehealth FaceTime call with the local MO yesterday to discuss my husband’s John’s recent bloodwork. He has been on Zytiga with dexamethasone and we knew his PSA was rising. It jumped 5 points in 6 weeks to 15.16 so the doc said to stop Zytiga and dexa and pretty much accept that
We had our first telehealth FaceTime call with the local MO yesterday to discuss my husband’s John’s recent bloodwork. He has been on Zytiga with dexamethasone and we knew his PSA was rising. It jumped 5 points in 6 weeks to 15.16 so the doc said to stop Zytiga and dexa and pretty much accept that
Grumpyswife
in
Advanced Prostate Cancer
4 years ago
Palliative care
I really don't know why I'm on palliative care, I am not getting support from palliative care team in fact I dont have anything to do with them. Only have treatment and oncology appointment.
I really don't know why I'm on palliative care, I am not getting support from palliative care team in fact I dont have anything to do with them. Only have treatment and oncology appointment.
Kiera49
in
SHARE Metastatic Breast Cancer
4 years ago
PSPA benefit information sheet
Our useful information sheet contains details of the general benefits and entitlements people living with PSP & CBD and their
carer
might receive. Download and read here: https://pspassociation.org.uk/information-and-
support
/just-been-diagnosed/pspa-publications/?
Our useful information sheet contains details of the general benefits and entitlements people living with PSP & CBD and their
carer
might receive. Download and read here: https://pspassociation.org.uk/information-and-
support
/just-been-diagnosed/pspa-publications/?
HelenPSPA
in
PSP Association
4 years ago
Veyonda: A drug to stop COVID 19???
Yesterday NOX announced that in combination with the Hudson Research Institute in Melbourne, they have discovered that the active drug in Veyonda appears capable of shutting down the cytokine storm that contributes to multi-organ failure and death in COVID 19 patients. NOX offered my late brother compassionate
Yesterday NOX announced that in combination with the Hudson Research Institute in Melbourne, they have discovered that the active drug in Veyonda appears capable of shutting down the cytokine storm that contributes to multi-organ failure and death in COVID 19 patients. NOX offered my late brother compassionate
AlanLawrenson
in
Advanced Prostate Cancer
4 years ago
OMG.. Pain Specialist gone from cancer center
I finally had my onco get me into palliative care. I only had three appts. so far with her and was scheduled to go back on 4/7 for her to see me to write another rx for my percocets. I already have an appt. with the oncology center (same bldg.) this Thursday. I wanted to see if the pain specialist
I finally had my onco get me into palliative care. I only had three appts. so far with her and was scheduled to go back on 4/7 for her to see me to write another rx for my percocets. I already have an appt. with the oncology center (same bldg.) this Thursday. I wanted to see if the pain specialist
Hidden
in
SHARE Metastatic Breast Cancer
5 years ago
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