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My PBC is getting worse. ascites causing me SOB, confusion, falls. skin is so itchy despite phototherapy. My symptoms are of late stages.
Can anyone help to elevate some symptoms. It's so effecting my life.
Can anyone help to elevate some symptoms. It's so effecting my life.
Oakleypup
in
British Liver Trust
2 days ago
First gene therapy for prevalent pathologies in neurology receives FDA IND clearance - EG 427 initiating first-in-human clinical study
https://uk.finance.yahoo.com/news/first-gene-therapy-prevalent-pathologies-060000901.html
https://uk.finance.yahoo.com/news/first-gene-therapy-prevalent-pathologies-060000901.html
Farooqji
in
Cure Parkinson's
2 days ago
Suppressed TSH on combined therapy
Is there data/medical papers I can give my doctor as to why T3 is suppressed on combination therapy? I have tried looking at the Nice guidelines but they all seem against using combination therapy.Thanks Sue
Is there data/medical papers I can give my doctor as to why T3 is suppressed on combination therapy? I have tried looking at the Nice guidelines but they all seem against using combination therapy.Thanks Sue
redhead41
in
Thyroid UK
3 days ago
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Debate on T3 between Prof Bianco & Prof Pearce
These 2 well-known endos had a formal 'debate' recently at the Endo 2024 conference in Boston. Prof Bianco was 'for' the use of T3 in combination therapy, and Prof Pearce was 'against' it. We know that these are their personal stances anyway, even when not in a formal debate setting. Prof Bianco '
These 2 well-known endos had a formal 'debate' recently at the Endo 2024 conference in Boston. Prof Bianco was 'for' the use of T3 in combination therapy, and Prof Pearce was 'against' it. We know that these are their personal stances anyway, even when not in a formal debate setting. Prof Bianco '
TaraJR
in
Thyroid UK
5 days ago
PSP/CBD Symposium - Saturday, June 29, 10am-3pm Pacific (US time)
REGISTRATION IS NOW OPEN Brain Support Network and Stanford's Movement Disorders Center are co-hosting this Progressive Supranuclear Palsy/Corticobasal Degeneration (PSP/CBD) Symposium. This is a hybrid event -- some attending in-person on Stanford's campus and many attending virtually. Who should
REGISTRATION IS NOW OPEN Brain Support Network and Stanford's Movement Disorders Center are co-hosting this Progressive Supranuclear Palsy/Corticobasal Degeneration (PSP/CBD) Symposium. This is a hybrid event -- some attending in-person on Stanford's campus and many attending virtually. Who should
rriddle
in
PSP Association
5 days ago
very hard time today…need support
today I woke up not feeling well. Where I live we’re going through a heat wave. The day before I was outside quite a bit, and I went to a concert so I didn’t get a ton of sleep. I went to breakfast with a friend and then napped for two hours. I felt better and drove home from my boyfriend’s house to
today I woke up not feeling well. Where I live we’re going through a heat wave. The day before I was outside quite a bit, and I went to a concert so I didn’t get a ton of sleep. I went to breakfast with a friend and then napped for two hours. I felt better and drove home from my boyfriend’s house to
Daisy425
in
Anxiety and Depression Support
7 days ago
News we've all been waiting for!
Ralph's had the most amazing few days. On Tuesday he had the swallow x-ray and the speech therapist was amazed at the results. Firstly he gave him some sour tasting stuff, which Ralph insisted he tried to see how horrible it was, lol. Then he had barium mixed with water, then barium with yoghurt then
Ralph's had the most amazing few days. On Tuesday he had the swallow x-ray and the speech therapist was amazed at the results. Firstly he gave him some sour tasting stuff, which Ralph insisted he tried to see how horrible it was, lol. Then he had barium mixed with water, then barium with yoghurt then
Gardenview10
in
British Heart Foundation
7 days ago
Seeking Advice: Non-Medication Methods for Managing Hand Joint Pain Flare-Ups
Hello everyone, I'm reaching out to this community for some advice and personal experiences. I have been living with lupus for six years now, and I've been dealing with joint pain in my hands for quite a while. I'm particularly interested in non-medication methods to manage flare-ups. I've heard
Hello everyone, I'm reaching out to this community for some advice and personal experiences. I have been living with lupus for six years now, and I've been dealing with joint pain in my hands for quite a while. I'm particularly interested in non-medication methods to manage flare-ups. I've heard
Sophieeeee
in
LUPUS UK
7 days ago
cruise next week
next week I am going on a cruise with my boyfriend and his family. I have been on a cruise before but with my family. I am scared of getting sea sick from rough seas. We are going from NYC to Bermuda. Last summer I went on a. Girls trip to Nashville and I struggled a lot. Since then I have done outpatient
next week I am going on a cruise with my boyfriend and his family. I have been on a cruise before but with my family. I am scared of getting sea sick from rough seas. We are going from NYC to Bermuda. Last summer I went on a. Girls trip to Nashville and I struggled a lot. Since then I have done outpatient
Daisy425
in
Anxiety and Depression Support
9 days ago
Upcoming Webinar - Enjoy the Beat: Music, Brain Health, and MS
Music plays an important role in our lives. Research also suggests that music can benefit our physical and mental health in numerous ways. Join MSAA’s upcoming webinar “Enjoy the Beat: Music, Brain Health, and MS” Monday, June 17th, at 8:00PM Eastern with MS specialist Dr. Augusto Miravalle and MS
Music plays an important role in our lives. Research also suggests that music can benefit our physical and mental health in numerous ways. Join MSAA’s upcoming webinar “Enjoy the Beat: Music, Brain Health, and MS” Monday, June 17th, at 8:00PM Eastern with MS specialist Dr. Augusto Miravalle and MS
DanaMSAA
Partner
in
My MSAA Community
16 days ago
My DIY red light therapy / photobiomodulation helmet build. If you have built one and would like to share pictures please do.
I originally posted here asking some questions about building a red light therapy hat. https://healthunlocked.com/cure-parkinsons/posts/150630223/a-question-for-anyone-who-built-a-red-light-therapy-helmet-hat.?responses=150932897 I would like to say thank you to the people in that thread for helping
I originally posted here asking some questions about building a red light therapy hat. https://healthunlocked.com/cure-parkinsons/posts/150630223/a-question-for-anyone-who-built-a-red-light-therapy-helmet-hat.?responses=150932897 I would like to say thank you to the people in that thread for helping
Glenfarclas
in
Cure Parkinson's
16 days ago
Has anyone done the proton therapy?
Just curious if anyone had their MO suggest doing the proton therapy? When I have my discussion with my new MO, I want to ask if proton therapy would be a fit for myself. I have to deal with the prostate cancer and the met pelvic lymph nodes as well as the met bone issue.
Just curious if anyone had their MO suggest doing the proton therapy? When I have my discussion with my new MO, I want to ask if proton therapy would be a fit for myself. I have to deal with the prostate cancer and the met pelvic lymph nodes as well as the met bone issue.
PARKER3237
in
Advanced Prostate Cancer
17 days ago
update on oxygen therapy
a friend with MS got me into this, we are lucky to have an MS centre with a hyperbaric chamber in Hereford. It’s not NHS They kindly accepted me as a trial as it’s usually MS patients, burns patients and cancer recovery but also fibromyalgia and inflammation. I’ve just completed my 20th session which
a friend with MS got me into this, we are lucky to have an MS centre with a hyperbaric chamber in Hereford. It’s not NHS They kindly accepted me as a trial as it’s usually MS patients, burns patients and cancer recovery but also fibromyalgia and inflammation. I’ve just completed my 20th session which
Regenallotment
in
Thyroid UK
19 days ago
EIS-12656, a first-in-class allosteric inhibitor of ALC1: will soon start a phase 1 trial
to PARP or not to PARP.... “EIS-12656 selectively targets tumors with no apparent effects on normal tissues.” ....“Our clinical study will also explore combination therapies that were hindered by combinatorial toxicity in the past.” https://www.bio-m.org/en/news/news-detail/eisbach-bio-announces-fda-clearance-of-ind-application-for-eis
to PARP or not to PARP.... “EIS-12656 selectively targets tumors with no apparent effects on normal tissues.” ....“Our clinical study will also explore combination therapies that were hindered by combinatorial toxicity in the past.” https://www.bio-m.org/en/news/news-detail/eisbach-bio-announces-fda-clearance-of-ind-application-for-eis
Maxone73
in
Advanced Prostate Cancer
19 days ago
surely no more - - -
wonderful supportive group, I contacted you with my chronic constipation, really seems I have inability to poop, currently having biofeedback , was so hopeful at first but session today shows little if any improvement- messing with diet, ( fibre that doesn’t block me up) active cultures that made things
wonderful supportive group, I contacted you with my chronic constipation, really seems I have inability to poop, currently having biofeedback , was so hopeful at first but session today shows little if any improvement- messing with diet, ( fibre that doesn’t block me up) active cultures that made things
Dudders123
in
IBS Network
19 days ago
Pneumocystis pneumonia - PCP
I am just making people aware of the above. This is fungi that in a healthy person would resolve in days. However, in immunosuppressed it can be fatal. I have never heard of this before. Because of taking immune surpression, this fungi has knocked me off my feet. I have been admitted to hospital, now
I am just making people aware of the above. This is fungi that in a healthy person would resolve in days. However, in immunosuppressed it can be fatal. I have never heard of this before. Because of taking immune surpression, this fungi has knocked me off my feet. I have been admitted to hospital, now
TEDDYM
in
LUPUS UK
22 days ago
Working on overcoming FND
Hello friends, in Dec 2008 I started having vocal issues during a cold. It has continue to come and go for the last 15 1/2 years. In addition to my voice after about 2 years, I began having myoclonic jerks, swallowing issues, dystonia, tremors, gait issues, spasms in my face. Tics, non epileptic & EPILEPTIC
Hello friends, in Dec 2008 I started having vocal issues during a cold. It has continue to come and go for the last 15 1/2 years. In addition to my voice after about 2 years, I began having myoclonic jerks, swallowing issues, dystonia, tremors, gait issues, spasms in my face. Tics, non epileptic & EPILEPTIC
cgarff
in
Functional Neurological Disorder - FND Hope
23 days ago
Aspen Neuroscience to Present at International Society for Cell & Gene Therapy (ISCT) Annual Meeting
As part of the ISCT 2024 Translational Pathway Sessions, as well as the ISCT main program, Aspen's Chief Scientific Officer Xiaokui Zhang, Ph.D., and Chief Technology Officer Kim Raineri will discuss developments in autologous research and development, including for ANPD001, Aspen's autologous iPSC-derived
As part of the ISCT 2024 Translational Pathway Sessions, as well as the ISCT main program, Aspen's Chief Scientific Officer Xiaokui Zhang, Ph.D., and Chief Technology Officer Kim Raineri will discuss developments in autologous research and development, including for ANPD001, Aspen's autologous iPSC-derived
Farooqji
in
Cure Parkinson's
27 days ago
Just Tired
Hi Everyone - this is such a valuable community. I just wanted to vent a little. Are any parents on this journey just feeling tired? We have weathered the nasty teachers, the disinterested teachers, the play therapy, the behavior therapy, the unconventional treatments, the medications, the school
Hi Everyone - this is such a valuable community. I just wanted to vent a little. Are any parents on this journey just feeling tired? We have weathered the nasty teachers, the disinterested teachers, the play therapy, the behavior therapy, the unconventional treatments, the medications, the school
Uptowngirl12121
in
CHADD's ADHD Parents Together
28 days ago
The 40 Hz flickering light restores synaptic plasticity and mitochondrial phenotype in experimental model of Alzheimer's disease May 2024
The 40 Hz flickering light restores synaptic plasticity and mitochondrial phenotype in experimental model of Alzheimer's disease May 2024
- https://www.researchgate.net/publication/380600451_The_40_Hz_flickering_light_restores_synaptic_plasticity_and_mitochondrial_phenotype_in_experimental_model_of_Alzheimer
The 40 Hz flickering light restores synaptic plasticity and mitochondrial phenotype in experimental model of Alzheimer's disease May 2024
- https://www.researchgate.net/publication/380600451_The_40_Hz_flickering_light_restores_synaptic_plasticity_and_mitochondrial_phenotype_in_experimental_model_of_Alzheimer
Bolt_Upright
in
Cure Parkinson's
1 month ago
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