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Cardiac Resynchronization Therapy
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Gp ringing me in the next 2 hours, assistance please!
Hello, Because I've gone downhill in the last few days I called again to speak to someone, this is after my sending in a letter last week with bloods and being ignored (fobbed off, dismissed). Now I'm hot and cold sweats, low level tingling, dry tongue (electrolyte ususally help but not now) unsteady
Hello, Because I've gone downhill in the last few days I called again to speak to someone, this is after my sending in a letter last week with bloods and being ignored (fobbed off, dismissed). Now I'm hot and cold sweats, low level tingling, dry tongue (electrolyte ususally help but not now) unsteady
Sneedle
in
Thyroid UK
1 year ago
ED No More (the prequel)
I've had so many comments since my post "ED no more" that I felt I should offer more. I'm a neophyte on this site. As a matter of fact I avoid this site. I have always adopted an "ignorance is bliss" attitude towards life and my PC. My wife, on the other hand, is a nervous but adventurous individual
I've had so many comments since my post "ED no more" that I felt I should offer more. I'm a neophyte on this site. As a matter of fact I avoid this site. I have always adopted an "ignorance is bliss" attitude towards life and my PC. My wife, on the other hand, is a nervous but adventurous individual
Bangkok
in
Advanced Prostate Cancer
10 months ago
Relapsed CLL: New Approaches Prolong Survival
Dr Furman says that genetically unstable CLL patients need a combination therapy approach to treatment irrespective of MRD assessment results. This is only a short read and Dr Furman's opinion is always worth taking note of. In case it’s behind a paywall, here is the article in full. Credit to
Dr Furman says that genetically unstable CLL patients need a combination therapy approach to treatment irrespective of MRD assessment results. This is only a short read and Dr Furman's opinion is always worth taking note of. In case it’s behind a paywall, here is the article in full. Credit to
Jm954
Administrator
in
CLL Support
1 year ago
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Endo and Mental health
Hello all, Just wondering if anyone diagnosed or suffering with Endo has a similar problem with thier Mental health around the time of a cycle ? Aswell as the physical pain side it feels like Just before I am due it feels like my mind goes into overdrive I think all the horrid things about myself that
Hello all, Just wondering if anyone diagnosed or suffering with Endo has a similar problem with thier Mental health around the time of a cycle ? Aswell as the physical pain side it feels like Just before I am due it feels like my mind goes into overdrive I think all the horrid things about myself that
Jajo1987
in
Endometriosis UK
1 year ago
How long does this process take?
My 2nd post and still full of questions, would like to hear from everyone. Regarding my specific case: I was told I have to do 6 months of ADT and appx 28-30 rounds of EBRT. Of course, I still don't have my PSMA/PET scan results back yet, but I'm assuming the best case scenario. Still trying to make
My 2nd post and still full of questions, would like to hear from everyone. Regarding my specific case: I was told I have to do 6 months of ADT and appx 28-30 rounds of EBRT. Of course, I still don't have my PSMA/PET scan results back yet, but I'm assuming the best case scenario. Still trying to make
conchjoe
in
Advanced Prostate Cancer
1 year ago
TSH how long for suppressed TSH to return to normal after stopping T3?
I saw a ‘hormone specialist’ GP today. Again she tried to tell me I need to reduce my levothyroxine because of my suppressed TSH. Only saw her because she’s meant to be good with HRT, but she’s gone mad about my TSH. My FT4 is only 48-% through range, so if anything, I’d like to increase my levo!
I saw a ‘hormone specialist’ GP today. Again she tried to tell me I need to reduce my levothyroxine because of my suppressed TSH. Only saw her because she’s meant to be good with HRT, but she’s gone mad about my TSH. My FT4 is only 48-% through range, so if anything, I’d like to increase my levo!
CornishChick
in
Thyroid UK
1 year ago
Dipping my toe into the possibility of thyroid issues
I'm 55 and have been officially 'ill' since 1996 - I have an alphabet soup of acronymsCFS/ME, IBS, FM, hypermobility, absorption issues, vitamin deficiencies ( I supplement aggressively with B12 and D & I take methyl folate -I take magnesium, zinc, k2, potassium, rosehip, ubiquinol, floradix and a probiotic
I'm 55 and have been officially 'ill' since 1996 - I have an alphabet soup of acronymsCFS/ME, IBS, FM, hypermobility, absorption issues, vitamin deficiencies ( I supplement aggressively with B12 and D & I take methyl folate -I take magnesium, zinc, k2, potassium, rosehip, ubiquinol, floradix and a probiotic
KatyMac68
in
Thyroid UK
1 year ago
Should I fight for Darolutamide ?
Thank you all so far for your advice, I am here again for some more. After RT in a metastastic LN last year, I am again with a PSA 2.0, with a bunch of small LNs showing in the PET. RO gave up. I will start ADT again, this time with a 2nd generation added. I will restart Zoladex, and MO is adding Enzalutamide
Thank you all so far for your advice, I am here again for some more. After RT in a metastastic LN last year, I am again with a PSA 2.0, with a bunch of small LNs showing in the PET. RO gave up. I will start ADT again, this time with a 2nd generation added. I will restart Zoladex, and MO is adding Enzalutamide
CarlosBrasil
in
Advanced Prostate Cancer
1 year ago
Taurine and ADT weight gain
One thing that many PCa endurers see occurring despite their best efforts is weight gain while on ADT. Does the community have any info on whether taurine can help, in conjunction with lots of exercise? I found a couple articles that it might.
One thing that many PCa endurers see occurring despite their best efforts is weight gain while on ADT. Does the community have any info on whether taurine can help, in conjunction with lots of exercise? I found a couple articles that it might.
Derf4223
in
Advanced Prostate Cancer
1 year ago
How much exercise needed?
I know everybody’s body differs but … still I’d like some guidelines. Until a couple years ago I was pretty fit, running most days, going to gym 2x per week but then started having hip pain. I would’ve replaced hip but got Dx with PCa 6 months ago and so have postponed that. I’ve had HDR Brachy and
I know everybody’s body differs but … still I’d like some guidelines. Until a couple years ago I was pretty fit, running most days, going to gym 2x per week but then started having hip pain. I would’ve replaced hip but got Dx with PCa 6 months ago and so have postponed that. I’ve had HDR Brachy and
BobC1234
in
Advanced Prostate Cancer
1 year ago
New to this: travel during ADT & post EBRT?
New to this group and the Dx took me by complete surprise. I'm 76 and in excellent health - or so I thought! - and now [i]this[/i] happens. PSA between 7 and 8 over the past year, wait and see. April PSA was 7.4 and DRE indicated a mass. MRI, biopsy followed, showing Gleason 4=3=7, Stage IIC. Did another
New to this group and the Dx took me by complete surprise. I'm 76 and in excellent health - or so I thought! - and now [i]this[/i] happens. PSA between 7 and 8 over the past year, wait and see. April PSA was 7.4 and DRE indicated a mass. MRI, biopsy followed, showing Gleason 4=3=7, Stage IIC. Did another
conchjoe
in
Advanced Prostate Cancer
1 year ago
Tried it all
I've had depression for 27 years now. I've had 3 major episodes and am going through one right now. I think the best word is torture. My mind is being tortured and all I want to do is sleep. I do get up and do things, but time moves so, so slowly! I did ECT back in 2005 and did 14 sessions and it
I've had depression for 27 years now. I've had 3 major episodes and am going through one right now. I think the best word is torture. My mind is being tortured and all I want to do is sleep. I do get up and do things, but time moves so, so slowly! I did ECT back in 2005 and did 14 sessions and it
Livetorunruntolive
in
Major Depressive Disorder (MDD) Support
1 year ago
Results advice pls....
Hi, I've just had results from medichecks and would like some advice pls on my levels, if any are sub-optimal and what they should be. Quick recap: I have Hashimoto’s (Dx 13yrs ago), am hypothyroid (Dx 2yrs ago, been on levothyroxine since), now take 100mcg levothyroxine 6 x/week and 75mcg 1x/week
Hi, I've just had results from medichecks and would like some advice pls on my levels, if any are sub-optimal and what they should be. Quick recap: I have Hashimoto’s (Dx 13yrs ago), am hypothyroid (Dx 2yrs ago, been on levothyroxine since), now take 100mcg levothyroxine 6 x/week and 75mcg 1x/week
bollin
in
Thyroid UK
1 year ago
Second Gen ADT Drug Issues
Dont remember seeing this on here yet. I guess one weighs increased risk of dementia vs stopping PC. Wouldnt want to be in that position. I remember back before my SRT went on Bicalutamide for one month before SRT started and then stopped when I read that is also linked to dementia. Crap. https://www.urologytimes.com
Dont remember seeing this on here yet. I guess one weighs increased risk of dementia vs stopping PC. Wouldnt want to be in that position. I remember back before my SRT went on Bicalutamide for one month before SRT started and then stopped when I read that is also linked to dementia. Crap. https://www.urologytimes.com
Teufelshunde
in
Advanced Prostate Cancer
1 year ago
Prostatectomy 2012, Oligometastatic 2021. Metabolic approach ,no ADT, no chemo. Interested in Lutetium 177, Dr. Kwon Mayo patient
Born in 1947. As a1969 college graduation present, complements of a low draft number, I served a tour in Vietnam, on river patrol duty. I was surrounded by defoliated trees due to the use of Agent Orange and I imagine I drank a lot of AO contaminated water. Fast forward to 2012 to discover I had
Born in 1947. As a1969 college graduation present, complements of a low draft number, I served a tour in Vietnam, on river patrol duty. I was surrounded by defoliated trees due to the use of Agent Orange and I imagine I drank a lot of AO contaminated water. Fast forward to 2012 to discover I had
roman44
in
Advanced Prostate Cancer
1 year ago
PSA reading
My RP was done on jan 31, ( 5months and two weeks ago). I had PSA resistence so I have been on ADT since April 15. I have my PSA checked last week and the report came out yesterday with two results: < 0.006 ( by medical lab with the examination of serum) and < 0.058 ( by nulcear medical check). I asked
My RP was done on jan 31, ( 5months and two weeks ago). I had PSA resistence so I have been on ADT since April 15. I have my PSA checked last week and the report came out yesterday with two results: < 0.006 ( by medical lab with the examination of serum) and < 0.058 ( by nulcear medical check). I asked
Formosan
in
Advanced Prostate Cancer
1 year ago
18 vs 24 mos ADT
I was dx in Oct 2021 with Gleason 8, t3a, N1,M0 grade IV PC received 39 radiation treatments after3 mos of firmagon and Zytiga. PSA is undetectable. MO has agreed to 24 mos ADT since I had a clean bone scan originally, lymph nodes do not show disease now. Tumor was outside prostate on MRI. The Predict-RT
I was dx in Oct 2021 with Gleason 8, t3a, N1,M0 grade IV PC received 39 radiation treatments after3 mos of firmagon and Zytiga. PSA is undetectable. MO has agreed to 24 mos ADT since I had a clean bone scan originally, lymph nodes do not show disease now. Tumor was outside prostate on MRI. The Predict-RT
Oceankayaker
in
Advanced Prostate Cancer
1 year ago
Prednisone side effects
I've been on Lupron/Abi/Pred for about 13 months. Never had high blood pressure prior to this ADT treatment. Was warned that high BP was one of the primary side effects of my treatment plan. Pretty quickly, I developed elevated BP and I am on 50mg of Losartan daily. 25mg wasn't enough. I am also
I've been on Lupron/Abi/Pred for about 13 months. Never had high blood pressure prior to this ADT treatment. Was warned that high BP was one of the primary side effects of my treatment plan. Pretty quickly, I developed elevated BP and I am on 50mg of Losartan daily. 25mg wasn't enough. I am also
jmarsh
in
Advanced Prostate Cancer
1 year ago
Multivitamins/Supplements
My 5 year old son was recently diagnosed with combined ADHD, and his dad and I are holding off on medication for now. I'd love to hear what vitamins, supplements, and or diet changes you all are doing for a kiddo this age? I read a recommendation for the OLLY brand "Chillax" vitamins that we've been
My 5 year old son was recently diagnosed with combined ADHD, and his dad and I are holding off on medication for now. I'd love to hear what vitamins, supplements, and or diet changes you all are doing for a kiddo this age? I read a recommendation for the OLLY brand "Chillax" vitamins that we've been
Danni246
in
CHADD's ADHD Parents Together
1 year ago
HRT and cirrhosis
I have heard conflicting opinions as to the safety of HRT and cirrhosis. I have cirrhosis. UKELD score 48. KPA score 37.5. My GP has changed my (low dose) HRT to a gel and tablet: Gel = Oestrogel 80g . Tablet = Medroxyprogesterone 5mg. The enclosed leaflets, however, say ‘do not take’ if you have
I have heard conflicting opinions as to the safety of HRT and cirrhosis. I have cirrhosis. UKELD score 48. KPA score 37.5. My GP has changed my (low dose) HRT to a gel and tablet: Gel = Oestrogel 80g . Tablet = Medroxyprogesterone 5mg. The enclosed leaflets, however, say ‘do not take’ if you have
Turvy
in
British Liver Trust
1 year ago
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