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Confused and floundering!
Hi I've just been reading some posts and am amazed at all the knowledge and suggestions you all offer. I was diagnosed 16 months ago. Sort of. Parkinsons or Peroxetine induced parkinsonism. I saw a consultant last October who wants to see me again this October. A year? I don't really know who I should
Hi I've just been reading some posts and am amazed at all the knowledge and suggestions you all offer. I was diagnosed 16 months ago. Sort of. Parkinsons or Peroxetine induced parkinsonism. I saw a consultant last October who wants to see me again this October. A year? I don't really know who I should
Honeybunnie
in
Cure Parkinson's
6 years ago
HDT / B-1 / Thiamine A Primer For PWPs Who Are Considering Testing It / Email : carapetata@libero.it
As of January / February, 2019 , Dr. Costantini had a stroke related to a scheduled surgery and is currently recuperating and is unavailable for email consults until further notice from his HDT team. Until he returns, we are counting on the experience of the HU Forum members who have or are currently
As of January / February, 2019 , Dr. Costantini had a stroke related to a scheduled surgery and is currently recuperating and is unavailable for email consults until further notice from his HDT team. Until he returns, we are counting on the experience of the HU Forum members who have or are currently
Hidden
in
Cure Parkinson's
6 years ago
Supplements along with Carbidopa
Is it safe to take Macuna pruriens while taking 25/100 of Carbidopa or any other supplements like Magnesium or thyamine? I began taking my Carbidopa 3 doses per day spread out every 5 hours. First one at 7 am, second one at 12 pm and the third at 5 pm. Is it safe to not take three capsules a day and
Is it safe to take Macuna pruriens while taking 25/100 of Carbidopa or any other supplements like Magnesium or thyamine? I began taking my Carbidopa 3 doses per day spread out every 5 hours. First one at 7 am, second one at 12 pm and the third at 5 pm. Is it safe to not take three capsules a day and
procaffeinator
in
Cure Parkinson's
6 years ago
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Give me my personality back
I’ve been resisting levodopa replacement therapy for two years but, no matter what I try (including diet, supplements, exercise and B1), the old me is fading away. All the things I enjoy doing are impacted. It’s not depression, as such, because part of me says “pull yourself together and live with the
I’ve been resisting levodopa replacement therapy for two years but, no matter what I try (including diet, supplements, exercise and B1), the old me is fading away. All the things I enjoy doing are impacted. It’s not depression, as such, because part of me says “pull yourself together and live with the
Hidden
in
Cure Parkinson's
6 years ago
Can Rytary make your anxiety worse or not work at all? Does anyone else suffer from severe anxiety? Experienced Dystonic type attacks?
I was diagnosed on my 28th BDay as having PD and I will be 45 this year. I used to not question it too much but this past year has been more than difficult and I am having new issues that make me wonder if I have PD or some type of anxiety disorder. It all started with a tremor that started in my right
I was diagnosed on my 28th BDay as having PD and I will be 45 this year. I used to not question it too much but this past year has been more than difficult and I am having new issues that make me wonder if I have PD or some type of anxiety disorder. It all started with a tremor that started in my right
Darkflower
in
Cure Parkinson's
6 years ago
Switching from one drug to the next
I'm needing to know the best way to switch from gabapentin to
carbidopa
/
levodopa
( Sinemet)?
I'm needing to know the best way to switch from gabapentin to
carbidopa
/
levodopa
( Sinemet)?
Pallawalla
in
Restless Legs Syndrome
6 years ago
Baricella 2016 levodopa diet
Baricella 2016 levodopa diet Dietary habits and neurological features of Parkinson's disease patients: Implications for practice. https://www.ncbi.nlm.nih.gov/pubmed/27406858 Abstract. BACKGROUND & AIMS: Parkinson's disease (PD) patients can benefit considerably from appropriate nutritional care
Baricella 2016 levodopa diet Dietary habits and neurological features of Parkinson's disease patients: Implications for practice. https://www.ncbi.nlm.nih.gov/pubmed/27406858 Abstract. BACKGROUND & AIMS: Parkinson's disease (PD) patients can benefit considerably from appropriate nutritional care
aspergerian
in
Cure Parkinson's
6 years ago
Ensure plus - too much protein ?
I have been drinking 3 to 5 Ensuring plus per day. I seem stuffed. Is Eplus interfering with Levodopa \ dopamine and motor function?
I have been drinking 3 to 5 Ensuring plus per day. I seem stuffed. Is Eplus interfering with Levodopa \ dopamine and motor function?
aspergerian
in
Cure Parkinson's
6 years ago
Had to fall back on Rx Sinemet for 2days&Mental focus poor
My shipment of natural sourced levodopa was a couple days later coming in than I anticipated and I had to fall back into using synthetic
carbidopa
/
levodopa
. I drove to a restaurant and place an order and then realized I didn’t have my wallet .
My shipment of natural sourced levodopa was a couple days later coming in than I anticipated and I had to fall back into using synthetic
carbidopa
/
levodopa
. I drove to a restaurant and place an order and then realized I didn’t have my wallet .
BUZZ1397
in
Cure Parkinson's
6 years ago
the ability to detect on-off states using the REMPARK system.
A "HOLTER" for Parkinson's disease: Validation of the ability to detect on-off states using the REMPARK system. Bayés À, et al. Gait Posture. 2018. https://www.ncbi.nlm.nih.gov/m/pubmed/28963889/?i=5&from=/29456046/related Abstract. The treatment of Parkinson's disease (PD) with levodopa is very effective
A "HOLTER" for Parkinson's disease: Validation of the ability to detect on-off states using the REMPARK system. Bayés À, et al. Gait Posture. 2018. https://www.ncbi.nlm.nih.gov/m/pubmed/28963889/?i=5&from=/29456046/related Abstract. The treatment of Parkinson's disease (PD) with levodopa is very effective
aspergerian
in
Cure Parkinson's
6 years ago
Can you.take to much Carbidopa l-dppa
And what is the most can take
And what is the most can take
nicp1234
in
Cure Parkinson's
6 years ago
Carbidopa Levodopa absorption may be delayed by eating fiber with dose. Would delays cause bigger problems with Continuous Release?
Have been researching
Carbidopa
levodopa
and found reference to other meds , supplements, vitamins, DELAYING the release of meds, especially those with fluctuating blood pressure or constipation. Switching to extended release without knowing that led me to increase dose with IR bridge.
Have been researching
Carbidopa
levodopa
and found reference to other meds , supplements, vitamins, DELAYING the release of meds, especially those with fluctuating blood pressure or constipation. Switching to extended release without knowing that led me to increase dose with IR bridge.
Hidden
in
Cure Parkinson's
6 years ago
Mucuna Pruriens-Varying Amounts of L-dopa Confusing
I bought mucuna Kapikakacchu powder first and have no idea the content of L-dopa but it works. I took 1 tbsp. 2x a day. The whole powder doesn't seem as smooth when I come off of it but is supposed to have beneficial ingredients. Just not sure how much to take but once a day to replace another dose of
I bought mucuna Kapikakacchu powder first and have no idea the content of L-dopa but it works. I took 1 tbsp. 2x a day. The whole powder doesn't seem as smooth when I come off of it but is supposed to have beneficial ingredients. Just not sure how much to take but once a day to replace another dose of
rideabike
in
Cure Parkinson's
6 years ago
Carbidopa-Levodopa 125 MG-ENTA. What am I doing wrong?
I am currently taking
Carbidopa
Levodopa
125 MG-ENTA . My doctor prescribed 1 tablet no more that 5 times a day.
I am currently taking
Carbidopa
Levodopa
125 MG-ENTA . My doctor prescribed 1 tablet no more that 5 times a day.
Menchita1017
in
Cure Parkinson's
6 years ago
Tried most everything
Now I take Ropinirole (Requip),
Carbidopa
levodopa
, and clonazepam. I suffer beyond belief but have found some relief in the Relaxis pad. I have had it for some time but was never consistent in using it.
Now I take Ropinirole (Requip),
Carbidopa
levodopa
, and clonazepam. I suffer beyond belief but have found some relief in the Relaxis pad. I have had it for some time but was never consistent in using it.
tac2014
in
Restless Legs Syndrome
6 years ago
Some questions for everyone.
When i take
carbidopa
-
levodopa
alone at about the 3 hour point it starts to fade and my hands, feet,arms,legs start hurting. My legs get weak and i sometimes get depressed and i just feel like the world fell on me. I sweat on my back and my legs i have hot flashes.
When i take
carbidopa
-
levodopa
alone at about the 3 hour point it starts to fade and my hands, feet,arms,legs start hurting. My legs get weak and i sometimes get depressed and i just feel like the world fell on me. I sweat on my back and my legs i have hot flashes.
Bailey_Texas
in
Cure Parkinson's
6 years ago
Hello
Hello. My name is Jese. I was diagnosed 10.2017 with Parkinson’s. I had been dealing with symptoms of extreme fatigue, balance problems, tiredness and dystonia on my right foot for almost 7 years and going back and forth with neurologists until I finally got my 4th diagnosis and began Carbidopa the same
Hello. My name is Jese. I was diagnosed 10.2017 with Parkinson’s. I had been dealing with symptoms of extreme fatigue, balance problems, tiredness and dystonia on my right foot for almost 7 years and going back and forth with neurologists until I finally got my 4th diagnosis and began Carbidopa the same
procaffeinator
in
Cure Parkinson's
6 years ago
A randomised, double-blind, placebo-controlled clinical trial of Zishenpingchan granules
Results demonstrated that Zishenpingchan granules significantly reduced the occurrence of motor complications, and were useful for mitigating dyskinesia and non-motor symptoms of Parkinson’s disease. This combination of Chinese and Western medicine has the potential to reduce levodopa dosages, and no
Results demonstrated that Zishenpingchan granules significantly reduced the occurrence of motor complications, and were useful for mitigating dyskinesia and non-motor symptoms of Parkinson’s disease. This combination of Chinese and Western medicine has the potential to reduce levodopa dosages, and no
Farooqji
in
Cure Parkinson's
6 years ago
How far apart Vitamin B1 and Carbidopa Levadopa
Hello everyone, i just received my B1 Vitamin 500mg, Do you know if i can take it with my Carbidopa pills? or how far apart? I am supposed to take 8 day but I will start with 4 for now. Thank you so much for the advice.
Hello everyone, i just received my B1 Vitamin 500mg, Do you know if i can take it with my Carbidopa pills? or how far apart? I am supposed to take 8 day but I will start with 4 for now. Thank you so much for the advice.
Menchita1017
in
Cure Parkinson's
6 years ago
Levodopa/carbidopa
I took 1/2 a
Levodopa
/
carbidopa
and it knocked me out. Slept through the nigh!!! This is only the second time in a couple of weeks that I have done this.
I took 1/2 a
Levodopa
/
carbidopa
and it knocked me out. Slept through the nigh!!! This is only the second time in a couple of weeks that I have done this.
Whippetmama
in
Restless Legs Syndrome
6 years ago
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