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Experiences with
Carbidopa / Levodopa
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Are cineva experienta cu pompa de duodopa?
As vrea sa montez sotului meu o pompa de levodopa de fapt si nu stiu daca ar imbunatati calitatea vietii .Acum perioadele de ON intr-o zi sunt intre 2-3 ore.Imi poate spune cineva cum a decurs montarea sondei , cum se adapteaza cu partea externa a tubului, e un disconfort major, nu este risc de infectie
As vrea sa montez sotului meu o pompa de levodopa de fapt si nu stiu daca ar imbunatati calitatea vietii .Acum perioadele de ON intr-o zi sunt intre 2-3 ore.Imi poate spune cineva cum a decurs montarea sondei , cum se adapteaza cu partea externa a tubului, e un disconfort major, nu este risc de infectie
bita94
in
Cure Parkinson's
4 years ago
Continuous / Extended Release
I was offered a generic product, same
carbidopa
levodopa
mix, but extended release rather than continuous release. I have been using this for about 6 weeks. I am now really struggling late afternoon, with lots of off time. Is anyone using this generic product? How are you going?
I was offered a generic product, same
carbidopa
levodopa
mix, but extended release rather than continuous release. I have been using this for about 6 weeks. I am now really struggling late afternoon, with lots of off time. Is anyone using this generic product? How are you going?
Joynb
in
Cure Parkinson's
4 years ago
Looking for people who have phased out Carbidopa/Levodopa in favor of an all-mucuna program
I was diagnosed in 2006, and have progressed through Requip, Sinemet, and Rytary, recently exploring mucuna in place of Rytary. My maximum dosage of Rytary was four capsules of 3.75/95 four times a day; I have gradually reduced my Rytary amount to three capsules in the morning, followed by 350 milligrams
I was diagnosed in 2006, and have progressed through Requip, Sinemet, and Rytary, recently exploring mucuna in place of Rytary. My maximum dosage of Rytary was four capsules of 3.75/95 four times a day; I have gradually reduced my Rytary amount to three capsules in the morning, followed by 350 milligrams
Dupree
in
Cure Parkinson's
4 years ago
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Enterococcus faecalis and Carbidopa Levodopa - Some answers
According to this link, posted by aspergerian13 a few days ago, https://www.pnas.org/content/early/2020/04/07/2003785117, researchers have found that
reduced benefits and many side effects of
Carbidopa
can be the result of a bacterial decarboxylase enzyme, produced by the commensal gut
According to this link, posted by aspergerian13 a few days ago, https://www.pnas.org/content/early/2020/04/07/2003785117, researchers have found that
reduced benefits and many side effects of
Carbidopa
can be the result of a bacterial decarboxylase enzyme, produced by the commensal gut
Parkie-
in
Cure Parkinson's
4 years ago
Medicine/Supplement Regime (Mucuna etc)
I just thought I'd share my dad's current medicine regime in case it will help other people. After so many months of trial and error, we have finally found a dose that works for my dad. He takes it every 2 hours and 45 minutes with little freezing, has less dyskinesias, not much pain, a better appetite
I just thought I'd share my dad's current medicine regime in case it will help other people. After so many months of trial and error, we have finally found a dose that works for my dad. He takes it every 2 hours and 45 minutes with little freezing, has less dyskinesias, not much pain, a better appetite
pdkid
in
Cure Parkinson's
4 years ago
Switching to Mucuna from c/ levodopa
This past week I switch from CL to MP I also take a man to die amantadine one at 7 a.m. and one at 7 p.m. is there a supplement to replace this medication. Thanks
This past week I switch from CL to MP I also take a man to die amantadine one at 7 a.m. and one at 7 p.m. is there a supplement to replace this medication. Thanks
Bowling55
in
Cure Parkinson's
4 years ago
Protein and levodopa absorption
Suspect food protein is interfering with levodopa absorption. Which strategies do you use? I can get terrible hunger pangs by 4am, which combined with RLS makes further sleep impossible. Is a banana or milk with cereal at one hour after Sinemet or two hours before effective?
Suspect food protein is interfering with levodopa absorption. Which strategies do you use? I can get terrible hunger pangs by 4am, which combined with RLS makes further sleep impossible. Is a banana or milk with cereal at one hour after Sinemet or two hours before effective?
ScribblerCLT
in
Cure Parkinson's
4 years ago
Weird things prior to diagnosis that were early clues of PD
Many of us likely went to the doctor when we first noticed that finger that wiggled everytime we stopped moving our hand. Just one finger at first, then two, then the thumb joined in on the dance. After many tests and examinations, we were diagnosed with PD. Looking back, I can think of several early
Many of us likely went to the doctor when we first noticed that finger that wiggled everytime we stopped moving our hand. Just one finger at first, then two, then the thumb joined in on the dance. After many tests and examinations, we were diagnosed with PD. Looking back, I can think of several early
swva
in
Cure Parkinson's
4 years ago
What dose levodopa reduced your tremor?
How many 25-100mg
carbidopa
levodopa
tablets, how many times a day, reduced tremor?
How many 25-100mg
carbidopa
levodopa
tablets, how many times a day, reduced tremor?
Hidden
in
Cure Parkinson's
4 years ago
Questions about MSA
I'm new to this forum and live in British Columbia, Canada where there is really no support right now. I was diagnosed 2 years ago with dystonia (oral facial) that is responsive to L-dopa but it's much more than dystonia. I wrote a list for my appt. with the dystonia clinic...when? I won't even guess
I'm new to this forum and live in British Columbia, Canada where there is really no support right now. I was diagnosed 2 years ago with dystonia (oral facial) that is responsive to L-dopa but it's much more than dystonia. I wrote a list for my appt. with the dystonia clinic...when? I won't even guess
rideabike
in
Multiple System Atrophy Trust
4 years ago
Switching from Carbidopa Levidopa to Mannitol
So you have to wean off of C/L to start Mannitol? What dose do you start with? Which brand of Mannitol is best? Someone said Walmart carries it. Would it be better to order it else where?
So you have to wean off of C/L to start Mannitol? What dose do you start with? Which brand of Mannitol is best? Someone said Walmart carries it. Would it be better to order it else where?
Mjm012649
in
Cure Parkinson's
4 years ago
Enterococcus faecalis and Sinemet
According to this link, posted by aspergerian13 a few days ago, https://www.pnas.org/content/early/2020/04/07/2003785117 , researchers have found that reduced benefits and many side effects of
Levodopa
Carbidopa
can be the result of a bacterial decarboxylase enzyme, produced by the commensal gut microbe
According to this link, posted by aspergerian13 a few days ago, https://www.pnas.org/content/early/2020/04/07/2003785117 , researchers have found that reduced benefits and many side effects of
Levodopa
Carbidopa
can be the result of a bacterial decarboxylase enzyme, produced by the commensal gut microbe
Parkie-
in
Cure Parkinson's
4 years ago
Trial and error
My hwp is feeling very depressed today. He's 58, dx 5 years ago and for last 6 months he started Modopar (50mg levodopa / 12.5mg benserazide) 1 caps 3 times a day (6am - 12- 6 pm) taken with 1 x ropinirole (12mg) at 6am. He also takes B1 500mg. He's main problem is freezing - his left foot/leg which
My hwp is feeling very depressed today. He's 58, dx 5 years ago and for last 6 months he started Modopar (50mg levodopa / 12.5mg benserazide) 1 caps 3 times a day (6am - 12- 6 pm) taken with 1 x ropinirole (12mg) at 6am. He also takes B1 500mg. He's main problem is freezing - his left foot/leg which
Vik38
in
Cure Parkinson's
4 years ago
CARBIDOPA FOR MUCANA ??
Whats the Carbidopa to be given with Mucana?? Mucana has been something we gave mom a few years ago , but that was before she had the fall which left her completely bed/wheelchair bound . I have been fighting a lot of battles as the doctors almost gave up when they should have been trying to help. Long
Whats the Carbidopa to be given with Mucana?? Mucana has been something we gave mom a few years ago , but that was before she had the fall which left her completely bed/wheelchair bound . I have been fighting a lot of battles as the doctors almost gave up when they should have been trying to help. Long
mymomhaspd
in
Cure Parkinson's
4 years ago
Recent deterioration in food interference with levodopa
Good morning all, I hope you are all safe and well. I wanted to ask if like me, you have experienced during the recent lockdown some level of deterioration. In my case I have observed that the Sinemet Plus is lasting less time (up to 3 hours in the morning but otherwise, 2 hours if I had food 1 hour
Good morning all, I hope you are all safe and well. I wanted to ask if like me, you have experienced during the recent lockdown some level of deterioration. In my case I have observed that the Sinemet Plus is lasting less time (up to 3 hours in the morning but otherwise, 2 hours if I had food 1 hour
enjoy2013
in
Cure Parkinson's
4 years ago
How long before levodopa starts working when first introduced?
I was diagnosed at age 70 about a year ago and prescribed Madopar 50/12.5, but resisted taking it until about 5 weeks ago by when a left hand tremor had developed to supplement the Bradykinesia, stiffness, awkward walking etc. Until now nothing’s happened. I was wondering whether it’s normal to take
I was diagnosed at age 70 about a year ago and prescribed Madopar 50/12.5, but resisted taking it until about 5 weeks ago by when a left hand tremor had developed to supplement the Bradykinesia, stiffness, awkward walking etc. Until now nothing’s happened. I was wondering whether it’s normal to take
Slobber1
in
Cure Parkinson's
4 years ago
Drop Foot and Parkinson's - is there a link?
Diagnosed with PD one year ago. Main symptoms dragging left foot and left hand tremor that both responded well to 25/100 Co-Careldopa 3 times a day. All fine till 10 days ago. Woke up, got up, started to walk, right foot felt very strange. Sat down and tried to move and rotate foot. Discovered that if
Diagnosed with PD one year ago. Main symptoms dragging left foot and left hand tremor that both responded well to 25/100 Co-Careldopa 3 times a day. All fine till 10 days ago. Woke up, got up, started to walk, right foot felt very strange. Sat down and tried to move and rotate foot. Discovered that if
Dobro52
in
Cure Parkinson's
4 years ago
Carbidopa in Sinemet very harmful.
I recently ran across a research study on the serious damage done by the
carbidopa
in Sinemet (generic =
carbidopa
levodopa
).
I recently ran across a research study on the serious damage done by the
carbidopa
in Sinemet (generic =
carbidopa
levodopa
).
grandpianoman
in
Restless Legs Syndrome
4 years ago
01/11/2020 neurologist appointment
In my case that is
carbidopa
levodopa
. Increased, for effort to control tremor, my CL dose interval to two hours. Doc.- “...we might be able to consolidate those doses into a longer acting form such as Inbrija...” Doctor doesn’t appreciate extended release 50/200 extended release CL.
In my case that is
carbidopa
levodopa
. Increased, for effort to control tremor, my CL dose interval to two hours. Doc.- “...we might be able to consolidate those doses into a longer acting form such as Inbrija...” Doctor doesn’t appreciate extended release 50/200 extended release CL.
Hidden
in
Cure Parkinson's
4 years ago
Greetings, I am new here. I wish everyone health and patience during this challenging time.
I am 66 and trying to explore options for a monotherapy. My question is: What kind of medications did you use during the early stages of PD and how long were you able to stick with them before you started taking L-Dopa? Thank you for your kind answers.
I am 66 and trying to explore options for a monotherapy. My question is: What kind of medications did you use during the early stages of PD and how long were you able to stick with them before you started taking L-Dopa? Thank you for your kind answers.
SunflowerKZN
in
Cure Parkinson's
4 years ago
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