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Am I reversing out?
I feel like death. Every other time when I’ve been put on B12, twice before I noticed a gradual improvement in all my symptoms. My gp gave me loading doses only so I then nose dived. my main symptoms have always been frequent urination (I’ve had all other possibilities behind this checked and apparently
I feel like death. Every other time when I’ve been put on B12, twice before I noticed a gradual improvement in all my symptoms. My gp gave me loading doses only so I then nose dived. my main symptoms have always been frequent urination (I’ve had all other possibilities behind this checked and apparently
Gobbozoid
in
Pernicious Anaemia Society
1 month ago
Problems with Pascoe B12
Hi, I live in Holland and SI EOD. I have a prescription for Hydroxocobalamin HCL twice a week and the rest I order from Germany. (Rotexmedica/Panpharma). Because of the shortages Hydroxo B12 in Holland and Panpharma I ordered Pascoe and started to feel very poorly. I also have Hashimoto so I started
Hi, I live in Holland and SI EOD. I have a prescription for Hydroxocobalamin HCL twice a week and the rest I order from Germany. (Rotexmedica/Panpharma). Because of the shortages Hydroxo B12 in Holland and Panpharma I ordered Pascoe and started to feel very poorly. I also have Hashimoto so I started
olga67
in
Pernicious Anaemia Society
1 month ago
What folate level should I aim for?
I've been searching and I cannot find the answer to this anywhere - what folate level should I aim for? I found one study where healthy men had a folate level of 12 ng/ml. https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4236337/ Mine is deficient at 3 micro g /L (range 3-25). I'd love to know what is
I've been searching and I cannot find the answer to this anywhere - what folate level should I aim for? I found one study where healthy men had a folate level of 12 ng/ml. https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4236337/ Mine is deficient at 3 micro g /L (range 3-25). I'd love to know what is
Carrie234
in
Thyroid UK
1 month ago
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Active B12 29 (37.5-150)
These are my student daughter's results. She is at uni in Edinburgh and struggling to find g.p. practice to take her on. She has an iron panel coming too but sample haemolised so have to redo it. These are first blood tests and she is not taking any supplements. Please advise on thoughts and next
These are my student daughter's results. She is at uni in Edinburgh and struggling to find g.p. practice to take her on. She has an iron panel coming too but sample haemolised so have to redo it. These are first blood tests and she is not taking any supplements. Please advise on thoughts and next
AKatieD
in
Pernicious Anaemia Society
1 month ago
Antibiotic for UTI
I have been prescribed nitrofurantoin from my surgery for my UTI. Bearing in mind they don’t acknowledge that I have a b12 deficiency, should I be taking them? I did mention it to the triage nurse I spoke. I started B12 injections a couple of weeks ago, so hoping it won’t cause me any problems, but
I have been prescribed nitrofurantoin from my surgery for my UTI. Bearing in mind they don’t acknowledge that I have a b12 deficiency, should I be taking them? I did mention it to the triage nurse I spoke. I started B12 injections a couple of weeks ago, so hoping it won’t cause me any problems, but
Chickens44
in
Pernicious Anaemia Society
1 month ago
still v tired
hi All. I have PA. I SI weekly , take iron and multivitamins which includes folate . My bloods seem ok . Yet most of the time I’m still exhausted. I miss the energy I used to have . I’m 57 and fairly active but I’m tired of feeling tired ! Even after 11 hours sleep I still feel knackered by the afternoon
hi All. I have PA. I SI weekly , take iron and multivitamins which includes folate . My bloods seem ok . Yet most of the time I’m still exhausted. I miss the energy I used to have . I’m 57 and fairly active but I’m tired of feeling tired ! Even after 11 hours sleep I still feel knackered by the afternoon
lifegems
in
Pernicious Anaemia Society
1 month ago
needle size for IM injection?
just wanted to know what needle size I should be using? I am not sure what size the gp was using and was concerned the ones I am using may be a bit to short. I say this as although I am using the same b12 they do, it’s seeming less effective than when I had them through my gp.
just wanted to know what needle size I should be using? I am not sure what size the gp was using and was concerned the ones I am using may be a bit to short. I say this as although I am using the same b12 they do, it’s seeming less effective than when I had them through my gp.
Gobbozoid
in
Pernicious Anaemia Society
1 month ago
FasFasting before blood test
hi, following my last post, my gp has agreed to add B12, ferritin etc to my annual thyroid review. I've been told here to not take my usual morning dose before the test;however, looking online most medical websites say its not necessary to fast. Anyone care to clarify for me please. thanks
hi, following my last post, my gp has agreed to add B12, ferritin etc to my annual thyroid review. I've been told here to not take my usual morning dose before the test;however, looking online most medical websites say its not necessary to fast. Anyone care to clarify for me please. thanks
Doats
in
Thyroid UK
1 month ago
Next steps
HelloI have asked for advice previously in relation to my mum. She has been taking levo 25 for a while now. We have managed to get a new test completed and her TSH has increased quite a lot. FT3/4 at the lower end of range. She is also deficient in B12. We have been waiting a while for these so as
HelloI have asked for advice previously in relation to my mum. She has been taking levo 25 for a while now. We have managed to get a new test completed and her TSH has increased quite a lot. FT3/4 at the lower end of range. She is also deficient in B12. We have been waiting a while for these so as
RedOne1
in
Thyroid UK
1 month ago
PA what GP should have told me and I have only just found out myself due to not being treated with all my other abnormal results deficiency
please help me I have B12 + folate + ferritin deficiencies but being given B12 injections should have been 12 weekly but was more 20 weeks plus they would not do anything because of my folate and ferritin was abnormal this been left with 5 abnormal blood tests every time bloods was done even now after
please help me I have B12 + folate + ferritin deficiencies but being given B12 injections should have been 12 weekly but was more 20 weeks plus they would not do anything because of my folate and ferritin was abnormal this been left with 5 abnormal blood tests every time bloods was done even now after
mjm1929
in
Pernicious Anaemia Society
1 month ago
Warfarin and B12 injections?
Could anyone tell me if oral anticoagulation treatment has caused them any issues with B12 injections please? My father is on Warfarin for long-standing atrial fibrillation although I suspect that it was/is actually a B12 problem. He needs injections (family metabolism failure) but his doctor is uninterested
Could anyone tell me if oral anticoagulation treatment has caused them any issues with B12 injections please? My father is on Warfarin for long-standing atrial fibrillation although I suspect that it was/is actually a B12 problem. He needs injections (family metabolism failure) but his doctor is uninterested
bookish
in
Pernicious Anaemia Society
1 month ago
Advice on Blood Test Results
Hi Everyone Sorry for long post. I am so confused now. These are my thyroid blood test results, unfortunately I never know when the district nurse if coming out to do the blood test so I can’t leave the recommended 24hrs between Levothyroxine and blood test. I took my Levothyroxine at between
Hi Everyone Sorry for long post. I am so confused now. These are my thyroid blood test results, unfortunately I never know when the district nurse if coming out to do the blood test so I can’t leave the recommended 24hrs between Levothyroxine and blood test. I took my Levothyroxine at between
AlphaWolf5195
in
Thyroid UK
1 month ago
Error but not a mistake
Having added Thiamine B1 and having it positive I regulated the changes by reducing the amount of times per day I supplemented. That was not an error. I did make the error of not quickly going back to my 5 times a day of supplementing. I do not consider it a mistake as how would I know? With the new
Having added Thiamine B1 and having it positive I regulated the changes by reducing the amount of times per day I supplemented. That was not an error. I did make the error of not quickly going back to my 5 times a day of supplementing. I do not consider it a mistake as how would I know? With the new
WIZARD6787
in
Pernicious Anaemia Society
1 month ago
More test results to understand
I have now seen an endocrinologist and had another set of tests. My TSH is not measurable at < 0.02, my FT4 is within range at 20.9 (11-22.7) and my FT3 is 5.9 (3.5 -6.5), much higher than it has ever been before. My previous results on 15/04 were TSH 0.02, FT4 23.6 (12-22), FT3 4.7 (3.1-6.8). These
I have now seen an endocrinologist and had another set of tests. My TSH is not measurable at < 0.02, my FT4 is within range at 20.9 (11-22.7) and my FT3 is 5.9 (3.5 -6.5), much higher than it has ever been before. My previous results on 15/04 were TSH 0.02, FT4 23.6 (12-22), FT3 4.7 (3.1-6.8). These
Jasper79
in
Thyroid UK
1 month ago
Negative Reply from GP
I wrote to my GP advising the fact I had an iron infusion and hade started EOD B12 injections, etc. and asking if I could have the B12 ampoules on prescription. Needless to say I didn’t really expect them to say yes, and they didn’t surprise me! However I am very angry that they won’t accept the fact
I wrote to my GP advising the fact I had an iron infusion and hade started EOD B12 injections, etc. and asking if I could have the B12 ampoules on prescription. Needless to say I didn’t really expect them to say yes, and they didn’t surprise me! However I am very angry that they won’t accept the fact
Chickens44
in
Pernicious Anaemia Society
1 month ago
B12 and feet
Hi all, Have posted before. I have been on 3 monthly B12 injections for a long time, and recently been put on 2 monthly injections after a blood test due to symptoms getting worse. One symptom that seems to be getting worse, very hot feet, pins & needles really painful to walk on. Any suggestions
Hi all, Have posted before. I have been on 3 monthly B12 injections for a long time, and recently been put on 2 monthly injections after a blood test due to symptoms getting worse. One symptom that seems to be getting worse, very hot feet, pins & needles really painful to walk on. Any suggestions
Spick
in
Pernicious Anaemia Society
1 month ago
Folate/B12 advice
Folate - Serum 7.4 ug/L (>7)Vitamin B12 150 nmol/L (37.5 - 188) How can I get my folate up? I'm assuming it's way too low? I've been taking Thorne Basic B Complex or Liposomal B Complex daily for ages, plus a B12 spray occasionally if I forget. Should I take a seperate folate supplement?
Folate - Serum 7.4 ug/L (>7)Vitamin B12 150 nmol/L (37.5 - 188) How can I get my folate up? I'm assuming it's way too low? I've been taking Thorne Basic B Complex or Liposomal B Complex daily for ages, plus a B12 spray occasionally if I forget. Should I take a seperate folate supplement?
JUUJOO
in
Thyroid UK
1 month ago
IFAB test preparation
Hopefully I have finally been allowed an IFaB test by the surgery Clinician which I am intending to have tomorrow morning along with being tested for Lyme disease 😱 I am, however, taking 2900mcg sublingual - 900mcg methyl from B complex, 1000mcg Solgar cyano and 1000mcg B12 complex (methyl, adeno and
Hopefully I have finally been allowed an IFaB test by the surgery Clinician which I am intending to have tomorrow morning along with being tested for Lyme disease 😱 I am, however, taking 2900mcg sublingual - 900mcg methyl from B complex, 1000mcg Solgar cyano and 1000mcg B12 complex (methyl, adeno and
SpringerMom
in
Pernicious Anaemia Society
1 month ago
Vitamin/Mineral blood test correlation with diet
Hello I am new here and just getting to grips with everything Can anyone help me understand the correlation between blood test results and diet/supplements.
I am trying to understand what period of time
might affect my test results. For example if my B12 is low does that reflect my
Hello I am new here and just getting to grips with everything Can anyone help me understand the correlation between blood test results and diet/supplements.
I am trying to understand what period of time
might affect my test results. For example if my B12 is low does that reflect my
Spritze
in
Thyroid UK
9 months ago
Latest Medicheck results
I would really welcome any advice and comments on my latest Medicheck results as I am continuing to experience fatigue on a daily basis and generally feeling poo. I followed the guidelines of when to take Levothyroxine but continued to take B12 as I feel too unwell without it. TIA.
I would really welcome any advice and comments on my latest Medicheck results as I am continuing to experience fatigue on a daily basis and generally feeling poo. I followed the guidelines of when to take Levothyroxine but continued to take B12 as I feel too unwell without it. TIA.
SpringerMom
in
Thyroid UK
1 month ago
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