still v tired

[lifegems]

hi All. I have PA. I SI weekly , take iron and multivitamins which includes folate . My bloods seem ok . Yet most of the time I’m still exhausted. I miss the energy I used to have . I’m 57 and fairly active but I’m tired of feeling tired ! Even after 11 hours sleep I still feel knackered by the afternoon. Any tips ? Anything else i can take to help ? Diet is pretty good 😊

[Nackapan]

Ditto.It's a condition thats managed not cured .

Pacing .

Lower expectations.

Frustrating but the only way for me.

I'm very grateful to get this far however.

5 +years in

[lifegems in reply to Nackapan]

Yes same I’m probably 10 years in . But I guess I just hoped that with treatment I would return to normal . I have megaloblastic anemia so I guess that contributes

[Technoid in reply to lifegems]

You still have megaloblastic anemia despite injecting B12 weekly? Do your blood tests show that? It would certainly account for always feeling tired if the anemia is not being corrected.

[lifegems in reply to Technoid]

That’s a good point I’ve not had blood tested for it again since first diagnosis. I shall do so

[B12again]

I think you will find this podcast of two ladies interviewing Dr Klein on Iron and B12 deficiency. He is an expert on this subject.

tlcsessions.net/episodes/ep...

[lifegems in reply to B12again]

Thanks I’ll listen

[lifegems in reply to B12again]

This is really interesting. I always wondered if it was the same situation with iron and now I’m wondering if I need to take an infusion . It’s so expensive but I would pay to get some energy back !

[B12again in reply to lifegems]

You can contact Dr Klein through his new website. You can fill in a one minute health check and he will respond. See what you think:

cambridgeironandb12.com/one...

[lifegems in reply to B12again]

Already did after the podcast ! Thanks again

[B12again in reply to lifegems]

If you proceed could let us know how it went. Even if you don’t, could you kindly let us know how the initial contact went. Good luck. 🙂

[Oneash]

This is about energy at a cellular level. I heard recently, cells are either in burning mode or storage mode. Eat too much sugar and you trigger insulin and storage mode. The recommendation was to get 80% of your calories needed from fat. Also after a long bought of not doing much, your muscles will need a bit of building, I know mine do. So it's a case of making sure you get out every day and go for walk. This weather isn't helping in UK. I know I do feel better when I get out in the sun all day, so vit D levels too.

Where's the research on long-term recovery?

Try and plan to do something a bit different or go somewhere new. It helps wake the brain cells, I find.

[lifegems in reply to Oneash]

Thanks but I’m out most days as I live in Portugal. Lots of sun 😀 I’m actually very active as I do Pilates mountain bike train etc but it’s all through a fog of being tired so I feel like I’m constantly pushing myself. Would just like to feel energised again !

[Oneash in reply to lifegems]

Wow! I wish I could be as active.

[lifegems in reply to Oneash]

I know some have it much worse than me so I am grateful

[Hockey_player]

Maybe start by trying every other day injections until you feel better? If that does not work, get a check up from your doctor because it could be something else.

[lifegems in reply to Hockey_player]

Thanks . I’ve done the usual checks or rather the dr has . I’m wondering if I need an iron infusion now

[Hockey_player in reply to lifegems]

It's important with iron that you do not have too much. So get tested before an infusion. Did they do tests for thyroid/diabetes?