Error but not a mistake: Having added... - Pernicious Anaemi...

Pernicious Anaemia Society

32,672 members24,065 posts

Error but not a mistake

WIZARD6787 profile image
20 Replies

Having added Thiamine B1 and having it positive I regulated the changes by reducing the amount of times per day I supplemented. That was not an error. I did make the error of not quickly going back to my 5 times a day of supplementing.

I do not consider it a mistake as how would I know?

With the new information on successful treatment of 25 mg per day of B12 in 30 days I am considering abandoning the B1 and increasing my B12 for 30 days. I am particularly drawn to the fact no 'reversing out' or adjustment was noted.

I guess I will add Folic acid for a week and then regroup.

It the 45 day trial of B1 I had a friend die from suicide and another friend become so erratic it is best for me not to interact with them. Trauma or processing past trauma uses up my bodies ability to heal.

Written by
WIZARD6787 profile image
WIZARD6787
To view profiles and participate in discussions please or .
Read more about...
20 Replies
Wwwdot profile image
Wwwdot

Hi Wiz

Sorry to learn of your friend’s suicide - it is never easy to adjust to a loss like that. Combined with another friend’s erratic behaviour you must feel emotionally beaten up. That will take its toll.

Perhaps give yourself a break of a week or so just being as is before you embark on your next trial? It sounds like you could do with some TLC. here’s some from me 🤗🤗🤗🤗🤗🤗🤗

🤗🤗🤗

WIZARD6787 profile image
WIZARD6787 in reply toWwwdot

My work understanding how to grieve makes my work in trying how to self treat B12 etc seem simplistic. There is even more bullshit about processing trauma than self treating B12.

The grieving never gets easier. The getting to it and recovery became more efficient. For me I know when the work is done when I think of the person and smile. The traumatic events when they are just a memory and no longer affect the now.

ACritical profile image
ACritical

make it Folinic acid or folate/ methyl folate

WIZARD6787 profile image
WIZARD6787 in reply toACritical

My study led me to L-MTHF 1,700 DFE.

What says you?

ACritical profile image
ACritical in reply toWIZARD6787

Yes , good one!

👍🏻
ACritical profile image
ACritical in reply toACritical

I can’t take supplements very well and use these. Made in Germany I believe.

WIZARD6787 profile image
WIZARD6787

Thanks for the help.

WIZARD6787 profile image
WIZARD6787

I am aware L Methafolate and MFTR methafolate are simply methylfolate and bioavailable is not a scientific term.

Scotlad76 profile image
Scotlad76

Focusing on past Trauma keeps us there. Let it go and live your life.

Yeswithasmile profile image
Yeswithasmile

Very sorry to hear about your friend. So sad for those left behind.

May I ask how much b1 you were taking? Having read that for neurological repair you need b12,b1 and b6 I am interested in the dose you have tried. Noting people with Parkinson’s take large doses or thiamine. Interested to know your thoughts on dose.

WIZARD6787 profile image
WIZARD6787 in reply toYeswithasmile

Current Trial; 1.5mg methylcobalamin 3mg/ml, 1.5mg adenosylcobalamin 3mg/ml, 1.5mg hydroxocobalamin 3mg/ml. SC injection 4-5 times a day including setting an alarm to inject at night if warrented. 50 mg B6 in the form of P-5-P three times a day or pain from peripheral neuropathy returns. Benfotiamin B1 300 mg three times a day. 2000 mg Magnesium L-Threonate twice a day to prevent muscle cramps. Betiane 4mg divided into three doses or my stuffy head comes back.

ncbi.nlm.nih.gov/pmc/articl...

The above case study is the first one I have read outlining success with neurological symptoms that I value. Some on this forum have decided that it only applies if you have genetic test results in hand. I use science and rational thinking. I am designing my next trial with the new information from this case study.

I also find Elliot Overton's work valuable. He has yet to write a book and his videos tend to be long as that is what is needed. He too is results not conjecture based.

Yeswithasmile profile image
Yeswithasmile in reply toWIZARD6787

Thank you very much for this reply.

Interesting to note your splitting of doses.

Also interesting is the magnesium L threonate as I tried this in 2022 for the year and didn’t feel it was of benefit. That said I have learned a lot since then. How did you get to such a low dose for that may I ask?

I’m assuming you’ve trialled the doses on the b’s and this is the lowest you feel of benefit? Although the b1 seems quite high?

Thank you for the link and the EO tip. Appreciated.

WIZARD6787 profile image
WIZARD6787 in reply toYeswithasmile

I get 2mg by leaving an open bag of Magnesium/Epsom salts on my desk.

Just kidding I quickly looked at the bottle and saw 2000 and made the mistake of assuming mcg. Thank you for picking that up! I made the correction in the post.

I am Elliot Overton use effective amounts as the best description. Hence the effective dose of B1.

I am injecting 16.5 mg to 18 mg pre day and have yet to reach a level that is not more effective than the last. I am in a holding pattern right now as I am having too much fun including open water swimming. I was able to swim 1/2 mile last year which used to be my minimum. I expect to reach 1/2 mile much quicker this year.

Thing with open water swimming is you can only swim to far once: ). I do swim with in 50 yards of the shore and with a buoy that can support my weight. When lightning comes I go to the shore.

WIZARD6787 profile image
WIZARD6787 in reply toYeswithasmile

I had severe lifelong cramps. They went away with my B12 supplements. Then I could tell they were coming back and the magnesium helped. Magnesium had never helped before.

I go with my body is nothing like it was even 6 months ago so what might have been appropriate then is not now etc.

Yeswithasmile profile image
Yeswithasmile in reply toWIZARD6787

Oh ok then. I understand. Thank you for your description of how you’ve done things. I know patience is a virtue! It is very easy to rush in with a high dose and then have to backtrack. I did that with thyroid medication - frustrating and a big lesson learnt.

I love the thought of open water swimming and regularly see people in the sea where I live but I just have to envy theirs and yours motivation and bravery!! I just can’t put myself through that. Hats off to you!

Thanks again for the replies.

Scotlad76 profile image
Scotlad76

Thank you

EiCa profile image
EiCa

I am not sure a lot of people have experienced real trauma so they think time should just heal it. It does not. It gets easier but doesn't go away. It resides in our sub-conscious. I have PTSD having not dealt with one traumatic event after the other...mostly involving addicitions of those I love since I was a kid...and it is really important to find a way to deal with all of it. I have weekly therapy, and have for a long time, but there are a lot of "layers" to deal with. Finding a confidante who will listen is really healing. I believe, and my doctors do too, that this is the basis of my illness. I am considering increasing my injections because of your posts. I know stress uses up a lot of our B12. Thank you for sharing.

WIZARD6787 profile image
WIZARD6787 in reply toEiCa

I brought up trauma in the context of self treating for B12/etc. I was not expecting "advice" on trauma. My bad.

I will send you a PM.

EiCa profile image
EiCa in reply toWIZARD6787

I did not intend to come across as giving advice. I was trying to help people that have not experienced trauma understand. I am sorry you feel I spoke for you and I mis-interpreted, and yes my feelings are hurt now, but when I read "just let it go", it kind of hit a nerve. I was actually trying to support you. I have a tendency to defend people whose feelings might be hurt, but clearly yours weren't. I actually thanked you for helping me consider more injections in light of my mental struggle to deal with a lifetime of trauma. Lesson learned.

WIZARD6787 profile image
WIZARD6787 in reply toEiCa

You are all good. You shared and did not instruct about something you knew nothing about.

My feelings were not hurt I was simply not perpetuating the myth that one should not process trauma and get on with their life. Disrespectful as well as incorrect.

I would never tell anyone they must process their trauma. That would just be a different end of the same ignorant stick.

I often her people say that help is available and I say "50,000 people a year commit suicide and you believe the issue is people do not call. How many of those dead had been in years of treatment that failed them?

I like this line from Bob Dylan "Peeling off one more layer of skin, keeping one eye open for the persecutor within."

Not what you're looking for?

You may also like...

Error posting the amount I was injecting

I discovered last night I made an error in the amount of methylcobalamin I was injecting. The...

Error in Design

I experienced successful results of a 12 day trial of 1.5 mg of adenosylcobalamin and 1.5 mg of...
WIZARD6787 profile image

Oops not B12 but B1

I recently Ordered some "B12" and when it arrived put it in the fridge. Went to use it and noticed...
Pixielula profile image

B12 Deficiency and B1 thiamine deficiency?

I have sub acute degeneration of the spine due to B12. I have demyelination of the myelin sheath...
montague53 profile image

B1 Thiamine

Current Trial (7 Days); 1.5mg methylcobalamin 3mg/ml, 1.5mg adenosylcobalamin 3mg/ml, 1mg...
WIZARD6787 profile image

Moderation team

See all
Gambit62 profile image
Gambit62Administrator
Foggyme profile image
FoggymeAdministrator
taka profile image
takaAdministrator

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.