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CBD oil and other alternative treatmentsfor polymyalgia (PMR)?
My wife (age 58) has been diagnosed w/ PMR. She is down to 15mg of prednisone, but her symptoms are already getting worse. She is on Dapsone (antibiotic), Prednisone, Gabapentin, calcium and vitamin D suppliments, and Advil (which she says does nothing). It is really hard to watch her condition deteriorate
My wife (age 58) has been diagnosed w/ PMR. She is down to 15mg of prednisone, but her symptoms are already getting worse. She is on Dapsone (antibiotic), Prednisone, Gabapentin, calcium and vitamin D suppliments, and Advil (which she says does nothing). It is really hard to watch her condition deteriorate
shedmaker
in
NRAS
4 years ago
Anyone recognise these symptoms?
My present situation is one of great despair and isolation. I am a 50 yr old female, am currently housebound, for a year now and unable to work due to my ever mysterious symptoms, I live on my own and have had to close my business and rely on daily help from my elderly parents. I have no support from
My present situation is one of great despair and isolation. I am a 50 yr old female, am currently housebound, for a year now and unable to work due to my ever mysterious symptoms, I live on my own and have had to close my business and rely on daily help from my elderly parents. I have no support from
Verysorelegs
in
The UK Mastocytosis Support Group
4 years ago
Calcium supplement
Hi y’all. Has anyone found a good calcium supplement you could recommend? The one the doc prescribed includes soybean oil which can promote inflammation due to high omega 6!!!!!!!!! Keep well xx
Hi y’all. Has anyone found a good calcium supplement you could recommend? The one the doc prescribed includes soybean oil which can promote inflammation due to high omega 6!!!!!!!!! Keep well xx
Nicobeak
in
PMRGCAuk
4 years ago
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Driving and epilepsy
I've had epilepsy since age 15. I'm 48 now. I've driven some parts in life and have been stuck on bus the other half. Finally got an older car and license back and so darn happy to drive again!!!! Did anyone know that valium can stop seizures? I just found that out a few years ago. I'm desperately trying
I've had epilepsy since age 15. I'm 48 now. I've driven some parts in life and have been stuck on bus the other half. Finally got an older car and license back and so darn happy to drive again!!!! Did anyone know that valium can stop seizures? I just found that out a few years ago. I'm desperately trying
Lovedogs0877
in
Epilepsy Society
3 years ago
Preventing Heart Disease When You Have Rheumatoid Arthritis: Which Tests Do You Need?
Having rheumatoid arthritis raises your risk of heart disease, but getting certain tests to keep tabs on risk factors and symptoms can help you stay healthy. Check out A Patient’s Guide to Understanding Rheumatoid Arthritis and Heart Disease for more information on this topic. Tests to Prevent Heart
Having rheumatoid arthritis raises your risk of heart disease, but getting certain tests to keep tabs on risk factors and symptoms can help you stay healthy. Check out A Patient’s Guide to Understanding Rheumatoid Arthritis and Heart Disease for more information on this topic. Tests to Prevent Heart
lupus-support1
Administrator
in
LUpus Patients Understanding and Support
4 years ago
A pint a day
I mentioned yesterday that I just achieved my first 0 Pred day in two years and without a flare. I put it down to my very slow taper plan but I was just wondering if my average Guinness intake of a pint a day might of helped😁🍺 10 REASONS WHY GUINNESS IS GOOD FOR YOU Spinach, kale, avocado, Guinness—A
I mentioned yesterday that I just achieved my first 0 Pred day in two years and without a flare. I put it down to my very slow taper plan but I was just wondering if my average Guinness intake of a pint a day might of helped😁🍺 10 REASONS WHY GUINNESS IS GOOD FOR YOU Spinach, kale, avocado, Guinness—A
JohnnyQ50
in
PMRGCAuk
4 years ago
Test results and more questions than answers!
Hi I am hoping one of you more experienced people can help me move forward with my medication. I am currently on 75mcg Levo and 30mcg T3. I am greatly improved especially mentally - much calmer and no anxiety or feelings of panic. My weight has stopped piling on may even be reducing a wee bit - I no
Hi I am hoping one of you more experienced people can help me move forward with my medication. I am currently on 75mcg Levo and 30mcg T3. I am greatly improved especially mentally - much calmer and no anxiety or feelings of panic. My weight has stopped piling on may even be reducing a wee bit - I no
Carna
in
Thyroid UK
4 years ago
Diet and misleading result?
Hello everyone I posted a question yesterday and said many of my test results were normal then. But now I've started thinking and thinking about what might have actually caused it! Before my last blood test, I had started a diet (low potassium, low calcium, low protein, low everything! I actually
Hello everyone I posted a question yesterday and said many of my test results were normal then. But now I've started thinking and thinking about what might have actually caused it! Before my last blood test, I had started a diet (low potassium, low calcium, low protein, low everything! I actually
Sharam
in
Kidney Disease
4 years ago
Prolia
I am 64 years old. I have been off calcium for about 5 years due to chronic kidney stones. My dexa scores have declined more and I am now at -3.7 in spine and -3.3 in hips. Doctors are telling me to start injections which I assume are prolia. I am to meet with a specialist soon to discuss next steps
I am 64 years old. I have been off calcium for about 5 years due to chronic kidney stones. My dexa scores have declined more and I am now at -3.7 in spine and -3.3 in hips. Doctors are telling me to start injections which I assume are prolia. I am to meet with a specialist soon to discuss next steps
Mbaloo
in
Bone Health and Osteoporosis UK
4 years ago
Eylea experiences please
I was very frightened to have a sudden extreme distortion in vision in one eye just before Christmas- my optician immediately referred me to a consultant in January and l have a macular oedema (think that’s correct) probably due to extreme short sight -12dioptre in that eye. I was told the only treatment
I was very frightened to have a sudden extreme distortion in vision in one eye just before Christmas- my optician immediately referred me to a consultant in January and l have a macular oedema (think that’s correct) probably due to extreme short sight -12dioptre in that eye. I was told the only treatment
Hidden
in
Macular Society
3 years ago
Bisphosphonates
I was diagnosed with PMR at the end of January, it did take 4 GP's to finally decide on the problems, my GP started me on 20mg Prednisone which has helped greatly, no more pain! I am now taking 10mg for a couple of weeks, then advised to alternate take 2 and 1. My question is, do I need to take a bisphosphonate
I was diagnosed with PMR at the end of January, it did take 4 GP's to finally decide on the problems, my GP started me on 20mg Prednisone which has helped greatly, no more pain! I am now taking 10mg for a couple of weeks, then advised to alternate take 2 and 1. My question is, do I need to take a bisphosphonate
Yealink
in
PMRGCAuk
4 years ago
Please help - recently discovered various issues which may all be linked to thyroid disorder? Still in the dark, no Endo appointment yet
Sorry, this is a long post! I am 35 and am lucky to have had really good health until recently. I lead a very active lifestyle (sea kayaking, running, snorkelling, hill walking) and eat a varied, healthy diet. There are now various issues (some of which I have found myself with private blood tests),
Sorry, this is a long post! I am 35 and am lucky to have had really good health until recently. I lead a very active lifestyle (sea kayaking, running, snorkelling, hill walking) and eat a varied, healthy diet. There are now various issues (some of which I have found myself with private blood tests),
1503640
in
Thyroid UK
4 years ago
Still loopy
Hi everyone, I've been taking 60mg of codeine phosphate for the past 6 months but it's not working anymore, I really don't want to take anymore than that, I had a hard enough time getting it off my doctor, I did iron therapy for the past 2 years after blood iron tests came back low, I've since got my
Hi everyone, I've been taking 60mg of codeine phosphate for the past 6 months but it's not working anymore, I really don't want to take anymore than that, I had a hard enough time getting it off my doctor, I did iron therapy for the past 2 years after blood iron tests came back low, I've since got my
Loopylegs
in
Restless Legs Syndrome
4 years ago
Recommended dose of Vitamin D3
Vitamin D I see in the discussion on Vitamin D many people seem to be taking massive doses. The recommended dose of D3 which I take together with calcium is 800 iu, which I believe is what the government is issuing. Mine is already prescribed I don’t have the link handy, but too much is shown to be
Vitamin D I see in the discussion on Vitamin D many people seem to be taking massive doses. The recommended dose of D3 which I take together with calcium is 800 iu, which I believe is what the government is issuing. Mine is already prescribed I don’t have the link handy, but too much is shown to be
Catlover432
in
Lung Conditions Community Forum
4 years ago
Dosage reduction
Following on from my post a month ago, this is where I am now. Continued with 10 mg daily until I reached 6 weeks, then reduced to 9 mg, which is where I am now. My Dr wants me to continue to taper slowly by 1 mg every 6-8 weeks. Dr prefers to focus on symptoms rather than blood tests. I asked if
Following on from my post a month ago, this is where I am now. Continued with 10 mg daily until I reached 6 weeks, then reduced to 9 mg, which is where I am now. My Dr wants me to continue to taper slowly by 1 mg every 6-8 weeks. Dr prefers to focus on symptoms rather than blood tests. I asked if
Tinasleepyhead
in
PMRGCAuk
4 years ago
Zytiga Effects On Bloodwork
Hello all, I would appreciate feedback on interpretation of my husband’s latest blood test results. As background, he was diagnosed with stage 4 PC in July 2019 (Gleason 9, PSA 77, several bone mets). He has been on Casodex since diagnosis, then put on Eligard about a month later, and he’s been taking
Hello all, I would appreciate feedback on interpretation of my husband’s latest blood test results. As background, he was diagnosed with stage 4 PC in July 2019 (Gleason 9, PSA 77, several bone mets). He has been on Casodex since diagnosis, then put on Eligard about a month later, and he’s been taking
Dett
in
Advanced Prostate Cancer
4 years ago
Bloods Advice please - new and feelimg wobbly
Hi all, I'm having a bit of a hard time mentally and seem to have lots of little niggling symptoms that I'm not sure are related to the thyroid or are stress/anxiety related. Briefly, I gave birth last March, noticed a lump on my neck in the Spring and had a scan and biopsy. Scan showed a 'patchy' thyroid
Hi all, I'm having a bit of a hard time mentally and seem to have lots of little niggling symptoms that I'm not sure are related to the thyroid or are stress/anxiety related. Briefly, I gave birth last March, noticed a lump on my neck in the Spring and had a scan and biopsy. Scan showed a 'patchy' thyroid
Fredthedog
in
Thyroid UK
4 years ago
Leflunomide and PMR
Hello everyone, This is my first post to your informative PMR community . My story of PMR is really no different to everyone else in a way. Although I do respect we are all very different ,and our management skills of this dreadful disease in unique to each individual. My PMR journey started 17 months
Hello everyone, This is my first post to your informative PMR community . My story of PMR is really no different to everyone else in a way. Although I do respect we are all very different ,and our management skills of this dreadful disease in unique to each individual. My PMR journey started 17 months
golfnutter
in
PMRGCAuk
4 years ago
Hopeful but still keeping fingers crossed!
I am today posting, to give hope to others on tapering plans! After 4 years of first GCA followed by two bouts of PMR, my third attempt of tapering , continues to be promising. I chalk off a new week every Wednesday on my calendar and I have reached the ten week mark. That is ten weeks of no prednisolone
I am today posting, to give hope to others on tapering plans! After 4 years of first GCA followed by two bouts of PMR, my third attempt of tapering , continues to be promising. I chalk off a new week every Wednesday on my calendar and I have reached the ten week mark. That is ten weeks of no prednisolone
DevonMichael
in
PMRGCAuk
4 years ago
Calcium
Since adopting a vegan diet I've thought a lot of how to ensure adequate nutrients but one I've overlooked is calcium. I see the NHS guideline is 700mg a day. How do we ensure we get that?
Since adopting a vegan diet I've thought a lot of how to ensure adequate nutrients but one I've overlooked is calcium. I see the NHS guideline is 700mg a day. How do we ensure we get that?
willsie01
in
Vegan Foods for Life
4 years ago
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