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Trigger (Not only fools and horses)
I have been trying for months to establish a trigger that sets off attacks of AF. I’m lucky at present that I’m only on blood pressure and anti coagulative medication as the attacks are short lived and are around every two to three weeks. I realise that they will increase over time which is similar
I have been trying for months to establish a trigger that sets off attacks of AF. I’m lucky at present that I’m only on blood pressure and anti coagulative medication as the attacks are short lived and are around every two to three weeks. I realise that they will increase over time which is similar
Firstbusman
in
AF Association
3 years ago
Testing if I am post menopausal
I was DX in august 2017 with primary BC er/pr positive and HERS negative. In August 2018 I had my MBC DX and went on to zoladex monthly / letrozole and Ibrance. All stable scans. And considerable decrease. The ONC suggested I stop zoladex and letrozole for 5 weeks to do a blood test to see if I am post
I was DX in august 2017 with primary BC er/pr positive and HERS negative. In August 2018 I had my MBC DX and went on to zoladex monthly / letrozole and Ibrance. All stable scans. And considerable decrease. The ONC suggested I stop zoladex and letrozole for 5 weeks to do a blood test to see if I am post
TE53_67
in
SHARE Metastatic Breast Cancer
3 years ago
Ibrance letrozole along with T.B medicine
My mother has started ibrance and letrozole combo for past 2 months.she jas mbc in lungs.she has been diagnosed with T.B as well.will Tuberclosis medicine effect the ibrance
My mother has started ibrance and letrozole combo for past 2 months.she jas mbc in lungs.she has been diagnosed with T.B as well.will Tuberclosis medicine effect the ibrance
fine1
in
SHARE Metastatic Breast Cancer
3 years ago
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Abnormal ecg
Hi everyone, I have been having a few symptoms, which I’ve posted about previously - tight chested, lightheaded, dizzy and feeling like I’m not getting enough air. Today the dr wanted an ecg to be done, it was done by a nurse who then took the results to be looked at by the dr. When she came back
Hi everyone, I have been having a few symptoms, which I’ve posted about previously - tight chested, lightheaded, dizzy and feeling like I’m not getting enough air. Today the dr wanted an ecg to be done, it was done by a nurse who then took the results to be looked at by the dr. When she came back
Knic
in
Anxiety Support
3 years ago
Any advice
After 2 years of telling my doctor that I was experiencing "palpations", I had a 24 hours ecg just before Christmas. This led to my gp rining me to tell me I had PAF. I was prescribed Apixaban 5mg and bisoprolol 1.25 my. Had a very short telephone conversation with a consultant who said the results of
After 2 years of telling my doctor that I was experiencing "palpations", I had a 24 hours ecg just before Christmas. This led to my gp rining me to tell me I had PAF. I was prescribed Apixaban 5mg and bisoprolol 1.25 my. Had a very short telephone conversation with a consultant who said the results of
Trimley
in
AF Association
3 years ago
How much time before CA 27.29 goes down after starting ibrance?
I am starting ibrance next week. If you have ever taken ibrance, how long did it take for your tumor markers to decrease? My oncologist measures tumor markers by using CA 27.29; my level is currently over 9000.
I am starting ibrance next week. If you have ever taken ibrance, how long did it take for your tumor markers to decrease? My oncologist measures tumor markers by using CA 27.29; my level is currently over 9000.
PDD2MOM1
in
SHARE Metastatic Breast Cancer
3 years ago
Excessive hunger
Hello all, I’m currently on Ibrance and Tomoxifen. I was switched to these drugs after stomach mets was discovered. It seems I am constantly hungry. Does anyone else have this feeling? Thanks!
Hello all, I’m currently on Ibrance and Tomoxifen. I was switched to these drugs after stomach mets was discovered. It seems I am constantly hungry. Does anyone else have this feeling? Thanks!
Nocillo
in
SHARE Metastatic Breast Cancer
3 years ago
Experience with Lynparza?
First off, thanks to all the amazing women in this community. I have learned so much about the disease and the amazing stories of courage and perseverance. Very inspiring. This is my first post, I apologize in advance if I ramble. It is my 84 year old father dealing with MBC and I am along for the ride
First off, thanks to all the amazing women in this community. I have learned so much about the disease and the amazing stories of courage and perseverance. Very inspiring. This is my first post, I apologize in advance if I ramble. It is my 84 year old father dealing with MBC and I am along for the ride
Greenwhite63
in
SHARE Metastatic Breast Cancer
3 years ago
Oral SERD trial - 1st result
When Ibrance and Fulvestrant stopped working -- 2 new mets, and old one avid -- I went into a clinical trial for an oral SERD (same mechanism as Fulvestrant, blocking estrogen receptors). The one I am on is put out by Zeno Pharmaceuticals; trial is called n-c5-0001. I take a daily capsule on empty stomach
When Ibrance and Fulvestrant stopped working -- 2 new mets, and old one avid -- I went into a clinical trial for an oral SERD (same mechanism as Fulvestrant, blocking estrogen receptors). The one I am on is put out by Zeno Pharmaceuticals; trial is called n-c5-0001. I take a daily capsule on empty stomach
TammyCross
in
SHARE Metastatic Breast Cancer
3 years ago
After exercise
My normal resting heart rate is around 65. When I exercise (cycle) it will go to around 155. However once I finish my ride my heart rate will stay around 80 to 90 for hours with my heart feeling jumpy. I wouldn't say I'm pushing it very hard when riding but I feel I'm getting a workout. I'm 54 had
My normal resting heart rate is around 65. When I exercise (cycle) it will go to around 155. However once I finish my ride my heart rate will stay around 80 to 90 for hours with my heart feeling jumpy. I wouldn't say I'm pushing it very hard when riding but I feel I'm getting a workout. I'm 54 had
chris45558
in
AF Association
3 years ago
Verenzio, high vitamin B12? , hair thinning . Bone mets healed .
I take Verzenio, seems I’m the only one , everyone on ibrance . My vitamin B12 says >2000 scary . I take 1000 daily , that’s all . I have ER/PR positive metastatic to bones only . My pet said no sign of recurrence or metastatic disease . I asked onc if I’m in remission, he said partial 🙄
I take Verzenio, seems I’m the only one , everyone on ibrance . My vitamin B12 says >2000 scary . I take 1000 daily , that’s all . I have ER/PR positive metastatic to bones only . My pet said no sign of recurrence or metastatic disease . I asked onc if I’m in remission, he said partial 🙄
Ycats277
in
SHARE Metastatic Breast Cancer
3 years ago
Non-standard Ibrance schedule
Hi everyone, Great forum and so happy I found it! I was diagnosed with MBC in my liver last summer, 19+ years after initial diagnosis Stage IIB, bilateral mastectomy, chemo, and radiation. WTF??? I had surgery to remove tumor and have no other mets that they can find . Anyway, started Ibrance in October
Hi everyone, Great forum and so happy I found it! I was diagnosed with MBC in my liver last summer, 19+ years after initial diagnosis Stage IIB, bilateral mastectomy, chemo, and radiation. WTF??? I had surgery to remove tumor and have no other mets that they can find . Anyway, started Ibrance in October
MoUtOrWaNc
in
SHARE Metastatic Breast Cancer
3 years ago
Ibrance effectiveness
Curious to know how long Ibrance has (or had) been effective for you.
Curious to know how long Ibrance has (or had) been effective for you.
JustmeMary
in
SHARE Metastatic Breast Cancer
3 years ago
PAF, Propranolol and Apixaban
The EP has suggested Propranolol twice a day alongside my Apixaban and Carvedilol . I’ve been have an increase in PAF episodes . However, the GP has warned me of an increased bleed risk because of the interaction with Apixaban . Also, the propranolol can cause QT elongation which is dangerous and can
The EP has suggested Propranolol twice a day alongside my Apixaban and Carvedilol . I’ve been have an increase in PAF episodes . However, the GP has warned me of an increased bleed risk because of the interaction with Apixaban . Also, the propranolol can cause QT elongation which is dangerous and can
kalgs
in
AF Association
3 years ago
Need Advice, numbness on right side of body...
Hi Everyone, Its been a while since I lasted posted. I need everyone’s advice and knowledge. I have been on 125 Ibrance, Faslodex injections monthly, and Zometa infusions monthly since October of last year. Scans have showed the meds are working and tumors in my spine have calcified over. However, I
Hi Everyone, Its been a while since I lasted posted. I need everyone’s advice and knowledge. I have been on 125 Ibrance, Faslodex injections monthly, and Zometa infusions monthly since October of last year. Scans have showed the meds are working and tumors in my spine have calcified over. However, I
Julielovescats
in
SHARE Metastatic Breast Cancer
3 years ago
Calf pain
Hi ladies. Does anyone have lower calf pain from ibrance or faslodex? This is new for me after 4 years but it’s really bothering me. It’s in both legs. Thanks. Marianne
Hi ladies. Does anyone have lower calf pain from ibrance or faslodex? This is new for me after 4 years but it’s really bothering me. It’s in both legs. Thanks. Marianne
marianne88
in
SHARE Metastatic Breast Cancer
3 years ago
Then what?
Hi all, As you may remember, I had SBRT to my liver for two lesions last month. After the 2 week holding period, I started Verzenio. Due to extreme side effects, I took a 3 day break and went down from 200mg 2x per day to one 200mg tablet every 18 hours. I continue to have upper right quadrant pain
Hi all, As you may remember, I had SBRT to my liver for two lesions last month. After the 2 week holding period, I started Verzenio. Due to extreme side effects, I took a 3 day break and went down from 200mg 2x per day to one 200mg tablet every 18 hours. I continue to have upper right quadrant pain
Arisgram
in
SHARE Metastatic Breast Cancer
3 years ago
Oygavyx Problem?
My QT interval was 488ms (over 480 indicates problem) and my EKG showed a LBBB (Left
Branch
Bundle
Block
) which also indicates a problem. I have not been monitoring EKG much and was unaware of any signs of a problem. So I stopped Orgavyx per MO direction and will retake EKG after a week.
My QT interval was 488ms (over 480 indicates problem) and my EKG showed a LBBB (Left
Branch
Bundle
Block
) which also indicates a problem. I have not been monitoring EKG much and was unaware of any signs of a problem. So I stopped Orgavyx per MO direction and will retake EKG after a week.
NecessarilySo
in
Advanced Prostate Cancer
3 years ago
Give me a break!
So after contracting shingles in the eye over 4 & 1/2 months ago I’m still suffering with post herpetic neuralgia. Tried all sorts of drugs and a nerve block injection and nothing has helped. Initially the hospital upped my steroids from 12mg I was on to 25mg as they weren’t sure if it was GCA. After
So after contracting shingles in the eye over 4 & 1/2 months ago I’m still suffering with post herpetic neuralgia. Tried all sorts of drugs and a nerve block injection and nothing has helped. Initially the hospital upped my steroids from 12mg I was on to 25mg as they weren’t sure if it was GCA. After
Griggser
in
PMRGCAuk
3 years ago
Treatments for Erythromelalgia
Hello, Community. I have Lupus, severe Raynaud's and a long history of secondary erythromelalgia of my feet. It has got steadily worse over the last few years and the persistent effects are now deemed to be ischaemia reperfusion injury. It is much worse when the weather is hot or I have been walking
Hello, Community. I have Lupus, severe Raynaud's and a long history of secondary erythromelalgia of my feet. It has got steadily worse over the last few years and the persistent effects are now deemed to be ischaemia reperfusion injury. It is much worse when the weather is hot or I have been walking
skylark15
in
Scleroderma & Raynaud's UK (SRUK)
3 years ago
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