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Strange immune system bloods
My wife has SLE plus a host of other nasty stuff but recently we had IGg sub class bloods done which revealed : Low : IGg 3 and low IGg 4 the rest normal Low but just normal IGg IGm IGA She has always had low c3 and high c4 complements. Grateful for any thoughts or suggestions
My wife has SLE plus a host of other nasty stuff but recently we had IGg sub class bloods done which revealed : Low : IGg 3 and low IGg 4 the rest normal Low but just normal IGg IGm IGA She has always had low c3 and high c4 complements. Grateful for any thoughts or suggestions
jimbo1605
in
LUPUS UK
5 years ago
Encouraging fibroscan and elastography results
Hi my friends, I wanted to share some good results I’ve had - and not just encouraging for me I hope, because I think this shows once more that it’s possible to remain stable for decades. I’ve just had my fibroscan and shear wave elastography results, and they’re still in normal range 17 years after
Hi my friends, I wanted to share some good results I’ve had - and not just encouraging for me I hope, because I think this shows once more that it’s possible to remain stable for decades. I’ve just had my fibroscan and shear wave elastography results, and they’re still in normal range 17 years after
Skypony
in
PBC Foundation
5 years ago
Immunoglobulin levels improved at last (after 19 months on Ibrutinib)
After 19 months on Ibrutinib, I was delighted to hear that my immunoglobuins have improved. IgG and IgM are now within normal ranges, and IgA isn’t far off. They were all much lower in the past, so I am very pleased, and thought it worthy of sharing. Makes a change to have some good news. In England
After 19 months on Ibrutinib, I was delighted to hear that my immunoglobuins have improved. IgG and IgM are now within normal ranges, and IgA isn’t far off. They were all much lower in the past, so I am very pleased, and thought it worthy of sharing. Makes a change to have some good news. In England
PaulaS
Volunteer
in
CLL Support
5 years ago
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Confused newbe re: low iron.
The hemotologist reported that if the next lab isn't good, it may be time to look at bone marrow because that's 'where the blood is formed'. But you all are talking about b12 and other things. 8/30/18 gastro doctor: mcv 75 and mch 24 ((low) and rdw 16.3 (high). 9/7 immune doctor: igg 1,2,3, and 4
The hemotologist reported that if the next lab isn't good, it may be time to look at bone marrow because that's 'where the blood is formed'. But you all are talking about b12 and other things. 8/30/18 gastro doctor: mcv 75 and mch 24 ((low) and rdw 16.3 (high). 9/7 immune doctor: igg 1,2,3, and 4
Lynne0762
in
Pernicious Anaemia Society
5 years ago
Immunoglobulin results - lowered IgM in isolation
Hello everyone Hoping you are all as well as can be expected. I had my appointment at the Brompton and they have diagnosed small airways problems and did a ton of blood tests. Everything is in the average range apart from a strange anomaly of low IgM which is apparently rare and can indicate immune problems
Hello everyone Hoping you are all as well as can be expected. I had my appointment at the Brompton and they have diagnosed small airways problems and did a ton of blood tests. Everything is in the average range apart from a strange anomaly of low IgM which is apparently rare and can indicate immune problems
Hellodolly
in
Lung Conditions Community Forum
5 years ago
IGm, CLL, Amyloidosis and Polyneuropathy
I’m at hospital again today, waiting in line to see my cardiologist to discuss my recently diagnosed Amyloidosis. Same time last week I was with my Oncologist discussing CLL and the week before that my Neurologist discussing my Polyneuropathy. Is it a stretch of the imagination that everything is related
I’m at hospital again today, waiting in line to see my cardiologist to discuss my recently diagnosed Amyloidosis. Same time last week I was with my Oncologist discussing CLL and the week before that my Neurologist discussing my Polyneuropathy. Is it a stretch of the imagination that everything is related
Kods
in
CLL Support
5 years ago
Help for Lymphoplasmacytic Lymphoma (LPL)
Anyone out there been diagnosed with Lymphoplasmacytic lymphoma ... a bone marrow and lymph circulating IGM blood cancer? I'm trying to do as much as I can naturally - already been thru 4 Rituxan infusions May 2018 and now blood results (IGM going up again, hemoglobin going down, WBC very low at 1.5
Anyone out there been diagnosed with Lymphoplasmacytic lymphoma ... a bone marrow and lymph circulating IGM blood cancer? I'm trying to do as much as I can naturally - already been thru 4 Rituxan infusions May 2018 and now blood results (IGM going up again, hemoglobin going down, WBC very low at 1.5
heal11purple
in
CLL Support
5 years ago
No CRP response, raised IgM
I have been seeing my rheumatologist since August 2017 and I have a working diagnosis of Behçet’s. I was started on colchicine which I tolerated for 5 months before having to stop due to severe gastric symptoms and weight loss. I was started on Imuran at the start of January and recently had my dose
I have been seeing my rheumatologist since August 2017 and I have a working diagnosis of Behçet’s. I was started on colchicine which I tolerated for 5 months before having to stop due to severe gastric symptoms and weight loss. I was started on Imuran at the start of January and recently had my dose
Jacbar
in
Behçet's UK
5 years ago
Lupus Anticoagulant query-part 3!
Several of you were helpful enough to comment on my previous posts, where my rheum had dismissed by two positive LA results, as I don’t have a history of clotting. I do have a history of extreme fatigue, increasingly bad headaches, eye problems, skin rashes, Yada yada yada. Anyway, long story short I
Several of you were helpful enough to comment on my previous posts, where my rheum had dismissed by two positive LA results, as I don’t have a history of clotting. I do have a history of extreme fatigue, increasingly bad headaches, eye problems, skin rashes, Yada yada yada. Anyway, long story short I
Chris1802p
in
Hughes Syndrome APS Forum
5 years ago
Physical symptoms of depression?
Hello everyone. I’d really appreciate if you would take the time to read my story. I wonder if anyone has been through the same and if you’ve learnt something after this (and if so please do tell). I’m a 21 year old male. About 6 years ago I remember being bothered by strange symptoms. I would wake
Hello everyone. I’d really appreciate if you would take the time to read my story. I wonder if anyone has been through the same and if you’ve learnt something after this (and if so please do tell). I’m a 21 year old male. About 6 years ago I remember being bothered by strange symptoms. I would wake
WK1010
in
Anxiety and Depression Support
5 years ago
These are symptoms of...???
Hello everyone. I’d really appreciate if you would take the time to read my story. I wonder if anyone has been through the same and if you’ve learnt something after this (and if so please do tell). I’m a 21 year old male. About 6 years ago I remember being bothered by strange symptoms. I would wake
Hello everyone. I’d really appreciate if you would take the time to read my story. I wonder if anyone has been through the same and if you’ve learnt something after this (and if so please do tell). I’m a 21 year old male. About 6 years ago I remember being bothered by strange symptoms. I would wake
WK1010
in
Fibromyalgia Action UK
5 years ago
3 lots of APS results GP doesn't understand them - pls help.
Hi everyone, I've been tested for APS since August 2018. My symptoms scream of APS. After finally getting 3 lots of results 12 weeks apart I'm at a dead end. I don't understand them. My GP didn't either and has suggested another round of bloods in 12 weeks. I'll post here what I have hoping that you
Hi everyone, I've been tested for APS since August 2018. My symptoms scream of APS. After finally getting 3 lots of results 12 weeks apart I'm at a dead end. I don't understand them. My GP didn't either and has suggested another round of bloods in 12 weeks. I'll post here what I have hoping that you
Mirandarr
in
Hughes Syndrome APS Forum
5 years ago
New here
Hi, I haven't been officially diagnosed and am waiting for the Rheumatologist to review my file and results. I am unsure if this is the right group but I joined to learn more from all of you and to share and ask for advice. Little bit about myself, I have Graves disease post RAI as well as high antibodies
Hi, I haven't been officially diagnosed and am waiting for the Rheumatologist to review my file and results. I am unsure if this is the right group but I joined to learn more from all of you and to share and ask for advice. Little bit about myself, I have Graves disease post RAI as well as high antibodies
JennaShi
in
Hughes Syndrome APS Forum
5 years ago
Searching for a diagnosis (DESPERATELY) Please helpppp.... Is B12 deficiency / PA possible with these blood tests??? NEW HERE
Hi All, I’m new on here and can’t believe just how brilliant this forum is so thanks for having me!!! (Apologies for the lengthy post). I am a 29-year-old male that has had to return recently from Australia where I’ve been working for 8 years because of my undiagnosed illness, and am living with my
Hi All, I’m new on here and can’t believe just how brilliant this forum is so thanks for having me!!! (Apologies for the lengthy post). I am a 29-year-old male that has had to return recently from Australia where I’ve been working for 8 years because of my undiagnosed illness, and am living with my
Health1989
in
Pernicious Anaemia Society
5 years ago
Searching for a diagnosis (DESPERATELY) Please helpppp.... Is Hypothyroid possible with these blood tests??? NEW HERE
Hi All, I’m new on here and can’t believe just how brilliant this forum is so thanks for having me!!! (Apologies for the lengthy post). I am a 29-year-old male that has had to return recently from Australia where I’ve been working for 8 years because of my undiagnosed illness, and am living with my
Hi All, I’m new on here and can’t believe just how brilliant this forum is so thanks for having me!!! (Apologies for the lengthy post). I am a 29-year-old male that has had to return recently from Australia where I’ve been working for 8 years because of my undiagnosed illness, and am living with my
Health1989
in
Thyroid UK
5 years ago
APS - pregnancy loss with treatment - advice moving forward
Hi Everyone I’m new and so glad I came across this group on Health Unlocked. I’m looking for some advice/support/others that have experienced what I have. I had an obstetric APS diagnosis last May after 2 miscarriages at 8-9 weeks in July & Nov 2017. (I have a 4yo son too & that pregnancy went fine
Hi Everyone I’m new and so glad I came across this group on Health Unlocked. I’m looking for some advice/support/others that have experienced what I have. I had an obstetric APS diagnosis last May after 2 miscarriages at 8-9 weeks in July & Nov 2017. (I have a 4yo son too & that pregnancy went fine
Hollyhughes
in
Hughes Syndrome APS Forum
6 years ago
IGG APS / IGM NOT. HELP
Hi all Recently diagnosed by stroke doc. anticardiolipin igm 132.8 anti-b2GP1 igm 121.9 lupus anticoagulant positive on two occasions. so triple positave? platelets 142 saw a Rhumy. yesterday she said igm does not count for aps so only one out of three, take an aspirin goodbye, not interested in any
Hi all Recently diagnosed by stroke doc. anticardiolipin igm 132.8 anti-b2GP1 igm 121.9 lupus anticoagulant positive on two occasions. so triple positave? platelets 142 saw a Rhumy. yesterday she said igm does not count for aps so only one out of three, take an aspirin goodbye, not interested in any
dexters
in
Hughes Syndrome APS Forum
6 years ago
Ivig therapy
Just came from the drs office. My iGg levels dropped again to IGM 21, IGA 27, IGG 213 Dr wants to start replacement therapy:(. He also started talking about me having MONOCLONAL B-cell lymphocytisos. Is that a precursor to cll which I was originally diagnosed with? My white blood cell count has remained
Just came from the drs office. My iGg levels dropped again to IGM 21, IGA 27, IGG 213 Dr wants to start replacement therapy:(. He also started talking about me having MONOCLONAL B-cell lymphocytisos. Is that a precursor to cll which I was originally diagnosed with? My white blood cell count has remained
Downriver555
in
CLL Support
6 years ago
Indeterminate
I have been tested for aps 4 times throughout the past 6 years , everything is negative besides the igm which always comes back as indeterminate ranging from 13-17. My Endo says they are not concerned and there is no risk , I was wondering if anyone had any insight on repeated indeterminate igm results
I have been tested for aps 4 times throughout the past 6 years , everything is negative besides the igm which always comes back as indeterminate ranging from 13-17. My Endo says they are not concerned and there is no risk , I was wondering if anyone had any insight on repeated indeterminate igm results
Phoenix-Fire
in
Hughes Syndrome APS Forum
6 years ago
My A.P.S. journey
Hi i am a 62 year old male from South Wales UK tee total ex smoker mild COPD dodgy back otherwise healthy. Retired Jan 2015 walked Dexter the whippet 6 days a week potched in garden drive around Brecon etc. had some jobs done on house wife and i generally having fun. Sept.2016 started having head aches
Hi i am a 62 year old male from South Wales UK tee total ex smoker mild COPD dodgy back otherwise healthy. Retired Jan 2015 walked Dexter the whippet 6 days a week potched in garden drive around Brecon etc. had some jobs done on house wife and i generally having fun. Sept.2016 started having head aches
dexters
in
Hughes Syndrome APS Forum
6 years ago
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