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If you want to learn about CLL text or video
The following is a long list of links and resources, too many to read and understand without dedicated effort. So please treat it like a smorgasbord buffet or a large box of chocolates- choose some that look good and try a sample. If the sample is satisfying go back for more, if not move on to others
The following is a long list of links and resources, too many to read and understand without dedicated effort. So please treat it like a smorgasbord buffet or a large box of chocolates- choose some that look good and try a sample. If the sample is satisfying go back for more, if not move on to others
lankisterguy
Volunteer
in
CLL Support
4 years ago
How AHT applies to PD
I first used AHT as an experiment in my veterinary practice. Then once I developed health concerns I started using AHT on myself. Three years ago I was dx'd with MS. Then later was dx'd with antiphospholipid enzyme syndrome, a lupus-like disease, and lastly dx'd with PD. There's not much in the
I first used AHT as an experiment in my veterinary practice. Then once I developed health concerns I started using AHT on myself. Three years ago I was dx'd with MS. Then later was dx'd with antiphospholipid enzyme syndrome, a lupus-like disease, and lastly dx'd with PD. There's not much in the
kaypeeoh
in
Cure Parkinson's
4 years ago
A little confused and worried.... any advice appreciated
So last month I attended my rheumatology appointment for my fibromyalgia, at my appointment the dr suspected I might have Lupus and sent me off for lots of tests. Everything come back normal apart from Igm levels which were very low, so my immune system is not what it should be. Now because I haven’t
So last month I attended my rheumatology appointment for my fibromyalgia, at my appointment the dr suspected I might have Lupus and sent me off for lots of tests. Everything come back normal apart from Igm levels which were very low, so my immune system is not what it should be. Now because I haven’t
Justmesarah-
in
LUPUS UK
4 years ago
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Are Lung Clinics Secretly Doing Coronavirus Test On Out Patients
I went to lung clinic and over last year doctors not really been intrested even asked about antibody test YET checked nothing BUT this year go and I knew as going during coronavirus Outbreak they would probably do blood test. Not sure of what they look at SO just to be extra I was going to tell em
I went to lung clinic and over last year doctors not really been intrested even asked about antibody test YET checked nothing BUT this year go and I knew as going during coronavirus Outbreak they would probably do blood test. Not sure of what they look at SO just to be extra I was going to tell em
Hidden
in
Lung Conditions Community Forum
4 years ago
Am I in the clear?
Hi I recently visited my rheumatologist for fibromyalgia and while I was with him he noticed my red rash on my cheeks that I’ve literally had years. He sent me off for blood tests to check for lupus, everything come back normal apart from low Igm levels. Pic attached of my said rash does it look like
Hi I recently visited my rheumatologist for fibromyalgia and while I was with him he noticed my red rash on my cheeks that I’ve literally had years. He sent me off for blood tests to check for lupus, everything come back normal apart from low Igm levels. Pic attached of my said rash does it look like
Justmesarah-
in
LUPUS UK
4 years ago
Diagnosis
Hi I recently visited my rheumatologist for fibromyalgia and while I was with him he noticed my red rash on my cheeks that I’ve literally had years. He sent me off for blood tests to check for lupus, everything come back normal apart from low Igm levels. Does this mean I’m in the clear? I do have some
Hi I recently visited my rheumatologist for fibromyalgia and while I was with him he noticed my red rash on my cheeks that I’ve literally had years. He sent me off for blood tests to check for lupus, everything come back normal apart from low Igm levels. Does this mean I’m in the clear? I do have some
Justmesarah-
in
LUPUS UK
4 years ago
Lab Report - first sight today
Last week I saw a haematologist oncologist and CLL was confirmed. The appointment lasted 5 minutes, no information offered. I've asked for the lab report. Can't make much sense of it. The red figures are: Total bilirubin serum H23 Immunoglobulin M L.0.25 WBC 14 (it was 7 in November) Lymphocyte count
Last week I saw a haematologist oncologist and CLL was confirmed. The appointment lasted 5 minutes, no information offered. I've asked for the lab report. Can't make much sense of it. The red figures are: Total bilirubin serum H23 Immunoglobulin M L.0.25 WBC 14 (it was 7 in November) Lymphocyte count
Alobs
in
CLL Support
4 years ago
Thyroid blood results querie
Hello everyone I would really appreciate thoughts on my blood results. My current symptoms are muscle and bo e aches, cognitive impairment and fatigue.My liver enzymes are high but liver scans are fine. Do you think there could be a link with these levels and hypothyroidism? I take 125 thyroxin daily
Hello everyone I would really appreciate thoughts on my blood results. My current symptoms are muscle and bo e aches, cognitive impairment and fatigue.My liver enzymes are high but liver scans are fine. Do you think there could be a link with these levels and hypothyroidism? I take 125 thyroxin daily
smilingjane
in
Thyroid UK
4 years ago
Interference From High-Dose Biotin Intake in Immunoassays for Potentially Time-Critical Analytes by Roche
This paper not only identifies and discusses biotin interference in blood test results - but also suggests specific approaches which can overcome the issue. At the time of posting, the full paper is freely accessible, albeit an Early Release version. That means, it might be updated before a final version
This paper not only identifies and discusses biotin interference in blood test results - but also suggests specific approaches which can overcome the issue. At the time of posting, the full paper is freely accessible, albeit an Early Release version. That means, it might be updated before a final version
helvella
Thyroid UK
in
Thyroid UK
5 years ago
endo appointment re thyroid
Hello everyone. I have had an under active thyroid for 30 years with just a tiny slither of gland left. On 100 ms per day Thryroxin. For the last year and a half I have felt so ill, had to stop work. Half of of the week I am bed bound. My symptoms are: Low energy/chronic fatigue, waves heat temperature
Hello everyone. I have had an under active thyroid for 30 years with just a tiny slither of gland left. On 100 ms per day Thryroxin. For the last year and a half I have felt so ill, had to stop work. Half of of the week I am bed bound. My symptoms are: Low energy/chronic fatigue, waves heat temperature
smilingjane
in
Thyroid UK
5 years ago
Diagnosed with CLL November 2019
I’m newly diagnosed. I have positive for Zap 70 and CD 38 and Trisomy 12. My CBC and BMP normal. My IGM is low at 28. Ive read and read cancer articles on Zap 70 positive and CD38 positive is a more aggressive CLL. Can someone who has these markers let me know what your oncologist is doing? I’m scheduled
I’m newly diagnosed. I have positive for Zap 70 and CD 38 and Trisomy 12. My CBC and BMP normal. My IGM is low at 28. Ive read and read cancer articles on Zap 70 positive and CD38 positive is a more aggressive CLL. Can someone who has these markers let me know what your oncologist is doing? I’m scheduled
annetxfan
in
CLL Support
5 years ago
Confused only igg 18, 39 and 41 reactive. Test results states negative.
I recently had the Western Blot test with IGG bands 18, 39 and 41 reactive. None of the IGM bands were reactive. My Ebstein bar test is also reactive. I had mono 25 years ago. Wondering if that is what caused the band to react. Wondering if I still could have Lyme . I have low b12 levels....
I recently had the Western Blot test with IGG bands 18, 39 and 41 reactive. None of the IGM bands were reactive. My Ebstein bar test is also reactive. I had mono 25 years ago. Wondering if that is what caused the band to react. Wondering if I still could have Lyme . I have low b12 levels....
CW12
in
Living with Lyme Disease UK
5 years ago
Antiphospholipid Antibodies Overlapping in Isolated Neurological Syndrome and Multiple Sclerosis: Neurobiological Insights & Diagnostic . .
Front Cell Neurosci. 2019; 13: 107.
Published online 2019 Mar 19. doi: 10.3389/fncel.2019.00107 A
ntiphospholipid Antibodies Overlapping in Isolated Neurological Syndrome and Multiple Sclerosis: Neurobiological Insights and Diagnostic Challenges
Chiara D’Angelo,1,2,3 Oriol Franch,4 Lidia
Front Cell Neurosci. 2019; 13: 107.
Published online 2019 Mar 19. doi: 10.3389/fncel.2019.00107 A
ntiphospholipid Antibodies Overlapping in Isolated Neurological Syndrome and Multiple Sclerosis: Neurobiological Insights and Diagnostic Challenges
Chiara D’Angelo,1,2,3 Oriol Franch,4 Lidia
lupus-support1
Administrator
in
LUpus Patients Understanding and Support
5 years ago
Hughes syndrome antiphospholipid syndrome
REVIEW ARTICLE Year : 2018 | Volume : 11 | Issue : 4 | Page : 169-174 Hughes syndrome antiphospholipid syndrome Graham Robert Vivian Hughes The London Lupus Centre, London Bridge Hospital, London, England, UK Date of Web Publication9-Nov-2018 Correspondence Address: Prof. Graham Robert Vivian
REVIEW ARTICLE Year : 2018 | Volume : 11 | Issue : 4 | Page : 169-174 Hughes syndrome antiphospholipid syndrome Graham Robert Vivian Hughes The London Lupus Centre, London Bridge Hospital, London, England, UK Date of Web Publication9-Nov-2018 Correspondence Address: Prof. Graham Robert Vivian
lupus-support1
Administrator
in
LUpus Patients Understanding and Support
5 years ago
"Sticky Blood" - Antiphospholipid Syndrome, POTS, Chronic Fatigue Syndrome and Fibromyalgia - The Dysautonomia Conference
by Cort Johnson | Aug 15, 2018 | This blog is part IV in a series of blogs covering the issues presented at the 2018 Dysautonomia International Conference in Nashville, Tennessee. APS and POTS and ME/CFS This is the fourth blog on issues presented in the 2018 Dysautonomia International Conference.
by Cort Johnson | Aug 15, 2018 | This blog is part IV in a series of blogs covering the issues presented at the 2018 Dysautonomia International Conference in Nashville, Tennessee. APS and POTS and ME/CFS This is the fourth blog on issues presented in the 2018 Dysautonomia International Conference.
lupus-support1
Administrator
in
LUpus Patients Understanding and Support
5 years ago
Interference of anti-streptavidin antibodies in immunoassays: a very rare phenomenon or a more common finding?
The issue with biotin interfering with blood tests has been much discussed. Now a paper which suggests that interference by anti-streptavidin antibodies is more common than thought. Unfortunately, whereas with biotin we can do something (stop taking biotin for a few days before a test), with these
The issue with biotin interfering with blood tests has been much discussed. Now a paper which suggests that interference by anti-streptavidin antibodies is more common than thought. Unfortunately, whereas with biotin we can do something (stop taking biotin for a few days before a test), with these
helvella
Thyroid UK
in
Thyroid UK
5 years ago
PMR, Actemra, and IgM antibodies
I was diagnosed with PMR about a year and a half ago. Started with methotrexate and plaquenil for a few months, and then started monthly Actemra infusions. I'm pretty much pain free these days, primarily because of the Actemra, I think, and I'm now getting an infusion every two months. Blood tests indicate
I was diagnosed with PMR about a year and a half ago. Started with methotrexate and plaquenil for a few months, and then started monthly Actemra infusions. I'm pretty much pain free these days, primarily because of the Actemra, I think, and I'm now getting an infusion every two months. Blood tests indicate
grandemr
in
PMRGCAuk
5 years ago
Immunity Issues AND Coming Clean Re Lung Diease
How convenient is symptomatic condition AND how heard is it really to DX immunity issues given blood test indevidules under go in life time. Here IS good ilastration of ❄️ Snowballing condition. I don’t know about you but don’t think I was ever told immunity issues could do cause bronchiectasis. Guess
How convenient is symptomatic condition AND how heard is it really to DX immunity issues given blood test indevidules under go in life time. Here IS good ilastration of ❄️ Snowballing condition. I don’t know about you but don’t think I was ever told immunity issues could do cause bronchiectasis. Guess
Hidden
in
Lung Conditions Community Forum
5 years ago
Hai
Can aps syndrome patient have positive ANA test......and symptoms free of lupus so that why am asking question is .....in 2013 am diagnosed with acL igm positive and ANA positive....am on warfarin therapy up to now....am asking doctor what was ana positive mean I have lupus....they said u r symptoms
Can aps syndrome patient have positive ANA test......and symptoms free of lupus so that why am asking question is .....in 2013 am diagnosed with acL igm positive and ANA positive....am on warfarin therapy up to now....am asking doctor what was ana positive mean I have lupus....they said u r symptoms
bhaskar2boda
in
Hughes Syndrome APS Forum
5 years ago
Help with Hughes/Aps and Symptoms
I have had a long battle with my health and was diagnosed with The big 3 By Prof Hughes (Lupus, sjrogens , Hughes) + Hashimoto's a while ago although he retired and I went to see another doctor that discounted his diagnosis, my results were as follows:- 3 x positive Anti Cardiolipin Ab's Anti Beta 2
I have had a long battle with my health and was diagnosed with The big 3 By Prof Hughes (Lupus, sjrogens , Hughes) + Hashimoto's a while ago although he retired and I went to see another doctor that discounted his diagnosis, my results were as follows:- 3 x positive Anti Cardiolipin Ab's Anti Beta 2
sloppydog
in
Hughes Syndrome APS Forum
5 years ago
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